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Improving holistic palliative care support: perspectives from five countries on hospital end of life care volunteer services

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eapcvzw.bsky.social @eapcvzw.bsky.social · Sep 9

This week’s #EAPCblog ‘We found that volunteers brought meaningful company, comfort and human connection to seriously ill and dying patients in hospitals.’ bit.ly/4pdKSyP @palliativemedj.bsky.social ‪ @careforthedying.bsky.social @livunihls.bsky.social @livuni-ilcams.bsky.social
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The iLIVE Volunteer Study supported the development and implementation of hospital end of life care volunteer services in five hospitals in five countries. For July’s Palliative Medicine editor’s c…

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Palliative Medicine Journal @palliativemedj.bsky.social · Sep 8

September issue online today! Assisted dying, advance care planning, sedation, bereavement and more. Check it out at journals.sagepub.com/toc/PMJ/curr... #hpm #hapc.

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Palliative Medicine Journal @palliativemedj.bsky.social · Sep 8

Palliative care and assisted dying: uneasy bedfellows. Read the latest editorial from James Downar and Nancy Preston. journals.sagepub.com/doi/full/10.... #hpm #hapc

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Palliative Medicine Journal @palliativemedj.bsky.social · Sep 8

Palliative care and assisted dying: uneasy bedfellows. Read the latest editorial from James Downar and Nancy Preston. journals.sagepub.com/doi/full/10.... #hpm #hapc

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Palliative Medicine Journal @palliativemedj.bsky.social · Sep 8

September issue online today! Assisted dying, advance care planning, sedation, bereavement and more. Check it out at journals.sagepub.com/toc/PMJ/curr... #hpm #hapc.

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Amara Nwosu @amaranwosu.bsky.social · Aug 19

Please LISTEN to Heidi Merrington and Angela Dawson describe their research: #PalliativeCare needs of people seeking refuge @palliativemedj.bsky.social #podcast

Podcast
open.spotify.com/episode/3pWp...

Paper
journals.sagepub.com/doi/full/10....

#hapc
#hpm
#medsky
@lancasteruni.bsky.social

Enhancing the wellbeing of refugees living with advanced life-limiting illness in high-income resettlement countries: A systematic review

Sage Palliative Medicine & Chronic Care · Episode

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Mapping the Science of palliative care: A bibliometric analysis of the top 100 cited articles - Jacopo D’Andria Ursoleo, Alice Bottussi, Sandy Christiansen, Donald R Sullivan, Kelly C Vranas, William ...

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Don Sullivan, MD, MA, MCR @donsullivan.bsky.social · Aug 23

A bibliometric analysis of the top 100 cited articles of the top palliative care articles Jacopo D'Andria Ursoleo et al. @billyrosaphd.bsky.social @palliativemedj.bsky.social

journals.sagepub.com/doi/10.1177/...

Background: The palliative care evidence base has grown substantially in recent years with the benefits, barriers, and facilitators of care delivery well establ...

A call for improved support for parent-carers of children with a life limiting condition: fathers’ health and perspectives of caregiving

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Reposted by Palliative Medicine Journal

eapcvzw.bsky.social @eapcvzw.bsky.social · Sep 5

‘I feel like I need time to heal. But the situation we're in and the demands that we have with our child makes that impossible’. Read this week’s #EAPCblog bit.ly/47k8L1j @palliativemedj.bsky.social

With more children living with life limiting conditions, an increasing number of parents are providing extensive care for their child at home. The voices of fathers remain largely unheard in resear…

Models, components and outcomes of palliative and end-of-life care provided to adults living at home: A systematic umbrella review of reviews - Sophie Pask, Chukwuebuka Okwuosa, Ahmed Mohamed, Rebecca...

Reposted by Palliative Medicine Journal

Prof Katherine Sleeman @katherinesleeman.bsky.social · Sep 6

Latest paper from the @mariecurieeolc.bsky.social Better End of Life programme.

Meta-level evidence supporting provision of in-home palliative care, specialist palliative care and integration of primary pall care w specialist support.
journals.sagepub.com/doi/10.1177/...
@palliativemedj.bsky.social

Background: There is growing demand for home-based palliative care because of patient preference, and increased number of deaths. Optimal models for community-b...

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eapcvzw.bsky.social @eapcvzw.bsky.social · Jul 7

‘Given the serious impact constipation can have on an individual’s comfort, dignity and wellbeing, and the associated health costs, we would be wise to reconsider our strategies’. Read @palliativemedj.bsky.social’s Editor’s Choice #EAPCblog by Amy Taylor bit.ly/3HeG3UA

The blog of the European Association for Palliative Care

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Reposted by Palliative Medicine Journal

eapcvzw.bsky.social @eapcvzw.bsky.social · Jul 3

‘Given the serious impact constipation can have on an individual’s comfort, dignity and wellbeing, and the associated health costs, we would be wise to reconsider our strategies’. Read @palliativemedj.bsky.social’s Editor’s Choice #EAPCblog by Amy Taylor bit.ly/3HeG3UA

The blog of the European Association for Palliative Care

eapcnet.wordpress.com

Validating the socio-spiritual items of the Utrecht Symptom Diary—4 Dimensional: Content and construct validity - Tom Lormans, Everlien de Graaf, Frederieke van der Baan, Carlo Leget, Saskia Teunissen...

