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Carrie - MySeveralWorlds - Artist, Author, Advocate

@carriekellenberger.bsky.social

390 followers 240 following 1.2K posts

✒️ I write about life with severe #ChronicPain related to #SpA #PsA #MEcfs #fibromyalgia #APS 🦋 MySeveralWorlds.com 👩‍🦼 #DisabilityAdvocate 🤝 Team Fibro & Spondylitis 🎨 DISABLED ARTIST 🌴 https://linktr.ee/myseveralworlds

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Carrie - MySeveralWorlds - Artist, Author, Advocate @carriekellenberger.bsky.social · Nov 16

👩‍🦼 Hey all! Welcome to #MySeveralWorlds. I'm grateful you're here. I'm a 🇨🇦author, artist, & #DisabilityAdvocate in 🇹🇼. I've been chronically ill & disabled since '09. Let me introduce myself. First, I love meeting new people! You make MSW a better place to be.
#AxSpA #PsA #Fibromyalgia #ChronicPain

I'm Carrie Kellenberger and I'm the author of MySeveralWorlds.com. I'm fiercely fighting inflammatory arthritis: AxSpA (Ankylosing Spondylitis) and Psoriatic Arthritis. Plus osteoarthritis. I have long brown hair and grey eyes. I'm wearing a blue shirt that matches my Blue Suede Shoes NeoWalk cane. My Several Worlds emblem is a raspberry and blue hummingbird in flight.

Carrie is seated in her Karma manual wheelchair. She uses a power wheelchair now. She's wearing a white shirt and a colorful shirt. The text on the image says, "Chronic pain is devastating. It affects every single aspect of your life, and the only thing we can do is continue... Pick yourself up everyday and keep going. You reach a point many times when you don't know how to keep going, but you do. Never give up on hope!"

Carrie Kellenberger,
MySeveralWorlds.com

In one photo Carrie is seated in her power wheelchair. In the second photo she is holding up her newly published "A Coloring Adventure for Spoonies" coloring book. This image is a welcome image that explains Carrie's life as the blogger behind MySeveralWorlds.com and as achronically ill and disabled author and artist.

The text on the image says, "I'm Carrie Kellenberger a chronically ill and disabled Canadian author and artist who has called Taiwan home for the past two decades.

MySeveralWorlds.com was established in 2007. It serves to connect, educate, and inspire chronically ill and disabled people around the world, while also providing up-to-date information for patients.

As a multi-talented artist and advocate who has worked in everything from jewelry design to paper cutting and collage work, my art studio has something to offer everyone and my website strives to answer questions about life with chronic illness and disability.

I'm an award winning health blogger on the topics I write about. MSW officially launched in 2007 as a travel and culture website focused on life in Asia. It held onto its top 50 travel blogs in the world spot for many years before I had to give up traveling due to chronic illness and disability. Most people would've given up, but not me. This is MY SEVERAL WORLDS and I turned it into a website that focuses on immigrant life in Asia, a patient network that assists, educates, and inspires patients around the world, and it offers a niche topic in providing insight into navigating foreign healthcare systems. My advocacy work has been recognized worldwide over the past 10+ years. In this photo, I'm holding a Lifetime Achievement Award for serving the fibromyalgia community for more than a decade.

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Carrie - MySeveralWorlds - Artist, Author, Advocate @carriekellenberger.bsky.social · 18h

"Older person: wait until you're old and have to take medication. LOL.

Me: [looking at endless bottles of pills]"

Credit: @patientsupremacy

#ChronicIllnessMeme #ChronicIllnessHumor

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Reposted by Carrie - MySeveralWorlds - Artist, Author, Advocate

womensartbluesky.bsky.social @womensartbluesky.bsky.social · 2d

'Honeysuckle’ design, 1883 by May Morris, influential textile artist and designer of the Arts and Crafts movement #WomensArt

Painted design with a mass of green leaves and twisting vines as well as pink and white blossoms, all on a white background

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Reposted by Carrie - MySeveralWorlds - Artist, Author, Advocate

A Chronic Voice @achronicvoice.com · 1d

"The world sees my #accomplishments but not the #meltdown that came after. It hears my voice on stage but not the spiral that came before. And when I collapse under the weight of it all, I’m asked, “What happened? You were doing so well.”": buff.ly/tKldLBV

via @psychologytoday.com
#InvisibleIllness

The Paradox of Invisible Disabilities

“You don’t look disabled.” In this post, I expose the painful truth behind that phrase and the double bind of living with an invisible disability.

