Karen Hargrave
@karenlhargrave.bsky.social
1.2K followers
700 following
120 posts
Co-founder #ThereForME | Calling for an NHS that’s there for ME & Long Covid | www.thereforme.uk
Independent researcher & policy analyst | Migration & displacement | Projects with @odi-global.bsky.social | www.linkedin.com/in/karen-hargrave
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We know that support for people with ME isn't anywhere near as good as it should be - & we're working hard to change that.
But this Christmas we wanted to take a moment to celebrate those in the UK who are in our corner.
Can you help us find our #ThereForME advent calendar stars?
But this Christmas we wanted to take a moment to celebrate those in the UK who are in our corner.
Can you help us find our #ThereForME advent calendar stars?
We know that support for people with ME isn't anywhere near as good as it should be - & we're working hard to change that.
But this Christmas we wanted to take a moment to celebrate those in the UK who are in our corner.
Can you help us find our #ThereForME advent calendar stars?
But this Christmas we wanted to take a moment to celebrate those in the UK who are in our corner.
Can you help us find our #ThereForME advent calendar stars?
Today's #ThereForME blog shares findings from a mini survey.
We asked carers and clinicians with experience supporting people with v severe ME whether the Health Secretary should commission a service for v severe ME - and if so, what it should look like.
Link in next post 👇
We asked carers and clinicians with experience supporting people with v severe ME whether the Health Secretary should commission a service for v severe ME - and if so, what it should look like.
Link in next post 👇
Today’s #ThereForME blog is our last update before a short pause (we’ll be back in September 😎).
We unpack the Delivery Plan, the media coverage and why it matters.
Link in next post 👇
We unpack the Delivery Plan, the media coverage and why it matters.
Link in next post 👇
Today we’re celebrating a year to the day since @karenlhargrave.bsky.social & @emmagl.bsky.social launched #ThereForME!
We had a busy day yesterday responding to the Delivery Plan release. It’s clear how much more our campaign has left to do - but today we’re reflecting on what we’ve done so far
We had a busy day yesterday responding to the Delivery Plan release. It’s clear how much more our campaign has left to do - but today we’re reflecting on what we’ve done so far
Reposted by Karen Hargrave
Lots going on today with ME coverage! 📺 📻
Some coverage we’re expecting today (pending news schedules):
- Our co-founder @karenlhargrave.bsky.social due to be featured on Radio 4 World at One between 1-2pm
- #ThereForME Ambasador @binitakane.bsky.social due on Channel 4 News between 7-8pm
Some coverage we’re expecting today (pending news schedules):
- Our co-founder @karenlhargrave.bsky.social due to be featured on Radio 4 World at One between 1-2pm
- #ThereForME Ambasador @binitakane.bsky.social due on Channel 4 News between 7-8pm
Today we’ve got a visibility themed update, in honour of our @oonaghcousins.bsky.social new job.
Read today’s #ThereForME update to find out how many times we can fit the word “visible” into a blog.
Link in next post 👇
Read today’s #ThereForME update to find out how many times we can fit the word “visible” into a blog.
Link in next post 👇
Reposted by Karen Hargrave
Reposted by Karen Hargrave
Reposted by Karen Hargrave
Reposted by Karen Hargrave
ThereForME
@thereforme.bsky.social
· May 13
I used the opportunity of DWP questions on #WorldMEDay to ask that Liz Kendall talk to DHSC to make funds available for research so that #pwME could do what they want more than anything which is to live a normal life, go to work, and not have to try to survive on benefits. Win-win. #FundThePlan
So delighted that all 72 LibDem MPs signed this letter to @rthonwesstreeting.bsky.social @ashleydaltonmp.bsky.social asking the govt to back the ME/CFS Delivery Plan with the resources it deserves. May this be a huge encouragement to the ME community and the start of meaningful change. #WorldMEDay
Reposted by Karen Hargrave
ThereForME
@thereforme.bsky.social
· May 6
Reposted by Karen Hargrave
“People with ME, their carers and families are saying: how can you deliver a plan with no money assigned to it?”
Rosie Barrett on @bbcspotlight.bsky.social
(Clip via @abrokenbattery.bsky.social)
Rosie Barrett on @bbcspotlight.bsky.social
(Clip via @abrokenbattery.bsky.social)