Cystic Fibrosis Ireland
@cfireland.bsky.social
Cystic Fibrosis Ireland is the national charity advocating for people with Cystic Fibrosis in Ireland.
Registered Charity Number 20011376
Registered Charity Number 20011376
𝐄𝐚𝐫𝐥𝐲 𝐁𝐢𝐫𝐝 𝐀𝐜𝐜𝐨𝐦𝐦𝐨𝐝𝐚𝐭𝐢𝐨𝐧 𝐃𝐢𝐬𝐜𝐨𝐮𝐧𝐭!!
The CFI Conference takes place on 𝗦𝗮𝘁𝘂𝗿𝗱𝗮𝘆 𝟳𝘁𝗵 𝗙𝗲𝗯𝗿𝘂𝗮𝗿𝘆 and is open for booking!
Book your accommodation before the 31st December to avail of the early bird discounted rate.
Visit www.cfireland.ie/support-reso... to start your reservation.
The CFI Conference takes place on 𝗦𝗮𝘁𝘂𝗿𝗱𝗮𝘆 𝟳𝘁𝗵 𝗙𝗲𝗯𝗿𝘂𝗮𝗿𝘆 and is open for booking!
Book your accommodation before the 31st December to avail of the early bird discounted rate.
Visit www.cfireland.ie/support-reso... to start your reservation.
November 20, 2025 at 10:01 AM
𝐄𝐚𝐫𝐥𝐲 𝐁𝐢𝐫𝐝 𝐀𝐜𝐜𝐨𝐦𝐦𝐨𝐝𝐚𝐭𝐢𝐨𝐧 𝐃𝐢𝐬𝐜𝐨𝐮𝐧𝐭!!
The CFI Conference takes place on 𝗦𝗮𝘁𝘂𝗿𝗱𝗮𝘆 𝟳𝘁𝗵 𝗙𝗲𝗯𝗿𝘂𝗮𝗿𝘆 and is open for booking!
Book your accommodation before the 31st December to avail of the early bird discounted rate.
Visit www.cfireland.ie/support-reso... to start your reservation.
The CFI Conference takes place on 𝗦𝗮𝘁𝘂𝗿𝗱𝗮𝘆 𝟳𝘁𝗵 𝗙𝗲𝗯𝗿𝘂𝗮𝗿𝘆 and is open for booking!
Book your accommodation before the 31st December to avail of the early bird discounted rate.
Visit www.cfireland.ie/support-reso... to start your reservation.
Are you a:
👉person with CF aged 16 and over
👉family member of people with CF (16+)
👉healthcare professional working in CF
👉researcher in CF
The COS -CF survey is now live and asks the CF community to rate how important they think different outcomes are to include in every study of CF.
👉person with CF aged 16 and over
👉family member of people with CF (16+)
👉healthcare professional working in CF
👉researcher in CF
The COS -CF survey is now live and asks the CF community to rate how important they think different outcomes are to include in every study of CF.
November 19, 2025 at 10:00 AM
Are you a:
👉person with CF aged 16 and over
👉family member of people with CF (16+)
👉healthcare professional working in CF
👉researcher in CF
The COS -CF survey is now live and asks the CF community to rate how important they think different outcomes are to include in every study of CF.
👉person with CF aged 16 and over
👉family member of people with CF (16+)
👉healthcare professional working in CF
👉researcher in CF
The COS -CF survey is now live and asks the CF community to rate how important they think different outcomes are to include in every study of CF.
The Pregnancy Support and Advocacy Group are back tomorrow night (𝟭𝟴𝘁𝗵 𝗡𝗼𝘃) 𝗮𝘁 𝘁𝗵𝗲 𝗲𝗮𝗿𝗹𝗶𝗲𝗿 𝘁𝗶𝗺𝗲 𝗼𝗳 𝟳𝗽𝗺 and are delighted to welcome 𝗗𝗿 𝗦𝗵𝗮𝗿𝗼𝗻 𝗛𝗼𝘂𝗴𝗵𝘁𝗼𝗻, Senior Clinical Psychologist with the Adult CF team at UHL, to our call to discuss parenting with CF.
