Author | Lightnews

Reposted by Ben Kopp MD/MPH

CF-AIR @emory-choa-cfair.bsky.social · 1d

CF-AIR, CF@LANTA & affiliates had
a strong showing at the North American Cystic Fibrosis Conference with 37 speakers & 62 posters. Congrats to Dr. Irina Miralda Molina for winning best abstract in basic science research! We're excited about the knowledge gained & collaborations formed in Seattle!

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Ben Kopp MD/MPH @kidslungdoc.bsky.social · Aug 27

Seat belts are a restriction to freedom but have undeniably improved public safety reducing traffic deaths by 45%. we are way overdue to use this framework for gun control with another senseless tragedy today. Improved Mental healthcare access is also key

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Ben Kopp MD/MPH @kidslungdoc.bsky.social · Aug 27

A lot of policy is needed to reduce emissions, especially in high risk areas . Many past efforts are being undone currently

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Ben Kopp MD/MPH @kidslungdoc.bsky.social · Jun 10

latest work: JCI Insight - Annual PM2.5 exposure and clinical, laboratory, and stroke-risk outcomes in pediatric sickle cell disease insight.jci.org/articles/vie...

JCI Insight - Annual PM2.5 exposure and clinical, laboratory, and stroke-risk outcomes in pediatric sickle cell disease

insight.jci.org

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Ben Kopp MD/MPH @kidslungdoc.bsky.social · May 15

Our latest work: Altered nasal and oral microbiomes define pediatric sickle cell disease pubmed.ncbi.nlm.nih.gov/40366139/ #SickleCell

Altered nasal and oral microbiomes define pediatric sickle cell disease - PubMed

The oral and nasal cavities are susceptible to environmental exposures including pathogenic microbes. In individuals with systemic disorders, antibiotic exposure, changes to the immune system, or chan...

pubmed.ncbi.nlm.nih.gov

Ben Kopp MD/MPH @kidslungdoc.bsky.social · Mar 30

Ben Kopp MD/MPH @kidslungdoc.bsky.social · Feb 19

Nice infographic on the importance of why federal facility and administrative (F&A e.g. indirects) are Extremely important for the life-saving research going on around the country. Indirects matter. Protocols dont work without electricity and safety regulations! @emory-choa-cfair.bsky.social

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Ben Kopp MD/MPH @kidslungdoc.bsky.social · Feb 12

New work from the lab! @emory-choa-cfair.bsky.social
www.frontiersin.org/journals/imm...

Frontiers | Proteomics profiling of inflammatory responses to elexacaftor/tezacaftor/ivacaftor in cystic fibrosis

www.frontiersin.org

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Reposted by Ben Kopp MD/MPH

Alondra Nelson @alondra.bsky.social · Feb 8

Research universities are often the largest employers in their region. They are often the primary health care providers to communities. This funding shift will not only reduce US research leadership, it will put working people out of work and reduce healthcare access.

Alondra Nelson @alondra.bsky.social · Feb 8

Excellent 🧵 on this evening's NIH announcement of a dramatic reduction in indirect rates for research institutions, which amounts to a generational restructuring of the US research and development ecosystem. These cuts are effective immediately, not just for new grants but for existing ones.

Carl T. Bergstrom @carlbergstrom.com · Feb 8

6. The policy does not just affect funding going forward. All existing NIH grants will have their indirect rates cut to 15% as of today, the date of issuance.

For a large university, this creates a sudden and catastrophic shortfall of hundreds of millions of dollars against already budgeted funds.

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Reposted by Ben Kopp MD/MPH

Stephen Patrick, MD, MPH @stephenwpatrick.bsky.social · Feb 8

In Georgia-

NIH FUNDING:
$780 M
JOBS SUPPORTED:
11,816
ECONOMIC ACTIVITY SUPPORTED:
$2.18 B

www.unitedformedicalresearch.org/nih-in-your-...

NIH In Your State - United For Medical Research

Select a state on the map to see the impact of NIH funding across America.

www.unitedformedicalresearch.org

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Reposted by Ben Kopp MD/MPH

Scare-en James @kejames.bsky.social · Feb 8

Look up the impact of NIH funding in your state: www.unitedformedicalresearch.org/nih-in-your-...

NIH In Your State - United For Medical Research

Select a state on the map to see the impact of NIH funding across America.

www.unitedformedicalresearch.org

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Ben Kopp MD/MPH @kidslungdoc.bsky.social · Feb 3

Celebrating amazing colleagues on National Women Physicians Day! Let us take time to continue support through struggles up ahead and celebrate accomplishments each and every day!

