Dare to be Rare
@daretoberare.org
17 followers 17 following 18 posts
Our mission: CURE THIS All sales from Dare to be Rare go directly to funding research for the cause you choose at checkout. To shop, learn more, or become a partner, check out daretoberare.org
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daretoberare.org
We're so pleased to announce that the Dare to be Rare webstore is BACK and taking orders! daretoberare.org

To celebrate our return, as well as our upcoming visit to the NORD Summit next week, please enjoy 15% off everything in the store. 💫
Promo graphic with a photo of a smiling woman wearing a Dare to be Rare shirt. The graphic advertises "15% off everything" and has the store url "daretoberare.org"
daretoberare.org
We're coming back! This weekend we'll be hanging out with the HPS Network for their weekend conference, and then in May our online store returns! Sign up for the newsletter or stay tuned here for more announcements about what's in store. 💫 daretoberare.org
Site relaunch announcement image with our new logo and pictures of people wearing Dare to be Rare merch. The text reads: "We're BACK! Site relaunch May 16 daretoberare.org"
daretoberare.org
Dare to be Rare has been celebrating what it means to be RARE all week! It’s the last day to use coupon code RAREWEEK to get 10% off everything in our store and support rare disease research. www.daretoberare.org #DareToBeRare #RareDiseaseDay
sale graphic featuring a person from behind wearing a "I'll have my life Rare" sweatshirt against a blue sky and clouds
daretoberare.org
Dare to be Rare sales go directly to fund research for our partners, like the LGDA Alliance. Learn more about complex lymphatic anomalies at lgdalliance.org and choose the LGD Alliance during checkout at daretoberare.org to help fund their work! #DareToBeRare #RareDiseaseDay
partner spotlight graphic featuring the LGDA logo
daretoberare.org
We’ve been quiet for a little while, but this year Dare to be Rare is back! Get the latest news on upcoming products, new partners, and more by signing up for our newsletter. daretoberare.org/newsletter #DareToBeRare #RareDiseaseDay
newsletter promo graphic with a photo of 5 people in Dare to be Rare shirts lying in the grass in a circle holding hands
daretoberare.org
Dare to be Rare sales go directly to fund research for our partners, like the HPS Network. Learn more about Hermansky-Pudlak Syndrome at www.hpsnetwork.org and choose the HPS Network during checkout at daretoberare.org to help fund a cure! #DareToBeRare #RareDiseaseDay
partner spotlight graphic featuring the logo for the Hermansky-Pudlak Syndrome Network
daretoberare.org
What does RARE mean? Experts may not agree, but our friends at the HPS Network asked some smart kids what they think RARE means, and we think they’ve got it figured out! What does RARE mean to you? #DareToBeRare #RareDiseaseDay
www.youtube.com/watch?v=eHCi...
What Does Rare mean to children
YouTube video by HPS Network
www.youtube.com
daretoberare.org
Dare to be Rare sales go directly to fund research for our partners, like PXE International. Learn more about Pseudoxanthoma Elasticum at www.pxe.org and choose PXE during checkout at daretoberare.org to help fund their work! #DareToBeRare #RareDiseaseDay
partner spotlight graphic featuring the logo for PXE International
daretoberare.org
Dare to be Rare is back and celebrating what it means to be RARE all week! Use coupon code RAREWEEK to get 10% off everything in our store and support rare disease research. www.daretoberare.org #DareToBeRare #RareDiseaseDay
sale promo graphic featuring two people wearing "Live a Rare Life" hoodies in different colors
daretoberare.org
Dare to be Rare is back and celebrating what it means to be RARE all week! Use coupon code RAREWEEK to get 10% off everything in our store and support rare disease research. www.daretoberare.org #DareToBeRare #RareDiseaseDay
sale graphic featuring a photo of an adult and child, the child is wearing a "RARE-ing to go" shirt
daretoberare.org
Dare to be Rare sales go directly to fund research for our partners, like NOAH, the National Organization for Albinism & Hypopigmentation. Learn more at albinism.org and choose NOAH during checkout at daretoberare.org to fund their work! #albinism #DareToBeRare #RareDiseaseDay
Celebrate RARE partner spotlight featuring the NOAH logo
daretoberare.org
We’ve been quiet for a little while, but this year Dare to be Rare is back! Get the latest news on upcoming products, new partners, and more by signing up for our newsletter. daretoberare.org/newsletter #DareToBeRare #RareDiseaseDay
newsletter promo graphic with a photo of 5 people in Dare to be Rare shirts lying in the grass in a circle holding hands
daretoberare.org
What makes YOU rare? Rare diseases may affect 1 in every 10 people, but there are many ways each of us are RARE! Our friends at the HPS Network asked this question, and some of the answers will leave you laughing. So, what makes YOU rare? #DareToBeRare #RareDiseaseDay www.youtube.com/watch?v=fPlB...
What Makes You Rare
YouTube video by HPS Network
www.youtube.com
daretoberare.org
Dare to be Rare is back and celebrating what it means to be RARE all week! Use coupon code RAREWEEK to get 10% off everything in our store and support rare disease research. www.daretoberare.org #DareToBeRare #RareDiseaseDay
sale promo graphic with a photo from behind of someone wearing a blue "Live a Rare Life" tank top
daretoberare.org
Dare to be Rare sales go directly to fund research for our partners, like the Cystinosis Research Network. Learn more about cystinosis at cystinosis.org and choose the CRN during checkout at daretoberare.org to help fund their work! #DareToBeRare #RareDiseaseDay
Celebrate RARE partner spotlight featuring the Cystinosis Research Network logo
daretoberare.org
We’ve been quiet for a little while, but this year Dare to be Rare is back! Get the latest news on upcoming products, new partners, and more by signing up for our newsletter. daretoberare.org/newsletter #DareToBeRare #RareDiseaseDay
newsletter promo graphic with a photo of 5 people in Dare to be Rare shirts lying in the grass in a circle holding hands
daretoberare.org
What does RARE mean? Experts may not agree, but our friends at the HPS Network asked some smart kids what they think RARE means, and we think they’ve got it figured out! What does RARE mean to you? #DareToBeRare #RareDiseaseDay
www.youtube.com/watch?v=eHCi...
What Does Rare mean to children
YouTube video by HPS Network
www.youtube.com
daretoberare.org
Dare to be Rare is back and celebrating what it means to be RARE all week! Use coupon code RAREWEEK to get 10% off everything in our store and support rare disease research. www.daretoberare.org #DareToBeRare #RareDiseaseDay
sale promo graphic featuring a woman with short hair and a huge smile wearing a "Dare to be Rare" shirt.