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Mike's Euro Maras for M.E.

@mikeseumarathons.bsky.social

310 followers 450 following 41 posts

I run marathons around Europe raising funds for Invest In ME's biomedical research projects to cure ME. 34 countries so far. £52k raised. Next race: #39 Sarajevo, Bosnia (26.04.26) www.mikeseumarathons.eu www.justgiving.com/mikeseumarathons

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Mike's Euro Maras for M.E. @mikeseumarathons.bsky.social · Nov 16

Thanks for following if you don't know me.

I've just passed the 10 year anniversary of when I began running marathons for ME research.

I'm aiming to raise funds for biomedical projects whilst connecting and highlighting the stories of people with ME that I meet

🇨🇿🇫🇮🇮🇪🇬🇷🇱🇺🇸🇪🇵🇱🇧🇪🇫🇷🇪🇸🇱🇹🇲🇹🇪🇪🇸🇰🇳🇱🇸🇮🇨🇾🇱🇻🇭🇺🇷🇴🇵🇹🇩🇪🇭🇷🇮🇹🇦🇹🇬🇷🇧🇬🇳🇴🇱🇮🇨🇭🇷🇸🇲🇪

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Mike's Euro Maras for M.E. @mikeseumarathons.bsky.social · 1d

Race report for Skopje Marathon, Macedonia 🇲🇰

Marathon 38 for @investinmeresearch.bsky.social in European country 34.

www.mikeseumarathons.eu/skopje-maced...

Thanks for your support and sponsorship

SKOPJE, MACEDONIA

Training for marathon 38 in Skopje was a little tough with injury and illness but after missing my flight connection from Turkey to Macedonia, I was very pleased to get to the start line. The day...

www.mikeseumarathons.eu

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Mike's Euro Maras for M.E. @mikeseumarathons.bsky.social · 7d

Thanks mate 👍

Reposted by Mike's Euro Maras for M.E.

UK Charity Invest in ME Research @investinmeresearch.bsky.social · 9d

Thanks to Mike Harley for another outstanding effort to raise funds to facilitate biomedical research into #MECFS
at the Skopje Marathon 2025
www.justgiving.com/fundraising/...
#philanthropy #research #CofEforME #InvestinMEresearch @mikeseumarathons.bsky.social

Mike Harley - EU Marathons for ME - SKopje October 2025

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Reposted by Mike's Euro Maras for M.E.

DecodeME @decodemestudy.bsky.social · Aug 4

The initial DNA results from DecodeME are coming this week! We will release them on our website on Wednesday 6th August at 7pm (approx).

We're letting you know the timing in advance so you can pace beforehand.

Thank you to our participants & supporters.

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Reposted by Mike's Euro Maras for M.E.

EndMalnutritioninME @malnutritionme.bsky.social · Aug 5

#SevereMEWeek

#MEAction Network @meactnet.bsky.social · Aug 5

Merryn had Very Severe ME for 6 years. She was totally bedbound, tube fed intravenously (TPN) due to gastro intestinal failure, unable to bear light, noise, touch or movement She suffered with horrific pain but never lost her big beautiful smile.
Merryn died just 10 days after her 21st birthday.

Photo of Merryn Crofts- white young woman with dark hair lying in bed with an oxygen mask on. Text beside photo: "Merryn had Very Severe ME for 6 years. She was totally bedbound, tube fed intravenously (TPN) due to gastro intestinal failure, unable to bear light, noise, touch or movement She suffered with horrific pain but never lost her big beautiful smile." Under photo: Merryn Crofts died just 10 days after her 21st birthday, following an inquest her official cause of death was M.E.

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Reposted by Mike's Euro Maras for M.E.

valebodi.bsky.social @valebodi.bsky.social · Aug 4

Understanding severe ME by the world ME alliance

“Severe and very severe ME/CFS represents one of the most profound states of disability found in medicine.”
– @batemanhornecenter.bsky.social , USA

worldmealliance.org/what-is-me/s...

#ME/Cfs #pwME #SevereME #SevereMEDay #ICDG93.3 #ICDG93.32

Severe ME - World ME Alliance

worldmealliance.org

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Mike's Euro Maras for M.E. @mikeseumarathons.bsky.social · Aug 5

2 months until Skopje Marathon 🇲🇰

I'm very undercooked. August and September are big months, hope my stupid legs will hold out!

If you'd like to sponsor me ad edge closer to a cure for M.E

www.justgiving.com/mikeseumarathons

Reposted by Mike's Euro Maras for M.E.

birdsong4db.bsky.social @birdsong4db.bsky.social · Jul 2

It’s #MEawarenesshour. I’m tweeting in the hope that if more people are aware of M.E. and the way it devastates lives, more effort and funding will be allocated to investigating and searching for answers. We need an agreed, objective diagnostic test for detailed clinical trials.

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Mike's Euro Maras for M.E. @mikeseumarathons.bsky.social · May 27

Had a 2-3 week break and now back in training.

Next one for me is Skopje Marathon, North Macedonia 🇲🇰

Marathon 38, country 34 and I'm likely to reach 10,000 miles.

It looks like a beautiful country. If anybody knows of anyone with M.E there please let me know, I'd love to meet/interview them.

