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Juvenile Arthritis Research

@jarproject.bsky.social

100 followers 94 following 270 posts

Juvenile Arthritis Research UK charity no. 1091620 The only UK-wide charity focusing solely on Juvenile Idiopathic Arthritis, bringing hope to those with #JIA. This account is not monitored. Please contact us via website. Visit www.jarproject.org

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Juvenile Arthritis Research @jarproject.bsky.social · May 14

We are a small charity making a big difference supporting those with Juvenile Idiopathic Arthritis (JIA) and their families. We're patient-and parent run and began changing the world for those with #JIA in 2018. Home of the #ThinkJIA campaign.

two children standing next to a Family support banner from Juvenile Arthritis Research charity ready for one of our family support events for children with Juvenile Arthritis and their siblings and families. The banner describes some of the support services that the charity offers to families affected by juvenile idiopathic arthritis.

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Juvenile Arthritis Research @jarproject.bsky.social · 3d

We'd like to wish Stefan lots of luck for this weekend as he runs in the East Coast 10k on 2nd November.

We hope all goes really well and thank you for supporting our vital work.

You can read more of Stefan's story on his Just Giving page at www.justgiving.com/page/stefan-...

Juvenile Arthritis Research @jarproject.bsky.social · 11d

Wishing Daniella the best of luck for the final race weekend of the season for the BRSCC Fiesta Junior Championship.
Daniella has been busy raising awareness of JIA in recent weeks with lots of press and media coverage.
You can read more about Daniella at www.jarproject.org/news

Juvenile Arthritis Research @jarproject.bsky.social · 14d

A huge WELL DONE to Zach who completed the AJ Bell Junior Great South Run on Saturday.

Zach was diagnosed with #SystemicJIA / #Stillsdisease at the end of last year at the age of 9. He wanted to do something to raise awareness and funds for Juvenile #Arthritis Research and has raised over £500!

Juvenile Arthritis Research @jarproject.bsky.social · 17d

Good luck for this weekend Zachary and Rebecca for the Great South Run.

Zach's story on his Just Giving page at www.justgiving.com/page/zachary...

Rebecca's story on her Just Giving page at www.justgiving.com/page/rebecca...

#JIA #ThinkJIA #GreatSouthRun #JuniorGreatSouthRun #arthritis #running

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Juvenile Arthritis Research @jarproject.bsky.social · 18d

Thank you so much for your support

Reposted by Juvenile Arthritis Research

Phil Wills @phil-wills.com · 22d

I got very lucky and have a place for next year's London Marathon. I'm hoping, as part of that, to raise some money for @jarproject.bsky.social who help children, like my son, that have arthritis. If you'd like to donate 2026tcslondonmarathon.enthuse.com/pf/phil-wills is the place

Phil does the London Marathon

One of my sons has Juvenile Idiopathic Arthritis (JIA). He's now doing well, but at it's worst he was in too much pain to go to school and for a long time was unable to join in games with his friends

2026tcslondonmarathon.enthuse.com

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Juvenile Arthritis Research @jarproject.bsky.social · 18d

We had two surprise awards to announce at our #WorldArthritisDay 'Racing for a cure for #JIA' event. These awards meant so much to the two young people receiving them. Read more on FB/IG. #ThinkJIA #ChildrenGetArthritisToo #mclaren #LandoNorris #OscarPiastri #leclerc #ferrari #f1 #SmallCharity

Juvenile Arthritis Research @jarproject.bsky.social · 19d

A day dedicated to fun, friendship, food, F1 themed racing and finding a cure for #JIA!

That's what we got up to on #WorldArthritisDay on Sunday meeting so many incredible families at our "Racing for a cure for JIA" event.

Thank you to everyone who came along and made it such a special day.

Juvenile Arthritis Research @jarproject.bsky.social · 20d

A huge thank you to everyone who attended our Racing for a cure event for #WorldArthritisDay on Sunday. It was a really special day celebrating such amazing children and young people with #JIA who inspire us every day and it was a privilege to meet your incredible families. Thank you to each of you!

Juvenile Arthritis Research @jarproject.bsky.social · 21d

A workshop on writing effective applications is happening on Sunday 19th October from our friends Cassie + Friends in Canada. (9pm UK time)

You can sign up directly at Cassie + Friends at linktr.ee/cassieandfri...

#JIA #JuvenileArthritis #JuvenileIdiopathicArthritis #ThinkJIA

Juvenile Arthritis Research @jarproject.bsky.social · 22d

Today, on #WorldArthritisDay, we are absolutely delighted to announce that Daniella Sutton, a successful young female racing driver, has joined Juvenile Arthritis Research as our new official Ambassador.
Read more in our latest news post at www.jarproject.org/news

#JIA #JuvenileArthritis #ThinkJIA

Juvenile Arthritis Research @jarproject.bsky.social · 23d

Tomorrow is #WorldArthritisDay so let's raise awareness that babies, children and young people can get arthritis too!

