Author | Lightnews

Reposted by Jason Maddix

Drugs for Neglected Diseases initiative (DNDi) @dndi.org · 8d

“I felt trapped between two painful options: live with medical debt or hope it would heal on its own” Jessica Robbins’ battle with cutaneous leishmaniasis meant months of misdiagnosis, isolation & stigma. Now she’s advocating for awareness, diagnosis & access to treatment. Full story: bit.ly/3X5BLTS

Jessica Robbins: A long and difficult journey with cutaneous leishmaniasis

Founder of the Leishmaniasis Advocacy Network, Jessica shares her journey with cutaneous leishmaniasis, from diagnosis to recovery, and how it shaped her commitment to advocacy.

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Jason Maddix @jasonmaddix.bsky.social · Aug 19

Friends in Switzerland: please read, please sign, please share.
Amis en Suisse : veuillez lire, veuillez signer, veuillez partager.
Freunde in der Schweiz: bitte lesen, bitte unterschreiben, bitte teilen.
Amici in Svizzera: per favore leggete, per favore firmate, per favore condividete.

Face au génocide à Gaza, la Suisse ne peut pas se cacher derrière sa neutralité!

Le silence et l’inaction tuent : rester passif n’est pas une option !

www.msf.ch

Reposted by Jason Maddix

Drugs for Neglected Diseases initiative (DNDi) @dndi.org · Jun 6

‘This is about the most vulnerable people in the poorest parts of the world that just want access to basic medication.’

A powerful @npr.org article on how sweeping cuts to foreign aid threaten two decades of progress against neglected tropical diseases. #beatNTDs @jpatadams.bsky.social n.pr/3HHYvVz

'Neglected tropical diseases' now face even more neglect

U.S. aid cuts could jeopardize the supply of donated drugs that are hailed for their effectiveness in combating neglected diseases like river blindness, schistosomiasis and trachoma.

n.pr

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Jason Maddix @jasonmaddix.bsky.social · Jun 3

Perhaps to grease the wheels for future billions from the US, Israel, and other paying actors and apologists behind the systematic starvation and murder of civilians in Gaza? Disgraceful.

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Jason Maddix @jasonmaddix.bsky.social · Jun 3

Why did Boston Consulting Group (BCG) engage in this “pro bono” work to begin with — against the *overwhelming* opinion of neutral and impartial experts in the delivery of life-saving humanitarian assistance in conflict zones? www.cnn.com/2025/06/03/p...

Boston Consulting Group terminates contract with controversial US-backed Gaza aid organization | CNN Politics

A US consulting firm has canceled its contract with the controversial US and Israel-backed aid organization set up to distribute aid as famine conditions worsen in war-ravaged Gaza, a spokesperson for...

www.cnn.com

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Jason Maddix @jasonmaddix.bsky.social · May 1

“…we can’t just focus on stewardship, surveillance and containment in low- and middle-income communities, while we’re focused on just innovation in high-income countries. We actually have to focus on both all at once, in all places.”

Global Antibiotic R&D Partnership (GARDP) @gardp.bsky.social · May 1

Lack of access to antibiotics is driving spread of superbugs, finds research.

Learn more about GARDP’s new research reveals a major access gap for patients with multidrug-resistant infections in this article by @theguardian.com 👇

www.theguardian.com/global-devel...

Lack of access to antibiotics is driving spread of superbugs, finds research

Focus on overuse contributes to antibiotics reaching less than 7% of people with drug-resistant infections in poorer countries, say researchers

www.theguardian.com

Jason Maddix @jasonmaddix.bsky.social · Apr 14

‘“No government — regardless of which party is in power — should dictate what private universities can teach, whom they can admit and hire, and which areas of study and inquiry they can pursue,” said Alan Garber, Harvard’s president.’ www.nytimes.com/2025/04/14/u...

Harvard Will Not Comply With a List of Trump Administration Demands (Gift Article)

Federal officials said Harvard must enact “merit-based reform” in hiring and admissions and report international students who broke rules, among other steps. Harvard called the demands unlawful.

www.nytimes.com

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Reposted by Jason Maddix

James Packard Love @jamielove.bsky.social · Apr 11

At the @who.int one would think the EU would be fine with this language in the pandemic agreement preamble, but apparently it wants to argue about it. Not sure if the EU actually wants an agreement.

