I really don’t like the Tiffany’s lock jewelry. It looks like you’re wearing shackles.

My first World Arthritis Day. #RheumatoidArthritis #RA #ChronicPain #ChronicIllness

Hurricane season means ongoing flares, as barometric pressure affects me greatly. Send thoughts, prayers, and Xanax. #ChronicIllness #Flare #RheumatoidArthritis #hEDS #NEISvoid

Word.

Submitting my proposal for how to make your practice more accessible, to a national conference. Ironically, my talk was accepted last year, but I was unable to give it myself because I was in the OR having emergency neurosurgery on my spine for sudden paralysis that day.

Chronic illness management is not day by day. It’s hour by hour. #NEISvoid

I hope this discourages any of the others from doing the same!

My bestie has a website! Everyone go check her out: www.theross.group #Consulting #Marketing #Branding

I just want to feel better. I’m just devastated that I have all these rare diseases that no one knows much about, no one understands, and there’s no cures and few treatments for. I’m tired of educating and advocating for myself. I just want to be taken care of. #NEISvoid

"I have been afflicted by a terminal uniqueness.”

I salute you if you're much too much to handle. 🫡

As a former theater kid, I love it. A no skips album. The Fate of Ophelia music video deserves all the awards. Worth the movie ticket price and a fun experience. Life doesn’t have enough fun moments.

Taylor Swift delivered exactly what she said she would with The Life of a Showgirl. She said it was a look behind the curtain. The Eras Tour was the showgirl performance. This is after the show is over. It’s taking off the makeup, the paste jewels, and wondering if the performance high is worth it

Pleasantly surprised this was published by the CDC last month. Not surprised bc good people still work there, but disability has been attacked under anti-DEI measures. www.cdc.gov/disability-i...

I’m really tired of taking so many meds #ChronicIllness #DisabledLife

Something about the “ah ah ah” in Opalite scratches my brain in a way that reminds me of Be My Little Baby. ❤️‍🔥 #TheLifeOfAShowgirl #TLOAS #TaylorSwift #Opalite

We had like, 75+ people donate. The biggest drive they’d ever had!

🤣🤣🤣 Our community theater put on Evil Dead: The Musical a few years ago, and partnered with OneBlood for a blood drive. We handed out “I bled for the Evil Dead” buttons. It was fantastic.

Why are we allowing ourselves to go backwards in time? We have the tools, and have proven that telehealth outcomes can be equal to (in some cases better) than in-patient care. It improves productivity because caregivers don’t have to take off work. I don’t have to close my clinic for my own appts!

Telehealth is something I use to help my patients, and something I greatly benefit from as someone with multiple rare disabilities myself. For it to be available for patients on commercial plans but not Medicare is ageism.

It’s taken so much.

Well guys, I must be an MMR autistic, because my mother confirmed that she took NO Tylenol while pregnant with me. 🤣🤣🤣💊💉 #ActuallyAutistic #Neurodivergent

Vaccines cause Adults.

The trade off for lower infant mortality is that some of us who are sicker actually survive!