Lightnews — Scholar-powered news

Brain Tumour Research @braintumourrsch.bsky.social · 10h

What is vorasidenib?

Watch as Dr Karen Noble, our Director of Research, Policy and Innovation explains...

Read more: https://bit.ly/3KKSMjE

#BrainTumourResearch #BrainTumourAwareness #TogetherWeWillFindACure

Brain Tumour Research @braintumourrsch.bsky.social · 1d

NICE has released its initial guidance on the drug vorasidenib, used to treat low-grade glioma. Despite clinical trials showing that the drug can delay the need for radiotherapy & chemotherapy, NICE has said it should not be routinely used on the NHS in England at this stage. https://bit.ly/3KOu8P6

Brain Tumour Research @braintumourrsch.bsky.social · 9d

Some of our amazing supporters visited our Centre of Excellence at the @PlymUni, meeting the scientists and discovering first-hand how their efforts are driving change 🧪
They also placed tiles on the Wall of Hope signifying days sponsored to honour loved ones. https://bit.ly/42svDZh

1

Brain Tumour Research @braintumourrsch.bsky.social · 10d

A pioneering new gene therapy treatment for glioblastoma is set to begin clinical trials in early 2026. The work is led by company Trogenix, co-founded by Professor Steve Pollard - Director of our Scottish Centre of Excellence.

Read more: https://bit.ly/4pNOesC

1 3

Brain Tumour Research @braintumourrsch.bsky.social · 11d

This week was full of milestones! 💛

💡 Our annual Researcher Workshop brought 100+ experts together in York.
🏛️ At the Labour Party Conference, we made our case for better patient outcomes.
🎉 We celebrated Hugh Adams’ 15 years with Brain Tumour Research.

Read more here: https://bit.ly/4mIXOKz

1

Brain Tumour Research @braintumourrsch.bsky.social · 13d

At our 2025 Researcher Workshop more than 100 scientists, clinicians & advocates came together to share breakthroughs, debate new treatments & even take part in a Walk of Hope around York.
The event showcased the strength & commitment of the Brain Tumour Research community. 💛 https://bit.ly/46HV4Zr

2

Reposted by Brain Tumour Research

Tessa Jowell Brain Cancer Mission @tessajowellbcm.bsky.social · 14d

💡 Are you an oncology professional who regularly takes part in peer review for brain tumour radiotherapy?

We are inviting colleagues across neuro-oncology to complete a short survey on radiotherapy peer review practices in the UK.

🔗 Survey link: bit.ly/46LChem
⏳ Deadline: 14 November 2025

Microsoft Forms

bit.ly

1 1 1

Reposted by Brain Tumour Research

Mark Jackson @radbioinformatics.bsky.social · 17d

Proud to take part in the @braintumourrsch.bsky.social #WalkOfHope in beautiful York 💪🌞

1 1

Brain Tumour Research @braintumourrsch.bsky.social · 17d

Researcher Workshop 2025 💛

This week we’re proud to be bringing together more than 100 researchers from our Centres of Excellence and Funded Initiatives. One in three people in the UK knows someone affected by a brain tumour. Every discovery brings us closer to changing that. https://bit.ly/42SCMSA

1 1

Brain Tumour Research @braintumourrsch.bsky.social · 17d

Wishing a Happy birthday to our Patron Alfie Boe, hope you have the best day!

Brain Tumour Research @braintumourrsch.bsky.social · 19d

Thousands have stepped out in solidarity, honouring loved ones and raising funds for vital research. The photos and stories coming in from across the UK have been nothing short of inspiring. If you couldn't make it today and would like to donate you still can here: https://bit.ly/4ntUUKY #WalkofHope

Brain Tumour Research @braintumourrsch.bsky.social · 19d

From London to Luton, New Forest to Torpoint, our walkers are showing their
support for loved ones.

Thank you for the smiles, the spirit and the determination!

💛 Show your support by cheering on our supporters and donating today ➡️ https://bit.ly/4ntUUKY

#WalkOfHope

Brain Tumour Research @braintumourrsch.bsky.social · 20d

Tomorrow is the big day, Walk of Hope 2025!

Whether you’re joining one of our flagship events or walking your own route, we can’t wait to see you step out in support of those affected by brain tumours.

We’ll be walking side by side with you tomorrow, let’s fill timelines with hope.

#WalkOfHope

Brain Tumour Research @braintumourrsch.bsky.social · 20d

We’re excited to share that our amazing Ambassador, Olympian Sam Reardon will be joining us at this year’s London #WalkOfHope!

Not registered yet? You can still take part on the day, join us at Brockwell Park from 10 am this Saturday. It’s time to step forward and truly make a difference. 💛

1

Brain Tumour Research @braintumourrsch.bsky.social · 20d

This week we called for improved outcomes for Welsh brain tumour patients at the Senedd 💛

Joined by Dr Ben Newland and our Cardiff University research team, we showcased game-changing work and urged MSs to prioritise investment in research and access to clinical trials.