buff.ly

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Reposted by Carrie - MySeveralWorlds - Artist, Author, Advocate

Brainless Blogger @brainlessblogger.bsky.social · 1d

Feeling your feels with #chronicpain Read More: bit.ly/4h9ZwU3

Feeling your feels with chronic pain

It isn’t a bad thing I have been thinking about the CBT I took for my depression back in the day but how it isn’t that effective for chronic pain. How thinking positive is a thing that always…

bit.ly

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Carrie - MySeveralWorlds - Artist, Author, Advocate @carriekellenberger.bsky.social · 1d

TYPO. "Those with chronic illness are like chameleons..."

Don't we all wish we had millions! 😂

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Carrie - MySeveralWorlds - Artist, Author, Advocate @carriekellenberger.bsky.social · 1d

"Those with #ChronicIllness are like millions. Chameleons change colors to blend in with their environment, where is the chronically ill hide their pain to make others comfortable, blending in with their surroundings."

Credit @MISTIBLUDAY
#ChronicIllnessAwareness #MySeveralWorlds

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Carrie - MySeveralWorlds - Artist, Author, Advocate @carriekellenberger.bsky.social · 2d

Very sorry to hear that too. I've had two retire on me and it's so hard moving on to someone new.

Reposted by Carrie - MySeveralWorlds - Artist, Author, Advocate

womensartbluesky.bsky.social @womensartbluesky.bsky.social · 2d

Michelle Kingdom, fine artist based in California, specializing in embroidery #WomensArt

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Carrie - MySeveralWorlds - Artist, Author, Advocate @carriekellenberger.bsky.social · 2d

My #AxSpA Story for @spondylitis

When I was diagnosed w. #AnkylosingSpondylitis in 2009, we didn’t know the #DelayToDiagnosis meant I had damage that couldn't be fixed. Learn how robotic exoskeletons help patients like me. #disability
🔗
spondylitis.org/patient-stor...

#WorldArthritisDay

Carrie Kellenberger - Spondylitis Association of America - Ankylosing Spondylitis

I never expected to lose my mobility, but that is what happened in July of 2014 when my body gave out on me and I could no longer move the way I used to. Year by year, I lost my energy to move and soo...

spondylitis.org

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Carrie - MySeveralWorlds - Artist, Author, Advocate @carriekellenberger.bsky.social · 2d

"#AxSpA and #PsA are more crippling for me and have caused more damage to my bones, soft tissues and organs, but #fibromyalgia and #MECFS whip my autoimmune brew up into a horrible frenzy. Every day we pain warriors make a choice to keep on going."
~Carrie, #MySeveralWorlds

#WorldArthritisDay

"AxSpA and PsA are more crippling for me and have caused more damage to my bones, soft tissues and organs, but fibromyalgia and ME whip my autoimmune brew up into a horrible frenzy.

Every day we pain warriors make a choice to keep on going."
~Carrie, #MySeveralWorlds

#WorldArthritisDay #WorldArthritisDay2025 #ArthritisAwareness #DisabilityAwareness

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Carrie - MySeveralWorlds - Artist, Author, Advocate @carriekellenberger.bsky.social · 3d

For #WorldArthritisDay here's an #AxialSpondyloarthritis aka #AnylosingSpondylitis symptom checker. #AxSpA is a complex disease. Its severity & progression varies greatly among individuals. If you have these symptoms, mention them to your medical provider. #FiercelyFightingArthritis

AxSpA Symptom Checker

It's up to patients to be informed. If you have back pain consider the following points and bring it up with your PCP.

It's possible your PCP might not be thinking of #AxialSpondyloarthritis (Ankylosing Spondylitis) which is why you should know the signs and symptoms of AxSpA.

#AxSpA is a complex disease. Its severity and progression can vary greatly among individuals.

✔️ Back pain that starts before the age of 45
✔️ Back pain that lasts more than 3 months
✔️ Pain that gets worse with rest
✔️ Pain in your hips and buttocks
✔️ Pain that wakes you up at night
✔️ Stiffness that lasts for more than 30 minutes in the morning

If you're noticing these signs and symptoms, bring them up with your primary care doctor and ASk about axSpA!

This list is not exhaustive. Always discuss your symptoms with your medical provider.

