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DETERMIND Research Study @determindstudy.bsky.social · 6h

This Black History Month, we'd like to highlight two excellent interviews with members of the community. They discuss the differences in dementia pathways and support systems for people who are Black, African and Caribbean.
www.alzheimers.org.uk/blog/address...
www.dementiauk.org/information-...

Addressing big issues that Black people with dementia in the UK face

Community leader Morcea Walker talks to us about the specific challenges of dementia in the Black community and her passion for raising awareness.

www.alzheimers.org.uk

DETERMIND Research Study @determindstudy.bsky.social · 1d

Our London research team travel each week to interview people living with dementia and their supporters across local boroughs. If we're a bit early, we take a break to wander around the area and take some photos. We hope you can take a little break today too and enjoy these sights as much as we did!

Croydon's skyline on a bright and clear summer's day. The sky is a bright blue and sits above a green park with trees around the edge. There is a modern tall building on the skyline.

Anerley's green man sign, showing a man with green facial features and skin made of oak leaves.

A Dulwich woodland clearing in the early morning light. There is a tree stump in the clearing, surrounded by hundreds of green leaves in bushes below and trees above.

A tram on its way to Wimbledon, pulling into the tram stop. The tram is mostly bright green, with a stripe of blue at its base.

DETERMIND Research Study @determindstudy.bsky.social · 5d

Ben Hicks presented findings from the DETERMIND study at @alzheimereurope.bsky.social conference in Bologna. This work looked at whether an early diagnosis of dementia is better for quality of life in people living with dementia and their carers after one year post diagnosis.

#35AEC

A man in a shirt is standing at a podium talking into a microphone to an audience who appear to be listening intently. A PowerPoint slide on a projector screen is party visible. There is an illustration of a sand timer and a brain and the text reads 'Temporal: Time between noticing symptoms and diagnosis (early diagnosis <2 years). Cognitive severity: CDR<1, sMMSE≥ 20)'.

A man in a shirt is standing at a podium in a lecture theatre talking to an audience. They have a slide on a projector screen with the heading '....Emergence of 'Timely' discourse'. Underneath the heading there are three bullet points reading 'Lack of evidence has led to the emergence of the 'timely' discourse.', 'Timely is a more person-centred, subjective approach to diagnosis. Diagnosis delivered when best for the person and family. If diagnosis unwanted then no diagnosis is considered 'timely'.', 'Emerging but weak evidence (Woods et al 2018) suggests this may be beneficial for both person with dementia and carer. Carers report 3-4 years post-diagnosis.'

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DETERMIND Research Study @determindstudy.bsky.social · 8d

A great day at the Nottingham Centre for Dementia Showcase which focused on ‘Rethinking dementia: collaboration, co-design and change’. A great mix of presenters and an interesting table discussion! Alice presented work from her PhD on ‘addressing dementia diagnosis inequalities’.

A photo taken from the perspective of someone attending a conference. There is a laptop set up in front of the camera, with the title slide 'Addressing dementia diagnosis inequalities' on its screen. It sits on a glossy wooden table, which also has a booklet for the conference sitting next to the laptop. In the background is a large presentation screen with a slide suggesting questions for a roundtable discussion.

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DETERMIND Research Study @determindstudy.bsky.social · 14d

Happy #InternationalDayOfOlderPersons! It is rare that the time and efforts that older people put towards caring for others are truly appreciated. So, from our DETERMIND team, we'd like to send a huge thank you and encourage others to join in with the celebrations :)

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DETERMIND Research Study @determindstudy.bsky.social · 15d

We're closing off World Alzheimer's Month with a look back at this September.

This month, we visited 20 homes to interview people living with dementia and those who support them. We travelled to 16 areas across the UK, attended 5 conferences and expanded our staff team with a few new members :)

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DETERMIND Research Study @determindstudy.bsky.social · 20d

Empowering video from @alzint.org about what everyone can do to raise awareness and reduce stigma associated with dementia.

This year's theme for World Alzheimer's Month encourages open conversation and for people to ask about dementia.

#WorldAlzheimersMonth #AskAboutDementia #AskAboutAlzheimers

paolabarbarino.bsky.social @paolabarbarino.bsky.social · Sep 1

Ciao everyone and Happy World Alzheimers Month!!!