November 17, 2025 at 8:08 PM
The Pregnancy Support and Advocacy Group are back tomorrow night (𝟭𝟴𝘁𝗵 𝗡𝗼𝘃) 𝗮𝘁 𝘁𝗵𝗲 𝗲𝗮𝗿𝗹𝗶𝗲𝗿 𝘁𝗶𝗺𝗲 𝗼𝗳 𝟳𝗽𝗺 and are delighted to welcome 𝗗𝗿 𝗦𝗵𝗮𝗿𝗼𝗻 𝗛𝗼𝘂𝗴𝗵𝘁𝗼𝗻, Senior Clinical Psychologist with the Adult CF team at UHL, to our call to discuss parenting with CF.
Have you seen The Cost of Breathing yet?
Created by Trevor O'Donoghue, this exhibition highlights some of the challenges and hopes of living with #cysticfibrosis.
The exhibition will be taking to the road in 2026, but you can view it on online by clicking here:
www.cfireland.ie/support-reso...
Created by Trevor O'Donoghue, this exhibition highlights some of the challenges and hopes of living with #cysticfibrosis.
The exhibition will be taking to the road in 2026, but you can view it on online by clicking here:
www.cfireland.ie/support-reso...
November 16, 2025 at 12:01 PM
Have you seen The Cost of Breathing yet?
Created by Trevor O'Donoghue, this exhibition highlights some of the challenges and hopes of living with #cysticfibrosis.
The exhibition will be taking to the road in 2026, but you can view it on online by clicking here:
www.cfireland.ie/support-reso...
Created by Trevor O'Donoghue, this exhibition highlights some of the challenges and hopes of living with #cysticfibrosis.
The exhibition will be taking to the road in 2026, but you can view it on online by clicking here:
www.cfireland.ie/support-reso...
The CFI Conference is back on the 7th February 2026 at the Limerick Strand Hotel.
We are finalising the agenda and will be sharing details shortly. Book now to avail of discounted accommodation (early bird available until December 31st).
Visit www.cfireland.ie/support-reso... to book today!
We are finalising the agenda and will be sharing details shortly. Book now to avail of discounted accommodation (early bird available until December 31st).
Visit www.cfireland.ie/support-reso... to book today!
November 14, 2025 at 10:30 AM
The CFI Conference is back on the 7th February 2026 at the Limerick Strand Hotel.
We are finalising the agenda and will be sharing details shortly. Book now to avail of discounted accommodation (early bird available until December 31st).
Visit www.cfireland.ie/support-reso... to book today!
We are finalising the agenda and will be sharing details shortly. Book now to avail of discounted accommodation (early bird available until December 31st).
Visit www.cfireland.ie/support-reso... to book today!
What would you like to see in Spectrum in 2026!
We are currently planning content for the quarterly members magazine and want to know what YOU would like to read.
Let us know confidentially here: www.cfireland.ie/about-cf/lat...
We are currently planning content for the quarterly members magazine and want to know what YOU would like to read.
Let us know confidentially here: www.cfireland.ie/about-cf/lat...
November 11, 2025 at 7:09 PM
What would you like to see in Spectrum in 2026!
We are currently planning content for the quarterly members magazine and want to know what YOU would like to read.
Let us know confidentially here: www.cfireland.ie/about-cf/lat...
We are currently planning content for the quarterly members magazine and want to know what YOU would like to read.
Let us know confidentially here: www.cfireland.ie/about-cf/lat...
The CFI Community Conference is back on the 7th February and we can't wait to see you! With guest speakers, workshops, dinner and more, it is sure to be the highlight of your calendar! Reserve your spot and access the early bird accommodation discount www.cfireland.ie/about-cf/lat... today!
November 9, 2025 at 7:56 PM
The CFI Community Conference is back on the 7th February and we can't wait to see you! With guest speakers, workshops, dinner and more, it is sure to be the highlight of your calendar! Reserve your spot and access the early bird accommodation discount www.cfireland.ie/about-cf/lat... today!
The next Parent Connect online support groups take place on
👉 11th November at 11am and
👉 12th November at 7.30pm.
This is a free support group for parents of children with CF to meet, chat and ask questions in a safe space. To register, visit buff.ly/tgq9e4O
👉 11th November at 11am and
👉 12th November at 7.30pm.
