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Reposted by Seethal Jacob, MD, MS

Seethal Jacob, MD, MS @drseethj.bsky.social · Jun 2

Disappointed w/new commercial form of #hydroxyurea - Xromi by #RareDiseaseTherapeutics. 👎👎

1. No communication to clinics/ppl living with #sicklecelldisease & what it means for them:
- 10x the💰
- frequent prior auths

2. Safety info discusses side effects in myeloproliferative disease, NOT SCD

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Seethal Jacob, MD, MS @drseethj.bsky.social · 17h

Heavily co-sign all of these but babies don’t need chiropractors is a truth deep from my soul

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Seethal Jacob, MD, MS @drseethj.bsky.social · Sep 4

The sig of a month focused on BOTH sickle cell disease & childhood cancer isn’t lost on me as a PHO doc. Esp in current state.

Both vulnerable & need our collective voices so they don’t become invisible.

As PHO team members our words hold POWER. Let’s not leave any child we care for behind.

Seethal Jacob, MD, MS @drseethj.bsky.social · Jun 2

Disappointed w/new commercial form of #hydroxyurea - Xromi by #RareDiseaseTherapeutics. 👎👎

1. No communication to clinics/ppl living with #sicklecelldisease & what it means for them:
- 10x the💰
- frequent prior auths

2. Safety info discusses side effects in myeloproliferative disease, NOT SCD

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Reposted by Seethal Jacob, MD, MS

Shematologist, MD @shematologist.medsky.social · May 22

Overnight Congress approved the big beautiful bill cutting Medicaid, which insures nearly 1/2 of all kids.

You may think this won’t affect you but it will.

More uninsured means crowded ERs, closing practices, higher costs & longer waits.

Call your senators to tell them how ugly this bill is.

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Reposted by Seethal Jacob, MD, MS

Data for Progress @dataforprogress.org · May 22

There is not a single congressional district in the U.S. where more than 15% of voters support cuts to SNAP, the federal program that provides food assistance to millions of low-income Americans.

Map of the U.S. showing voter support for cuts to the Supplemental Nutrition Assistance Program (SNAP, or food assistance) by congressional district. Support for SNAP cuts ranges from 5% to 14%. Created by Data for Progress.

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Seethal Jacob, MD, MS @drseethj.bsky.social · May 26

Had a great time as faculty at the @ash.hematology.org sickle cell disease centers workshop.

An absolute necessity for improving #accesstocare for individuals living with #sicklecelldisease.

Seethal Jacob, MD, MS @drseethj.bsky.social · Apr 28

Peds Sickle Cell Team representing at PAS! #PAS2025

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Reposted by Seethal Jacob, MD, MS

Fumiko Ladd Chino, MD FASCO @fumikochino.bsky.social · Feb 22

Medicare stops access to #Telehealth April 1st for almost all. [Even rural pts must drive to a 🏥 office 1st & THEN get telehealth.]

This will lead to:
1️⃣ less access to specialty care
2️⃣ poorer outcomes
3️⃣ higher costs for people with cancer

#Telemedicine was a step forward. Let's not fall back.

Fumiko Ladd Chino, MD FASCO @fumikochino.bsky.social · Nov 13

#Telehealth allows me to see patients on THEIR schedule. I've had consults from patient couches, home offices, from the alleyway outside their retail jobs, & from their cars during lunch break. I am for any tool which enables you to live on your time (not mine). #ASCOAdvocacy
brnw.ch/21wOBc8

Urge Congress to extend Medicare telehealth flexibilities beyond 2024 by passing the CONNECT for Health Act or the Telehealth Modernization Act.
TAKE ACTION: asco.org/actnetwork

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Seethal Jacob, MD, MS @drseethj.bsky.social · Feb 9

I repeat…check on your research friends. They are not well. 😞

Thanh Neville, MD, MSHS @thanhneville.medsky.social · Feb 8

#NIH just slashed indirect costs caps on grants to 15%--this is a HUGE blow to the research community. While there is certainly inefficiency to the grants system, indirects help institutions support scientists & academic infrastructure. No one will want to do research anymore. #medsky #academicsky

https://grants.nih.gov/grants/guide/notice-files/NOT-OD-25-068.html

Seethal Jacob, MD, MS @drseethj.bsky.social · Jan 25

I know 😫. And they did so well in Episode 2, but this was an opportunity missed 😭

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Seethal Jacob, MD, MS @drseethj.bsky.social · Jan 23

Check on your research friends.

