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Duncan Edmonstone @edmonstone.net · 4d

Amazing mOS figures from the final trial report of the drug I happen to take... and there are better drugs on the market now and in phase 3 trials. Reassuring to know how fast treatments are improving in the ALK+ NSCLC space #LCSM #CANSKY

Dr Mathew Wilson @mathewgwilson.bsky.social · 4d

#ALEX study shows 81.1 month median OS in final report of study from Tong Mok

Amongst the longest overall survivals reported in lung cancer. Further trials of 3rd and 4th gen TKI ongoing. Much work to do, but valuable to reflect on how far things have com

#ESMO25 #LCSM #Alk #NSCLC

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Duncan Edmonstone @edmonstone.net · 4d

That's how I started, and now I have the advocacy bug!

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Duncan Edmonstone @edmonstone.net · 4d

This! Every patient is an advocate, even if just for their own care, and all our experience is of value to someone, somewhere in the whole treatment environment. It starts with telling your own story and then listening to others, and *every* patient can do that.

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Duncan Edmonstone @edmonstone.net · 4d

Sigh... suspended from Facebook by their dumb AI algorithm

No big deal right?

For me, it cuts me off from all of my cancer support groups, hosted on the platform.

Can't contact anyone directly at Meta to appeal... "services" to help you get your account back are scammers... not my first rodeo!

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Reposted by Duncan Edmonstone

Lung Cancer Nursing UK @lcnuk.bsky.social · 8d

The new ALKnowledge site is live – an expert-led, interactive resource on ALK+ lung cancer for patients and professionals.

Visit now 🌐 alknowledge.org

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Duncan Edmonstone @edmonstone.net · 12d

You missed the key part in that exchange... Humpty Dumpty's response to Alice's question. Surprisingly deep lessons buried in a children's book.

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Duncan Edmonstone @edmonstone.net · 14d

I know everyone's an expert after the fact, and I'm sure you have your reasons, but for anyone in Cheshire, you should really start any train journey from Crewe. It's better connected with more options than anywhere else in the Northwest, including the major cities.

Otherwise, I 100% empathise.

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Duncan Edmonstone @edmonstone.net · Sep 8

This is in addition to the already strong evidence of the link between lung cancer in never smokers and PM2.5 emissions:

www.crick.ac.uk/news/2022-09...

And yes, I am a non-smoker with lung cancer.

Scientists reveal how air pollution can cause lung cancer in people who have never smoked

Cancer Research UK-funded scientists at the Francis Crick Institute and UCL have revealed how air pollution can cause lung cancer in people who have never smoked.

www.crick.ac.uk

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Duncan Edmonstone @edmonstone.net · Sep 7

After a 2-year break where the walk clashed with other happenings, we are doing the Walk of Hope for The Christie Charity this year. No pressure, but if you can spare a little, it's a very worthy cause. I wouldn't be here today without this excellent hospital!
www.justgiving.com/page/kay-edm...

Kay & Duncan’s fundraiser for THE CHRISTIE CHARITY

Help Kay Edmonstone raise money to support THE CHRISTIE CHARITY

www.justgiving.com

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Duncan Edmonstone @edmonstone.net · Aug 14

There’s a glut of posts on LinkedIn about moving to Dubai… I’m always tempted to post the response “cool story bro, who are you going to vote for when you’re there?”

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Duncan Edmonstone @edmonstone.net · Aug 13

But maybe they’re not focused on the brain for your scans

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Duncan Edmonstone @edmonstone.net · Aug 13

Oh… for PET scans I was told that after the radioactive glucose is injected you have to sit quietly and not engage your brain… this is so the brain doesn’t pull the glucose to it to feed it… this prevents hot spots covering potential malignant sites or showing up as false positives…

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Duncan Edmonstone @edmonstone.net · Aug 13

CTs are too short… MRIs are too noisy. PET though… that wait after they put the rad-juice in you… yep I usually fall asleep then.

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Duncan Edmonstone @edmonstone.net · Aug 9

I did see your first book in Waterstones Manchester once… so they did have a few copies (more than 2 I think). I already had my copy from the initial unbound run… did you at least get paid for that first run?

Duncan Edmonstone @edmonstone.net · Aug 7

The rest of the essay is bitterness that $$ isn’t being spent where he thought it should be. And I don’t recognise the “hope is for dopes” message at all. Hope is all that sustains an awful lot of patients. Maybe my view is coloured by not living in a country where healthcare is for-profit.

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Duncan Edmonstone @edmonstone.net · Aug 7

Interesting read. As a stage 4 patient I recognise/understand the sentiment, especially about there being “no money in finding a cure”. I presume this was why you posted this (with govt funding which went to academic research being cut, we are now more than ever in the hands of private enterprise)

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Duncan Edmonstone @edmonstone.net · Aug 2

@herring1967.bsky.social

John Birmingham @birmo.bsky.social · Aug 2

Just putting down this marker. At some point in the near future, some right wing edgelord will bring back the Hitler moustache

Duncan Edmonstone @edmonstone.net · Aug 2

So basically a bunch of losers who spent their teenage years playing video games and masturbating to porn are mad at some people who didn’t do that?

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Duncan Edmonstone @edmonstone.net · Aug 1

A 700/96 terminal is probably era-appropriate for a lot of HP3000 systems. Hard to come by though:

terminals-wiki.org/wiki/index.p...

HP 700/96 - Terminals

terminals-wiki.org

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Duncan Edmonstone @edmonstone.net · Aug 1

I’m not sure whether the current owners of Reflection (OpenText) provide a free version.

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Duncan Edmonstone @edmonstone.net · Aug 1

Pretty sure Reflection terminal emulator software supported a bunch of old HP terminal types from this time. I recall using it with HP9000 systems which are mostly the same as HP3000 apart from the OS. There’s an old copy on archive.org

Internet Archive: Digital Library of Free & Borrowable Texts, Movies, Music & Wayback Machine

archive.org

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Duncan Edmonstone @edmonstone.net · Aug 1

Important things about today:

1. It’s our wedding anniversary- 27 years of wedded bliss!
2. It’s exactly 6 years since I went under the knife for brain surgery to remove a golf ball size tumour. Have a close look at my avatar photo for the results of that!
3. It’s World Lung Cancer day

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Duncan Edmonstone @edmonstone.net · Jul 30

These sorts of stories make me so mad. There’s no simpler way of saying it, relying solely on “alternative medicine” kills people. By all
Means have your “coffee enemas” if it makes you feel good, but have it as well as, not instead of your chemotherapy.

www.bbc.com/news/article...

Woman who died after refusing chemo had daily coffee enemas

Paloma Shemirani's brothers blame their mother's anti-medicine conspiracy theories for her death.

www.bbc.com

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Duncan Edmonstone @edmonstone.net · Jul 17

I love my Filco Cherry MX Blue keyboard, but everyone within 10 meters of me hates it (I'm a heavy-handed keyboardist anyway, and then add the click of the MX Blues, and it's *noisy* when I'm working).

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Duncan Edmonstone @edmonstone.net · Jul 16

“Why I love the sounds of the rock and pop festival the local rugby club in my little Cheshire town put on every year” by Russ Jones - we know how much you love someone singing a Coldplay track out of tune and out of time.

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