The Lewy Body Society
@lewybodysociety.bsky.social
We raise awareness, fund research and provide support.
Lewy body dementia the most common type of dementia you have never heard of. Charity No. 1114579
Lewy body dementia the most common type of dementia you have never heard of. Charity No. 1114579
Our Christmas cards sold out in record time this year - thank you for your support!
You can still grab some of our very talented founder Ashley's artwork inour 2026 Calendar still available in our online shop: www.lewybody.org/product/2026-lewy-body-society-calendar-includes-pp/
#Lewybodydementia
You can still grab some of our very talented founder Ashley's artwork inour 2026 Calendar still available in our online shop: www.lewybody.org/product/2026-lewy-body-society-calendar-includes-pp/
#Lewybodydementia
December 15, 2025 at 3:03 PM
Our Christmas cards sold out in record time this year - thank you for your support!
You can still grab some of our very talented founder Ashley's artwork inour 2026 Calendar still available in our online shop: www.lewybody.org/product/2026-lewy-body-society-calendar-includes-pp/
#Lewybodydementia
You can still grab some of our very talented founder Ashley's artwork inour 2026 Calendar still available in our online shop: www.lewybody.org/product/2026-lewy-body-society-calendar-includes-pp/
#Lewybodydementia
Just 3000 miles of the Atlantic between Tom Skinner and the next time he will step on dry land...
This extraordinary feat is to raise funds for the Lewy Body Society: www.givewheel.com/fundraising/6509/solo-atlantic-row/
Calm seas, Tom!
#worldstoughestrow #lewybodydementia #dementiaawareness
This extraordinary feat is to raise funds for the Lewy Body Society: www.givewheel.com/fundraising/6509/solo-atlantic-row/
Calm seas, Tom!
#worldstoughestrow #lewybodydementia #dementiaawareness
December 14, 2025 at 4:35 PM
Just 3000 miles of the Atlantic between Tom Skinner and the next time he will step on dry land...
This extraordinary feat is to raise funds for the Lewy Body Society: www.givewheel.com/fundraising/6509/solo-atlantic-row/
Calm seas, Tom!
#worldstoughestrow #lewybodydementia #dementiaawareness
This extraordinary feat is to raise funds for the Lewy Body Society: www.givewheel.com/fundraising/6509/solo-atlantic-row/
Calm seas, Tom!
#worldstoughestrow #lewybodydementia #dementiaawareness
2026 is going to be HUGE. We will be setting the bar high from the very beginning at THE Reform Club!
🌍 World Lewy Body Day
🗓 Wed 28 Jan 2026 | 🕕 6-8pm
📍 The Reform Club, Pall Mall, London
🎟 Tickets available here: www.eventbrite.co.uk/e/world-lewy...
#WorldLewyBodyDay #LewyBodySociety #London
🌍 World Lewy Body Day
🗓 Wed 28 Jan 2026 | 🕕 6-8pm
📍 The Reform Club, Pall Mall, London
🎟 Tickets available here: www.eventbrite.co.uk/e/world-lewy...
#WorldLewyBodyDay #LewyBodySociety #London
November 18, 2025 at 12:51 PM
2026 is going to be HUGE. We will be setting the bar high from the very beginning at THE Reform Club!
🌍 World Lewy Body Day
🗓 Wed 28 Jan 2026 | 🕕 6-8pm
📍 The Reform Club, Pall Mall, London
🎟 Tickets available here: www.eventbrite.co.uk/e/world-lewy...
#WorldLewyBodyDay #LewyBodySociety #London
🌍 World Lewy Body Day
🗓 Wed 28 Jan 2026 | 🕕 6-8pm
📍 The Reform Club, Pall Mall, London
🎟 Tickets available here: www.eventbrite.co.uk/e/world-lewy...
#WorldLewyBodyDay #LewyBodySociety #London
AAIC Neuroscience Next 2026 is live!
🧠 Global hybrid conference
📍 Manchester Hub: 26 Feb
🎓 Abstract deadline: 22 Oct (ISTAART: 26 Oct)
🎟️ Free to attend
Submit your work, nominate mentors, and join the conversation.
