Penn FTD Center
@pennftdc.bsky.social
The University of Pennsylvania Frontotemporal Degeneration Center
linktr.ee/pennftdcenter
linktr.ee/pennftdcenter
Recap the highlights of 2025 with the Penn FTD Center! 🌟
We are wishing you and your loved ones a wonderful holiday season and can't wait to see what 2026 brings!
We are wishing you and your loved ones a wonderful holiday season and can't wait to see what 2026 brings!
December 19, 2025 at 4:14 PM
Recap the highlights of 2025 with the Penn FTD Center! 🌟
We are wishing you and your loved ones a wonderful holiday season and can't wait to see what 2026 brings!
We are wishing you and your loved ones a wonderful holiday season and can't wait to see what 2026 brings!
📰 Are you subscribed to the Penn FTD Center newsletter?
Use the link in our bio to stay up to date on our latest updates, educational events, and research advancements!
Use the link in our bio to stay up to date on our latest updates, educational events, and research advancements!
December 15, 2025 at 3:22 PM
📰 Are you subscribed to the Penn FTD Center newsletter?
Use the link in our bio to stay up to date on our latest updates, educational events, and research advancements!
Use the link in our bio to stay up to date on our latest updates, educational events, and research advancements!
Penn FTD Center Staff Highlight 🌟
Emily Xie is the Penn FTD Center Clinical Research Project Manager. Emily’s focus lies in coordinating research operations to support both participants and research team.
📍Read more details on Emily in the blog post at the link in our bio!
Emily Xie is the Penn FTD Center Clinical Research Project Manager. Emily’s focus lies in coordinating research operations to support both participants and research team.
📍Read more details on Emily in the blog post at the link in our bio!
December 10, 2025 at 3:21 PM
Penn FTD Center Staff Highlight 🌟
Emily Xie is the Penn FTD Center Clinical Research Project Manager. Emily’s focus lies in coordinating research operations to support both participants and research team.
📍Read more details on Emily in the blog post at the link in our bio!
Emily Xie is the Penn FTD Center Clinical Research Project Manager. Emily’s focus lies in coordinating research operations to support both participants and research team.
📍Read more details on Emily in the blog post at the link in our bio!
In our December blog, Penn FTD Center Clinical Research Program and Operations Lead and Assistant Director Dahlia Kamel, MS provides some helpful tips for navigating the holiday season when a loved one is living with FTD.
Our latest blog post can be found at the link in our bio!
Our latest blog post can be found at the link in our bio!
December 9, 2025 at 6:27 PM
In our December blog, Penn FTD Center Clinical Research Program and Operations Lead and Assistant Director Dahlia Kamel, MS provides some helpful tips for navigating the holiday season when a loved one is living with FTD.
Our latest blog post can be found at the link in our bio!
Our latest blog post can be found at the link in our bio!
FTD Fact Friday: FTD that runs in a family is often related to variants (permanent changes) in certain genes. The Penn FTD Center is here to help!
📍 Check out our Support & Resources
📰 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link for more!
📍 Check out our Support & Resources
📰 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link for more!
December 5, 2025 at 3:24 PM
FTD Fact Friday: FTD that runs in a family is often related to variants (permanent changes) in certain genes. The Penn FTD Center is here to help!
📍 Check out our Support & Resources
📰 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link for more!
📍 Check out our Support & Resources
📰 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link for more!
📢Looking for the latest news from the Penn FTD Center? Want to stay up-to-date on research and trials?
Make sure you are following the Penn FTD Center on all your social platforms.
📍All of our social media accounts can be found at the link in our bio!
Make sure you are following the Penn FTD Center on all your social platforms.
📍All of our social media accounts can be found at the link in our bio!
December 4, 2025 at 2:19 PM
📢Looking for the latest news from the Penn FTD Center? Want to stay up-to-date on research and trials?
Make sure you are following the Penn FTD Center on all your social platforms.
📍All of our social media accounts can be found at the link in our bio!
Make sure you are following the Penn FTD Center on all your social platforms.
📍All of our social media accounts can be found at the link in our bio!
We understand that care management can be tough. This December Care Management Monday, we are sharing tips on managing the holidays.
📍Check out our website for more information on Support & Resources
📍Check out our website for more information on Support & Resources
December 1, 2025 at 3:17 PM
We understand that care management can be tough. This December Care Management Monday, we are sharing tips on managing the holidays.
