Dystonia Medical Research Foundation
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Dystonia Medical Research Foundation
@dystoniafoundation.bsky.social
33 followers 15 following 57 posts
Dystonia is a neurological movement disorder that causes excessive, involuntary muscle contractions. The Dystonia Medical Research Foundation (DMRF) is a 501(c)3 non-profit organization dedicated to serving all people with dystonia and their families.
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dystoniafoundation.bsky.social
Stay in the know about what is happening with research, advocacy, education and other resources in the #dystonia community with the DMRF monthly e-newsletter.

The December e-news is now available:
https://conta.cc/3XgtD39
#dystonia #dmrf #dystoniafoundation
December 11, 2025 at 5:57 PM
dystoniafoundation.bsky.social
Just chill with one of these cozy beanie hats, available now at the DMRF Store for just $25. Support the dystonia community with outerwear to show you care. Available with and without pom-pom.
http://bit.ly/4fAdf59
#dystonia #dmrf #dystoniafoundation
December 11, 2025 at 3:07 PM
dystoniafoundation.bsky.social
DMRF-branded merchandise promotes dystonia awareness. Help us identify the merch you want to use for your awareness efforts. answer a 2-question survey to help us know what types of merchandise you would like to see in our online store.

https://bit.ly/4pD1GP1

#dystonia #dmrf #dystoniafoundation
December 10, 2025 at 6:54 PM
dystoniafoundation.bsky.social
These DMRF Sunglasses are the perfect eyewear to show you care! Shop at the DMRF Store this holiday season to demonstrate your support for the dystonia community.

SHOP NOW: http://bit.ly/4fAdf59
#dystonia #dmrf #dystoniafoundation
December 8, 2025 at 2:15 PM
dystoniafoundation.bsky.social
THANK YOU to everyone who contributed to the Giving Tuesday $5 for a Cure fundraiser this year. This year you helped us raise nearly $2000 towards a dystonia cure. Because when thousands of us give a little, we create something BIG. https://bit.ly/3Ra8YeZ
#dystonia #dmrf #dystoniafoundation
December 5, 2025 at 4:43 PM
dystoniafoundation.bsky.social
Words of wisdom that everyone can use: Take the time to do the little things that bring you joy.
#dystonia #dmrf #dystoniafoundation
December 4, 2025 at 9:34 PM
dystoniafoundation.bsky.social
DMRF-branded merchandise promotes dystonia awareness. Help us identify the merch you want to use for your awareness efforts. answer a 2-question survey to help us know what types of merchandise you would like to see in our online store.

https://bit.ly/4pD1GP1

#dystonia #dmrf #dystoniafoundation
December 2, 2025 at 7:58 PM
dystoniafoundation.bsky.social
#GivingTuesday is today. Join our $5 for a Cure movement: When thousands give a little, we create something BIG.

🔬 Fund critical research
🤝 Support families
📣 Raise awareness in communities

Give $5 now: https://bit.ly/3Ra8YeZ
Then tag 5 friends to keep it going!
#dystonia #dmrf
December 2, 2025 at 5:08 PM
dystoniafoundation.bsky.social
The holidays are here! This comfy DMRF Neck Pillow is the perfect gift for people with cervical dystonia. Order during Cyber Monday to receive it in time for holiday gifting. On sale now for $15.

SHOP NOW: http://bit.ly/4fAdf59
#dystonia #dmrf #dystoniafoundation
December 1, 2025 at 2:14 PM
dystoniafoundation.bsky.social
Today, Saturday, November 29, is Movement Disorder Day. It's important to remember that there are myriad disorders and treatment can be complicated. More importantly, the prevalence of movement disorders is outpacing growth projections.

