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metupuk.bsky.social @metupuk.bsky.social · 10h

The Fabric of Our Lives.
Living with MBC, our voices fade beneath pink positivity. We’re not statistics - we’re people living and dying with a terminal disease. It’s time to listen, to amplify, to be heard. 🗣️ #FabricOfOurLives #METUPUK #BCAM25 #DyingForACure

metupuk.bsky.social @metupuk.bsky.social · 3d

The Darker Side of Pink - Newcastle City Library, until 14th November

#TheDarkerSideOfPink #FabricOfOurLives #METUPUK #MetastaticBreastCancer

metupuk.bsky.social @metupuk.bsky.social · 5d

Living with Metastatic Breast Cancer can feel isolating - treatment rooms over workplaces, scans over plans, endless explanations. We’re often left out of the conversation. We need understanding, inclusion, connection. 🗣️ Share to break the silence. #FabricOfOurLives #BCAM25 #MBC #Stage4NeedsMore

metupuk.bsky.social @metupuk.bsky.social · 6d

Outside Parliament, we stood together - patients, advocates, and allies - to demand change for everyone living with Metastatic Breast Cancer.
We stood for the 31 women who die every day from MBC.
And we stood for those still waiting - for progress, for visibility, for hope. #METUPUK #BCAM25

metupuk.bsky.social @metupuk.bsky.social · 7d

Today, we took our voices to Parliament.

METUPUK brought The Fabric of Our Lives to Westminster on Metastatic Breast Cancer Day - to demand real change for everyone living with MBC.

#FabricOfOurLives #METUPUK #MBCDay #DarkerPink #IAmThe31 #BreastCancerAwarenessMonth #MetastaticBreastCancer

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metupuk.bsky.social @metupuk.bsky.social · 7d

Metastatic breast cancer patients in Scotland have been denied access to the targeted drug capivasertib for NHS use. We urge the SMC and the manufacturer to resolve issues quickly so this life-extending treatment becomes available to everyone who could benefit. #AccessToMedicines

metupuk.bsky.social @metupuk.bsky.social · 10d

Metastatic Breast Cancer Breaks You.
It breaks your body.
It breaks your mind.
And it breaks the hearts of everyone who loves you.
Living with MBC means enduring pain that medicine can’t always reach.
It means watching your strength fade while trying to hold onto hope.
#BreastCancerAwarenessMonth

metupuk.bsky.social @metupuk.bsky.social · 12d

Lost in the System. Lost in My Head.

#FabricOfOurLives #BCAM25 #BreastCancerAwarenessMonth #BCAM #SeverityModifier #METUPUK

metupuk.bsky.social @metupuk.bsky.social · 14d

The Fabric of Our Lives

MBC lives in the shadows of pink-no clear data, little funding, limited support. We are forgotten. It’s time to show the darker side of pink and demand change. Share. Speak up. Support those with MBC.
#FabricOfOurLives #Stage4NeedsMore #DarkerPink

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metupuk.bsky.social @metupuk.bsky.social · 17d

At the Northern Ireland Cancer Charities Coalition Summit 2025, our NI Lead Ann McBrien amplified voices of people with metastatic breast cancer. With 35 charities united, we demand faster diagnosis, better treatment access & patient-first policies. #FabricOfOurLives #BCAM25

metupuk.bsky.social @metupuk.bsky.social · 18d

It’s the 2nd of the month, which means it’s time for #SecondsOnThe2nd - shining a light on the signs and symptoms of Metastatic Breast Cancer (MBC).

#MetastaticBreastCancer #MBCAwareness #SecondaryBreastCancer

metupuk.bsky.social @metupuk.bsky.social · 19d

#BreastCancerAwarenessMonth reminds the world to pay attention - but for those living with MBC, every month is awareness month. We are over 60,000 strong in the UK. Join the Fabric of Our Lives campaign: visibility, support, change.