📍Check out our website for more information on Support & Resources
📍Check out our website for more information on Support & Resources
The Penn FTD Center is here for another FTD Fact Friday! And we are here to help!
📍 Check out our Support & Resources
📃 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link for more!
📍 Check out our Support & Resources
📃 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link for more!
November 21, 2025 at 6:51 PM
The Penn FTD Center is here for another FTD Fact Friday! And we are here to help!
📍 Check out our Support & Resources
📃 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link for more!
📍 Check out our Support & Resources
📃 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link for more!
Penn FTD Center's Emma Rhodes worked alongside collaborators to publish a paper in The American Journal of Geriatric Psychiatry regarding accelerated cognitive decline in late life depression.
Read the paper using the link below 👇
www.sciencedirect.com/science/arti...
Read the paper using the link below 👇
www.sciencedirect.com/science/arti...
Accelerated Cognitive Decline in Late Life Depression: The Role of Amyloid-β, Cortico-Limbic Volume, and White Matter Hyperintensities
Late life depression (LLD) is associated with cognitive impairment and dementia, but studies of cognitive decline in LLD have been confounded by under…
www.sciencedirect.com
November 20, 2025 at 2:42 PM
Penn FTD Center's Emma Rhodes worked alongside collaborators to publish a paper in The American Journal of Geriatric Psychiatry regarding accelerated cognitive decline in late life depression.
Read the paper using the link below 👇
www.sciencedirect.com/science/arti...
Read the paper using the link below 👇
www.sciencedirect.com/science/arti...
Laynie Dratch, ScM, CGC, Penn FTD Center Genetic Counselor, presented two posters at the National Society of Genetic Counselors (NSGC) Annual Conference in Seattle, WA.
Thank you for sharing your research, Laynie!
Thank you for sharing your research, Laynie!
November 19, 2025 at 2:23 PM
Laynie Dratch, ScM, CGC, Penn FTD Center Genetic Counselor, presented two posters at the National Society of Genetic Counselors (NSGC) Annual Conference in Seattle, WA.
Thank you for sharing your research, Laynie!
Thank you for sharing your research, Laynie!
Penn FTD Center researchers recently published an article featured in Alzheimer’s & Dementia: Behavior & Socioeconomics of Aging on neighborhood deprivation in bvFTD.
Read the article below👇
alz-journals.onlinelibrary.wiley.com/doi/10.1002/...
Read the article below👇
alz-journals.onlinelibrary.wiley.com/doi/10.1002/...
Higher neighborhood deprivation is associated with accelerated disease progression in behavioral‐variant frontotemporal degeneration
INTRODUCTION Neighborhood deprivation is associated with shorter survival, cognitive impairment, and neurodegeneration in aging and Alzheimer's disease. However, the association of neighborhood depr...
alz-journals.onlinelibrary.wiley.com
November 18, 2025 at 6:31 PM
Penn FTD Center researchers recently published an article featured in Alzheimer’s & Dementia: Behavior & Socioeconomics of Aging on neighborhood deprivation in bvFTD.
Read the article below👇
alz-journals.onlinelibrary.wiley.com/doi/10.1002/...
Read the article below👇
alz-journals.onlinelibrary.wiley.com/doi/10.1002/...
Happy Genetic Counselor Appreciation Day!🧬 Today we celebrate Penn FTD Center Genetic Counselor, Laynie Dratch!
Discover more about the role of Genetic Counselors and if genetic counseling may be right for you at the link in our bio!
#geneticcounselorappreciationday
Discover more about the role of Genetic Counselors and if genetic counseling may be right for you at the link in our bio!
#geneticcounselorappreciationday
November 13, 2025 at 3:29 PM
Happy Genetic Counselor Appreciation Day!🧬 Today we celebrate Penn FTD Center Genetic Counselor, Laynie Dratch!
Discover more about the role of Genetic Counselors and if genetic counseling may be right for you at the link in our bio!
#geneticcounselorappreciationday
Discover more about the role of Genetic Counselors and if genetic counseling may be right for you at the link in our bio!
#geneticcounselorappreciationday
Penn FTD Center Staff Highlight 🌟
Cara Joyce, MPH is a Regulatory Project Manager at the Penn FTD Center for over 2 years.
📍Read more details on Cara in the blog post! Link in our bio!