#FiercelyFightingArthritis #MySeveralWorlds #AnkylosingSpondylitis

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Carrie - MySeveralWorlds - Artist, Author, Advocate @carriekellenberger.bsky.social · 3d

For #WorldArthritisDay
#AnkylosingSpondylitis

*Occipital Neuralgia
*Migraine
*TMJ
*Uveitis
*POTS
*Costochondritis
*Severe spine pain & axial stiffness
*Debilitating Fatigue
*IBS & IBD
*Joint pain
*Heat Intolerance
*Enthesitis
& More
Credit: likeabirdinflight
#AxSpA #MySeveralWorlds

For #WorldArthritisDay

ANKYLOSING SPONDYLITIS

*Occipital Neuralgia
*Debilitating Migraines
*Jaw pain/TMJ Syndrome *Cervical Radiculopathy
*Uveitis & vision issues *Trigeminal Neuralgia *Cervicogenic headaches
*POTS
*Costochondritis (chest & rib pain)
*Lung & breathing issues
*Levator Scapulae Syndrome
*Severe spine pain
*Fever & cold sweats
*Severe axial stiffness, limited mobility & dexterity
*Debilitating Fatigue
*IBS & IBD
*Food intolerances
*Wrist & finger joint pain *Peripheral joint pain
*Vertigo & Nausea
*Sexual Dysfunction
*Pelvic floor dysfunction
*Cystitis, Urinary Retention & Incontinence
*Periformis Syndrome
*Elbow & Shoulder pain
*Muscle Weakness
*SI joint pain
*hip pain
*Bursitis
*Sciatica
*Pelvic pain
*Heat Intolerance
*Knee & ankle pain
*Muscle Spasms & tightness *Nerve bites & itching
*Enthesitis (tendon inflammation)
*Erythromelalgia
*Calf & foot cramps
*Foot & toe joint pain
*Peripheral Neuropathy
*Balance issues
*Plantar fascitis
*burning and cold feet

Credit: likea birdinflight

#AxSpA #MySeveralWorlds #Spondylitis

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Carrie - MySeveralWorlds - Artist, Author, Advocate @carriekellenberger.bsky.social · 4d

I wish people recognized chronic pain as a disease in addition to being a severe mental health crisis. Mental health is directly related to pain. It is an unrecognized symptom of pain.

#MentalHealthAwarenessDay #WorldMentalHealthDay2025
#MentalHealthMatters #MySeveralWorlds

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Carrie - MySeveralWorlds - Artist, Author, Advocate @carriekellenberger.bsky.social · 4d

"I presumed I was fine since I did not experience pain, & continued to eat, drink & play sports as usual until I developed multiple #DVTs & #PulmonaryEmbolism that nearly cost me my life. It also activated #AutoimmuneDisease."
🔗
www.achronicvoice.com/antiphosphol...
#StopTheClot @achronicvoice.com

Antiphospholipid Syndrome Diagnosis: The A to Z Guide as a Patient - A Chronic Voice

The ultimate Antiphospholipid Syndrome diagnosis resource guide from A to Z. Written by an APS patient with over 20 years of lived experiences.

www.achronicvoice.com

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Carrie - MySeveralWorlds - Artist, Author, Advocate @carriekellenberger.bsky.social · 4d

I'm so sorry you went through that. It's upsetting to read your dx happened over the phone and you haven't seen a new neurologist yet. My heart goes out to you.

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Carrie - MySeveralWorlds - Artist, Author, Advocate @carriekellenberger.bsky.social · 4d

"These mountains that
you are carrying, you were only supposed to climb."
-Najwa Zebian

Credit: @selfloverainbow

#MentalHealthSupport #SelfLove #MentalHealthMatters #WorldMentalHealthDay

Carrie - MySeveralWorlds - Artist, Author, Advocate @carriekellenberger.bsky.social · 5d

Many thanks to Melissa at @teamfibro (Fibromyalgia National Health Organization) for featuring my journey with #fibromyalgia.
🔗
supportfibromyalgia.org/fibromyalgia...

❓What is the most important piece of advice you would give to someone newly diagnosed with #Fibromyalgia?

