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mecfsmama.bsky.social
Tamara | ME/CFS Mama
@mecfsmama.bsky.social
33 followers 26 following 13 posts
Just a Mama navigating parenting with a chronic illness.
Mild ME/CFS & IST
Aotearoa, New Zealand.
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mecfsmama.bsky.social
Tamara | ME/CFS Mama @mecfsmama.bsky.social · May 3
So often, people don’t realise they’re on the path to ME/CFS until it’s too late. By the time people get diagnosed they usually have at least a 50% reduction in activity levels, which means by the time someone gains the knowledge to manage their illness, they’ve already lost so much of their life.
a graphic image with a variegated gradient base of purple that has glowing areas of pink, blue and a deeper purple. The words ‘Your body whispers before it screams… Reducing activity at the first sign of unexplained, persistent fatigue could help slow or prevent illness progression.’ Are in light pink.
mecfsmama.bsky.social
So often, people don’t realise they’re on the path to ME/CFS until it’s too late. By the time people get diagnosed they usually have at least a 50% reduction in activity levels, which means by the time someone gains the knowledge to manage their illness, they’ve already lost so much of their life.
a graphic image with a variegated gradient base of purple that has glowing areas of pink, blue and a deeper purple. The words ‘Your body whispers before it screams… Reducing activity at the first sign of unexplained, persistent fatigue could help slow or prevent illness progression.’ Are in light pink.
May 3, 2025 at 6:44 AM
Reposted by Tamara | ME/CFS Mama
johnvsjonvsme.bsky.social
Write a love song or poem to @lastweektonight1.bsky.social
@thedailyshow.com like this one from our first round of #JohnVsJonVsME! 5/
Alt text: Screen shot of a tweet from @tiz_xingjian on 5/31/2024. Screen shot from a video of a young Asian American woman wearing a red and black shirt, playing guitar. The text of the tweet reads: wrote a lil theme song for #JohnVsJonVsME! Absurdly proud of myself for rhyming “research is precious” with “Dr. Ron Davis.” @lastweektonight & @thedailyshow who’s going to get in on the #GreatestMEdicalScandal?
February 14, 2025 at 7:54 AM
mecfsmama.bsky.social
Justice for M.E. is long overdue!
Can we catch the attention of @thedailyshow.com and @lastweektonight1.bsky.social and finally expose the greatest medical scandal?
Tag your fellow Guardians and let us know who your favourite Sailor is🌙

#JohnVsJonVsME #TheGreatestMedicalScandal #mecfs
February 14, 2025 at 8:37 AM
Reposted by Tamara | ME/CFS Mama
johnvsjonvsme.bsky.social
Join us in calling on @lastweektonight1.bsky.social
@thedailyshow.com @weeklyshowpodcast.bsky.social to win our 💕 by covering #GreatestMEdicalScandal about the history of gaslighting & denial of ME/CFS by creating, liking, or resharing MEmes like this one by @mecfsmama.bsky.social 3/
ALT Text: Video of Lady and the Tramp eating the same piece of spaghetti until they kiss. At the too of the image there is white text with a black outline that says ‘#JohnVsJonVsME Valentine’s edition’ The Tramp is labelled ‘The M.E Community’ and Lady is labelled ‘The Jo(h)n’s’ Under this it it says ‘the anticipation is growing. When will the Jo(h)n’s cover the #GreatestMEdicalScandal
February 14, 2025 at 7:43 AM
mecfsmama.bsky.social
Which Jo(h)n will be Kenough??
#JohnVsJonVsME #GreatestMEdicalScandal
February 12, 2025 at 10:34 PM
mecfsmama.bsky.social
Here’s the TOOLKIT for the @johnvsjonvsme.bsky.social LoveFest. Have a browse out the MEme’s if you need a pick me up or some inspiration!
johnvsjonvsme.bsky.social @JohnVsJonVsME @johnvsjonvsme.bsky.social · Feb 12
Ready for #JohnVsJonVsME #ValentinesDay LoveFest? Here's a TOOLKIT w/ details, sample posts/MEmes & ways to create your own Valentines💝--telling your Jo(h)n why you think he should be the first to cover #GreatestMEdicalScandal!
docs.google.com/document/d/1...
February 12, 2025 at 10:19 PM
Reposted by Tamara | ME/CFS Mama
johnvsjonvsme.bsky.social
#JohnVsJonVsME is back! #ValentinesDay edition! Which late-night great John Oliver @lastweektonight.com or Jon Stewart @weeklyshowpodcast.bsky.social will be first to win our hearts & cover the #GreatestMEdicalScandal! #pwME (MEme c/o @diatoma.bsky.social )

Here’s how you can join the LoveFest🧵
a MEme of personified cartoon flowers with the faces of Jon Stewart and John Oliver on them holding balloons that say “All you need is love” “& funding for biomedical research & care” on them. Above them “Invite your friends & Valentines to join!” Below “February 14th starting at: 7pm Sydney/9 am Berlin/3 am EST/12 am PST (join when you’re awake!)” and then “#Greatest MEdical Scandal #John Vs Jon Vs ME Valentine’s Edition Love Fest”
February 9, 2025 at 12:13 AM
mecfsmama.bsky.social
I have no idea what I’m doing here. Please be kind while I’m finding my feet. 💙🤲
a cartoon of a deer swimming in a body of water
Alt: a cartoon of a baby deer finding it’s footing.
media.tenor.com
January 15, 2025 at 8:27 AM