Cara Joyce, MPH is a Regulatory Project Manager at the Penn FTD Center for over 2 years.
📍Read more details on Cara in the blog post! Link in our bio!
November 12, 2025 at 1:33 PM
Penn FTD Center Staff Highlight 🌟
Cara Joyce, MPH is a Regulatory Project Manager at the Penn FTD Center for over 2 years.
📍Read more details on Cara in the blog post! Link in our bio!
Cara Joyce, MPH is a Regulatory Project Manager at the Penn FTD Center for over 2 years.
📍Read more details on Cara in the blog post! Link in our bio!
The Penn FTD Center is thrilled to announce that we will be hosting our sixth annual virtual familial conference, Uncovering the Genetics of Familial FTD/ALS, on Wednesday, February 25, 2026, from 1:00PM-4:00PM EST.
Stay tuned for the registration link and additional details!
Stay tuned for the registration link and additional details!
November 11, 2025 at 4:21 PM
The Penn FTD Center is thrilled to announce that we will be hosting our sixth annual virtual familial conference, Uncovering the Genetics of Familial FTD/ALS, on Wednesday, February 25, 2026, from 1:00PM-4:00PM EST.
Stay tuned for the registration link and additional details!
Stay tuned for the registration link and additional details!
Attending the GSA Annual Scientific Meeting this week? Co-Director Lauren Massimo is collaborating with other experts to discuss how to adapt interventions to meet the needs of FTD caregivers.
🗓️ Nov 12th
⏲️ 8:00-9:30AM
📍 Hynes - Room 104
Be sure to check out this symposium!
🗓️ Nov 12th
⏲️ 8:00-9:30AM
📍 Hynes - Room 104
Be sure to check out this symposium!
November 10, 2025 at 6:34 PM
Attending the GSA Annual Scientific Meeting this week? Co-Director Lauren Massimo is collaborating with other experts to discuss how to adapt interventions to meet the needs of FTD caregivers.
🗓️ Nov 12th
⏲️ 8:00-9:30AM
📍 Hynes - Room 104
Be sure to check out this symposium!
🗓️ Nov 12th
⏲️ 8:00-9:30AM
📍 Hynes - Room 104
Be sure to check out this symposium!
Thank you to all the attendees of the 2025 Penn FTD Center Caregiver Conference! We are grateful for the opportunity to provide information and resources to our community.
Stay tuned for more information about the 2026 Penn FTD Center Familial Conference in the coming weeks!
Stay tuned for more information about the 2026 Penn FTD Center Familial Conference in the coming weeks!
November 7, 2025 at 3:22 PM
Thank you to all the attendees of the 2025 Penn FTD Center Caregiver Conference! We are grateful for the opportunity to provide information and resources to our community.
Stay tuned for more information about the 2026 Penn FTD Center Familial Conference in the coming weeks!
Stay tuned for more information about the 2026 Penn FTD Center Familial Conference in the coming weeks!
We understand that care management can be tough. This November Care Management Monday, we are sharing tips on managing habits related to hiding, hoarding, and losing things.
📍Check out our website for more information on Support & Resources
📍Check out our website for more information on Support & Resources
November 3, 2025 at 10:51 AM
We understand that care management can be tough. This November Care Management Monday, we are sharing tips on managing habits related to hiding, hoarding, and losing things.
📍Check out our website for more information on Support & Resources
📍Check out our website for more information on Support & Resources
The Penn FTD Center is here for another FTD Fact Friday! And we are here to help!
📍 Check out our Support & Resources
📃 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link for more!
📍 Check out our Support & Resources
📃 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link for more!
October 31, 2025 at 4:31 PM
The Penn FTD Center is here for another FTD Fact Friday! And we are here to help!
📍 Check out our Support & Resources
📃 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link for more!
📍 Check out our Support & Resources
📃 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link for more!
Penn FTD Center Staff Highlight 🌟
Dahlia Kamel, MS is the Penn FTD Center Clinical Research Program and Operations Lead and Assistant Director who has worked at Penn for over 6 years.
📍Read more details on Dahlia in the blog post! Link in our bio!
Dahlia Kamel, MS is the Penn FTD Center Clinical Research Program and Operations Lead and Assistant Director who has worked at Penn for over 6 years.
📍Read more details on Dahlia in the blog post! Link in our bio!