#FabricOfOurLives #BCAM25 #BreastCancerAwarenessMonth #METUPUK

metupuk.bsky.social @metupuk.bsky.social · 21d

The Darker Side of Pink exhibition is coming to Newcastle City Library from Wednesday 1st October to Friday 31st October to coincide with Breast Cancer Awareness Month. Come and see this powerful installation and learn more about the reality of secondary breast cancer. #MetastaticBreastCancer

metupuk.bsky.social @metupuk.bsky.social · 24d

Do you know the difference between recurrence and progression?

It’s a distinction that matters - especially for people living with Metastatic Breast Cancer.

Understanding what they mean can help patients, caregivers, and loved ones better advocate for the right support and next steps.

metupuk.bsky.social @metupuk.bsky.social · 26d

In 2021, Philippa Hetherington led #TrodelvyNow, fighting to bring a game-changing mTNBC drug to the UK. Despite her own MBC, she worked tirelessly - driving approval and giving others #MoreTime. Her brilliance, resilience & impact live on. #METUPUK #BreastCancerAwareness

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metupuk.bsky.social @metupuk.bsky.social · 28d

Myth or Fact: Palliative care isn’t just for end of life. For those with MBC, it can start anytime - managing symptoms, easing side effects & supporting wellbeing. Everyone deserves early, ongoing care. Swipe to learn more. #METUPUK #MBC #PalliativeCare #CancerMyths

metupuk.bsky.social @metupuk.bsky.social · Sep 19

Meet Jo Taylor, founder of METUPUK. Since 2016, she’s led a patient-led movement for change in metastatic breast cancer - fighting for access to treatment, policy reform, and awareness. Jo is not just a founder, but a campaigner, changemaker, and #BusyLivingWithMets.

metupuk.bsky.social @metupuk.bsky.social · Sep 18

How do people with MBC use social media, and how does it affect mental health? In 2021 we asked - now we want to know if it still resonates. Should we run another survey? Comment & share to help us reach more voices. #MentalHealthAndMBC #SocialMediaAndCancer #METUPUK #MBCVoices

metupuk.bsky.social @metupuk.bsky.social · Sep 15

What I Wish You’d Said

A moving reminder from Rebecca Brown that life with Metastatic Breast Cancer doesn’t stay frozen in fear or sadness - it shifts, stretches, softens.

#BusyLivingWithMets #Stage4NeedsMore

metupuk.bsky.social @metupuk.bsky.social · Sep 12

Stay in the loop with METUPUK!

Sign up for our newsletter for campaign launches, site updates & key news. No spam, no data sharing - promise.

🔗 Join here: dashboard.mailerlite.com/forms/95734/...

#METUPUK #MBC #Stage4NeedsMore #CancerEquity

metupuk.bsky.social @metupuk.bsky.social · Sep 10

Our Friends: Not Forgotten 💔

Mary Richards was a force; a fierce advocate, a dedicated campaigner, and a passionate voice for the Secondary Breast Cancer community.

#OurFriendsNotForgotten #METUPUK #MetastaticBreastCancer #SecondaryBreastCancer #Stage4NeedsMore #MBCVoice #BusyLivingWithMets

metupuk.bsky.social @metupuk.bsky.social · Sep 8

Clinical trials shouldn’t feel impossible - but for many with MBC, they do. Our UK trial dashboard helps cut confusion with monthly updates, access info & options. Talk to your oncologist & explore new possibilities. 🧪 metupuk.org.uk/research-and...

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metupuk.bsky.social @metupuk.bsky.social · Sep 5

“How do we get better outcomes and survival for Metastatic Breast Cancer?”

Read Jo’s full blog now via the link: lnkd.in/eM9uxYFi

metupuk.bsky.social @metupuk.bsky.social · Sep 4

Megan and Bren are taking on the Vitality 10k in London on 28th September to raise funds for METUPUK.

Megan’s mum, Laura Ashurst, is a Trustee and patient volunteer at METUPUK. She has been living with incurable, Metastatic Breast Cancer since 2007.

GoFundMe: tinyurl.com/4u5yf758

metupuk.bsky.social @metupuk.bsky.social · Sep 2

It’s the 2nd of the month and we’re back with #SecondsOnThe2nd - raising awareness of the signs and symptoms of Metastatic Breast Cancer (MBC) that are still too often overlooked. #MetastaticBreastCancer