Opening of the international genomic medicine symposium in Hong Kong, convened by HK Genome Institute, Rare Diseases International and the Lancet Commission on Rare Diseases. @phgfoundation.bsky.social colleagues and senior fellows among international audience for this significant milestone event.

Putting mitochondrial donation in context -- some thoughts on the publication of NEJM papers on pronuclear transfer at Newcastle: www.linkedin.com/posts/peter-...

We all want good health. But that does not mean that there is one thing we all want...

Comments on #personalisedhealth in the context of our current @phgfoundation.bsky.social campaign and the #NHS #10yearplan:
www.linkedin.com/posts/peter-...

👋 The PROPHET.EU #public #consultation has just been launched

This public consultation aims to collect feedback on the full draft version of the Strategic Research and Innovation Agenda (#SRIA) and related #Roadmap.

🗓️ 26 June - 16 July
🔎 Participation is open to everyone

🔗

We are recruiting a senior policy analyst with expertise/interest in law, ethics and policy for genomics, data and related health applications. If that could be you take a look: www.phgfoundation.org/vacancies/

Special edition of The CRISPR Journal now online to coincide with the International Summit on Genome Editing: www.liebertpub.com/toc/crispr/0/0

Day 1 of the international summit on genome editing: as well as a stellar opening panel (Jasanoff w/ Baylis, Church, Cohen, Williams) we’ve already had bioethics in the medium of dance (Pigeonwing Dance Company) and a screening of ‘unspeakable conversations’ w/ O’Reilly (playwright) in conversation.

Talking with a range of professionals in relevant fields the PHG Foundation Humanities team is examining trends and challenges in health AI governance. www.phgfoundation.org/blog/first-d...

➕ Lots more on AI from the University of Cambridge www.cam.ac.uk/ai
#shapingAIforeveryone

Much reaction has focussed on data security. Some on the value of research resources. The issue of how to square the ideals of a global republic of science with technonationalism got less attention. A major concern is that the shrill reporting undermines confidence in research participation.

Federal advisory panel on ethical, legal issues in human health research disbanded: SACHRP panel provided guidance to HHS for more than two decades www.statnews.com/2025/04/03/h... via @statnews.com

Published today: Optimising EXome PREnatal Sequencing Service (EXPRESS) policy report. Findings and policy recommendations for service delivery at:
www.phgfoundation.org/publications...
#prenatalcare @cambridge-scm.bsky.social @ox.ac.uk @england.nhs.uk @cambridgebrc.bsky.social @nihr.bsky.social

Organicism has just been biding its time. I had the pleasure of attending this lecture live but I am recommending the recording to all my colleagues.

We've set out our strategic direction and priorities for 2025-30 in a new @phgfoundation.bsky.social publication. In a related post I describe where I think efforts to 'make science work for health' have brought us and what PHG's role can be: www.phgfoundation.org/blog/policy-...

Heat, Health and Human Genetics - if you’re following #COP28  and are interested in the effects of climate change on human health you should read our new @PHGFoundation report published this week: phgfoundation.org/report/heat-...