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Reposted by Ben Kopp MD/MPH

CF-AIR @emory-choa-cfair.bsky.social · Feb 1

Moments from today's Emory + Children's CF Family Education Day at Arthur M. Blank Hospital. Many thanks to keynote speaker, Dr. Deepika Polineni, of Washington University, St. Louis, for her informative talk on CF Gene Therapies: Where We Are Going and Where We Are Now.

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Ben Kopp MD/MPH @kidslungdoc.bsky.social · Jan 28

Staying positive this week with good news:
www.frontiersin.org/journals/imm...

Frontiers | Proteomics profiling of inflammatory responses to elexacaftor/tezacaftor/ivacaftor in cystic fibrosis

www.frontiersin.org

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Reposted by Ben Kopp MD/MPH

RobynCohenMD @robyncohenmd.bsky.social · Jan 22

www.science.org/content/arti...

Trump hits NIH with ‘devastating’ freezes on meetings, travel, communications, and hiring

Researchers facing

www.science.org

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Reposted by Ben Kopp MD/MPH

American Thoracic Society (ATS) @atscommunity.bsky.social · Jan 10

In the midst of devastating wildfires, ATS member Shazia Jamil, MD, shares tips for protecting yourself and others in @wired.com interview. www.wired.com/story/how-wi...

How Wildfire Smoke Affects Your Health—And How to Protect Yourself

Exposure to smoke is dangerous regardless of your health status—so follow these steps to limit the risk.

www.wired.com

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Ben Kopp MD/MPH @kidslungdoc.bsky.social · Jan 10

Who would have thought? Snow in ATL! Courtesy of L Guglani

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Ben Kopp MD/MPH @kidslungdoc.bsky.social · Jan 8

Just testified to the EPA to reduce NOx emissions from industrial sources and protect our kids. Not too late to submit comments!

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Ben Kopp MD/MPH @kidslungdoc.bsky.social · Jan 7

Vanzacaftor-tezacaftor-deutivacaftor versus elexacaftor-tezacaftor-ivacaftor in individuals with cystic fibrosis ag… pubmed.ncbi.nlm.nih.gov/39756424/

Vanzacaftor-tezacaftor-deutivacaftor versus elexacaftor-tezacaftor-ivacaftor in individuals with cystic fibrosis aged 12 years and older (SKYLINE Trials VX20-121-102 and VX20-121-103): results from tw...

Vertex Pharmaceuticals.

pubmed.ncbi.nlm.nih.gov

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Ben Kopp MD/MPH @kidslungdoc.bsky.social · Dec 20

Interesting-- Papilledema in Children With Cystic Fibrosis Receiving Elexacaftor/Tezacaftor/Ivacaftor: A Multicenter Case Series pubmed.ncbi.nlm.nih.gov/39704064/

Papilledema in Children With Cystic Fibrosis Receiving Elexacaftor/Tezacaftor/Ivacaftor: A Multicenter Case Series - PubMed

Following the approval of elexacaftor/tezacaftor/ivacaftor (ETI), there have been post-marketing reports and published cases of papilledema and intracranial hypertension in children with cystic fibros...

pubmed.ncbi.nlm.nih.gov

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Ben Kopp MD/MPH @kidslungdoc.bsky.social · Dec 16

It’s a day that ends in “y” so more wasted time switching inhalers for kids with stable asthma because the insurance changed their formulary and are recommending age inappropriate alternatives. Time for medication reform and better health policy!

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Ben Kopp MD/MPH @kidslungdoc.bsky.social · Dec 14

Bourbon!

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Ben Kopp MD/MPH @kidslungdoc.bsky.social · Dec 12

Celebrating with CF-AIR today. Nothing like stealing presents from your colleagues to get everyone smiling! @emory-choa-cfair.bsky.social

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Ben Kopp MD/MPH @kidslungdoc.bsky.social · Dec 11

Modulators are great, but they dont fix all! #CysticFibrosis
Glycemia and Insulin Secretion in Cystic Fibrosis Two Years After Elexacaftor/Tezacaftor/Ivacaftor: PROMISE-ENDO pubmed.ncbi.nlm.nih.gov/39657947/

Glycemia and Insulin Secretion in Cystic Fibrosis Two Years After Elexacaftor/Tezacaftor/Ivacaftor: PROMISE-ENDO - PubMed

After two years of ETI, fasting glucose and HbA1c showed modest decreases. Glucose tolerance varied, and overall measures of insulin secretion did not deteriorate.

pubmed.ncbi.nlm.nih.gov

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