Patient Focused Medicines Development (PFMD)
madewithpatients.bsky.social
Patient Focused Medicines Development (PFMD)
@madewithpatients.bsky.social
31 followers 33 following 18 posts
We are a multi-stakeholder coalition uniting the people, frameworks, and tools needed to make patient engagement a standard in healthcare worldwide. Visit us at https://patientfocusedmedicine.org/
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What if patient engagement could be measured like ROI?
PFMD & Gilde explore how patient-centred metrics could link social impact to sustainable investment.

Read more: tinyurl.com/2xkwtt8v

#PatientEngagement #ESG #HealthcareInnovation
Turning patient experience into evidence is no longer a vision; it’s happening now!

Learn how your organisation can lead this shift with 7 takeaways on advancing Patient Experience Data (PED).

Read more: tinyurl.com/mtwsbse5

#PatientEngagement #HealthData #PFMD
The “S” in ESG remains hard to measure. Could patient engagement metrics be the answer? At PFMD & Gilde, we’re exploring how patient-centred performance can define responsible investment in healthcare.

Read more: tinyurl.com/2xkwtt8v

#Glide #PatientEngagement
How Patient Engagement Metrics could drive sustainable investment decisions
How Patient Engagement Metrics could drive sustainable investment decisions
tinyurl.com
Tomorrow’s the day!

Join us for #Lunch&Learn: Rules of Engagement – Navigating Codes of Conduct for Patient Engagement (II) to explore how trade associations’ Codes of Conduct shape pharma–patient collaboration.

Not registered yet? Do it now 👉 tinyurl.com/ymtvfb6r

#PatientEngagement #PEOF2025
Patient Experience Data can transform healthcare decisions. While EMA’s Reflection Paper opens the door, PFMD’s 10 years of co-created tools & guidance provide the blueprint. A PEOF session will soon explore the consultation. Stay tuned!
#PFMD #PatientEngagement #EMA #HealthPolicy
Our Lunch & Learn: Rules of Engagement II on Oct 28, 13:30–14:30 CET will explore real examples, key rules, and how PFMD Country Guidelines support your work. Submit your questions in advance to [email protected]

Register now! patientengagement.synapseconnect.org/events/lunch...

#PEOF #PFMD
A truly insightful session at PEOF!

Unlocking Patient Engagement Intelligence highlighted the power of patient voices in shaping healthcare decisions.

Grateful to our program director, jury, speakers, and all participants for their contributions.

#PatientEngagement #MadeWithPatients #PEOF2025
Over the past decade, the PE community has helped turn patient engagement from isolated pilots into a shared global practice. Now, the EMA’s Reflection Paper marks a defining moment, validating this collective progress.

Let’s make this count. tinyurl.com/5n86p3rw

#PFMD #EMA #PatientExperienceData
Patient experience data are now stepping into policy. We welcome the EMA’s Reflection Paper on Patient Experience Data and invite the community to contribute & shape how patient insights guide healthcare decisions.

Learn more about the paper - tinyurl.com/5n86p3rw

#PFMD #PE #HealthPolicy #EMA
A path to better include patients’ perspectives in the regulation of medicines | European Medicines Agency (EMA)
Reflection paper on patient experience data for public consultation until 31 January 2026
tinyurl.com
Clinical research often overlooks Africa’s realities. Our recent webinar showed the path forward: local leadership, community voices & systems change drive impact. The Africa Working Group is uniting voices—join us. Link in the comments.

#GlobalHealth #ClinicalResearch#CommunityLeadership
Patients weren’t in the room when research was shaped. So Emma opened the door. Now at BMJ, she’s making patient involvement the rule—not the exception. She’s quietly changing whose voice counts in evidence.

Explore more on her work on Synapse.
#MadeWithPatients #PatientEngagement
The 2025 #MadeWithPatients Awards offered something rare: a shared pause. A moment to witness the quiet power of patient-led transformation.
🎥 Watch the full ceremony. Link in comments.
Follow this space as we share lessons that will guide the next steps.

#PatientEngagement#HealthcarethatListens
🤝At the Made With Patients Awards, we celebrated quiet revolutions—work rooted in empathy and shaping care with patients at its heart. From community clinics to global spaces, these stories inspire.

▶️Full recording in comments. More to build, together.

#BetterTogether #MadeWithPatients #PFMD