This is a free support group for parents of children with CF to meet, chat and ask questions in a safe space. To register, visit buff.ly/tgq9e4O
November 7, 2025 at 6:06 PM
The next Parent Connect online support groups take place on
👉 11th November at 11am and
👉 12th November at 7.30pm.
This is a free support group for parents of children with CF to meet, chat and ask questions in a safe space. To register, visit buff.ly/tgq9e4O
👉 11th November at 11am and
👉 12th November at 7.30pm.
This is a free support group for parents of children with CF to meet, chat and ask questions in a safe space. To register, visit buff.ly/tgq9e4O
Reminder! The Exercise Grant is now available on a year round basis.
If you are a person with CF and would like information on the support available to offset the cost of exercise, get in touch today: www.cfireland.ie/support-reso...
If you are a person with CF and would like information on the support available to offset the cost of exercise, get in touch today: www.cfireland.ie/support-reso...
November 4, 2025 at 11:01 AM
Reminder! The Exercise Grant is now available on a year round basis.
If you are a person with CF and would like information on the support available to offset the cost of exercise, get in touch today: www.cfireland.ie/support-reso...
If you are a person with CF and would like information on the support available to offset the cost of exercise, get in touch today: www.cfireland.ie/support-reso...
Now Halloween is over, the countdown is on to the big 'C'!
That's right.. the CFI Conference is coming up on February 7th!
Make your booking today to secure your place and get the accommodation discount, only available until the end of the year!
buff.ly/QAoisib
That's right.. the CFI Conference is coming up on February 7th!
Make your booking today to secure your place and get the accommodation discount, only available until the end of the year!
buff.ly/QAoisib
November 1, 2025 at 12:02 PM
Now Halloween is over, the countdown is on to the big 'C'!
That's right.. the CFI Conference is coming up on February 7th!
Make your booking today to secure your place and get the accommodation discount, only available until the end of the year!
buff.ly/QAoisib
That's right.. the CFI Conference is coming up on February 7th!
Make your booking today to secure your place and get the accommodation discount, only available until the end of the year!
buff.ly/QAoisib
Have you taken a look at the online exhibition 'The Cost of Poverty' yet?
This powerful exhibition gives people a true insight into just some of the challenges of living with CF. You can visit the exhibition by visiting our website.
www.cfireland.ie/support-reso...
This powerful exhibition gives people a true insight into just some of the challenges of living with CF. You can visit the exhibition by visiting our website.
www.cfireland.ie/support-reso...
October 30, 2025 at 1:03 PM
Have you taken a look at the online exhibition 'The Cost of Poverty' yet?
This powerful exhibition gives people a true insight into just some of the challenges of living with CF. You can visit the exhibition by visiting our website.
www.cfireland.ie/support-reso...
This powerful exhibition gives people a true insight into just some of the challenges of living with CF. You can visit the exhibition by visiting our website.
www.cfireland.ie/support-reso...
This month, our Parent Connect and PSAG groups are back!
Parent Connect supports parents of children with CF and the PSAG supports women with CF who are on any stage of a fertility journey.
Visit our website for info on how to join these groups.
www.cfireland.ie/support-reso...
Parent Connect supports parents of children with CF and the PSAG supports women with CF who are on any stage of a fertility journey.
Visit our website for info on how to join these groups.
www.cfireland.ie/support-reso...
October 28, 2025 at 7:04 PM
This month, our Parent Connect and PSAG groups are back!
Parent Connect supports parents of children with CF and the PSAG supports women with CF who are on any stage of a fertility journey.
Visit our website for info on how to join these groups.
www.cfireland.ie/support-reso...
Parent Connect supports parents of children with CF and the PSAG supports women with CF who are on any stage of a fertility journey.
Visit our website for info on how to join these groups.
www.cfireland.ie/support-reso...
🧛♂️ It's mid term time again!
❓ Do you have a child with CF?
✔️ Are they attending a sport camp for the week?
❓ Do you have a child with CF?
✔️ Are they attending a sport camp for the week?
October 26, 2025 at 11:02 AM
🧛♂️ It's mid term time again!
