The LGMD Advocacy Bundle project bridges the gap between clinicians and patients through advocacy support while supplying helpful tools and resources for staff and patients.
Living with LGMD presents unique challenges, both physically and financially. This link to our LGMD Grant Opportunities page serves as a valuable resource, offering detailed information on various grants and programs tailored to assist those with LGMD.
Today is Limb-Girdle Muscular Dystrophy (LGMD) Awareness Day. Help raise awareness by sharing our posts! To learn more about LGMD, please visit our website: lgmd-info.org #LGMDawareness#LgmdDay2025
🌍💜Desde la RER-CSIC Hoy nos unimos al #LGMDawarenessDay para dar visibilidad a la Distrofia Muscular de Cinturas. Recordamos que la investigación es clave para avanzar en el diagnóstico y el futuro de quienes conviven con estas patologías #EnfermedadesRaras@csic.es@lgmdawareness.bsky.social
There is still time to submit your entry for our coloring contest! For contest info, rules and the entry form, visit: www.lgmd-info.org/toolkit/#toc... Thank you to Dooley & Associates for sponsoring our coloring contest this year!
Tuesday, Sept. 30 is LGMD Awareness Day! Have you completed tasks from our toolkit to help EDUCATE others about LGMD? There is still time! Visit: www.lgmd-info.org/toolkit/
Thank you, Governor Maura Healey for the proclamation declaring September 30, 2025, as Limb-Girdle Muscular Dystrophy Awareness Day throughout the State of Massachusetts!
We also thank LGMD Ambassador, Keisha L Greaves, for requesting this proclamation.
We love seeing you share our content! We're so inspired by your creativity. To help us keep our brand looking its best, we ask that you please not edit our logos, photos or graphics. A consistent look helps our community recognize us. thank you for your understanding & support!
Join the LGMD Awareness Foundation in our mission to shine a global spotlight on LGMD & champion the cause for improved access to diagnosis, care & treatment for those living with this condition. Our Toolkit is designed to empower and engage our community. lgmd-info.org/toolkit/
Help spread awareness by downloading and using our specially designed LinkedIn banners and Facebook timeline covers—invite your network to join the movement!
Know the FACTS about Limb-Girdle Muscular Dystrophy (LGMD) & help raise awareness! 💚 To learn more about LGMD, please visit our website: www.LGMD-Info.org
Know the FACTS about Limb-Girdle Muscular Dystrophy (LGMD) & help raise awareness!
LGMD is progressive, meaning that persons affected with this disability have muscles which continue to become weaker throughout their lives. To learn more, please visit: www.LGMD-Info.org
Help ADVOCATE by sending a press release about LGMD Awareness Day to your local media outlets prior to the event. Your voice can help garner attention and support from the broader community.
Our sample press release is available at www.lgmd-info.org/toolkit/
It is time to begin requesting a proclamation from your State Governor or other public representatives. Please help us spread awareness in every state!
Limb-Girdle Muscular Dystrophy (LGMD) is known to occur among all ethnic groups. LGMD occurs in all parts of the world and can be diagnosed in women and men. Symptoms can first appear at any age – childhood, teens, adulthood.
To learn more about LGMD, please visit our website: www.LGMD-Info.org
Know the FACTS about Limb-Girdle Muscular Dystrophy (LGMD) & help raise awareness! 💚 To learn more about LGMD, please visit our website: www.LGMD-Info.org
Help spread awareness by downloading and using our specially designed LinkedIn banners and Facebook timeline covers—invite your network to join the movement!
Most forms of LGMD do not affect the brain, intellect or the senses.
Most people diagnosed w/LGMD can think, see, hear & feel sensations as well as those w/o MD. LGMD2S is one of the rare forms in which some cognitive impairments have occurred.