For the launch today I recorded a video share it if you can, we have subtitles in a huge number if languages! It’s on You Tube at youtu.be/q7cuA66Tit4

#AskAboutDementia and #AskAboutAlzheimers in your online

Access the toolkits at: bit.ly/411i4iC

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Reposted by DETERMIND Research Study

Women in Neuroscience UK @womeninneurouk.bsky.social · 27d

September is World Alzheimer’s Month! 💜

Want to learn more about Alzheimer’s? Here are our recommended reads from our blog! 📖

Read the full articles here: www.womeninneuroscienceuk.org/blog/tags/al...

Want to learn more about Alzheimer’s? Check out @AlzResearchUK 🧡

Women in Neuroscience UK’s recommended reads for World Alzheimer’s Month. Alzheimer’s Disease in Women: Is Menopause the Missing Link? by Emily Budden. Diagnosis of Early Dementia: blood proteins reveal potential risk by Emily Beswick. Tau do you solve a problem like dementia? How inhibiting tau phosphorylation could be a potential therapeutic for Alzheimer’s disease by Catherine Turnbull. Bugs and Brain: The Role of Gut-Brain Axis in Neurological Disorders by Shriya Singh. Sheltering from Time: A Review of Time Shelter by Rebecca Pope. Read these articles and more on our website linked above!

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DETERMIND Research Study @determindstudy.bsky.social · 22d

The Gateshead research team recently visited participants in a beautiful town in the North Pennines. Winding roads led the team on a rural research adventure, where they were warmly welcomed by the local community.

#DementiaResearch #RuralDementia

A winding countryside road through vast, open and hilly countryside. There are old wall ruins on the right of the road and green trees and heath on the left. There are several sheep dotted throughout the landscape

A sheep is standing in the heath looking at the camera and is surrounded by hilly countryside. A winding road is visible in the background. The clouds in the sky are grey and dramatic.

A road runs alongside hilly purple and green heathland. The landscape is dotted with jagged rock, small trees and bracken.

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DETERMIND Research Study @determindstudy.bsky.social · 25d

World Alzheimer's Day is this Sunday. @alzheimerssoc.bsky.social are raising money to fund vital research and have lots of ways you can help beat dementia, from volunteering and campaigning, to learning something new. Check out the ways you can get involved: shorturl.at/TrmIl

#WorldAlzheimer'sDay

World Alzheimer's Month

World Alzheimer's Month takes place every September and World Alzheimer's Day is on 21 September each year. It's a global opportunity to raise dementia awareness and support people affected by the dis...

shorturl.at

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DETERMIND Research Study @determindstudy.bsky.social · 27d

Published DETERMIND study findings from @drrotemperach.bsky.social and Carmen Colclough on how staying involved with decisions such as what to eat and what to wear are positively associated with quality of life.
Read the paper here: www.tandfonline.com/doi/full/10....

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DETERMIND Research Study @determindstudy.bsky.social · 28d

One of our London research assistants recently presented at the IFPE International Congress in Trento. Outside of the DETERMIND study, they are investigating key health outcomes and sociodemographic details of those who access mental health services without a formal diagnosis.

lucestewart.bsky.social @lucestewart.bsky.social · 28d

I feel very lucky to have attended the IFPE International Congress in Trento to share findings on those accessing mental healthcare services without a diagnosis. It was a really great opportunity to gain an understanding of global mental health epidemiology! Loved Trento a lot too :)

A researcher standing by their poster in a presentation hall. The hall is bright and airy with wooden floors. The researcher is posed just in fromt of their poster, which details characteristics and outcomes of those who don't receive a mental health diagnosis with some brightly coloured graphs and charts.

A researcher presenting a slide at a conference. They are sat down in front of the projection to use the microphone. The presentation slide details standardised mortality ratios in a colourful graph for three cohorts, all of which are significantly higher and worse than a 1:1 ratio.

A mountain poking out in the skyline above the roof to the conference venue. It is almost completely covered in dark green trees, with only some sections of white rocks visible. The sky above it is blue with just one cloud.

The main fountain in Trento's town square. It is large, about 7-8 times the height of a person. The fountain has many statues dotted around its base, with poseidon sat at the top of the fountain with his infamous trident. People are walking by the statue, pausing to take pictures or sitting at its base, enjoying the sun.

