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ECHDO
@echdoheart.bsky.social
The European Congenital Heart Disease Organisation works for Congenital Heart Disease (CHD) patients of all ages. ❤️
🏛️Non-Governmental & Nonprofit Organization
🌍www.echdo.eu
🌟 𝗔𝗽𝗽𝗿𝗲𝗰𝗶𝗮𝘁𝗶𝗼𝗻 𝗣𝗼𝘀𝘁🌟
We would like to express our sincere gratitude to White & Case LLP for their many years of generous pro bono strategic legal support and advice to ECDHO.

Thank you, 𝗪𝗵𝗶𝘁𝗲 & 𝗖𝗮𝘀𝗲, for standing with us and strengthening our mission year after year. 🙏💙

📍𝘞𝘩𝘪𝘵𝘦 & 𝘊𝘢𝘴𝘦 𝘓𝘓𝘗 𝘉𝘳𝘶𝘴𝘴𝘦𝘭𝘴
December 15, 2025 at 2:08 PM
Our President Karen Tomlin’s story was selected for the EACH Summit exhibition 💙❤️

Her message: pulse oximetry for all newborns saves lives.
We stand with families and call for universal screening across Europe.

#ECHDO #EACHSummit #CHDawareness #PulseOxSavesLives

@europeansocietyofcardiology
December 12, 2025 at 1:32 PM
We are delighted to share that Katja Laine has been awarded the Cross of Merit of the White Rose of Finland. 💓
Congratulations, Katja — and thank you for your unwavering commitment to the CHD community. ❤️💙
December 10, 2025 at 12:53 PM
🔔 MEMBER ALERT - ONLINE MEMBERS MEETING 📅

When: 8 December 2025 | 19:30 CET
Join us for a festive social catch-up and some online fun ahead of the holiday season! If you didn't receive the link sent via email, please get in touch with [email protected]. 💓
December 5, 2025 at 2:27 PM
Introducing The ECHDO Beat! 🥁
Our new bimonthly newsletter is here to connect the CHD community across Europe. Get the first edition for:

Member updates 💙
Advocacy highlights 📢
Future plans 🌍

Read the inaugural issue! 👇
sway.cloud.microsoft/pC6ISSIgOzIe...

#ECHDO #CHD #HeartDisease #Newsletter
November 26, 2025 at 2:50 PM
ECHDO is entering a new chapter, having elected a new Board at it's General Assembly in Croatia earlier this year, with Karen Tomlin (UK) as the new President.

🔗 Read the full article on the ECHDO website. (Link in BIO)
www.echdo.eu/content/echd...
November 24, 2025 at 9:20 AM
🔔 𝗪𝗲𝗯𝗶𝗻𝗮𝗿 𝗥𝗲𝗺𝗶𝗻𝗱𝗲𝗿: Tonight 30 Sept 19:00 CET with Psychologist & Systemic Psychotherapist Andri Christoudia - “From Fetus to Adulthood in CHD: How My Journey Defined My Vision to Empower CHD Children and Their Families".

👉🏼 𝗪𝗲𝗯𝗶𝗻𝗮𝗿 𝘁𝗲𝗮𝗺𝘀 𝗹𝗶𝗻𝗸 - 𝘰𝘱𝘦𝘯 𝘵𝘰 𝘈𝘓𝘓 tinyurl.com/5774bfkw
September 30, 2025 at 9:25 AM
We're here for you, always. 💗
September 29, 2025 at 1:24 PM
Living with a heart condition isn’t just about big milestones. It’s about the small victories: a good walk, a laugh with friends, a day that feels “normal.” Those moments are everything. 💛

#CHD #WorldHeartDay #CHDAwareness
September 29, 2025 at 1:12 PM
To everyone managing medication, lifestyle changes, hospital visits, and the mental load that comes with a heart condition: we see you. We’re in your corner, always.

#WorldHeartDay #CHD #CHDAwareness
September 29, 2025 at 1:09 PM
Our Charity Consultant, Charlotte Kearsey on compassion. 💛
September 29, 2025 at 12:51 PM
Our Vice President, Mirela Dežman on the support in the CHD Community. 💞
September 29, 2025 at 12:49 PM
A quote from ECHDO President, Karen Tomlin, on World Heart Day. 💞
September 29, 2025 at 12:24 PM
If you know someone with a heart condition, today’s a good day to remind them how amazing they are 💖.

Celebrate with music too! 🎶 Our World Heart Day playlist has 25 tracks for 25 years: open.spotify.com/playlist/6TE...
September 29, 2025 at 10:15 AM
#WorldHeartDay is here!

This year marks the 25th anniversary of World Heart Day, & today, we want everyone who has a heart condition to know that we are thinking of you & cheering you on every day, because you are awesome & deserve everything in this world.

