Author | Lightnews

a man in a suit and tie is saying `` here we go '' while looking at something .

CreakyJoints® @creakyjoints.bsky.social · 7d

The words “your labs came back normal” hit different when your symptoms are anything but.

ALT: a man in a suit and tie is saying `` here we go '' while looking at something .

media.tenor.com

1 4

CreakyJoints® @creakyjoints.bsky.social · 10d

A new special episode of #TheHealthAdvocates features Kathi, who shares her GCA journey from diagnosis to advocacy — discussing how staying informed, engaged, and connected has empowered her to take control of her care and help others.

🎧 Listen now:
ghlf.org/the-health-a...

#Rheumatology

CreakyJoints® @creakyjoints.bsky.social · 11d

GCA is a rare autoimmune disease that causes inflammation in the blood vessels — often leading to headaches, scalp tenderness, jaw pain when chewing, and in some cases, vision loss.

Awareness saves sight.

#GCAAwarenessDay #ChronicIllnessCommunity #InvisibleIllness #AutoimmuneWarrior #CreakyJoints

3 3

CreakyJoints® @creakyjoints.bsky.social · 12d

Invisible ≠ Imaginary.
“You might not be able to see our pain — physical and mental — but we sure can feel it.” — @chroniceileen.bsky.social

👉 Read the full story:
creakyjoints.org/living-with-...
#InvisibleDisabilitiesWeek #InvisibleNoMore #ChronicIllness

My Mini Rant About the Frustrations of a Living with Invisible Disability: A Rheumatoid Arthritis Patient Speaks Out

Learn more about a rheumatoid arthritis patient’s take on why it’s challenging to live with an invisible disability that is misunderstood by others.

What Is Giant Cell Arteritis? These Are the Signs You Could Have It

1 3

CreakyJoints® @creakyjoints.bsky.social · 13d

What Is Giant Cell Arteritis? These Are the Signs You Could Have It...
Read: creakyjoints.org/education/gi...
#GCAAwareness

Giant cell arteritis, or temporal arteritis, is an inflammatory disease that affects large blood vessels in the head. Learn about CGA symptoms & treatment.

1 1

CreakyJoints® @creakyjoints.bsky.social · 14d

The hardest part of living with an invisible illness isn’t always the pain — it’s feeling unseen.

This #InvisibleDisabilitiesWeek, we’re standing with everyone living with conditions that don’t always show.

What helps you feel seen, believed, or supported? 💙
#InvisibleNoMore

1 2

CreakyJoints® @creakyjoints.bsky.social · 20d

Stories like this are why we fight for awareness.
October 23 is #GCAAwarenessDay
#GCAAwareness #RareDisease

1 1

CreakyJoints® @creakyjoints.bsky.social · 22d

💙 On #WorldArthritisDay we honor the 350 million people worldwide living with arthritis and RMDs.
Thank you for your resilience, advocacy, and hope in action every day.
Together, we push for awareness, equity, and better care. What keeps you going?

2 3

CreakyJoints® @creakyjoints.bsky.social · 24d

On #WorldMentalHealthDay we honor everyone facing the mental toll of chronic illness — the fatigue, isolation, and uncertainty. You are seen, valued, and not alone. 💚 #YouAreNotAlone #ChronicIllness

Doing Chores with Arthritis Is a Real Pain, But These 12 Tips Can Help a Little

Reposted by CreakyJoints®

A Chronic Voice @achronicvoice.com · 28d

“Relish the #chores you actually like - Believe it or not, some #HouseholdChores may actually help your #arthritis feel better. “I do dishes a lot as the hot water feels wonderful on my hands,” says Debra": buff.ly/SkHaFrX

from @creakyjoints.bsky.social
#ChronicIllness #ChronicPain

This advice from an occupational therapist and fellow patients can help make chores less painful for people with arthritis.

buff.ly

1 8

CreakyJoints® @creakyjoints.bsky.social · 25d

📅 Mark your calendars: October 23 is #GCAAwarenessDay. Giant Cell Arteritis can cause sudden vision loss — but awareness saves sight. 👁️💡
#GiantCellArteritis #StopVisionLoss #PatientAdvocacy

My Mini Rant About the Frustrations of a Living with Invisible Disability: A Rheumatoid Arthritis Patient Speaks Out

CreakyJoints® @creakyjoints.bsky.social · 26d

You can’t see my pain — but I still feel it every day. 💔 Why living with an invisible illness is exhausting & misunderstood →
creakyjoints.org/living-with-...
@chroniceileen.bsky.social

Learn more about a rheumatoid arthritis patient’s take on why it’s challenging to live with an invisible disability that is misunderstood by others.

1 5

CreakyJoints® @creakyjoints.bsky.social · 27d

New Health Advocates: Public Health in a Shutdown.

What happens to the CDC, FDA & NIH when Washington stops?
Steven Newmark breaks down the impact on vaccines, food safety & healthcare access.