Read more: bit.ly/46kV7do

Calling for improved outcomes for Welsh brain tumour patients at the S

Brain Tumour Research attended an event showcasing game-changing medical research in Wales. Read what this means for Welsh brain tumour patients.

bit.ly

1

Brain Tumour Research @braintumourrsch.bsky.social · 21d

We look forward to seeing you on Saturday 27th September at the stunning Mount Edgcumbe Country Park, at Walk of Hope!

By walking alongside hundreds of supporters, you’ll be honouring loved ones, celebrating strength, and helping to raise vital funds towards a cure for brain tumours. 💛

1

Brain Tumour Research @braintumourrsch.bsky.social · 21d

Our Member Charities workshop quickly turned into a celebration of collaboration, progress and hope for everyone affected by brain tumours.

We’re so proud to work alongside such passionate organisations. 💛

bit.ly/4nkF1Gy

An inspiring workshop with our Member Charities

Brain Tumour Research's workshop for its Member Charities was a celebration of how we can all collaborate towards improving outcomes for brain tumour patients.

braintumourresearch.org

Brain Tumour Research @braintumourrsch.bsky.social · 22d

Jess's Rule, urges GPs to “think again” when patients attend three appointments with the same symptoms and aren’t getting better.

For many brain tumour patients, this will feel all too familiar. Research shows:
⚠️ 4 in 10 visit their GP more than 5 times before referral

bbc.in/46CiAWe

Jess's Rule: GPs to re-check some patients for deadly 'misses'

Jess's Rule urges doctors to 'think again' if they cannot diagnose a patient's illness after three appointments.

www.bbc.co.uk

2

Brain Tumour Research @braintumourrsch.bsky.social · 23d

Every year in the UK, around 40 children are diagnosed with diffuse midline glioma (DMG).

This Childhood Cancer Awareness Month, we’re standing with every family impacted, and pushing for the research breakthroughs that children urgently need. 💛

Reposted by Brain Tumour Research

Greg Hughes @deepexperience1.bsky.social · 25d

We’ve almost hit our family fundraising target of £2000 to support @braintumourrsch.bsky.social at next week’s Walk of Hope.

If anyone has a few £ to donate, please support this vital charity and help us teach our target. Thank you to everyone that has already

www.justgiving.com/team/evannes...

Evanne’s family

Help Greg Hughes raise money to support Brain Tumour Research

www.justgiving.com

1 3

Brain Tumour Research @braintumourrsch.bsky.social · 24d

We’re saddened to hear of the passing of Keith McIvor (JD Twitch), one half of Glasgow’s Optimo duo, following an untreatable brain tumour diagnosis earlier this year. Our thoughts are with his loved ones and the music community who all cherished him. 💛

www.bbc.co.uk/news/article...

Optimo DJ JD Twitch dies after being diagnosed with brain tumour

Keith McIvor was one half of the duo who ran Optimo Espacio at Glasgow's Sub Club between between 1997 and 2010.

www.bbc.co.uk

3

Brain Tumour Research @braintumourrsch.bsky.social · 27d

The British Neuro-Oncology Society (BNOS) Patient & Carer Event. Monday 6th October 2025.

Discover the latest on inclusive trials, innovative treatments, AI in care and smarter tumour analysis. Huge thanks to @brainstrust.bsky.social

👉 bit.ly/3VqalYm

BNOS 2025 Patient and Carer Edition

A selection of topics from the BNOS 2025 Conference which are of interest to anyone affected by brain tumours.

www.eventbrite.co.uk

1 2

Brain Tumour Research @braintumourrsch.bsky.social · 28d

The MHRA has approved Vorasidenib for certain low-grade gliomas (grade 2 astrocytoma or oligodendroglioma with an IDH1/2 mutation). NICE must now consider whether it will be made available on the NHS.

bit.ly/4grZpmu

MHRA licenses low-grade glioma drug

The Medicines and Healthcare products Regulatory Agency (MHRA) has approved licensing for Vorasidenib. Learn what this means for brain tumour patients here.

bit.ly

2

Brain Tumour Research @braintumourrsch.bsky.social · Sep 11

Pharmaceutical giant Merck (MSD in Europe) has scrapped its planned £1bn UK expansion, moving research operations to the US and cutting UK jobs.

A setback for UK life sciences highlights why our mission matters more than ever.

bit.ly/3VKiqag

#BrainTumourResearch #TogetherWeWillFindACure

Pharma giant halts UK expansion

Pharmaceutical giant Merck is scrapping a planned £1bn expansion of its UK operations. Read what this means for brain tumour patients here.

bit.ly

Brain Tumour Research @braintumourrsch.bsky.social · Sep 10

Brain tumours kill more children than leukaemia.

Yet research into this devastating disease remains woefully underfunded. Every child deserves the chance of a future and with more investment in research, we can make that a reality. 💛

https://bit.ly/46aLMEK

#ChildhoodCancerAwarenessMonth

2 3