National Brain Tumor Society
@braintumor.org
National Brain Tumor Society (NBTS) unrelentingly invests in, mobilizes, and unites the brain tumor community to discover a cure, deliver effective treatments, and advocate for patients and caregivers.
Pinned
Theo was diagnosed with medulloblastoma at the age of 1; since he was 6, Theo & his family have attended Head to the Hill, advocating for research funding & connecting with #braintumor advocates from across the country.
Join them in making a difference: Braintumor.org/Impact
Join them in making a difference: Braintumor.org/Impact
Many with #BenignBrainTumors have been told “You’re lucky it’s not cancer.”
But benign doesn’t mean harmless — noncancerous tumors can have serious, lasting effects.
Learn more: https://braintumor.org/news/benign-is-not-fine-common-misconceptions-about-noncancerous-brain-tumors/
But benign doesn’t mean harmless — noncancerous tumors can have serious, lasting effects.
Learn more: https://braintumor.org/news/benign-is-not-fine-common-misconceptions-about-noncancerous-brain-tumors/
January 23, 2026 at 9:12 PM
Many with #BenignBrainTumors have been told “You’re lucky it’s not cancer.”
But benign doesn’t mean harmless — noncancerous tumors can have serious, lasting effects.
Learn more: https://braintumor.org/news/benign-is-not-fine-common-misconceptions-about-noncancerous-brain-tumors/
But benign doesn’t mean harmless — noncancerous tumors can have serious, lasting effects.
Learn more: https://braintumor.org/news/benign-is-not-fine-common-misconceptions-about-noncancerous-brain-tumors/
Registration is now open for Head to the Hill!
Join NBTS on Capitol Hill in D.C. from May 3-5, 2026, to share your story & advocate for the #braintumor community.
Register for Head to the Hill today: BrainTumor.org/HeadtotheHill
#Head2Hill
Join NBTS on Capitol Hill in D.C. from May 3-5, 2026, to share your story & advocate for the #braintumor community.
Register for Head to the Hill today: BrainTumor.org/HeadtotheHill
#Head2Hill
January 22, 2026 at 9:55 PM
Registration is now open for Head to the Hill!
Join NBTS on Capitol Hill in D.C. from May 3-5, 2026, to share your story & advocate for the #braintumor community.
Register for Head to the Hill today: BrainTumor.org/HeadtotheHill
#Head2Hill
Join NBTS on Capitol Hill in D.C. from May 3-5, 2026, to share your story & advocate for the #braintumor community.
Register for Head to the Hill today: BrainTumor.org/HeadtotheHill
#Head2Hill
NBTS is honored to exhibit at the 13th Neuro-Oncology Brain Tumor Symposium on Friday, January 30.
The symposium can be attended in person or virtually — register today at: med.upenn.edu/brain2026/
The symposium can be attended in person or virtually — register today at: med.upenn.edu/brain2026/
January 22, 2026 at 8:13 PM
NBTS is honored to exhibit at the 13th Neuro-Oncology Brain Tumor Symposium on Friday, January 30.
The symposium can be attended in person or virtually — register today at: med.upenn.edu/brain2026/
The symposium can be attended in person or virtually — register today at: med.upenn.edu/brain2026/
🏀⛳⚽ Turn your favorite sport into a way to support NBTS!
From golf tournaments to soccer games, sports fundraisers unite communities while raising funds for #braintumor research.
Learn more:
https://braintumor.org/news/how-to-fundraise-through-sports-for-the-brain-tumor-community/
From golf tournaments to soccer games, sports fundraisers unite communities while raising funds for #braintumor research.
Learn more:
https://braintumor.org/news/how-to-fundraise-through-sports-for-the-brain-tumor-community/
January 20, 2026 at 6:07 PM
🏀⛳⚽ Turn your favorite sport into a way to support NBTS!
From golf tournaments to soccer games, sports fundraisers unite communities while raising funds for #braintumor research.
Learn more:
https://braintumor.org/news/how-to-fundraise-through-sports-for-the-brain-tumor-community/
From golf tournaments to soccer games, sports fundraisers unite communities while raising funds for #braintumor research.
