MPN Journal
mpnjournal.bsky.social
MPN Journal
@mpnjournal.bsky.social
23 followers 37 following 14 posts
The MPN Journal empowers patients and unlocks rich, patient-reported data that can drive future hematology research. ๐Ÿ”— Learn more and start your journey: https://www.mpnjournal.com/
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๐ŸŒ ๐Ž๐ง๐ฅ๐ฒ ๐Ÿ“ ๐ƒ๐š๐ฒ๐ฌ ๐‹๐ž๐Ÿ๐ญ!
Join the 30-Day โ€œ๐„๐•๐„๐‘๐˜๐ƒ๐€๐˜ ๐๐„๐“๐“๐„๐‘โ€ MPN Challenge, starting Nov 1 โ€” 30 days of small, daily steps to reduce symptoms & improve quality of life. ๐Ÿ’ช

Kick-off webinar: Sat 7 PM CET
Create your MPN Journal account ๐Ÿ‘‰ mpnjournal.com/challenge

#MPNChallenge #EverydayBetter #MPNJournal
EVERYDAY BETTER - The 30-Day MPN Challenge
For 30 days, weโ€™ll help you improve your lifestyle step-by-step so your MPN symptoms and symptom burden can decrease.
mpnjournal.com
Want to lower your MPN symptom burden? ๐ŸŒฟ
Join the ๐„๐•๐„๐‘๐˜๐ƒ๐€๐˜ ๐๐„๐“๐“๐„๐‘ 30-Day Challenge (starts Nov 1) โ€” created by patients, for patients.
Get daily, science-based tips to ease symptoms, boost energy & live well.
Free + anonymous via MPN Journal โ†’ mpnjournal.com/challenge #MPNChallenge #MPNJournal
EVERYDAY BETTER - The 30-Day MPN Challenge
For 30 days, weโ€™ll help you improve your lifestyle step-by-step so your MPN symptoms and symptom burden can decrease.
mpnjournal.com
๐Ÿš€ ๐—ฃ๐—ฟ๐—ผ๐—ฑ๐˜‚๐—ฐ๐˜ ๐—จ๐—ฝ๐—ฑ๐—ฎ๐˜๐—ฒ: The MPN Journal is now smarter & easier than ever! Smarter charts, full medication control, weight tracking + big upgrades to lab results (SI & conventional units, smarter graphs, auto-conversion). ๐Ÿ“Š #MPN #HealthTech
๐Ÿ“Š New questions, more data โ€“ for better research ๐Ÿ”ฌ
Weโ€™ve updated our questionnaire:

๐Ÿ“ One-time: privacy policy, country, height/weight, MPN diagnosis/family, alternative therapies, add your doctor.
๐Ÿ”„ Recurring: new side effects, symptoms, smoking/alcohol, menstrual/menopause, phlebotomy types.
๐Ÿ’ญ In the MPN Journal app, 50% of patients report fear of disease progression. Half of them rate it 8 or higher. It's time for more awareness and psychosocial support. #MPN #FearOfProgression #QualityOfLife #hematology