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gostin.bsky.social @gostin.bsky.social · Apr 11

The Africa & Equity Groups insist that the term “voluntary” must not be in the Pandemic Agreement (Art 11). They are fighting to defend domestic laws permitting non-voluntary tech transfer. They are right. The whole point of the treaty is to advance equity & not to erode it.

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Reposted by Jason Maddix

Drugs for Neglected Diseases initiative (DNDi) @dndi.org · Apr 10

Did you know that we can manage patents in a way that serves the public good?
Our Intellectual Property & Access Leader shares why, together with our partners from the @asapdiscovery.bsky.social, we are filing a #patent for a promising new #molecule that we developed together.

shorturl.at/IgL80

How patents can serve the common good

YouTube video by Drugs for Neglected Diseases initiative (DNDi)

youtube.com

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Reposted by Jason Maddix

Dr. Lucky Tran @luckytran.com · Apr 7

Do not normalize children dying from measles. Measles was previously eliminated in the US, thanks to vaccines.

When children die from measles, it means that adults have catastrophically failed to protect them because they have rejected basic science.

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Jason Maddix @jasonmaddix.bsky.social · Mar 31

“While a few strokes of a president’s pen may have changed how the US will engage in multilateral efforts and global health, they cannot change the evidence: pandemic threats can only be addressed through multilateral collaboration.”

Nina Schwalbe, MPH, PhD @nschwalbe.bsky.social · Mar 31

⏰Next week is the final negotiating session for the #PandemicAccord at the World Health Organization in Geneva.

💣Negotiators cannot afford to fail.

🤝 To strike a deal, countries no longer have the luxury of holding tight to narrow national self-interest.

🧵

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Reposted by Jason Maddix

Stephanie Nolen @stephanienolen.bsky.social · Mar 12

In Kenya parents who took their sick children to get tested for TB the day before Trump was inaugurated are still waiting to hear if their children are infected. People with drug-resistant TB are not being treated. A global health risk, delivered by the aid freeze www.nytimes.com/2025/03/11/h...

Tuberculosis Resurgent as Trump Funding Cut Disrupts Treatment Globally (Gift Article)

The United States was the major funder of tuberculosis programs. Now hundreds of thousands of sick patients can’t find tests or drugs, and risk spreading the disease.

www.nytimes.com

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John Green @johngreensbluesky.bsky.social · Mar 11

Critical reporting from Stephanie Nolen on what the interruption of TB funding actually means for those living with the disease--and those caring for them.
www.nytimes.com/2025/03/11/h...

Tuberculosis Resurgent as Trump Funding Cut Disrupts Treatment Globally

The United States was the major funder of tuberculosis programs. Now hundreds of thousands of sick patients can’t find tests or drugs, and risk spreading the disease.

www.nytimes.com

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Jason Maddix @jasonmaddix.bsky.social · Mar 11

Your images play such an important part in telling this story, Brian. Thank you.

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Reposted by Jason Maddix

WHO @who.int · Mar 6

Early reports to WHO from the 30 highest #tuberculosis (TB)-burden countries confirm that funding cuts from foreign aid, particularly from USAID, are already dismantling essential TB services.

Without urgent action, these setbacks will reverse decades of progress to #EndTB 🔗 bit.ly/4kvsu2i

Funding cuts impact access to tuberculosis (TB) services for millions.

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Elizabeth Glaser Pediatric AIDS Foundation @egpaf.bsky.social · Feb 20

EGPAF's Trish Karlin recently spoke to @nytimes.com about our efforts to restore lifesaving services for children, youth, and families.

www.nytimes.com/2025/02/20/h...

Emergency Food, TB Tests and H.I.V. Drugs: Vital Health Aid Remains Frozen Despite Court Ruling (Gift Article)

The Trump administration appears to be flouting a judge’s order pausing the dismantling of U.S.A.I.D.

www.nytimes.com

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Jason Maddix @jasonmaddix.bsky.social · Feb 20

Cruel and depraved. www.nytimes.com/2025/02/20/h...

Emergency Food, TB Tests and H.I.V. Drugs: Vital Health Aid Remains Frozen Despite Court Ruling (Gift Article)

The Trump administration appears to be flouting a judge’s order pausing the dismantling of U.S.A.I.D.

www.nytimes.com

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Reposted by Jason Maddix

Helen Branswell 🇨🇦 @helenbranswell.bsky.social · Feb 6

What's happening at #USAID is causing so much damage. The great reporters at @science.org explore some of that damage. www.science.org/content/arti...