Learn more:
https://braintumor.org/news/how-to-fundraise-through-sports-for-the-brain-tumor-community/
“Of all the forms of inequality, injustice in health is the most shocking and the most inhuman.” — Dr. Martin Luther King, Jr.
NBTS champions equity for the #braintumor community because every patient with a brain tumor deserves access to affordable, quality care.
#MLKDay2026
NBTS champions equity for the #braintumor community because every patient with a brain tumor deserves access to affordable, quality care.
#MLKDay2026
January 19, 2026 at 5:51 PM
“Of all the forms of inequality, injustice in health is the most shocking and the most inhuman.” — Dr. Martin Luther King, Jr.
NBTS champions equity for the #braintumor community because every patient with a brain tumor deserves access to affordable, quality care.
#MLKDay2026
NBTS champions equity for the #braintumor community because every patient with a brain tumor deserves access to affordable, quality care.
#MLKDay2026
Have you or a loved one enrolled in a clinical trial after a #braintumor diagnosis?
If you’re willing to share your experience for possible inclusion in future NBTS content, please complete this brief form: https://braintumor.org/brain-tumors/stories/clinical-trial-experience/
If you’re willing to share your experience for possible inclusion in future NBTS content, please complete this brief form: https://braintumor.org/brain-tumors/stories/clinical-trial-experience/
January 18, 2026 at 6:16 PM
Have you or a loved one enrolled in a clinical trial after a #braintumor diagnosis?
If you’re willing to share your experience for possible inclusion in future NBTS content, please complete this brief form: https://braintumor.org/brain-tumors/stories/clinical-trial-experience/
If you’re willing to share your experience for possible inclusion in future NBTS content, please complete this brief form: https://braintumor.org/brain-tumors/stories/clinical-trial-experience/
Melissa runs with Gray Nation Endurance in memory of her late aunt Debbie who passed from #GBM
She’s turning her loss into action, putting meaning behind her miles by running & fundraising for NBTS
Learn more about Gray Nation Endurance & how to put meaning behind your miles at: BrainTumor.org/GNE
She’s turning her loss into action, putting meaning behind her miles by running & fundraising for NBTS
Learn more about Gray Nation Endurance & how to put meaning behind your miles at: BrainTumor.org/GNE
January 17, 2026 at 7:02 PM
Melissa runs with Gray Nation Endurance in memory of her late aunt Debbie who passed from #GBM
She’s turning her loss into action, putting meaning behind her miles by running & fundraising for NBTS
Learn more about Gray Nation Endurance & how to put meaning behind your miles at: BrainTumor.org/GNE
She’s turning her loss into action, putting meaning behind her miles by running & fundraising for NBTS
Learn more about Gray Nation Endurance & how to put meaning behind your miles at: BrainTumor.org/GNE
Take an activity you love — such as golfing, running, baking, or enjoying happy hours — and turn it into a fundraising event that will help drive brain tumor research, advocacy, and support for patients and caregivers.
Learn more at BrainTumor.org/FundraiseYourWay
Learn more at BrainTumor.org/FundraiseYourWay
January 16, 2026 at 8:39 PM
Take an activity you love — such as golfing, running, baking, or enjoying happy hours — and turn it into a fundraising event that will help drive brain tumor research, advocacy, and support for patients and caregivers.
Learn more at BrainTumor.org/FundraiseYourWay
Learn more at BrainTumor.org/FundraiseYourWay
After her brother Emilio passed away from #glioblastoma, Pat found healing through tin punching.
Now, every piece she creates supports #braintumor research to help others facing this devastating disease.
Read her story: https://braintumor.org/news/tin-punching-out-glioblastoma-through-my-art/
Now, every piece she creates supports #braintumor research to help others facing this devastating disease.
Read her story: https://braintumor.org/news/tin-punching-out-glioblastoma-through-my-art/
January 16, 2026 at 8:02 PM
After her brother Emilio passed away from #glioblastoma, Pat found healing through tin punching.