October 29, 2025 at 2:26 PM
Penn FTD Center Staff Highlight 🌟
Dahlia Kamel, MS is the Penn FTD Center Clinical Research Program and Operations Lead and Assistant Director who has worked at Penn for over 6 years.
📍Read more details on Dahlia in the blog post! Link in our bio!
Dahlia Kamel, MS is the Penn FTD Center Clinical Research Program and Operations Lead and Assistant Director who has worked at Penn for over 6 years.
📍Read more details on Dahlia in the blog post! Link in our bio!
The Penn FTD Center is here for another FTD Fact Friday! And we are here to help!
📍 Check out our Support & Resources
📃 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link for more!
📍 Check out our Support & Resources
📃 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link for more!
October 24, 2025 at 2:23 PM
The Penn FTD Center is here for another FTD Fact Friday! And we are here to help!
📍 Check out our Support & Resources
📃 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link for more!
📍 Check out our Support & Resources
📃 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link for more!
💡In Penn FTD Center’s October Research Roundup, Postdoctoral Fellow Barbara Spencer, PhD, examines how C9orf72 expansions impact the risk for developing subsequent symptoms in ALS and FTD.
Read now at the link in our bio or by visiting our website!
Read now at the link in our bio or by visiting our website!
October 23, 2025 at 2:05 PM
💡In Penn FTD Center’s October Research Roundup, Postdoctoral Fellow Barbara Spencer, PhD, examines how C9orf72 expansions impact the risk for developing subsequent symptoms in ALS and FTD.
Read now at the link in our bio or by visiting our website!
Read now at the link in our bio or by visiting our website!
The Penn FTD Center is here for another FTD Fact Friday! And we are here to help!
📍 Check out our Support & Resources
📃 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link for more!
📍 Check out our Support & Resources
📃 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link for more!
October 17, 2025 at 2:44 PM
The Penn FTD Center is here for another FTD Fact Friday! And we are here to help!
📍 Check out our Support & Resources
📃 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link for more!
📍 Check out our Support & Resources
📃 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link for more!
Register now for the 2025 Penn FTD Center’s Annual Caregiver Conference!
📆 Monday, November 3, 2025
⏱ 8am-4:30pm
📍Smilow Center for Translational Research
Click the link in our bio for the link to register for the conference!
We hope to see you in November!
📆 Monday, November 3, 2025
⏱ 8am-4:30pm
📍Smilow Center for Translational Research
Click the link in our bio for the link to register for the conference!
We hope to see you in November!
October 16, 2025 at 2:38 PM
Register now for the 2025 Penn FTD Center’s Annual Caregiver Conference!
📆 Monday, November 3, 2025
⏱ 8am-4:30pm
📍Smilow Center for Translational Research
Click the link in our bio for the link to register for the conference!
We hope to see you in November!
📆 Monday, November 3, 2025
⏱ 8am-4:30pm
📍Smilow Center for Translational Research
Click the link in our bio for the link to register for the conference!
We hope to see you in November!
FTD CRLI Ambassador Julia spoke with the LA Times to detail the changes she experienced with her husband, Marc before, during, and after his diagnosis of FTD.
Thank you, Julia, for sharing your story!
www.yahoo.com/news/article...
Thank you, Julia, for sharing your story!
www.yahoo.com/news/article...
'I lost me': How frontotemporal dementia changed a mind and a marriage
A Westlake Village man living with frontotemporal dementia has something few people with the condition do: the ability to describe his disease.
www.yahoo.com
October 15, 2025 at 2:14 PM
FTD CRLI Ambassador Julia spoke with the LA Times to detail the changes she experienced with her husband, Marc before, during, and after his diagnosis of FTD.
Thank you, Julia, for sharing your story!
www.yahoo.com/news/article...
Thank you, Julia, for sharing your story!
www.yahoo.com/news/article...
📰 Are you subscribed to the Penn FTD Center newsletter?
Use the link in our bio to stay up to date on our latest updates, educational events, and research advancements!
Use the link in our bio to stay up to date on our latest updates, educational events, and research advancements!
October 14, 2025 at 1:14 PM
📰 Are you subscribed to the Penn FTD Center newsletter?
Use the link in our bio to stay up to date on our latest updates, educational events, and research advancements!
Use the link in our bio to stay up to date on our latest updates, educational events, and research advancements!