Palliative Medicine Journal @palliativemedj.bsky.social · Jun 22

Healthcare providers need to consider how the USD-4D needs to be properly embedded in clinical care for patients to optimally benefit from using it. #hpm #hapc journals.sagepub.com/doi/full/10....

Background: The Utrecht Symptom Diary—4 Dimensional (USD-4D) is a multidimensional Patient-Reported Outcome Measure to monitor symptoms and needs and increase p...

Palliative Medicine Journal @palliativemedj.bsky.social · Jun 18

Multimodal interventions with a focus on symptom control, quality of life, peer support and with psychosocial input appear to be crucial to integrated, effective and patient led supportive care #hpm #hapc #palliativecare #ILD journals.sagepub.com/doi/full/10....

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Palliative Medicine Journal @palliativemedj.bsky.social · Jun 18

Resilience in both wife caregivers and husband caregivers increased over time but husbands had higher levels of resilience than wives. #hpm #hapc #palliativecare journals.sagepub.com/doi/full/10....

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Palliative Medicine Journal @palliativemedj.bsky.social · Jun 18

As the use of technology to sustain life increases, we need to question how much we expect of family members in providing care for those with complex interventions, such as ventilation, at home. #hpm #hapc journals.sagepub.com/doi/full/10....

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Reposted by Palliative Medicine Journal

eapcvzw.bsky.social @eapcvzw.bsky.social · Jun 16

This week’s #EAPCblog @palliativemedj.bsky.social’s Editor’s Choice ‘In healthcare settings Cognitive Authority plays out in subtle but powerful ways. It shapes which voices are heard, which kinds of knowledge are legitimised, and whose truths are sidelined.’ bit.ly/3Skhfga

The blog of the European Association for Palliative Care

Reposted by Palliative Medicine Journal

eapcvzw.bsky.social @eapcvzw.bsky.social · Jun 11

This week’s #EAPCblog @palliativemedj.bsky.social’s Editor’s Choice ‘In healthcare settings Cognitive Authority plays out in subtle but powerful ways. It shapes which voices are heard, which kinds of knowledge are legitimised, and whose truths are sidelined.’ bit.ly/3Skhfga

The blog of the European Association for Palliative Care

Palliative Medicine Journal @palliativemedj.bsky.social · Jun 10

Family caregiver-targeted web-based interventions may facilitate spouses’ and patients’ experience of sharing everyday life. #hpm #hapc journals.sagepub.com/doi/full/10....

Advance care planning and quality of life: A qualitative interview study in people with young-onset dementia and their family caregivers - Jasper Maters, Marieke Perry, Ton de Wit, Raymond T.C.M. Koop...

Palliative Medicine Journal @palliativemedj.bsky.social · Jun 10

This study on young-onset #dementia identified future care preferences consistent with a palliative care approach, emphasizing palliative care goals and prioritizing quality of life in decision-making. #hpm #hapc journals.sagepub.com/doi/full/10....

Background: The importance of palliative care and advance care planning in dementia is increasingly recognized. However, little is known about the distinct need...

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Amara Nwosu @amaranwosu.bsky.social · Jun 7

Since 2016 I've produced 138 podcasts for @palliativemedj.bsky.social Podcast #1 by Mary Godfrey explores cancer pain.

Mary Godfrey died in 2020, tribute 👇
academic.oup.com/ageing/artic...

Paper
journals.sagepub.com/doi/abs/10.1...

Podcast
sagepalliativemedicine.libsyn.com/godfrey-pati...

#hapc

Mary Godfrey 1953–2020

academic.oup.com

The experience of nurses when providing care across acts that may be perceived as death hastening: A qualitative evidence synthesis

Reposted by Palliative Medicine Journal

Amara Nwosu @amaranwosu.bsky.social · Jun 9

On the @palliativemedj.bsky.social #podcast Victoria Ali
@ioelc.bsky.social describes her reseach about nurses' experience when providing care across acts that may be perceived as death hastening.

Podcast👇🏾
open.spotify.com/episode/0B9j...

Paper 👇🏾
journals.sagepub.com/doi/full/10....

#hapc

Sage Palliative Medicine & Chronic Care · Episode

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Reposted by Palliative Medicine Journal

eapcvzw.bsky.social @eapcvzw.bsky.social · Jun 10

This week’s #EAPCblog @palliativemedj.bsky.social’s Editor’s Choice ‘In healthcare settings Cognitive Authority plays out in subtle but powerful ways. It shapes which voices are heard, which kinds of knowledge are legitimised, and whose truths are sidelined.’ bit.ly/3Skhfga

The blog of the European Association for Palliative Care