❓ Do you have a child with CF?
✔️ Are they attending a sport camp for the week?
❓ Do you have a child with CF?
✔️ Are they attending a sport camp for the week?
Our next evening Parent Connect online support group takes place November 12th at 7.30pm.
This group is safe space for parents of children with CF to connect, ask questions and chat with others.
You find out more or register to join by visiting our website. www.cfireland.ie/support-reso...
This group is safe space for parents of children with CF to connect, ask questions and chat with others.
You find out more or register to join by visiting our website. www.cfireland.ie/support-reso...
October 24, 2025 at 10:45 AM
Our next evening Parent Connect online support group takes place November 12th at 7.30pm.
This group is safe space for parents of children with CF to connect, ask questions and chat with others.
You find out more or register to join by visiting our website. www.cfireland.ie/support-reso...
This group is safe space for parents of children with CF to connect, ask questions and chat with others.
You find out more or register to join by visiting our website. www.cfireland.ie/support-reso...
A massive thank you to Aly Walker who joined our last PSAG (Pregnancy, Support and Advocacy Group) last week. It was, as always, an insightful conversation - we learnt a lot!
The next PSAG takes place on 18th November 2025 @ 7pm and
The next PSAG takes place on 18th November 2025 @ 7pm and
October 22, 2025 at 6:03 PM
A massive thank you to Aly Walker who joined our last PSAG (Pregnancy, Support and Advocacy Group) last week. It was, as always, an insightful conversation - we learnt a lot!
The next PSAG takes place on 18th November 2025 @ 7pm and
The next PSAG takes place on 18th November 2025 @ 7pm and
Have you a CF experience to share?
Join our Ambassador call tonight at 7.30pm and find out how sharing your story can make a difference.
📍 Zoom
⏰ 7.30pm
📅 21st October
Register here to join: www.cfireland.ie/get-involved...
Join our Ambassador call tonight at 7.30pm and find out how sharing your story can make a difference.
📍 Zoom
⏰ 7.30pm
📅 21st October
Register here to join: www.cfireland.ie/get-involved...
October 21, 2025 at 10:01 AM
Have you a CF experience to share?
Join our Ambassador call tonight at 7.30pm and find out how sharing your story can make a difference.
📍 Zoom
⏰ 7.30pm
📅 21st October
Register here to join: www.cfireland.ie/get-involved...
Join our Ambassador call tonight at 7.30pm and find out how sharing your story can make a difference.
📍 Zoom
⏰ 7.30pm
📅 21st October
Register here to join: www.cfireland.ie/get-involved...
Thank you to everyone who joined the online launch of The Cost of Breathing photographic exhibition yesterday. If you missed it, the virtual gallery is now open for viewing here : www.cfireland.ie/support-reso...
October 18, 2025 at 9:16 AM
Thank you to everyone who joined the online launch of The Cost of Breathing photographic exhibition yesterday. If you missed it, the virtual gallery is now open for viewing here : www.cfireland.ie/support-reso...
Delighted to be taking part in the UN International Day for the Eradication of Poverty today #17October.
Join us this lunchtime 1pm for the launch of The Cost of Breathing, a powerful photographic exhibition by Trevor O'Donoghue.
Visit www.cfireland.ie/about-cf/lat... to join.
Join us this lunchtime 1pm for the launch of The Cost of Breathing, a powerful photographic exhibition by Trevor O'Donoghue.
Visit www.cfireland.ie/about-cf/lat... to join.
October 17, 2025 at 10:03 AM
Delighted to be taking part in the UN International Day for the Eradication of Poverty today #17October.
Join us this lunchtime 1pm for the launch of The Cost of Breathing, a powerful photographic exhibition by Trevor O'Donoghue.
Visit www.cfireland.ie/about-cf/lat... to join.
Join us this lunchtime 1pm for the launch of The Cost of Breathing, a powerful photographic exhibition by Trevor O'Donoghue.
Visit www.cfireland.ie/about-cf/lat... to join.
'The Cost of Breathing' is a series of symbolic self-portraits which confront the emotional reality of poverty & Cystic Fibrosis. To mark the UN International Day for the Eradication of Poverty, we invite you to join us and Trevor O'Donoghue Photography to launch this exhibition.
