Author | Lightnews

Ellen Matloff

@ellenmatloff.bsky.social

210 followers 160 following 12 posts

CEO @MyGeneCounsel #Genetic Counselor, @Forbes contributor on #genetic counseling, testing and digital health. #digital-health #genetic testing #patient-advocacy #female-founders #precision-medicine

Posts Media Videos Starter Packs

Pinned

Ellen Matloff @ellenmatloff.bsky.social · Nov 20

www.forbes.com/sites/ellenm...

Chemotherapy Could Harm Or Kill You If You Have This Genetic Finding

The chemotherapy drugs 5-FU and capecitabine could harm or kill you if you have a variant in the DPYD gene. Request genetic testing before you take these drugs.

www.forbes.com

Reposted by Ellen Matloff

God @thegodpodcast.com · 24d

Welcome to Heaven, Dr. Jane Goodall. You made the world a better place.

290 2.1K 18K

Reposted by Ellen Matloff

Phil Lewis @phillewis.bsky.social · 24d

Jane Goodall, ethologist and conservationist, has died. She was 91

1.3K 7.7K 29K

Reposted by Ellen Matloff

Kim @kim4thebabies.bsky.social · 24d

RIP Queen

24 500 1.3K

Ellen Matloff @ellenmatloff.bsky.social · Aug 30

Thank you for your support, @ ACMG!

My Gene Counsel @mygenecounsel.bsky.social · Aug 25

ACMG has officially endorsed the Access to Genetic Counselor Services Act, marking an important step forward for the genetics community & efforts to expand patient access to genetic counseling. Here’s to moving the field forward together! #precisionmedicine #genechat #ACMG #NSGC

Ellen Matloff @ellenmatloff.bsky.social · Jul 16

Great resource for GCs taking the Boards!

My Gene Counsel @mygenecounsel.bsky.social · Jul 15

The countdown to August boards is on. Natera’s summer prep series offers FREE targeted support and structured review to help you feel ready - whatever your study style. Register here: bit.ly/44wYM5L #genechat #precisionmedicine #ABGC #Boards

Reposted by Ellen Matloff

turnaray.bsky.social @turnaray.bsky.social · Jul 2

NEW CASE from @precmedonline.bsky.social & @mygenecounsel.bsky.social A maternal-fetal medicine doc offered a pregnant woman a 2nd non-invasive prenatal test after the 1st one showed an abnormal finding in chromosome 18. Find out why this is a bad idea www.precisionmedicineonline.com/inherited-di...

Genetic Testing Challenges in Precision Medicine: After Abnormal NIPT, Retest Causes Confusion

After an abnormal NIPT finding in a pregnant woman, a maternal-fetal medicine doctor orders a second NIPT, against recommendations.

drupal-prod.precisionmedicineonline.com

1 2

Reposted by Ellen Matloff

My Gene Counsel @mygenecounsel.bsky.social · Jun 18

Our June #GCintheCSuite spotlight features Becky Nagy, VP of Clinical Value and Access at Guardant Health. Swipe to learn how she’s built a career at the intersection of oncology and genomic innovation. #genechat #precisionmedicine

1 1

Ellen Matloff @ellenmatloff.bsky.social · Jun 13

It took me 2 minutes to click this link and send. I’m asking you to do the same. #brca #genechat #precisionmedicine

My Gene Counsel @mygenecounsel.bsky.social · Jun 13

12 years ago, the Supreme Court decided our genes can’t be patented. That landmark ruling protected access to genetic testing and medical innovation. Now, Congress is trying to undo it with the PERA act.

Help stop this. Take action: bit.ly/4dYq9d3
#genechat #precisionmedicine #patent #SCOTUS

3 4

Reposted by Ellen Matloff

My Gene Counsel @mygenecounsel.bsky.social · Jun 6

Another life lost due to DPYD-associated chemotherapy toxicity (bit.ly/3SEBeGu). It’s time for the NCCN to recommend universal DPYD testing before initiating chemotherapy.

Genetic testing can prevent tragedies like this. bit.ly/43QZfkf, bit.ly/4fvj7fp

#genechat #precisionmedicine

1 1

Reposted by Ellen Matloff

My Gene Counsel @mygenecounsel.bsky.social · May 15

Navigating the job market right now is very tough. We hope you manage to hang in there, and that these affirmations offer some strength -- know that we believe in you. #genechat #precisionmedicine

1 1

Reposted by Ellen Matloff

Love, Danielle @lovedaniellefilm.bsky.social · Apr 10

Get Ready! Love, Danielle is heading to @worldfesthouston April 24th-May 4th! ✨

Get your tickets now at www.worldfest.org/festival-58#passes! 🎟️ We’ll see you soon, Houston! 🎬

#LoveDanielleFilm #FilmFestivals #BRCA #ThanksALotDNA #WorldFestHouston

2 3

Reposted by Ellen Matloff

Kyle W. Davis @kylewdavis.bsky.social · Apr 8

🚨Apparently GeneReviews is now being told to "prove their value" by the end of the week to the US government. They need letters of support sent to the Univ. of Washington editors: [email protected].🚨

@geneticssociety.bsky.social -- are you aware and mobilizing your membership?

#genechat

2 13 8

Ellen Matloff @ellenmatloff.bsky.social · Mar 30

Very cool!!! #LFS #genetics

Living LFS @livinglfs.bsky.social · Mar 30

The Living LFS Jennifer Mallory Family Camp provides LFS families and their caregivers with the knowledge, strength, psychosocial tools, and community to manage the myriad challenges associated with having a hereditary predisposition to developing cancer.