Mike's Euro Maras for M.E. @mikeseumarathons.bsky.social · May 19

Race report for Belfast Marathon (European country 33)

£1300 raised for @investinmeresearch.bsky.social

www.mikeseumarathons.eu/belfast-nire...

Belfast, N.Ireland

Before European country no.33, I was able to interview 2 people with M.E; Richard and Aileen who told me all about their lives with M.E in Northern Ireland . After landing in Belfast I was met for...

www.mikeseumarathons.eu

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Mike's Euro Maras for M.E. @mikeseumarathons.bsky.social · May 6

Delighted to complete Belfast Marathon and support people with ME in Northern Ireland

£1051 raised so far for this race takes my total to £51.7k for @investinmeresearch.bsky.social

Race report coming soon. Mara 38 (Euro country 34) will be N.Macedonia, Oct 5

www.justgiving.com/mikeseumarathons

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Mike's Euro Maras for M.E. @mikeseumarathons.bsky.social · May 3

Great day exploring Belfast. Such an interesting place with super-friendly people. Looking forward to running for people with ME in Northern Ireland tomorrow.

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Mike's Euro Maras for M.E. @mikeseumarathons.bsky.social · May 2

Flying out to Northern Ireland today for Belfast Marathon. Looking forward to meeting Joan from the ME association there for dinner

Country 33, £51,189 raised so far @investinmeresearch.bsky.social

Weather looks good for the run, just hope my knee holds up.

www.justgiving.com/mikeseumarathons

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Mike's Euro Maras for M.E. @mikeseumarathons.bsky.social · Apr 23

Delighted that there's now a more accurate figure of people with ME in the UK (404,000) for the media to use.

Obviously bittersweet, as that is still a huge number of people in daily pain, ignored and with no treatments to recover.

Mike's Euro Maras for M.E. @mikeseumarathons.bsky.social · Apr 22

M.E in Northern Ireland

'Too many people have already suffered disastrous consequences from harmful and outdated advice. Patients in the UK have died of malnutrition as a result of inadequate care and services'

www.mikeseumarathons.eu/northern-ire...

Northern Ireland

14.04.2025

www.mikeseumarathons.eu

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Mike's Euro Maras for M.E. @mikeseumarathons.bsky.social · Apr 15

M.E in Northern Ireland

'There's no ME specialist, no ME clinics, no care pathway for severe ME... It is incomprehensible that so many patients are left without anything'

I'll be running for Richard and Aileen at Belfast Marathon on May 4th.

www.mikeseumarathons.eu/northern-ire...

Northern Ireland

14.04.2025

www.mikeseumarathons.eu

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Mike's Euro Maras for M.E. @mikeseumarathons.bsky.social · Mar 27

3 years since completing a marathon race in all 27 EU nations for @investinmeresearch.bsky.social

£42k raised at the time.

Gone on to run in another 5 new countries since then, adding £9k.

It was a life changing experience. Am still here representing my ME pals until we get a cure.

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Mike's Euro Maras for M.E. @mikeseumarathons.bsky.social · Mar 18

Taxing UK Billionaires 1-2% more a year would bring in more than any of this proposed nonsense.

My feeling is that it will be watered down via debate and protests to the point of just sitting as a mild deterrent for people trying to cheat the system.

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Mike's Euro Maras for M.E. @mikeseumarathons.bsky.social · Mar 18

If the government actually committed proper funding for ME and Long Covid research they wouldn't need to target disabled people.

There'd be hundreds of thousands of people actively in the workforce.

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Mike's Euro Maras for M.E. @mikeseumarathons.bsky.social · Mar 12

8 years since I ran Barcelona Marathon and met so many amazing people with ME. Hot race but iconic and beautiful. £800 raised.

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Mike's Euro Maras for M.E. @mikeseumarathons.bsky.social · Feb 28

Up to £51k for @investinmeresearch.bsky.social 🙏

Cheers all.

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Reposted by Mike's Euro Maras for M.E.

Katy B @katybrc.bsky.social · Feb 25

I've had #ME for 38 years, nothing has changed in that time, no care, treatments or funding for biomedical research
It's an appalling record for everyone who's had a responsibly to implement change for #pwME over decades
#FundThePlan @ashleydaltonmp.bsky.social &
@rthonwesstreeting.bsky.social

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Reposted by Mike's Euro Maras for M.E.

UK Charity Invest in ME Research @investinmeresearch.bsky.social · Feb 25

Registration for our 17th International ME Conference is open
investinme.org/IIMEC17.shtml
#mecfs #IIMEC17 #BRMEC14 #IMECW2025 #research #CPD

Translating Research into Diagnostics and Treatments image for #IIMEC17

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Reposted by Mike's Euro Maras for M.E.

Litsa Dremousis @litsadremousis.bsky.social · Feb 25

Loving reminder that when you read posts from me or anyone w/ #MyalgicEncephalomyelitis:

We're among those #pwME (persons w/ M.E.) who have the strength to post.

People w/ #SevereME mostly exist in dark rooms, unable to move or to tolerate light or sound.

It's a hellish existence.

We need help

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Mike's Euro Maras for M.E. @mikeseumarathons.bsky.social · Feb 25

Thanks bud 👍