Now, every piece she creates supports #braintumor research to help others facing this devastating disease.
Read her story: https://braintumor.org/news/tin-punching-out-glioblastoma-through-my-art/
Now, every piece she creates supports #braintumor research to help others facing this devastating disease.
Read her story: https://braintumor.org/news/tin-punching-out-glioblastoma-through-my-art/
Seizures are a common symptom experienced by people living with brain tumors.
In recognition of #InternationalQualityofLifeMonth, we’re sharing nine tips for managing seizures from fellow members of the brain tumor community: https://bit.ly/454fRVK
In recognition of #InternationalQualityofLifeMonth, we’re sharing nine tips for managing seizures from fellow members of the brain tumor community: https://bit.ly/454fRVK
January 15, 2026 at 8:49 PM
Seizures are a common symptom experienced by people living with brain tumors.
In recognition of #InternationalQualityofLifeMonth, we’re sharing nine tips for managing seizures from fellow members of the brain tumor community: https://bit.ly/454fRVK
In recognition of #InternationalQualityofLifeMonth, we’re sharing nine tips for managing seizures from fellow members of the brain tumor community: https://bit.ly/454fRVK
As we step into 2026, we’d like to thank you for the incredible work you've done in 2025.
Your advocacy has made a real impact for the #braintumor community: braintumor.org/news/update-...
Your advocacy has made a real impact for the #braintumor community: braintumor.org/news/update-...
January 14, 2026 at 9:23 PM
As we step into 2026, we’d like to thank you for the incredible work you've done in 2025.
Your advocacy has made a real impact for the #braintumor community: braintumor.org/news/update-...
Your advocacy has made a real impact for the #braintumor community: braintumor.org/news/update-...
“At least it’s benign.”
For Amanda, those words didn’t match the reality of living with a #braintumor. She shares why benign is not fine and how her #meningioma diagnosis had a lasting impact on her life.
Read Amanda’s story: https://braintumor.org/news/how-a-benign-brain-tumor-reshaped-my-life/
For Amanda, those words didn’t match the reality of living with a #braintumor. She shares why benign is not fine and how her #meningioma diagnosis had a lasting impact on her life.
Read Amanda’s story: https://braintumor.org/news/how-a-benign-brain-tumor-reshaped-my-life/
January 14, 2026 at 5:53 PM
“At least it’s benign.”
For Amanda, those words didn’t match the reality of living with a #braintumor. She shares why benign is not fine and how her #meningioma diagnosis had a lasting impact on her life.
Read Amanda’s story: https://braintumor.org/news/how-a-benign-brain-tumor-reshaped-my-life/
For Amanda, those words didn’t match the reality of living with a #braintumor. She shares why benign is not fine and how her #meningioma diagnosis had a lasting impact on her life.
Read Amanda’s story: https://braintumor.org/news/how-a-benign-brain-tumor-reshaped-my-life/
A #braintumor diagnosis can be overwhelming, but in many cases there is time to seek a second opinion before surgery.
Learn why a second opinion is important and where to find one in this blog from NBTS and the AANS/CNS Joint Section on Tumors: https://bit.ly/49ITZAS
Learn why a second opinion is important and where to find one in this blog from NBTS and the AANS/CNS Joint Section on Tumors: https://bit.ly/49ITZAS
January 13, 2026 at 6:06 PM
A #braintumor diagnosis can be overwhelming, but in many cases there is time to seek a second opinion before surgery.
Learn why a second opinion is important and where to find one in this blog from NBTS and the AANS/CNS Joint Section on Tumors: https://bit.ly/49ITZAS
Learn why a second opinion is important and where to find one in this blog from NBTS and the AANS/CNS Joint Section on Tumors: https://bit.ly/49ITZAS
🤠💙 Lace up, DFW!
The 2026 DFW Brain Tumor Walk & Race is happening Saturday, April 11, at AT&T Stadium, and you're invited!
