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Penn FTD Center @pennftdc.bsky.social · 1d

We understand that care management can be tough. This November Care Management Monday, we are sharing tips on managing habits related to hiding, hoarding, and losing things.

📍Check out our website for more information on Support & Resources

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Penn FTD Center @pennftdc.bsky.social · 3d

The Penn FTD Center is here for another FTD Fact Friday! And we are here to help!

📍 Check out our Support & Resources
📃 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials

Click the website link for more!

Penn FTD Center @pennftdc.bsky.social · 5d

Penn FTD Center Staff Highlight 🌟

Dahlia Kamel, MS is the Penn FTD Center Clinical Research Program and Operations Lead and Assistant Director who has worked at Penn for over 6 years.

📍Read more details on Dahlia in the blog post! Link in our bio!

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Penn FTD Center @pennftdc.bsky.social · 10d

The Penn FTD Center is here for another FTD Fact Friday! And we are here to help!

📍 Check out our Support & Resources
📃 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials

Click the website link for more!

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Penn FTD Center @pennftdc.bsky.social · 11d

💡In Penn FTD Center’s October Research Roundup, Postdoctoral Fellow Barbara Spencer, PhD, examines how C9orf72 expansions impact the risk for developing subsequent symptoms in ALS and FTD.

Read now at the link in our bio or by visiting our website!

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Penn FTD Center @pennftdc.bsky.social · 17d

The Penn FTD Center is here for another FTD Fact Friday! And we are here to help!

📍 Check out our Support & Resources
📃 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials

Click the website link for more!

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Penn FTD Center @pennftdc.bsky.social · 18d

Register now for the 2025 Penn FTD Center’s Annual Caregiver Conference!

📆 Monday, November 3, 2025
⏱ 8am-4:30pm
📍Smilow Center for Translational Research

Click the link in our bio for the link to register for the conference!

We hope to see you in November!

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Penn FTD Center @pennftdc.bsky.social · 19d

FTD CRLI Ambassador Julia spoke with the LA Times to detail the changes she experienced with her husband, Marc before, during, and after his diagnosis of FTD.

Thank you, Julia, for sharing your story!

www.yahoo.com/news/article...

'I lost me': How frontotemporal dementia changed a mind and a marriage

A Westlake Village man living with frontotemporal dementia has something few people with the condition do: the ability to describe his disease.

www.yahoo.com

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Penn FTD Center @pennftdc.bsky.social · 20d

📰 Are you subscribed to the Penn FTD Center newsletter?

Use the link in our bio to stay up to date on our latest updates, educational events, and research advancements!

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Penn FTD Center @pennftdc.bsky.social · 21d

The Alzheimer's Disease-Related Dementias (ADRD) Summit informs priorities at the NIH. A report has been established based on the virtual meetings in April and June of 2025.

The report, along with videos from the conference, can be reviewed by clicking on the link in our bio 📑

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Penn FTD Center @pennftdc.bsky.social · 24d

The Penn FTD Center is here for another FTD Fact Friday! And we are here to help!

📍 Check out our Support & Resources
📃 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials

Click the website link for more!

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Penn FTD Center @pennftdc.bsky.social · 25d

The Penn FTD Center spoke with the Caregiver Conference keynote speaker Linde Jacobs for a highlight to her background, Cure MAPT FTD, and her advocacy journey. Read the October blog post now at the link in our bio!

Register now for the Penn FTD Center Caregiver Conference!

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Penn FTD Center @pennftdc.bsky.social · 28d

We understand that care management can be tough. This October Care Management Monday, we are sharing tips on managing compulsive behaviors.

📍Check out our website for more information on Support & Resources

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Penn FTD Center @pennftdc.bsky.social · Oct 3

The Penn FTD Center is here for another FTD Fact Friday! And we are here to help!

📍 Check out our Support & Resources
📃 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials

Click the website link for more!

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Penn FTD Center @pennftdc.bsky.social · Oct 2

PhD candidate at the UPenn’s School of Nursing Lauren Fisher has been awarded a grant to support her dissertation study examining how empathy loss in bvFTD influences caregiver stress by contextualizing quantitative results in the lived experiences of caregivers.

Congrats Lauren! 🎉

Penn FTD Center @pennftdc.bsky.social · Sep 29

Penn FTD Center Staff Highlight 🌟

Quinn Hlava, MRA is a Senior Clinical Research Coordinator who works on observational research, specifically the ALLFTD study and various imaging studies.

📍Read more details on Quinn in the blog post! Link in our bio!

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Penn FTD Center @pennftdc.bsky.social · Sep 26

In honor of FTD Awareness Week 2025, the Penn FTD Center staff has put together a series of videos to share tips and information!

Assistant Director Lyles Clark provides an overview of research at the Penn FTD Center.

Click on the link in our bio to watch now! #endFTD

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Penn FTD Center @pennftdc.bsky.social · Sep 25

In honor of FTD Awareness Week 2025, the Penn FTD Center staff has put together a series of videos to share tips and information!

This afternoon, Clinical Research Project Manager Emily Xie provides an introduction into observational research.

Click on the link in our bio to watch now! #endFTD

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Penn FTD Center @pennftdc.bsky.social · Sep 25

In honor of FTD Awareness Week 2025, the Penn FTD Center staff has put together a series of videos to share tips and information!

This morning, Clinical Research Coordinators Riya & Alex provide an overview on clinical trials.

Click on the link in our bio to watch now! #endFTD

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Penn FTD Center @pennftdc.bsky.social · Sep 24

In honor of FTD Awareness Week 2025, the Penn FTD Center staff has put together a series of videos to share tips and information!

Genetic Counselor Laynie Dratch provides details on genetics in FTD.

Click on the link in our bio to watch now! #endFTD

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Penn FTD Center @pennftdc.bsky.social · Sep 23

In honor of FTD Awareness Week 2025, the Penn FTD Center staff has put together a series of videos to share tips and information!

Nurse Practitioner Gillian Bradley provides caregiver strategies for symptom management. Click on the link in our bio to watch now! #endFTD

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Penn FTD Center @pennftdc.bsky.social · Sep 19

World FTD Awareness Week takes place September 21-27, 2025! We will be sharing informational videos throughout the entire week to highlight different areas of expertise here at the center.

You can join the movement by following @theaftd.bsky.social
#endFTD

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Penn FTD Center @pennftdc.bsky.social · Sep 16

Registration is now open for the 2025 Penn FTD Center’s Annual Caregiver Conference!

📆 Monday, November 3, 2025
⏱ 8am-4:30pm
📍Smilow Center for Translational Research

Click the link in our bio for the link to register for the conference!

We hope to see you in November!

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Penn FTD Center @pennftdc.bsky.social · Sep 12

The Penn FTD Center is here for another FTD Fact Friday! And we are here to help!

📍 Check out our Support & Resources
📃 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials

Click the website link for more!

1

Penn FTD Center @pennftdc.bsky.social · Sep 10

The Unexpected Journey by Emma Heming Willis is out now! Lauren Massimo, Co-Director of the Penn FTD Center, contributed to The Unexpected Journey!

Emma provided an exclusive highlight for the Penn FTD Center. Read more at the link in our bio and on our website!

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