🎧 ghlf.org/the-health-a...

#TheHealthAdvocates #PublicHealth #GovernmentShutdown

Learn about pain, its various types, and how to communicate your pain effectively to your health care provider.

CreakyJoints® @creakyjoints.bsky.social · 28d

Living with PsA? Your voice matters.
Take our 15–20 min survey & help improve care for others like you.
Enter a raffle to win 1 of 5 $300 e-gift cards.
Click here for more info:
www.research.net/r/TNYM279
#PsA #PsoriaticArthritis #PatientVoices #CreakyJoints #AutoimmuneLife

CreakyJoints® @creakyjoints.bsky.social · 29d

Pain isn’t one-size-fits-all. Understanding what type you live with — and how to talk about it — can change how you’re treated.
Read here:
creakyjoints.org/about-arthri...
#UnderstandingPain #ChronicPain #SelfAdvocacy

Understanding Pain

A Guide to Setting Boundaries if You’re a People-Pleaser

CreakyJoints® @creakyjoints.bsky.social · Oct 2

A Guide to Setting Boundaries if You’re a People-Pleaser

Saying no isn’t always easy — but with practice, it can become a habit.
👉 creakyjoints.org/living-with-...

#Boundaries #SelfAdvocacy #ChronicIllness

If you have trouble setting boundaries, here’s what you need to know to shift your mindset — and keep yourself healthy.

Walking with Arthritis: Benefits, Tips, How to Prevent Pain

CreakyJoints® @creakyjoints.bsky.social · Sep 30

Walking can help reduce stiffness, boost mood & maintain independence. Start slow, wear good shoes & listen to your body.
Read more ⬇️
creakyjoints.org/diet-exercis...

#ChronicPain #Arthritis #PainAwareness

Learn more about walking as exercise for arthritis, including the health benefits of walking and how to avoid injuries and pain.

Why Pain Scales Don’t Work When You Have Multiple Types of Chronic Pain: An Arthritis Patient’s Perspective

CreakyJoints® @creakyjoints.bsky.social · Sep 29

“Rate your pain 0–10.”
But what if you have three different kinds of pain at once?
📊 The pain scale is broken →

creakyjoints.org/living-with-...

#PainAwarenessMonth #ChronicPain #PatientAdvocate

Learn more about a patient’s perspective on the problem with pain scales when you have multiple types of arthritis and chronic pain.

Healthcare Matters Podcast

1 1

Reposted by CreakyJoints®

Shelley @shelley55.bsky.social · Sep 28

If you have psoriatic arthritis, please complete this survey from @creakyjoints.bsky.social #psa #psoriaticarthritis

CreakyJoints® @creakyjoints.bsky.social · Sep 26

Living with PsA? Your voice matters.
Take our 15–20 min survey & help improve care for others like you.
Enter a raffle to win 1 of 5 $300 e-gift cards.
Click here for more info:
www.research.net/r/TNYM279
#PsA #PsoriaticArthritis #PatientVoices #CreakyJoints #AutoimmuneLife

1 2

CreakyJoints® @creakyjoints.bsky.social · Sep 28

High Awareness, Low Access.

Dr. Robert Popovian explains what GHLF’s survey reveals about COVID-19 antiviral access — and the barriers keeping high-risk patients from lifesaving treatments.

🎧 Listen: ghlf.org/healthcarema...

#HealthcareMatters #COVID19 #HealthEquity

A podcast dedicated to bringing you a simplified rundown of not-so-simple matters in healthcare economic and policy issues.

ghlf.org

CreakyJoints® @creakyjoints.bsky.social · Sep 26

🚨 New episode of The Health Advocates

ACIP’s vaccine votes and Trump’s Tylenol claims made for another turbulent week in public health. Steven Newmark explains what happened, what the science shows, and why advocacy matters.

🎧 Listen: ghlf.org/the-health-a...

#TheHealthAdvocates #PublicHealth

Working at Home with Arthritis: 5 Important Tips for Less Pain

CreakyJoints® @creakyjoints.bsky.social · Sep 26

Living with PsA? Your voice matters.
Take our 15–20 min survey & help improve care for others like you.
Enter a raffle to win 1 of 5 $300 e-gift cards.
Click here for more info:
www.research.net/r/TNYM279
#PsA #PsoriaticArthritis #PatientVoices #CreakyJoints #AutoimmuneLife

1 2

CreakyJoints® @creakyjoints.bsky.social · Sep 22

Working from home isn’t as comfy as it sounds when you have arthritis.

From flares to fatigue, here’s how to make remote work actually work for you 💻🪑

🔗 creakyjoints.org/living-with-...

#PainAwarenessMonth #ChronicPain #Arthritis

Learn how to adjust your home work station if you have arthritis to avoid joint and muscle pain and be more comfortable while you work from home.