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๐Ÿ“Œ ๐—ฆ๐˜๐—ฎ๐˜† ๐—ฃ๐—ฟ๐—ฒ๐—ฝ๐—ฎ๐—ฟ๐—ฒ๐—ฑ ๐—ฎ๐—ป๐—ฑ ๐—ข๐—ป ๐—ง๐—ผ๐—ฝ
Keep your appointments logged in your MPN Journal. Regularly update symptoms and notes before visits to stay prepared. After each consult, record treatment changes and donโ€™t forget to schedule your next appointment! #MPN #PatientCare #ChronicIllness #HealthManagement
๐Ÿ“ฐ ๐—š๐—ฟ๐—ฒ๐—ฎ๐˜ ๐—ป๐—ฒ๐˜„๐˜€!
Weโ€™re proud to be mentioned in Hemato-Oncologieโ€™s recent article about the MPN Tracking App, designed to support patients in managing their journey.๐Ÿ‘‡ Read more below!
hemato-oncologie.nl/nieuws/mpn-t...
#MPN #PatientSupport #MPNJournal #Oncology#Hematology #DigitalHealth
Hemato-oncologie | MPN-tracking app houdt patient journey bij
hemato-oncologie.nl
๐—ช๐—ต๐—ฎ๐˜โ€™๐˜€ ๐—ป๐—ฒ๐˜„ ๐—ถ๐—ป ๐˜๐—ต๐—ฒ ๐— ๐—ฃ๐—ก ๐—๐—ผ๐˜‚๐—ฟ๐—ป๐—ฎ๐—น? ๐Ÿ“ฐ
We share updates & insights based on your feedback โ€” all in our News tab. Got ideas? Letโ€™s build it together!
#MPNJournal #StayInformed #PatientEmpowerment #HealthData #ChronicDisease #Hematology
Want to learn more about this patientโ€™s journey and insights?
๐Ÿ”— www.linkedin.com/posts/mpn-jo...

#MPN #MPNJournal #PatientVoice
๐—™๐—œ๐—š๐—›๐—ง๐—œ๐—ก๐—š ๐—™๐—”๐—ง๐—œ๐—š๐—จ๐—˜ ๐—ช๐—œ๐—ง๐—› ๐— ๐—ฃ๐—ก ๐—๐—ข๐—จ๐—ฅ๐—ก๐—”๐—Ÿ โ€“ A patientโ€™s story ๐Ÿ’ก๐Ÿƒโ€โ™‚๏ธ Diagnosed with PV in 2020, I tracked symptoms daily & found a direct link between movement & fatigue. Exercise helped reduce symptoms. Personal experienceโ€”results may vary.
๐Ÿ‘‰ See next post for more!

#MPN #MPNJournal #HealthData #PatientVoice
Attending #EHA2025 in Milan! Meet us to discover MPN Journalโ€”a global, patient-driven platform for everyone living with myeloproliferative neoplasms. Empowering patients, advancing research. Letโ€™s connect!
#MPNJournal #Hematology #empowerpatients #ClinicalResearchSolutions
๐Œ๐๐ ๐‰๐จ๐ฎ๐ซ๐ง๐š๐ฅ ๐›๐ซ๐ž๐š๐ค๐ฌ ๐ฅ๐š๐ง๐ ๐ฎ๐š๐ ๐ž ๐›๐š๐ซ๐ซ๐ข๐ž๐ซ๐ฌ! ๐ŸŒ
Six new languages added: Danish, Finnish, Italian, Norwegian, Spanish & Swedish โœจ
Medical info should be accessible to all. Now we can help more patients & researchers in their native language!
#Hematology #MPN #BloodDisorders #Healthcare #GlobalHealth
๐Œ๐๐ ๐—ช๐—ผ๐—ฟ๐—น๐—ฑ-๐—ง๐—ฟ๐—ฎ๐—ป๐˜€๐—ณ๐—ผ๐—ฟ๐—บ๐—ถ๐—ป๐—ด ๐—ฅ๐—ฒ๐˜€๐—ฒ๐—ฎ๐—ฟ๐—ฐ๐—ต ๐—ฒ๐—ป ๐—˜๐—จ๐—ฅ๐—ข-๐—ก๐—˜๐—ง ๐Ÿฎ๐Ÿฌ๐Ÿฎ๐Ÿฑ
On May 15 in Zรผrich, John Hoogland showed how real-world data can reveal new patterns in MPN care. Thanks HOCH Health Ostschweiz for hosting!

๐Ÿ”— Info: www.h-och.ch/ueber-uns/ve...

#EURO_NET2025 #MPN #research #hematology #mpnjournal
๐Ÿš€ MPN Journal is live on Bluesky!
Since our launch on May 1st, weโ€™ve supported the global MPN community with tools for profiles, symptom tracking, and knowledge sharing.
Excited to connect hereโ€”follow us for updates!
#MPN #HealthcareInnovation #MPNJournal