That’s it. That’s the whole post.💓
#CHD
September 29, 2025 at 8:52 AM
Join our webinar with Psychologist & Systemic Psychotherapist Andri Christoudia - “𝗙𝗿𝗼𝗺 𝗙𝗲𝘁𝘂𝘀 𝘁𝗼 𝗔𝗱𝘂𝗹𝘁𝗵𝗼𝗼𝗱 𝗶𝗻 𝗖𝗛𝗗: 𝗛𝗼𝘄 𝗠𝘆 𝗝𝗼𝘂𝗿𝗻𝗲𝘆 𝗗𝗲𝗳𝗶𝗻𝗲𝗱 𝗠𝘆 𝗩𝗶𝘀𝗶𝗼𝗻 𝘁𝗼 𝗘𝗺𝗽𝗼𝘄𝗲𝗿 𝗖𝗛𝗗 𝗖𝗵𝗶𝗹𝗱𝗿𝗲𝗻 𝗮𝗻𝗱 𝗧𝗵𝗲𝗶𝗿 𝗙𝗮𝗺𝗶𝗹𝗶𝗲𝘀”
open to all
𝗪𝗵𝗲𝗻: Tuesday 30 Sept, 7:00 PM CET | Duration: ~45 mins

tinyurl.com/3dxx5wjx
September 26, 2025 at 11:50 AM
💙 Today is International Day of Charity.

ECHDO supports people with Congenital Heart Disease (CHD) of all ages - working to ensure access to the best possible care across Europe.

👉 Donate here: www.paypal.com/donate/?host...
September 5, 2025 at 9:22 AM
✨Announcing the new ECHDO Board for 2025! 💓

Karen Tomlin - President
Mirela Dežman - Vice President
Michelle Woods - Treasurer
Xenia Patsalidou
Amin Houari - Secretary
Tsvetoslav Naydenov
Katarina Stano

More on specific role assignment soon.
May 16, 2025 at 1:18 PM
Prof. Edward Callus receives the ECHDO Fellow Award at Annual AGM & Conference in Croatia Split. 👏

Get the full story here: www.echdo.eu/content/prof...

#PoliclinicoSanDonato | grupposandonato
May 16, 2025 at 10:27 AM
We can do anything together. 🙌 Thank you to all our incredible members, friends and guests who joined us in Croatia over the weekend. 💗
May 12, 2025 at 11:05 AM
What a day we had on Saturday, finishing off our annual conference with our AGM and internal affairs. Thanks for having us Croatia, more from our new board soon! 💗
May 12, 2025 at 10:11 AM
🎉 𝗢𝘂𝗿 𝗔𝗻𝗻𝘂𝗮𝗹 𝗖𝗼𝗻𝗳𝗲𝗿𝗲𝗻𝗰𝗲 𝗶𝘀 𝗸𝗶𝗰𝗸𝗶𝗻𝗴 𝗼𝗳𝗳 𝘀𝗼𝗼𝗻, 𝗮𝗻𝗱 𝘄𝗲 𝗰𝗼𝘂𝗹𝗱𝗻’𝘁 𝗯𝗲 𝗺𝗼𝗿𝗲 𝗲𝘅𝗰𝗶𝘁𝗲𝗱 𝘁𝗼 𝗿𝗲𝗰𝗼𝗻𝗻𝗲𝗰𝘁 𝘄𝗶𝘁𝗵 𝗼𝘂𝗿 𝗳𝗿𝗶𝗲𝗻𝗱𝘀 𝗮𝗻𝗱 𝗮𝘀𝘀𝗼𝗰𝗶𝗮𝘁𝗲𝘀! 💗
𝘞𝘦’𝘳𝘦 𝘦𝘴𝘱𝘦𝘤𝘪𝘢𝘭𝘭𝘺 𝘵𝘩𝘳𝘪𝘭𝘭𝘦𝘥 𝘵𝘰 𝘸𝘦𝘭𝘤𝘰𝘮𝘦 𝘢𝘯 𝘪𝘯𝘤𝘳𝘦𝘥𝘪𝘣𝘭𝘦 𝘭𝘪𝘯𝘦-𝘶𝘱 𝘰𝘧 𝘴𝘱𝘦𝘢𝘬𝘦𝘳𝘴 𝘰𝘯 𝘵𝘰𝘥𝘢𝘺’𝘴 𝘢𝘨𝘦𝘯𝘥𝘢.
A heartfelt thank you to each of you for joining us. 💫
May 9, 2025 at 1:35 PM
✨️ Today is the day! Counting down the hours until our Annual Conference and AGM kicks off in Split Croatia. 💕

#achotelsplit
May 9, 2025 at 8:31 AM
3 days to go until our AGM in Split, Croatia! ✨

A heartfelt thank you to these organisations that helped make this year’s event possible:

🏨 AC Marriott Hotel Split
🏖️ Turistička zajednica grada Splita
✈️ Croatia Airlines
💧 Cetina
🖼️ Pur pur
🍒 Maraska
🍫 Kraš
📸 Pixsell
🎖️ Row Spirit
May 7, 2025 at 12:24 PM
🚨𝟭 𝘄𝗲𝗲𝗸 𝘁𝗼 𝗴𝗼! We cant wait to meet our members and friends in Croatia for our annual AGM & Conference. 🥳
May 2, 2025 at 11:53 AM