‘It’s tectonic:’ U.S. foreign aid freeze deals a blow to research around the globe

Dismantling of USAID could disrupt clinical trials and wipe away U.S. “soft power” in developing countries, scientists warn

www.science.org

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Reposted by Jason Maddix

Drugs for Neglected Diseases initiative (DNDi) @dndi.org · Jan 30

🎉 This #WorldNTDDay we celebrate Guinea for successfully eliminating sleeping sickness! 👏

📽️ Watch our movie, created in collaboration with the Ministry of Health, @ird-fr.bsky.social and Institut Pasteur de Guinée produced by Moronga Films. bit.ly/guineafilm-en

#EndTheNeglect #BeatNTDs

Bölët Mouna | Ending Sleeping Sickness in Guinea

Bölët Mouna means ‘sleeping sickness no more’ in Guinea’s national language Susu and tells the story of how research, innovation, and science are ending the the nightmare of sleeping sickness in Guinea. In January 2025 Guinea announced that it had eliminated sleeping sickness as a public health problem. This is the first disease that the country can claim to have eliminated and a major milestone in the Africa-wide campaign to eliminate sleeping sickness. The National Sleeping Sickness Programme in Guinea and its international partners – among them the French National Research Institute for Sustainable Development (IRD), the Drugs for Neglected Diseases initiative (DNDi), and the Institute Pasteur – have used all the tools at their disposal to achieve this milestone: small ‘tiny traps’ that dot the mangrove coasts of Guinea, rapid diagnostic tests, and revolutionary new medicines that are changing how doctors treat their patients. Read more about this achievement: https://stories.dndi.org/boletmouna/ Regarder en français: https://youtu.be/0S-ZSNcQEvY The Drugs for Neglected Diseases initiative (DNDi) is an international non-profit developing safe, effective, and affordable treatments for the most neglected patients. https://dndi.org

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Jason Maddix @jasonmaddix.bsky.social · Jan 29

A heartening testament to what solidarity and smart commitments to science can achieve. Congratulations, Guinea!

WHO @who.int · Jan 29

🧵 🙌🏾 Congratulations #Guinea for eliminating sleeping sickness (gambiense form) as a public health problem in the country!
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A father had his daughter sleeping with her head on his lap.

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Jason Maddix @jasonmaddix.bsky.social · Jan 28

Support this call. “We call on the Government of the United States of America to enable additional exemptions to ensure the delivery of lifesaving #HIV treatment and care.”

WHO @who.int · Jan 28

🧵 STATEMENT: WHO expresses deep concern on the implications of the immediate funding pause for #HIV programmes in low- and middle-income countries.

These programmes provide access to life-saving HIV therapy to more than 30 million people worldwide.

Read more bit.ly/42yxxIz

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WHO statement on potential global threat to people living with HIV

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Melissa Barber @mbarber.bsky.social · Jan 28

There's been some uncertainty on the effects/implementation of the #PEPFAR work stoppage order.

We know for sure that many clinics have been told to stop distributing drugs already in stock.

Re mid term effects-I am deeply concerned that existing US contracts will tie up global HIV drug supply.🧵1/

Melissa Barber @mbarber.bsky.social · Jan 28

"The Trump administration has instructed organizations in other countries to stop disbursing H.I.V. medications purchased with U.S. aid, even if the drugs have already been obtained and are sitting in local clinics."

www.nytimes.com/2025/01/27/h...

Trump Administration Halts H.I.V. Drug Distribution in Poor Countries

PEPFAR’s computer systems also are being taken offline, a sign that the program may not return, as Republican critics had hoped.

www.nytimes.com

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Reposted by Jason Maddix

Impact Global Health @impactglobalhealth.bsky.social · Jan 13

The R&D landscape for neglected diseases shows choices are being made. But are they the right ones?

Join us for an online webinar as we launch the latest G-FINDER report on neglected diseases R&D.

➡️Register now ➡️bit.ly/4ggBKEQ

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Reposted by Jason Maddix

BK. Titanji @boghuma.bsky.social · Jan 15

What's at stake for infectious diseases with the new administration:
- Lifesaving HIV treatments.
-Cures for hepatitis C.
- New tuberculosis regimens and a vaccine for RSV.
Great analysis in @propublica.org
www.propublica.org/article/nih-...

The Second Trump White House Could Drastically Reshape Infectious Disease Research. Here’s What’s at Stake.

Donald Trump’s pick to lead the federal health agency has vowed to replace hundreds of staffers and shift research away from infectious diseases and vaccines. Such an overhaul could imperil the develo...

www.propublica.org

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