#AAICNeuro #NeuroscienceNext #DementiaResearch #Biomarkers #ECRsUnite
Register 👇
🧠 Global hybrid conference
📍 Manchester Hub: 26 Feb
🎓 Abstract deadline: 22 Oct (ISTAART: 26 Oct)
🎟️ Free to attend
Submit your work, nominate mentors, and join the conversation.
#AAICNeuro #NeuroscienceNext #DementiaResearch #Biomarkers #ECRsUnite
Register 👇
AAIC Neuroscience Next 2026 – Manchester, UK
AAIC Neuroscience Next 2026 Manchester, UK HUB. Uniting researchers and clinicans interested in new and developing biomarkers for the diagnosis of Dementia.
www.dementiaresearcher.nihr.ac.uk
October 16, 2025 at 4:18 PM
AAIC Neuroscience Next 2026 is live!
🧠 Global hybrid conference
📍 Manchester Hub: 26 Feb
🎓 Abstract deadline: 22 Oct (ISTAART: 26 Oct)
🎟️ Free to attend
Submit your work, nominate mentors, and join the conversation.
#AAICNeuro #NeuroscienceNext #DementiaResearch #Biomarkers #ECRsUnite
Register 👇
🧠 Global hybrid conference
📍 Manchester Hub: 26 Feb
🎓 Abstract deadline: 22 Oct (ISTAART: 26 Oct)
🎟️ Free to attend
Submit your work, nominate mentors, and join the conversation.
#AAICNeuro #NeuroscienceNext #DementiaResearch #Biomarkers #ECRsUnite
Register 👇
People who have Lewy body dementia in their lives can be under pressures others cannot comprehend - they are also some of the most resilient people in the world too.
How do you take care of your mental health? What are you doing/not doing to help you cope?
#WorldMentalHealthDay #Lewybodydementia
How do you take care of your mental health? What are you doing/not doing to help you cope?
#WorldMentalHealthDay #Lewybodydementia
October 10, 2025 at 11:49 AM
People who have Lewy body dementia in their lives can be under pressures others cannot comprehend - they are also some of the most resilient people in the world too.
How do you take care of your mental health? What are you doing/not doing to help you cope?
#WorldMentalHealthDay #Lewybodydementia
How do you take care of your mental health? What are you doing/not doing to help you cope?
#WorldMentalHealthDay #Lewybodydementia
🧠 Not all dementias are the same.
🌍 World Alzheimer's Day was yesterday, we’re shining a light on Lewy body dementia, the second most common type in older people - but often mistaken for Alzheimer’s.
👉 Learn more: www.lewybody.org
#LewyBodyDementia #WorldAlzheimersDay #Dementia #DiagnosisMatters
🌍 World Alzheimer's Day was yesterday, we’re shining a light on Lewy body dementia, the second most common type in older people - but often mistaken for Alzheimer’s.
👉 Learn more: www.lewybody.org
#LewyBodyDementia #WorldAlzheimersDay #Dementia #DiagnosisMatters
September 22, 2025 at 5:08 PM
🧠 Not all dementias are the same.
🌍 World Alzheimer's Day was yesterday, we’re shining a light on Lewy body dementia, the second most common type in older people - but often mistaken for Alzheimer’s.
👉 Learn more: www.lewybody.org
#LewyBodyDementia #WorldAlzheimersDay #Dementia #DiagnosisMatters
🌍 World Alzheimer's Day was yesterday, we’re shining a light on Lewy body dementia, the second most common type in older people - but often mistaken for Alzheimer’s.
👉 Learn more: www.lewybody.org
#LewyBodyDementia #WorldAlzheimersDay #Dementia #DiagnosisMatters
Reposted by The Lewy Body Society
People with dementia, MS, MND & carer’s. Have you had a social care needs assessment & can you help us with important research about these please? 🙏 contact details on poster @denpru-qm.bsky.social @age-uk.bsky.social @alzheimerssoc.bsky.social @mssocietyuk.bsky.social
@lewybodysociety.bsky.social
@lewybodysociety.bsky.social
September 16, 2025 at 8:04 PM
People with dementia, MS, MND & carer’s. Have you had a social care needs assessment & can you help us with important research about these please? 🙏 contact details on poster @denpru-qm.bsky.social @age-uk.bsky.social @alzheimerssoc.bsky.social @mssocietyuk.bsky.social
@lewybodysociety.bsky.social
@lewybodysociety.bsky.social
The Dementia Explorer, the world's first dementia boardgame to help children understand more about the disease 1 in 3 people born today can expect to develop in their lifetime.
