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metupuk.bsky.social
@metupuk.bsky.social
UK’s only metastatic breast cancer patient advocacy charity. Led by patients, for patients. Focused on the unmet needs of people living with metastatic breast cancer (MBC).
Today we remember Tass. November 4th would have been her 34th birthday. This year her birthday was closely connected to the day our founder Jo died, falling the day after. As we pick ourselves up and move forward, we wanted to reflect on Tass’ legacy. #MetastaticBreastCancer #MBC
December 15, 2025 at 5:22 PM
Nicole, who lives with HER2+ Metastatic Breast Cancer, shares her first-hand experience as a patient expert supporting the Enhertu submission.

📲 Link in bio to learn more about advocacy and how to get involved.

#METUPUK #PatientAdvocacy
#LivingWithMBC #HER2Positive #Enhertu
December 12, 2025 at 11:12 AM
NICE will raise its cost-effectiveness threshold in 2026, potentially allowing more life-extending metastatic breast cancer treatments - like Enhertu for HER2-low - to qualify for NHS approval. METUPUK welcomes the move and will keep pushing for faster, fairer access. #MBC #METUPUK #NICE
December 10, 2025 at 3:15 PM
December 8, 2025 at 4:29 PM
Sharing the story of journalist and S4C presenter Mari Grug, who speaks openly about life with Metastatic Breast Cancer in her new documentary Un Dydd Ar Y Tro. We were honoured to hear her insights as she continues championing MBC care in Wales. Diolch, Mari.
December 5, 2025 at 3:55 PM
Myth or Fact: Everyone in the UK has the same access to cancer treatments.

#METUPUK #MetastaticBreastCancer #MBCAdvocacy #CancerMyths #MythOrFact #EqualAccess
December 3, 2025 at 4:27 PM
It’s the 2nd of the month - time to stop scrolling and check in with your body.

#SecondsOnThe2nd #MetastaticBreastCancer #MBC
December 2, 2025 at 4:14 PM
We stand on the shoulders of the women before us - the trailblazers who campaigned, advocated and inspired. Their courage lights our path as we continue to push for progress in metastatic breast cancer. Today, as we take our first steps without Jo, we honour her legacy.
November 28, 2025 at 2:02 PM
Jo Taylor transformed Metastatic Breast Cancer advocacy. Founder of ABCDiagnosis and METUPUK, she championed fair drug access, research, and awareness. Her red flag infographics empowered patients and influenced policy. Her courage sparked lasting change. #JoTaylor #METUPUK #LegacyOfChange
November 12, 2025 at 4:31 PM
From awareness to action - Jo Taylor’s work changed how Metastatic Breast Cancer is seen, understood, and supported.

#JoTaylor #METUPUK #ABCDiagnosis #MetastaticBreastCancer #MBCAdvocacy #Stage4NeedsMore #BusyLivingWithMets
November 10, 2025 at 4:43 PM
We honour Jo Taylor - founder of METUPUK and tireless advocate for people living with Metastatic Breast Cancer. Through her courage and determination, Jo changed the conversation around MBC, inspiring action, progress, and hope.
#JoTaylor #METUPUK #LegacyOfChange
November 6, 2025 at 1:20 PM
It is with profound sadness we share that our beloved founder, Jo Taylor, has died. A fearless advocate and beacon of hope for those with Metastatic Breast Cancer - her legacy of courage, advocacy, and change will live on. 💗
#JoTaylor #METUPUK #LegacyOfChange #MBC
November 4, 2025 at 2:27 PM
It’s the 2nd of the month - time to stop scrolling for a moment and check in with your body.

Our regular #SecondsOnThe2nd post is here to spotlight the lesser-known symptoms of Metastatic Breast Cancer - signs that are often missed, misdiagnosed, or mistaken for something else entirely.
#MBC
November 2, 2025 at 12:56 PM
🔔 31 bells. 31 lives.

As Breast Cancer Awareness Month comes to a close, our founder Jo Taylor rings the bell 31 times - one for every woman who dies each day from Metastatic Breast Cancer in the UK.

#FabricOfOurLives #METUPUK #BCAM25 #DarkerPink #IAmThe31 #Stage4NeedsMore #StageIVNeedsMore
October 31, 2025 at 12:27 PM
Metastatic Breast Cancer is living with constant fear - the next scan, symptom, or progression. It’s waking up knowing the disease is still there. Bravery isn’t the absence of fear - it’s moving forward anyway. No one should face this alone. #FabricOfOurLives #MBC #BCAM
October 29, 2025 at 4:47 PM
Metastatic Breast Cancer shatters lives - plans, bodies, futures. We grieve while we live, hope while we hurt, and smile through the pain. Strength shouldn’t mean survival alone. We need better care, faster access, and real compassion. #FabricOfOurLives #MBC #BCAM25 #Stage4NeedsMore
October 27, 2025 at 5:01 PM
Metastatic Breast Cancer is ignored in headlines, funding, and data. We speak up, but too often we’re unheard - ignored in policy, in pink, in “awareness.” We are not an afterthought. Don’t look away. Share this. Demand better.
#FabricOfOurLives #BCAM25 #METUPUK #DyingForACure
October 24, 2025 at 1:38 PM
Metastatic Breast Cancer can be a crowded kind of loneliness. Life moves on while yours stands still between treatments. No one should face this alone - we need connection, community, and care. #FabricOfOurLives #MBC #BCAM25 #Stage4NeedsMore #METUPUK #BusyLivingWithMets
October 22, 2025 at 3:10 PM
MBC hides in plain sight. It’s the only breast cancer that kills. We live with endless treatment, silent side effects, and fading visibility. Awareness saves lives - bring the unseen into the spotlight. #FabricOfOurLives #BCAM25 #METUPUK #Stage4NeedsMore #DyingForACure
October 21, 2025 at 4:17 PM
The Fabric of Our Lives.
Living with MBC, our voices fade beneath pink positivity. We’re not statistics - we’re people living and dying with a terminal disease. It’s time to listen, to amplify, to be heard. 🗣️ #FabricOfOurLives #METUPUK #BCAM25 #DyingForACure
October 20, 2025 at 2:36 PM
The Darker Side of Pink - Newcastle City Library, until 14th November

#TheDarkerSideOfPink #FabricOfOurLives #METUPUK #MetastaticBreastCancer
October 17, 2025 at 4:36 PM
Living with Metastatic Breast Cancer can feel isolating - treatment rooms over workplaces, scans over plans, endless explanations. We’re often left out of the conversation. We need understanding, inclusion, connection. 🗣️ Share to break the silence. #FabricOfOurLives #BCAM25 #MBC #Stage4NeedsMore
October 15, 2025 at 1:25 PM
Outside Parliament, we stood together - patients, advocates, and allies - to demand change for everyone living with Metastatic Breast Cancer.
We stood for the 31 women who die every day from MBC.
And we stood for those still waiting - for progress, for visibility, for hope. #METUPUK #BCAM25
October 14, 2025 at 11:52 AM
Today, we took our voices to Parliament.

METUPUK brought The Fabric of Our Lives to Westminster on Metastatic Breast Cancer Day - to demand real change for everyone living with MBC.

#FabricOfOurLives #METUPUK #MBCDay #DarkerPink #IAmThe31 #BreastCancerAwarenessMonth #MetastaticBreastCancer
October 13, 2025 at 3:22 PM