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Reposted by Hetty Mulhall

PxP (For Patients, By Patients) @pxphub.bsky.social · Sep 11

“Being a patient is a job - it’s like a full time job.” “It’s possible to be an insider and an outsider [if you’re a patient and a researcher].” - Zahra Sherwani #PxP25

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Reposted by Hetty Mulhall

PxP (For Patients, By Patients) @pxphub.bsky.social · Sep 11

“When we look back at this time, I hope we look back and think about how bizarre it was that patient partners weren’t part of all research.” - Knoll Larkin #PxP25

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Reposted by Hetty Mulhall

PxP (For Patients, By Patients) @pxphub.bsky.social · Sep 11

“Find your own voice and make it as quiet or as loud as you want it to be.” - Rita Schriemer #PxP25

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Reposted by Hetty Mulhall

PxP (For Patients, By Patients) @pxphub.bsky.social · Sep 11

💜Thank you so much to Kwanele Asante for guiding our second day of PxP 2025 as the conference host, and to the incredible speakers for today’s sessions. 👏. Thank you for everything you shared – for your wisdom, honesty and practical examples for doing better research.

Day 2: Setting up for success and inspiring others. Grid of photos of Day 2 speakers at PxP 2025.

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Reposted by Hetty Mulhall

PxP (For Patients, By Patients) @pxphub.bsky.social · Aug 13

2/ Maalvika is also leading the first ever PxP India virtual session on August 30th 7:00 PM - 8:30 PM IST. More info and register: pxphub.org/event/pxp-in...

PxP India 2025 - PxP

We are grateful to the 2024 PxP Steering Committee for their guidance and expertise. All members of the Steering Committee identify as patient partners.

pxphub.org

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Reposted by Hetty Mulhall

PxP (For Patients, By Patients) @pxphub.bsky.social · Aug 13

PxP Steering Committee Member Maalvika Bhuvansunder shares a video on why PxP 2025 is meaningful to her and why you should join as well.

Learn more about PxP 2025 here: pxphub.org/event/

#PxP25 #PatientEngagement #ForPatientsByPatients #PPI #PatientPartnership #HealthResearch

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Hetty Mulhall @hettymulhall.bsky.social · Apr 23

@dawnrichards.bsky.social @profkarimkhan.bsky.social @proulxlaurie.bsky.social

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Hetty Mulhall @hettymulhall.bsky.social · Apr 23

A steering committee entirely made up of patient partners and trainees has co-created the agenda for the Canadian Arthritis Summer School.

Taking place virtually from June 3-5.

Patient partners and trainees can learn more and apply here by April 28: bit.ly/CanadianArth...

CASS Virtual Canadian Arthritis Summer School. Calling patient partners and trainees to submit an expression of interest.

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Reposted by Hetty Mulhall

Karim Khan @profkarimkhan.bsky.social · Mar 28

Faculty Job: Delighted to share this call for Indigenous Applicants in Health, Sport, and/or Well-being
bit.ly/4c8sbqh @hettymulhall.bsky.social

CIHR/NSERC/SSHRC Tier 2 Canada Research Chair: Special Call for Indigenous Applicants in Health, Sport, and/or Well-being Assistant or Associate Professor, Tenure Track

This position is part of the BUFA (Employee Group) Brock University is one of Canada’s leading comprehensive universities, a Top Employer in Hamilton-Niagara, ranked #3 as Canada’s Best Employers and ...

brocku.wd3.myworkdayjobs.com

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Hetty Mulhall @hettymulhall.bsky.social · Mar 24

With thanks to Kelly Ho, Shatha Atieth, Linda Niksic and Angela Woollam for leading the event, and to Erin Beattie and James Davis at @nmd4c.ca for supporting the session.

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Hetty Mulhall @hettymulhall.bsky.social · Mar 24

- Engaging and co-creating with patient partners from the start of a project makes research better throughout the research process. This includes working in a collaborative and bi-directional way on clear/plain language writing.

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Hetty Mulhall @hettymulhall.bsky.social · Mar 24

We discussed:
- Clear/plain language is about levelling the playing field and reducing power imbalances for all members of the research community.
- Everyone on the research team has a responsibility to communicate clearly and make intentional language choices.

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Hetty Mulhall @hettymulhall.bsky.social · Mar 24

Making the case for clear language. Anna Samson @disabilitywithanna.bsky.social and I co-presented at a virtual symposium on the importance of clear/plain language. Our key points are beautifully summarised in this graphic recording by visual alchemist Candace Ramjohn.

This image is a graphic recording of a talk on plain language by Anna Samson and Hetty Mulhall. To the left of the image, some key take-aways are described and accompanied by a range of icons. For example, there is a drawing of a sports field along with the point that plain language is about levelling the playing field. There is also an image of weighing scales, along with the comment that plain language helps to reduce bower imbalances. To the right of the graphic recording is a list of specific tips for writing in clear language. These include: - Aim for grade 8 reading level - Read aloud what you have written - Use simple sentence structure - Get to the point and stick to essential information - Use alt text for images - Consider having more than one format for content such as written, video and audio - Check that font choice is easy to read and use colour contrast tools

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Hetty Mulhall @hettymulhall.bsky.social · Mar 17

@alexhaagaard.bsky.social

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Hetty Mulhall @hettymulhall.bsky.social · Mar 17

⏰Free, virtual session on March 20th for all members of the #HealthResearch team.