Proudly co-produced with @liverpooluni.bsky.social
Exclusively available: www.lewybody.org/shop/
#Dementia #innovation
Proudly co-produced with @liverpooluni.bsky.social
Exclusively available: www.lewybody.org/shop/
#Dementia #innovation
New Board Game Helps Children Understand Dementia
YouTube video by University of Liverpool
www.youtube.com
September 16, 2025 at 12:11 PM
The Dementia Explorer, the world's first dementia boardgame to help children understand more about the disease 1 in 3 people born today can expect to develop in their lifetime.
Proudly co-produced with @liverpooluni.bsky.social
Exclusively available: www.lewybody.org/shop/
#Dementia #innovation
Proudly co-produced with @liverpooluni.bsky.social
Exclusively available: www.lewybody.org/shop/
#Dementia #innovation
Reposted by The Lewy Body Society
NEW
@arcnwc.bsky.social
#CommunityOfPractice event: #SocialCare in #Dementia
Including:
- Lived experience
- A Dementia care navigator perspective @merseycarenhs.bsky.social
- Latest social care and dementia research
📅 Tuesday 16th October 2-3.30pm (Online)
Register here: tinyurl.com/t4cedtc4
@arcnwc.bsky.social
#CommunityOfPractice event: #SocialCare in #Dementia
Including:
- Lived experience
- A Dementia care navigator perspective @merseycarenhs.bsky.social
- Latest social care and dementia research
📅 Tuesday 16th October 2-3.30pm (Online)
Register here: tinyurl.com/t4cedtc4
September 12, 2025 at 9:52 AM
NEW
@arcnwc.bsky.social
#CommunityOfPractice event: #SocialCare in #Dementia
Including:
- Lived experience
- A Dementia care navigator perspective @merseycarenhs.bsky.social
- Latest social care and dementia research
📅 Tuesday 16th October 2-3.30pm (Online)
Register here: tinyurl.com/t4cedtc4
@arcnwc.bsky.social
#CommunityOfPractice event: #SocialCare in #Dementia
Including:
- Lived experience
- A Dementia care navigator perspective @merseycarenhs.bsky.social
- Latest social care and dementia research
📅 Tuesday 16th October 2-3.30pm (Online)
Register here: tinyurl.com/t4cedtc4
Lewy body dementia isn't like other dementias, and because of that it can get missed as a diagnosis.
If you think you or a loved one might have some or all of these symptoms, please go to your GP.
☎️ Admiral dementia nurses: 0800 888 6678.
#lewybodydementia #dementia #dementiasymptoms
If you think you or a loved one might have some or all of these symptoms, please go to your GP.
☎️ Admiral dementia nurses: 0800 888 6678.
#lewybodydementia #dementia #dementiasymptoms
September 11, 2025 at 8:47 PM
Lewy body dementia isn't like other dementias, and because of that it can get missed as a diagnosis.
If you think you or a loved one might have some or all of these symptoms, please go to your GP.
☎️ Admiral dementia nurses: 0800 888 6678.
#lewybodydementia #dementia #dementiasymptoms
If you think you or a loved one might have some or all of these symptoms, please go to your GP.
☎️ Admiral dementia nurses: 0800 888 6678.
#lewybodydementia #dementia #dementiasymptoms
Reposted by The Lewy Body Society
One week to go until the #GreatNorthRun. This new banner and I will be on the Camden St bridge cheering on Team @lewybodysociety.bsky.social and everyone else.
August 31, 2025 at 6:12 PM
One week to go until the #GreatNorthRun. This new banner and I will be on the Camden St bridge cheering on Team @lewybodysociety.bsky.social and everyone else.
💥 For a small charity, we make a BIG impact - and we are making a bigger one every year!