Fibromyalgia Warrior Journey | MySeveralWorlds.com

Inspiring Fibromyalgia Warrior Carrie. She shares her journey living in Taiwan with Ankylosing Spondylitis, Fibromyalgia, and ME/CFS.

supportfibromyalgia.org

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Carrie - MySeveralWorlds - Artist, Author, Advocate @carriekellenberger.bsky.social · 5d

Mental illness can look different day to day

Credit @crazyheadcomics

Monday
Tuesday
Wednesday
Thursday
Friday
Saturday
Sunday

#WorldMentalHealthDay #MentalHealthMatters
#MentalHealthAwareness

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Carrie - MySeveralWorlds - Artist, Author, Advocate @carriekellenberger.bsky.social · 6d

Things to Do On Bed Rest: Education #Advocacy & Volunteering via @achronicvoice.bsky.social

"Even if you aren’t a blogger, you can help. Reading & resharing blog posts from other #ChronicIllness & #disabled bloggers helps raise awareness."
🔗
buff.ly/3OGUdPd

#StrongerTogether #BloggingCommunity

buff.ly

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Carrie - MySeveralWorlds - Artist, Author, Advocate @carriekellenberger.bsky.social · 6d

So true!

Carrie - MySeveralWorlds - Artist, Author, Advocate @carriekellenberger.bsky.social · 6d

It's called #MedicalGaslighting! It has happened to me all my life aside from a doctor listening in 2009 and 2014 and getting me into remission. He retired, I met more doctors who didn't believe women get AS, my disease was left untreated, and it crippled me. This is why I advocate!
#MedicalPTSD

It's called #MedicalGaslighting! It has happened to me all my life (including my childhood and teens) aside from a doctor listening in 2009 and 2014 and getting me into remission. He retired, I met more doctors who didn't believe women get AS, my disease was left untreated, and it crippled me. Thankfully I met a new doctor in 2022 who has changed my life and done everything in his power to help me.

The saddest parts of all of this are
1) I knew something was really wrong and was ridiculed for it constantly. It turns out I was right all along.
2) I lost my mobility and health and it could've been prevented. I'd still be sick but maybe not so sick.

This is why I advocate so strongly and help others learn how to talk to their doctors and push for answers.

Credit: _philayana
"You ever know that there's something wrong with your health and you keep going back to the doctor with the same issues just to be repeatedly dismissed and then, months or years later, you see a doctor who actually listens and it turns out you were right and now you're stuck wondering why it had to get this bad before someone listened, why it took so long to get answers and how your health could be if you were taken seriously originally."

#Gasloghting #MedicalPTSD

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Carrie - MySeveralWorlds - Artist, Author, Advocate @carriekellenberger.bsky.social · 7d

Steampunk Magic - I love this lady! I'm a disabled artist who creates from bed. Enjoy the magic as we move into October. payhip.com/b/uA1ik

#CollageArtist #TaiwanArtist #Papercrafts #Handicrafts #MySeveralWorlds #CarrieKellenberger #artist #handmade #Design #Steampunk #Papercutting

2025 Steampunk Magic - Art by Carrie Kellenberger

Steampunk Magic I 3D Handmade paper collage art | Unique and modern paper cuttingINTERNATIONAL SHIPPING AVAILABLEApproximately $8-10US11-18 day delivery timeItem detailsHandmadeMaterials: paper, glueW...

payhip.com

Carrie - MySeveralWorlds - Artist, Author, Advocate @carriekellenberger.bsky.social · 7d

"My doctor trying to manage my chronic illness"

Credit: I luv my heating pad

[Image of a hole in a brick wall stuffed with random bricks.]

#ChronicMemes #ChronicIllness #ChronicallyIconic #MySeveralWorlds

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Carrie - MySeveralWorlds - Artist, Author, Advocate @carriekellenberger.bsky.social · 8d

Moonlit Dreams just sold at the perfect time for Moon Festival. She's heading to her new home in Taipei. Did you know that each collage package include a postcard, a bookmark & stickers?

Visit my studio: payhip.com/b/wVvu8

#CollageArtist #Papercrafts #MySeveralWorlds #CollageArt #DisabledArtist

2025 Moonlit Dreams - Art by Carrie Kellenberger

Moonlit Dreams I 3D Handmade paper collage art | Unique and modern paper cuttingINTERNATIONAL SHIPPING AVAILABLEApproximately $8-10CDN depending on location11-18 day delivery timeI can ship to fans in...

payhip.com

Carrie - MySeveralWorlds - Artist, Author, Advocate @carriekellenberger.bsky.social · 8d

"Feet, what do I need you for when I have wings to fly?"
~FRIDA KAHLO

Image by My Several Worlds
Photo of Frida Kahlo Unknown

#DisabledArtists #ArtTherapy #MySeveralWorlds #WomensArt #FridaKahlo #CreateArtEveryday #PainWarrior #ArtInspiration #CreativeSoul

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