They are not well.

Jane Liebschutz, MD MPH (she/her) @liebschutz.bsky.social · Jan 22

All NIH study sections canceled indefinitely. This will halt science and devastate research budgets in universities.

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Reposted by Seethal Jacob, MD, MS

Jane Liebschutz, MD MPH (she/her) @liebschutz.bsky.social · Jan 22

All NIH study sections canceled indefinitely. This will halt science and devastate research budgets in universities.

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Reposted by Seethal Jacob, MD, MS

Angie Rasmussen @angierasmussen.bsky.social · Jan 22

No study section...no grant reviews
No grant reviews...no grants awarded
No grants awarded...no research
No research...no functional NIH

Jane Liebschutz, MD MPH (she/her) @liebschutz.bsky.social · Jan 22

All NIH study sections canceled indefinitely. This will halt science and devastate research budgets in universities.

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Seethal Jacob, MD, MS @drseethj.bsky.social · Jan 18

When your team has grown so much, you can’t fit them in one shot 🤩

We took time away last week to remind ourselves of why we do what we do, celebrate our successes and plan for the future. Proud of this team and what they’ve accomplished.

#teamwork #sicklecell

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Seethal Jacob, MD, MS @drseethj.bsky.social · Dec 27

Amazon's One Medical #Telemedicine Program being sued should not come as a surprise to anyone. I'll sing telemedicine's praises from the rooftop, but it, like anything, has its limitations. No cutting corners in provider knowledge or expertise.
healthexec.com/topics/healt...

Amazon One Medical sued after patient prescribed inhaler dies in ER

A lawsuit filed by the family of Philip Tong, 45, claims he was experiencing severe emergency symptoms that staff at Amazon One Medical should have recognized as life-threatening.

healthexec.com

Seethal Jacob, MD, MS @drseethj.bsky.social · Dec 21

I did this year, but this might be my last MOC cycle…

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Seethal Jacob, MD, MS @drseethj.bsky.social · Dec 13

The best dog 🥰

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Seethal Jacob, MD, MS @drseethj.bsky.social · Dec 12

Yes, next time! ❤️

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Seethal Jacob, MD, MS @drseethj.bsky.social · Dec 12

I can’t believe this happened! Glad you’re ok!

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Seethal Jacob, MD, MS @drseethj.bsky.social · Dec 11

Thanks again for a wonderful time with friends and colleagues, @ash-hematology.bsky.social. #ASH24 was a hit! Until next time, San Diego 👋🏽

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Seethal Jacob, MD, MS @drseethj.bsky.social · Dec 8

Yes, she did! She’s a superstar!

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Seethal Jacob, MD, MS @drseethj.bsky.social · Dec 7

Be sure to check out this presentation today at 445, Room 30 on use of an ED protocol with Intranasal Fentanyl in #sicklecelldisease presented by Dr. Olufunke Martin! #ASH24

Ben Samelson-Jones, MD, PhD @samelsonjones.bsky.social · Dec 7

Innovation in classical #Hemesky at #Ash24 is taking all forms including repurposing, improved systems, and new technologies.

Nice highlights of nonmalignant abstracts. @drseethj.bsky.social

ashpublications.org/ashnewsdaily...

From Legacy to Innovation in Classical Hematology: Old Drugs with New Uses, New Drugs, and New Disease States | ASH News Daily | American Society of Hematology

ashpublications.org

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Seethal Jacob, MD, MS @drseethj.bsky.social · Dec 6

The fog is delaying the start to our #ASH24 festivities 😫

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Seethal Jacob, MD, MS @drseethj.bsky.social · Dec 5

This is what #advocacy can do! The medical community and legislators coming together to push back on the monopoly that is health insurance.

Insurers should have NO influence on whether a family can choose a life-saving procedure.

CNN @cnn.com · Dec 5

Facing criticism, Anthem Blue Cross Blue Shield said it will not proceed with a policy to put time limits on coverage for anesthesia during surgery.

Insurance company halts plan to put time limits on coverage for anesthesia during surgery | CNN

After sharp criticism from anesthesiologists, an insurance company is halting its plan to limit the amount time it would cover anesthesia used in surgeries and procedures. Anthem Blue Cross Blue Shiel...

www.cnn.com

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