With Lewy body dementia so misunderstood, no wonder families are turning to us for help.
#Lewybodydementia #Dementiasupport #Dementia
With Lewy body dementia so misunderstood, no wonder families are turning to us for help.
#Lewybodydementia #Dementiasupport #Dementia
August 28, 2025 at 3:58 PM
💥 For a small charity, we make a BIG impact - and we are making a bigger one every year!
With Lewy body dementia so misunderstood, no wonder families are turning to us for help.
#Lewybodydementia #Dementiasupport #Dementia
With Lewy body dementia so misunderstood, no wonder families are turning to us for help.
#Lewybodydementia #Dementiasupport #Dementia
Reposted by The Lewy Body Society
Board meetings with @lewybodysociety.bsky.social are always invigorating. Exciting plans coming for 2026…
The Lewy Body Society (@lewybodysociety.bsky.social)
We raise awareness, fund research and provide support. Lewy body dementia the most common type of dementia you have never heard of. Charity No. 1114579
lewybodysociety.bsky.social
August 21, 2025 at 3:40 PM
Board meetings with @lewybodysociety.bsky.social are always invigorating. Exciting plans coming for 2026…
We are delighted Emma Cunniffe has agreed to become a Lewy Body Society ambassador.
Welcome aboard, Emma!
#Lewybodydementia #Dementia #Ambassador
Welcome aboard, Emma!
#Lewybodydementia #Dementia #Ambassador
Actor Emma Cunniffe joins Lewy Body Society as ambassador - Lewy Body
North West actor Emma Cunniffe has joined the Lewy Body Society as an ambassador for its crucial work with dementia.
www.lewybody.org
August 19, 2025 at 2:15 PM
We are delighted Emma Cunniffe has agreed to become a Lewy Body Society ambassador.
Welcome aboard, Emma!
#Lewybodydementia #Dementia #Ambassador
Welcome aboard, Emma!
#Lewybodydementia #Dementia #Ambassador
Great to see our Special Advisory Committee member Anto P Rajkumar Rajamani, Clinical Associate Professor in old age psychiatry at the University of Nottingham, at Alzheimer's Association International Conference 2025 in Toronto
#AAIC #AAIC2025 #Dementia #Lewybodydementia
#AAIC #AAIC2025 #Dementia #Lewybodydementia
July 29, 2025 at 7:13 PM
Great to see our Special Advisory Committee member Anto P Rajkumar Rajamani, Clinical Associate Professor in old age psychiatry at the University of Nottingham, at Alzheimer's Association International Conference 2025 in Toronto
#AAIC #AAIC2025 #Dementia #Lewybodydementia
#AAIC #AAIC2025 #Dementia #Lewybodydementia
Booth 1046💙
If you are going to #AAIC2025, please stop by @lewybodysociety.bsky.social booth, 410. And on Wednesday my poster ,002, will be up.
July 27, 2025 at 1:44 PM
Booth 1046💙
July 27, 2025 at 1:43 PM
Reposted by The Lewy Body Society
Reposted by The Lewy Body Society
June 26, 2025 at 8:24 AM
@amrc-uk.bsky.social charities - of which we are one - are major contributors to UK medical research, investing in universities and the NHS, as well as supporting the R&D workforce from the earliest stages of their careers www.amrc.org.uk/2025-our-sectors-footprint
#CharityImpact #lewybodydementia
#CharityImpact #lewybodydementia
June 26, 2025 at 11:49 AM
@amrc-uk.bsky.social charities - of which we are one - are major contributors to UK medical research, investing in universities and the NHS, as well as supporting the R&D workforce from the earliest stages of their careers www.amrc.org.uk/2025-our-sectors-footprint
#CharityImpact #lewybodydementia
#CharityImpact #lewybodydementia
It is Lewy Body Awareness Week!
And we have big news: www.lewybody.org/lewy-body-aw...
#LewyBodyAwarenessWeek #Lewybodydementia #Dementia
And we have big news: www.lewybody.org/lewy-body-aw...