October 17, 2025 at 8:30 AM
'The Cost of Breathing' is a series of symbolic self-portraits which confront the emotional reality of poverty & Cystic Fibrosis. To mark the UN International Day for the Eradication of Poverty, we invite you to join us and Trevor O'Donoghue Photography to launch this exhibition.
Preparation for the CFI Community Conference is in full swing & we would love you to join!
📆7th February 2025
📍The Strand Hotel Limerick
❓Workshops, dinner, dancing, awards & more!
Don't miss your chance to get early bird rates on accommodation - registration open!
www.cfireland.ie/support-reso...
📆7th February 2025
📍The Strand Hotel Limerick
❓Workshops, dinner, dancing, awards & more!
Don't miss your chance to get early bird rates on accommodation - registration open!
www.cfireland.ie/support-reso...
October 16, 2025 at 4:03 PM
Preparation for the CFI Community Conference is in full swing & we would love you to join!
📆7th February 2025
📍The Strand Hotel Limerick
❓Workshops, dinner, dancing, awards & more!
Don't miss your chance to get early bird rates on accommodation - registration open!
www.cfireland.ie/support-reso...
📆7th February 2025
📍The Strand Hotel Limerick
❓Workshops, dinner, dancing, awards & more!
Don't miss your chance to get early bird rates on accommodation - registration open!
www.cfireland.ie/support-reso...
We are planning editorial content for 2026 and who better to ask what to include but our members and readers! If you get Spectrum straight to your inbox, hopefully you've had a flick through. But you can still check it out on our website and let us know what you think here: buff.ly/cbggn4o
October 16, 2025 at 10:40 AM
We are planning editorial content for 2026 and who better to ask what to include but our members and readers! If you get Spectrum straight to your inbox, hopefully you've had a flick through. But you can still check it out on our website and let us know what you think here: buff.ly/cbggn4o
We are planning editorial content for 2026 and who better to ask what to include but our members and readers! If you get Spectrum straight to your inbox, hopefully you've had a flick through. But you can still check it out on our website and let us know what you think here: buff.ly/cbggn4o
October 13, 2025 at 6:03 PM
We are planning editorial content for 2026 and who better to ask what to include but our members and readers! If you get Spectrum straight to your inbox, hopefully you've had a flick through. But you can still check it out on our website and let us know what you think here: buff.ly/cbggn4o
Registration is now open for the CFI Community Conference 2026!
Book before Christmas to secure your seat and available of the early bird accommodation discount!
Visit www.cfireland.ie to reserve your spot.
Book before Christmas to secure your seat and available of the early bird accommodation discount!
Visit www.cfireland.ie to reserve your spot.
October 12, 2025 at 4:31 PM
Registration is now open for the CFI Community Conference 2026!
Book before Christmas to secure your seat and available of the early bird accommodation discount!
Visit www.cfireland.ie to reserve your spot.
Book before Christmas to secure your seat and available of the early bird accommodation discount!
Visit www.cfireland.ie to reserve your spot.
Check out this month's Spectrum when Harry Cahill, a 17 year old from Kildare, who is aiming high and giving athletics everything he has got, and the results he has achieved.
Visit www.cfireland.ie//support-res... to read Harry's story and to sign up for your copy!
Visit www.cfireland.ie//support-res... to read Harry's story and to sign up for your copy!
October 11, 2025 at 6:01 PM
Check out this month's Spectrum when Harry Cahill, a 17 year old from Kildare, who is aiming high and giving athletics everything he has got, and the results he has achieved.
Visit www.cfireland.ie//support-res... to read Harry's story and to sign up for your copy!
Visit www.cfireland.ie//support-res... to read Harry's story and to sign up for your copy!
Don't forget we have two amazing support groups for members to join coming up!
For more info, visit www.cfireland.ie/support-reso...
For more info, visit www.cfireland.ie/support-reso...
October 11, 2025 at 9:01 AM
Don't forget we have two amazing support groups for members to join coming up!
For more info, visit www.cfireland.ie/support-reso...
For more info, visit www.cfireland.ie/support-reso...