Learn about writing an effective narrative CV, how to apply #OpenScience principles, and frameworks to measure #ResearchImpact.

Panelist biographies: cihr-irsc.gc.ca/e/54201.html

✅Register: zoom.us/webinar/regi...

Research Impact and Open science virtual half day. Photos of six panelists.

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Reposted by Hetty Mulhall

Dawn Richards, PhD @dawnrichards.bsky.social · Feb 14

📢 Weekend reading on power dynamics in #PatientEngagement in #Research. Preprint (that means not peer reviewed yet) from our team that includes #PatientPartners and research allies and is about 4 themes concerning power on #PPI teams - osf.io/preprints/os... A bit of a 🧵 for you .../1

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Reposted by Hetty Mulhall

PxP (For Patients, By Patients) @pxphub.bsky.social · Feb 4

⭐Webinar reminder! Join us tomorrow, February 5th.

Find out how our panelists have navigated working as part of a research team, including what supports and facilitators they have asked for or created for themselves.

#PatientEngagement #PatientPartners #PPI #PxP25

PxP (For Patients, By Patients) @pxphub.bsky.social · Jan 10

Sign up for our webinar on Patient Partner Perspectives on Barriers & Facilitators to Patient Engagement in Research.

📅Date: February 5, 2025
⏰ Time: 2:30 PM PT / 5:30 PM ET / 10:30 PM UTC
🔗https://zoom.us/webinar/register/WN_v7Cp_QzFTWSzFUajeUQBYg#/registration

#PatientEngagement #PxP

2025 Webinar Series. Webinar 4: Patient Partner Perspectives on Barriers and Facilitators to Patient Engagement in Research. With Alex Haagaard, Francine Buchanan, Linda Niksic, and Jim Mann. February 5, 2025 5:30-7:00 PM ET

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Hetty Mulhall @hettymulhall.bsky.social · Jan 10

*Everyone* involved in health research can learn something important from this awesome panel on Feb 5th. Speaker biographies are available here: pxphub.org/event/webina...

PxP (For Patients, By Patients) @pxphub.bsky.social · Jan 10

Sign up for our webinar on Patient Partner Perspectives on Barriers & Facilitators to Patient Engagement in Research.

📅Date: February 5, 2025
⏰ Time: 2:30 PM PT / 5:30 PM ET / 10:30 PM UTC
🔗https://zoom.us/webinar/register/WN_v7Cp_QzFTWSzFUajeUQBYg#/registration

#PatientEngagement #PxP

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Reposted by Hetty Mulhall

Rae Martens ♿️ @coffeeandresearch.bsky.social · Dec 16

Stay tuned over the next couple days. Will be putting out some information on a webinar we’ll be putting on in late January called,
“Defining the Scope:
Developing Mindful Lived Experience Partnerships for Health Research Ecosystems in an Era of Misinformation” #PatientEngagement

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Reposted by Hetty Mulhall

PxP (For Patients, By Patients) @pxphub.bsky.social · Dec 13

New Blog by Oluwafemi Ajayi available on the PxP Resource Hub.

Oluwafemi discusses the importance of patient engagement in African health research, sharing her personal experience with sickle cell disease.

🔗 pxphub.org/a-clarion-ca...

#PxP #PatientEngagement #HealthResearch

New Blog By Oluwafemi Ajayi: A Clarion Call for Africa to Embrace Patient Inclusion and Patient Engagement in Healthcare Research

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Reposted by Hetty Mulhall

Laurie Proulx @proulxlaurie.bsky.social · Dec 5

One of my ongoing projects with more to come in 2025!

SPORAlliance @sporalliance.bsky.social · Dec 5

This week, we are highlighting the patient-driven project, Biologics and Biosimilars for People with Rheumatoid Arthritis (RA).

This review will summarize the evidence regarding the efficacy of biologic and biosimilar therapies for RA.

Learn more here: sporevidencealliance.ca/projects/bio...

Graphic for the SPOR Evidence Alliance funded patient-driven project, Biologics and Biosimilars for People with Rheumatoid Arthritis.

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Reposted by Hetty Mulhall

Dawn Richards, PhD @dawnrichards.bsky.social · Dec 4

Compensating patient partners on #PatientEngagement teams is about equity. @kwaneleasante.bsky.social wrote this powerful piece about renumeration of African patient partners being about health justice www.bmj.com/content/387/.... Pls take a few mins to learn from this global patient leader

Remuneration of African patient partners is an important tool for health justice

Consistent and fair remuneration is essential to empower African patient partners to contribute to health decisions and policies that affect them, writes Kwanele Asante Global calls for patient part...

www.bmj.com

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Hetty Mulhall @hettymulhall.bsky.social · Dec 4

Thanks Dawn! Excited to see how things evolve on this platform!

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