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Reposted by DETERMIND Research Study

lucestewart.bsky.social @lucestewart.bsky.social · 28d

I feel very lucky to have attended the IFPE International Congress in Trento to share findings on those accessing mental healthcare services without a diagnosis. It was a really great opportunity to gain an understanding of global mental health epidemiology! Loved Trento a lot too :)

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DETERMIND Research Study @determindstudy.bsky.social · 28d

Our lead, Professor Sube Banerjee, presented evidence based on findings from the DETERMIND study to the UK Covid Inquiry. He discussed the disproportionate impact the pandemic had on people with dementia and their caregivers, and recommendations for future pandemics.
www.youtube.com/watch?v=NjL-...

UK Covid 19 Inquiry - Module 6 Hearing - 23 July 2025 AM

YouTube video by UK Covid-19 Inquiry

www.youtube.com

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Reposted by DETERMIND Research Study

Natalie Tawney @natalietawney.bsky.social · Sep 2

ARUK South Coast Network meeting was a great opportunity to catch up with peers, meet others working in the field and present the exciting next stage of the @determindstudy.bsky.social study! Thanks for a great few days @alzheimersresearchuk.org!

A person is standing in front of a projector screen talking to a small audience. The screen shows a slide with the title 'The DETERMIND study goals: Seldom heard voices' and three bullet points reading 'Amplify seldom heard voices', 'Identify priorities for improving care', and 'Address inequalities'. The presenter looks enthusiastic and happy and the audience are listening intently.

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DETERMIND Research Study @determindstudy.bsky.social · Aug 28

What did you do after the bank holiday? We reunited our team to spend the day planning an application at the @empowerdementianet.bsky.social Sandpit Event. It was a real joy to meet others passionate about making a difference to the lives of those living with dementia and those who support them :)

A group of six happy team members, dressed semi-casually, in front of a projector screen. They all work on the DETERMIND dementia study together and are stood posing for the photo. On the screen is the title of the event 'Empower Dementia Network + Sandpit Event'. It is surrounded by illustrations of some trees and two characters holding flowers with a butterfly flying between them.

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DETERMIND Research Study @determindstudy.bsky.social · Aug 27

Well done to Kate Gridley, who has recently published an incredibly important paper looking closely at the degrading effects of COVID-19 on the social environments of people living with dementia. The paper quotes participants from DETERMIND and PriDem studies. journals.sagepub.com/doi/full/10....

The Importance of the Social Environment for People Living With Dementia and Their Carers: Qualitative Evidence From DETERMIND and PriDem on the Impact of COVID-19 Service Changes and Restrictions in ...

This paper presents evidence from multiple perspectives on the impact of changes to health and social care service delivery, and the related social environment,...

journals.sagepub.com

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DETERMIND Research Study @determindstudy.bsky.social · Aug 21

PhD student @isaac-dc.bsky.social had a great time in Toronto at their first @alzassociation.bsky.social‬ international conference. They enjoyed learning about new community-based interventions and co-designed respite programs, as well as presenting their own research and lots of poutine! #AAIC25

A researcher is standing next to their research poster at a scientific conference, they are smiling and holding a coffee. The title of the poster is Predicting Delayed Diagnosis in Dementia: The Impact of Coping Style.

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DETERMIND Research Study @determindstudy.bsky.social · Aug 19

We're #Hiring! We have an exciting opportunity for two new Research Assistants to join our friendly team in Nottingham.

Find out more and apply by 8th September: shorturl.at/FG100

@uniofnottingham.bsky.social
@institutemh.org.uk
@dementiaresearcher.bsky.social
#DementiaResearch

Job Vacancy at the University of Nottingham: Research Assistant (Fixed Term)

An exciting opportunity has arisen for two Research Assistants (RAs) within the Institute of Mental Health. The RAs will be working on the ESRC/NIHR funded DETERMIND programme (www.determind.org.uk). ...

shorturl.at

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DETERMIND Research Study @determindstudy.bsky.social · Aug 18

Visit our website to see more information about the project so far: determind.org.uk

DETERMIND

determind.org.uk

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DETERMIND Research Study @determindstudy.bsky.social · Aug 18

Welcome to the DETERMIND research project! We are an ambitious team aiming to find out how we can make dementia care and outcomes in the UK more equal. Keep an eye out for updates on the exciting next stage of the project, new findings, publications, and opportunities to get involved.

A cartoon drawing of a wooden sign post with two arms pointing in different directions. One arm of the sign post has a symbol of a hand holding a heart on it, representing care, the other arm of the sign post a pound sign symbol on it. At the base of the sign post is a tuft of grass and two flowers. The word DETERMIND features next to the cartoon in bold capital letters. Underneath this are the words finding a fairer path to dementia care. The cartoon and the text are in the colour green.

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