#dystonia #dmrf #dystoniafoundation
November 29, 2025 at 11:38 AM
dystoniafoundation.bsky.social
The DMRF wishes everyone a safe and Happy Thanksgiving. During this season of gratitude, we are grateful for the support of the dystonia community: DMRF donors, support leaders, volunteers, advocates, and organizational leaders throughout the year.
#dystonia #dmrf #dystoniafoundation
November 27, 2025 at 9:20 PM
dystoniafoundation.bsky.social
During this season of thanksgiving, Utah Dystonia Support Group Leader Haley Brock shares what she is thankful for.
#dystonia #dmrf #dystoniafoundation
November 25, 2025 at 5:11 PM
dystoniafoundation.bsky.social
This Thanksgiving, we're grateful for YOU. Your compassion, advocacy and support matter. There are many ways to offer hope to the dystonia community: matching gifts, tax-free IRA gifts or planned giving through the DMRF Legacy Society.
https://bit.ly/49IZwc4
#dystonia #dmrf #dystoniafoundation
November 24, 2025 at 5:11 PM
dystoniafoundation.bsky.social
Online in the Winter 2025 Dystonia Dialogue: See photos from the 2025 Dystonia Zoo Days and other community events held around the country to raise dystonia awareness.
https://bit.ly/4oBZZl2
#dystonia #dmrf #dystoniafoundation
November 22, 2025 at 7:46 PM
dystoniafoundation.bsky.social
During this season of thanksgiving and reflection, Atlanta Dystonia Support Group Leader Kathy Ray shares what she is thankful for.
#dystonia #dmrf #dystoniafoundation
November 21, 2025 at 8:06 PM
dystoniafoundation.bsky.social
The DMRF hosted a meeting on “Neuromodulation in Dystonia,” chaired by Noreen Bukhari-Parlakturk, MD, PhD, Asst. Prof of Neurology, Duke University and Michael D. Fox, MD, PhD, Dir, Center for Brain Circuit Therapeutics, Brigham & Women's Hospital in Boston, MA.
#dystonia #dmrf #dystoniafoundation
November 21, 2025 at 4:24 PM
dystoniafoundation.bsky.social
The Winter 2025 Dystonia Dialogue includes a focus on acquired dystonia. Formerly known as secondary dystonia, acquired dystonia occurs due to an identifiable cause.
Read Now: https://bit.ly/47SZH22
#dystonia #dmrf #dystoniafoundation
November 20, 2025 at 9:03 PM
dystoniafoundation.bsky.social
Now in the Winter 2025 Dystonia Dialogue: Learn more about the History of the DMRF Medical and Scientific Advisory Council (MSAC). Part 1 of a 4-Part Series on the history of DMRF research support. Read it here:
https://bit.ly/4oN4mcH
#dystonia #dmrf #dystoniafoundation
November 20, 2025 at 9:03 PM
dystoniafoundation.bsky.social
During this season of thanksgiving and appreciation, Fairfield, CA Dystonia Support Group Leader Carol Flynn shares what she is thankful for.
#dystonia #dmrf #dystoniafoundation
November 19, 2025 at 7:16 PM
dystoniafoundation.bsky.social
The Winter 2025 Dystonia Dialogue includes a focus on acquired dystonia. Formerly known as secondary dystonia, acquired dystonia occurs due to an identifiable cause.
Read Now: https://bit.ly/47SZH22
#dystonia #dmrf #dystoniafoundation
November 19, 2025 at 7:16 PM
dystoniafoundation.bsky.social
November is National Family Caregivers Month. This year's theme is "Plug-in to Care," which focuses on making connections to support caregivers. Learn about preventing caregiver burnout in our webinar, The Caregiver Journey
https://bit.ly/3At5fUd

#dystonia #dmrf #dystoniafoundation
November 19, 2025 at 7:16 PM
dystoniafoundation.bsky.social
Jon Davis is Riding4Us to raise money for dystonia research. DBS surgery enabled Jon to resume bike riding, so he rides for those who have limited mobility due to dystonia. All donations up to $10,000 will be matched dollar-for-dollar by a generous donor. https://bit.ly/3YqyTRt
#dystonia #Riding4Us
November 18, 2025 at 4:46 PM
dystoniafoundation.bsky.social
In the Winter 2025 issue of the Dystonia Dialogue, learn about managing expectations if you are new to botulinum neurotoxin injections.
Read Now: https://bit.ly/3XosaYA
#dystonia #dmrf #dystoniafoundation
November 18, 2025 at 4:46 PM
dystoniafoundation.bsky.social
Research is fueled by a spark of hope. Your support funded critical research that’s bringing us closer to more accurate diagnosis and better dystonia treatments. Let’s keep that momentum going. Power the next discovery with a year-end gift: https://bit.ly/3Aujyrh
#dystonia #dmrf #dystoniafoundation
November 18, 2025 at 4:46 PM
dystoniafoundation.bsky.social
If you have dystonia, the DMRF is here for you with tips on how to manage stress and take care of yourself.
#dystonia #dmrf #dystoniafoundation
November 18, 2025 at 12:50 AM