Improved awareness helps with earlier diagnosis and reduces stigma. So please help raise awareness by sharing our social media posts.

#JIA #ThinkJIA #WAD25 #WorldArthritisDay2025

Juvenile Arthritis Research @jarproject.bsky.social · 23d

Tomorrow is #WorldArthritisDay and we're holding a special event for those with #JIA and their families and have a very special announcement coming up too!
Today, we'll be sharing some posts to help raise awareness that anyone, of any age, can get #arthritis. Please share!
#ThinkJIA #WAD #WAD2025

Juvenile Arthritis Research @jarproject.bsky.social · 24d

The conference is the annual conference for GPs (doctors) so that is where we are raising awareness today.

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Juvenile Arthritis Research @jarproject.bsky.social · 24d

Today is #WorldMentalHealthDay. We know how important it is to look after your mental health as much as your physical health when living with #JIA.
You'll find webinars, worksheets and signposting to other useful services at www.jarproject.org/hope/wellbeing
#ThinkJIA #PaediatricRheumatology

Juvenile Arthritis Research @jarproject.bsky.social · 24d

Ready for Day 2 @rcgp #RCGPAC @RCGPAC Raising awareness that babies, children and young people get #arthritis too! More information at www.jarproject.org and our #ThinkJIA site at www.thinkjia.org

Juvenile Arthritis Research @jarproject.bsky.social · 25d

A fantastic first morning at the @royalcollegeofgps annual conference raising awareness of JIA and the signs and symptoms of JIA to look out for. #rcgpac

Thanks to our volunteers Tim, Becca and Chelle for representing Juvenile Arthritis Research.

Juvenile Arthritis Research @jarproject.bsky.social · 26d

We'll be at stand F22 tomorrow and Friday at the Royal College of GPs annual conference.

If you are a #GP or medical student attending, please do come and say hello and find out more about our #ThinkJIA campaign #RCGPAC @rcgp.bsky.social

Juvenile Arthritis Research @jarproject.bsky.social · 26d

We'd like to say a very big thank you to Gareth for representing Juvenile Arthritis Research at the recent Reigate half-marathon. Gareth achieved a fantastic time at the event and there was a big shout out for Juvenile Arthritis Research as he came through the finish line.
#ThinkJIA #JIA

Juvenile Arthritis Research @jarproject.bsky.social · 28d

This week Polly's dad, Shaun is taking on the challenge of running 10k in the Chase the moon run at the Olympic park. Joined by Polly's uncle, Rob, they have both smashed their fundraising goals and already raised over £1,500 between them.

Good luck to you both!
#ThinkJIA #JIA

Juvenile Arthritis Research @jarproject.bsky.social · 29d

Just one week to go until our "Racing for a cure for JIA" event. We can't wait to meet everyone who has booked in. Those attending should have received emails from our volunteer Katherine confirming arrangements.
We're incredibly grateful to @NationwideUK.bsky.social - the key funder for this event

Juvenile Arthritis Research @jarproject.bsky.social · Oct 4

It's free UK P&P in the JAR shop this weekend until midnight Sunday.

We have so many incredible designs created by those with JIA and chronic conditions. Here are just a few. Do you have a favourite?

Shop now at www.jarproject.org/shop

#JIA #ThinkJIA #ArthritisAwareness

Juvenile Arthritis Research @jarproject.bsky.social · Oct 2

Today is #NationalPoetryDay and we wanted to use the opportunity to share about two amazing poetry books.

"Chronically Coping" can be purchased at www.jarproject.org/kyle and "Sky Surfing" can be purchased at dirigibleballoon.org/shopwith proceeds supporting our vital work.

#JIA #ThinkJIA

Juvenile Arthritis Research @jarproject.bsky.social · Oct 1

Here's 5 year old Theo receiving his Little Box of Hope pack from Juvenile Arthritis Research.

His mum told us:
"Thank you so much for our Little Box of Hope, Theo was as excited about it as we were!.. This box of Hope has given Hope to us all..."
www.jarproject.org/hope
#JIA #ThinkJIA #arthritis

Juvenile Arthritis Research @jarproject.bsky.social · Sep 30

We'll be at the #RCGPAC next week in #Newport raising awareness of childhood #arthritis.
We know that delays in diagnosis are sometimes due to a lack of awareness amongst GPs of #JIA

We've been improving that with our dedicated #ThinkJIA awareness campaign and website at www.thinkjia.org