Adamantinoma research update 🧬

Thanks to donated tumour samples, scientists at @unileiden.bsky.social have:

- Identified a new subtype
- Found clues in immune cells
- Moved towards better diagnosis

Visit: ow.ly/TUel50X5It2

@letsbewheel.bsky.social

#BoneCancerAwarenessWeek #UntilTheresACure

Lewis was diagnosed with adamantinoma in his shinbone at just 8 years old.

For #BoneCancerAwarenessWeek, he shares his powerful story to raise life-changing awareness of the signs & symptoms 🎗️

Visit: ow.ly/4wEJ50X5J4N

@letsbewheel.bsky.social

#CouldItBeBoneCancer #Awareness #UntilTheresACure

This #BoneCancerAwarenessWeek, meet Lewis, who was diagnosed with adamantinoma at 8 years old.

His pain was documented for years before his diagnosis. Unfortunately, it was dismissed 📕

Visit: ow.ly/2PJO50X5FB9

@letsbewheel.bsky.social

#CouldItBeBoneCancer #Awareness #UntilTheresACure

For #BoneCancerAwarenessWeek, we're shining a light on misdiagnosis to help reduce life-threatening delays.

From Monday 6th October, share your misdiagnosis on social media using #CouldItBeBoneCancer.

Your story could change someone else's 🧡

Visit: ow.ly/QlGE50X4aLc

#UntilTheresACure

A couple pics from Teens Unite’s Discover You 2025!

Not only are these events chances to learn new things, they are an incredible opportunity to make friends who understand what you’re going through! And that to me is invaluable!

#teensunite #bonecancer #cancer #advocate

Cancer Fatigue SUCKS! So let’s talk about it! ♿️🧡

#bonecancer #cancerfatigue #fatigue #illness #disabilityadvocate

We’re thrilled to celebrate Sandra Jeffs, winner of the Fundraiser Award at the BBC Radio Berkshire Make a Difference Awards! She’s raised £132K in memory of her son Michael and launched her own charity, Buying Time, to help young adults make precious memories with their families. 💙

Anxiety sucks!! So let’s talk about it!

My anxiety worry is time, here’s a little more about it - www.instagram.com/reel/DOv87Pd...

What is your current worry? No matter how big or small, drop it below! This is a safe space! ♿️🧡

It’s not everyday you get to meet YouTube’s Managing Director Alison Lomax!!

Come with me to Google HQ - www.instagram.com/reel/DOREgd7...

#youtube #google #vlog #teensunite

I love Autumn soooo much, I decided to film an Autumn decoration Haul with my sister! Here’s a couple out of context shots from it 👀

Which season is your favourite? 🍂

#autumn #fall #september

I was lucky enough to attend the screening for Conjuring: The Last Rites on Wednesday, all thanks to the truly wonderful charity Teens Unite

What an INCREDIBLE experience! Thank you so much to all involved Warner Bros UK, CrewHQ

Go and see the movie! IT’S A MASTERPIECE!! 🪞

I was really unhappy with the way my YouTube channel looked on its debut! So… I did a lot upgrading! What do you think?

Before 🟡 After 🔵

- youtube.com/@letsbewheel...

#youtubechannel #letsbewheel #vlogging #disability

A little weekly update with Let’s Be Wheel! I’m back to working on tv!!

#tvshow #actor #letsbewheel

Absolutely will do! Thank you for reaching out!

The GREAT impact that Green Day and specifically Tre Cool have had on my life!

More from 'The Wheel Story' here - youtu.be/2TmoveM-8nU?...

#Disability #advocate #greenday #drummer

Today I was honoured to be on BBC Radio Somerset talking all things Let’s Be Wheel!

A huge thank you to the wonderful host Simon Parkin and the team for not only making me feel welcome and comfortable but for giving the opportunity of a lifetime, to share something so dear to me with the world!

This year, the Euro Ewing Consortium (EEC) and Advances in Ewing Sarcoma Research (AESR) meetings joined forces — uniting over 200 experts & advocates to drive much-needed change 🌍

Learn more: ow.ly/22jw50WECZO

@universityofleeds.bsky.social | @dkfz.bsky.social

#Research #UntilTheresACure

I'm looking for similar creators here on Bluesky! Does anybody also vlog on the big red app? 👀

Ever wondered what it’s like to attend a Teenage Cancer Trust Event as a young person with Bone Cancer? 🦴🎗️

Lemme show you!! 🎥 youtu.be/kXOQ770cbhU?...

Have a lovely day! ♿️🧡

#disabilityawareness #bonecancer #teenagecancer #letsbewheel

The beginning of something HUGE!

#letsbewheel #letsbereal #bonecancer