Ellen Matloff @ellenmatloff.bsky.social · Mar 24

Thank you, @kategenetics.bsky.social!
Loved being on your new show.

Kate All Access DNA @kategenetics.bsky.social · Mar 24

It was a thrill to interview @ellenmatloff.bsky.social and hear about fighting for patient rights and being an individual plaintiff on a SCOTUS case. #genechat did you know about the BRCA patent case?

My Gene Counsel @mygenecounsel.bsky.social · Mar 24

All Access DNA is out with a new episode featuring My Gene Counsel CEO @ellenmatloff.bsky.social! Take a listen wherever you stream your podcasts. #genechat #precisionmedicine

Reposted by Ellen Matloff

My Gene Counsel @mygenecounsel.bsky.social · Mar 21

Why is the United States the last Western country that is not recommending DPYD testing before administering chemotherapy? My Gene Counsel CEO @ellenmatloff.bsky.social reports on this life-saving testing for @forbes.com: t.co/SPpzfERqIL #genechat #precisionmedicine

1 2

Reposted by Ellen Matloff

Fumiko Ladd Chino, MD FASCO @fumikochino.bsky.social · Feb 22

Medicare stops access to #Telehealth April 1st for almost all. [Even rural pts must drive to a 🏥 office 1st & THEN get telehealth.]

This will lead to:
1️⃣ less access to specialty care
2️⃣ poorer outcomes
3️⃣ higher costs for people with cancer

#Telemedicine was a step forward. Let's not fall back.

Fumiko Ladd Chino, MD FASCO @fumikochino.bsky.social · Nov 13

#Telehealth allows me to see patients on THEIR schedule. I've had consults from patient couches, home offices, from the alleyway outside their retail jobs, & from their cars during lunch break. I am for any tool which enables you to live on your time (not mine). #ASCOAdvocacy
brnw.ch/21wOBc8

Urge Congress to extend Medicare telehealth flexibilities beyond 2024 by passing the CONNECT for Health Act or the Telehealth Modernization Act.
TAKE ACTION: asco.org/actnetwork

25 32

Reposted by Ellen Matloff

My Gene Counsel @mygenecounsel.bsky.social · Jan 31

@megfarmer.bsky.social is the senior marketing manager for genomic information solutions at Ambry, and our latest #Unique role. Read more about her multidisciplinary career! #genechat #precisionmedicine

1 3

Reposted by Ellen Matloff

My Gene Counsel @mygenecounsel.bsky.social · Jan 31

Kristen Kelly, former mGC intern and recent GC grad, shares some of her tips for managing the stressful job search. #genechat #precisionmedicine

1 2

Reposted by Ellen Matloff

My Gene Counsel @mygenecounsel.bsky.social · Feb 5

The latest from @ellenmatloff.bsky.social, @turnaray.bsky.social, and GenomeWeb focuses on a missed opportunity for cascade testing and the diagnosis that followed: hubs.li/Q034VD6F0 #genechat #precisionmedicine

Genetic Testing Challenges in Precision Medicine: Delayed Cascade Testing Due to Unclear Counseling

A patient found to carry a BRCA1 pathogenic variant is not referred to a certified genetic counselor in her health system.

hubs.li

3 4

Reposted by Ellen Matloff

My Gene Counsel @mygenecounsel.bsky.social · Feb 14

#genechat landed a GC school interview and not sure where to start? Check out advice from our community on how to be your best on interview day. #precisionmedicine

1 2

Reposted by Ellen Matloff

My Gene Counsel @mygenecounsel.bsky.social · Feb 14

Check out our genetic counseling and testing starter pack! #genechat #precisionmedicine go.bsky.app/TsV1vkX

1 1

Reposted by Ellen Matloff

My Gene Counsel @mygenecounsel.bsky.social · Dec 23

Many non-genetics providers are unsure of what test is best to order. That's where genetic counselors come in. Read a case example from @genomeweb.bsky.social @turnaray.bsky.social in collaboration with mGC CEO @ellenmatloff.bsky.social: hubs.li/Q030rrpl0 #genechat #precisionmedicine

2 2

Reposted by Ellen Matloff

My Gene Counsel @mygenecounsel.bsky.social · Dec 13

Dan "Dry Dock" Shockley is a hereditary cancer syndrome advocate and our December advocate spotlight. His diagnosis of attenuated FAP at 51 years old rocked his world, and now he wants to share his story with others. #genechat #precisionmedicine

1 1

Ellen Matloff @ellenmatloff.bsky.social · Dec 11

Hey GCs — looking for a job?

My Gene Counsel @mygenecounsel.bsky.social · Dec 10

#genechat looking for a job that "breaks the mold" of a traditional GC role? Consider the latest jobs in our "Outside the Box" job series:
Clinical Product Specialist: hubs.li/Q02-RvPS0
Case Management Specialist: hubs.li/Q02-RjVk0
#precisionmedicine

Ellen Matloff @ellenmatloff.bsky.social · Dec 7

This was very cool. GCs and pathologists should work together closely, and this will only increase w precision medicine.

My Gene Counsel @mygenecounsel.bsky.social · Dec 6

@ellenmatloff.bsky.social was recently featured in Pathologist Magazine. Read her thoughts on the role of the genetic counselor in #precisionmedicine: hubs.li/Q02ZVnDv0 #genechat

1 3