#LewyBodyAwarenessWeek #Lewybodydementia #Dementia
Lewy Body Awareness Week: LBS birthday celebration announcement! - Lewy Body
The Lewy Body Society has announced a year of celebration for its 20th anniversary during Lewy Body Awareness Week .
www.lewybody.org
June 23, 2025 at 11:13 AM
It is Lewy Body Awareness Week!
And we have big news: www.lewybody.org/lewy-body-aw...
#LewyBodyAwarenessWeek #Lewybodydementia #Dementia
And we have big news: www.lewybody.org/lewy-body-aw...
#LewyBodyAwarenessWeek #Lewybodydementia #Dementia
Reposted by The Lewy Body Society
Lewy Body Society are one of the charity supporters of Carers Week. We asked them why Caring about Equality matters to them
@lewybodysociety.bsky.social
@lewybodysociety.bsky.social
June 12, 2025 at 10:01 AM
Lewy Body Society are one of the charity supporters of Carers Week. We asked them why Caring about Equality matters to them
@lewybodysociety.bsky.social
@lewybodysociety.bsky.social
Northern Ireland's Deputy First Minister Emma Little Pengelly with our ambassador, Les Magee, who was representing the Lewy Body Society at the Carers Week event at Stormont earlier this week.
We are proud to be a partner organisation of Carers Week.
#CarersWeek #NorthernIreland #dementiacarers
We are proud to be a partner organisation of Carers Week.
#CarersWeek #NorthernIreland #dementiacarers
June 11, 2025 at 11:03 AM
Northern Ireland's Deputy First Minister Emma Little Pengelly with our ambassador, Les Magee, who was representing the Lewy Body Society at the Carers Week event at Stormont earlier this week.
We are proud to be a partner organisation of Carers Week.
#CarersWeek #NorthernIreland #dementiacarers
We are proud to be a partner organisation of Carers Week.
#CarersWeek #NorthernIreland #dementiacarers
This Carers Week, Lewy Body Society ambassador Karen Young shares her experience of becoming a carer for her husband Alan, a former chartered civil engineer. We think her thoughts will resonate with a lot of people.
#CarersWeek #dementiacarers #lewybodydementia
@carers-week.bsky.social
#CarersWeek #dementiacarers #lewybodydementia
@carers-week.bsky.social
Caring is a ‘journey of unconditional love and continual adjustment’ - Lewy Body
This Carers Week, Lewy Body Society ambassador Karen Young shares her experience of becoming a carer for her husband Alan.
www.lewybody.org
June 10, 2025 at 12:30 PM
This Carers Week, Lewy Body Society ambassador Karen Young shares her experience of becoming a carer for her husband Alan, a former chartered civil engineer. We think her thoughts will resonate with a lot of people.
#CarersWeek #dementiacarers #lewybodydementia
@carers-week.bsky.social
#CarersWeek #dementiacarers #lewybodydementia
@carers-week.bsky.social
Today is the first day of Carers Week 2025.
As the only dementia charity officially part of Carers Week, we are delighted Lewy Body Society supporter Paul Stone has shared his story as a carer in the Carers Week report 2025: Caring About Equality.
#CarersWeek #DementiaCarers #Lewybodydementia
As the only dementia charity officially part of Carers Week, we are delighted Lewy Body Society supporter Paul Stone has shared his story as a carer in the Carers Week report 2025: Caring About Equality.
#CarersWeek #DementiaCarers #Lewybodydementia
LBS backs Carers Week report calling for more support for unpaid carers - Lewy Body
A new Carers Week report has found millions of unpaid carers feel disadvantaged and are unable to prioritise their own health needs and struggle with employment.
www.lewybody.org
June 9, 2025 at 11:00 AM
Today is the first day of Carers Week 2025.
As the only dementia charity officially part of Carers Week, we are delighted Lewy Body Society supporter Paul Stone has shared his story as a carer in the Carers Week report 2025: Caring About Equality.
#CarersWeek #DementiaCarers #Lewybodydementia
As the only dementia charity officially part of Carers Week, we are delighted Lewy Body Society supporter Paul Stone has shared his story as a carer in the Carers Week report 2025: Caring About Equality.
#CarersWeek #DementiaCarers #Lewybodydementia