Watch the event video now and register at: BrainTumor.org/DFW
#DFWBTWalkRace #braintumorcommunity
The 2026 DFW Brain Tumor Walk & Race is happening Saturday, April 11, at AT&T Stadium, and you're invited!
Watch the event video now and register at: BrainTumor.org/DFW
#DFWBTWalkRace #braintumorcommunity
January 12, 2026 at 7:14 PM
🤠💙 Lace up, DFW!
The 2026 DFW Brain Tumor Walk & Race is happening Saturday, April 11, at AT&T Stadium, and you're invited!
Watch the event video now and register at: BrainTumor.org/DFW
#DFWBTWalkRace #braintumorcommunity
The 2026 DFW Brain Tumor Walk & Race is happening Saturday, April 11, at AT&T Stadium, and you're invited!
Watch the event video now and register at: BrainTumor.org/DFW
#DFWBTWalkRace #braintumorcommunity
An unforgettable finish at the 2026 Walt Disney World® Marathon, sponsored by State Farm, racing through all four Walt Disney World® theme parks. 🏰🏃♂
January 11, 2026 at 9:51 PM
An unforgettable finish at the 2026 Walt Disney World® Marathon, sponsored by State Farm, racing through all four Walt Disney World® theme parks. 🏰🏃♂
Join us on Sunday, January 18th, at 7 p.m. ET for our monthly Brain Tumor Support Conversation.
Anyone who has been affected by a brain tumor is encouraged to speak in this welcoming space.
To register, please visit: https://bit.ly/4oTCKlU
Anyone who has been affected by a brain tumor is encouraged to speak in this welcoming space.
To register, please visit: https://bit.ly/4oTCKlU
January 11, 2026 at 5:55 PM
Join us on Sunday, January 18th, at 7 p.m. ET for our monthly Brain Tumor Support Conversation.
Anyone who has been affected by a brain tumor is encouraged to speak in this welcoming space.
To register, please visit: https://bit.ly/4oTCKlU
Anyone who has been affected by a brain tumor is encouraged to speak in this welcoming space.
To register, please visit: https://bit.ly/4oTCKlU
The Nathanson family is putting magic & meaning behind their miles!
Michael Nathanson, CEO of Focus Partners, which proudly sponsors GNE & our Walt Disney World® team, is making history as the first emeritus board member to run with GNE alongside his daughter & son, together as a family 💙
Michael Nathanson, CEO of Focus Partners, which proudly sponsors GNE & our Walt Disney World® team, is making history as the first emeritus board member to run with GNE alongside his daughter & son, together as a family 💙
January 10, 2026 at 9:35 PM
The Nathanson family is putting magic & meaning behind their miles!
Michael Nathanson, CEO of Focus Partners, which proudly sponsors GNE & our Walt Disney World® team, is making history as the first emeritus board member to run with GNE alongside his daughter & son, together as a family 💙
Michael Nathanson, CEO of Focus Partners, which proudly sponsors GNE & our Walt Disney World® team, is making history as the first emeritus board member to run with GNE alongside his daughter & son, together as a family 💙
Today, we’re celebrating 33 incredible #GNE runners taking on the 2026 Walt Disney World® Half Marathon with strength, purpose, and heart.
Our team includes 6 survivors representing meningioma, chordoma, pituitary tumor, pituitary macroprolactinoma, and choroid plexus.
Our team includes 6 survivors representing meningioma, chordoma, pituitary tumor, pituitary macroprolactinoma, and choroid plexus.
January 10, 2026 at 7:37 PM
Today, we’re celebrating 33 incredible #GNE runners taking on the 2026 Walt Disney World® Half Marathon with strength, purpose, and heart.
Our team includes 6 survivors representing meningioma, chordoma, pituitary tumor, pituitary macroprolactinoma, and choroid plexus.
Our team includes 6 survivors representing meningioma, chordoma, pituitary tumor, pituitary macroprolactinoma, and choroid plexus.
Today we’re celebrating 27 amazing #GNE runners taking on the 2026 Walt Disney World® 10K, sponsored by State Farm with heart, strength, and purpose.
Our team proudly includes 2 survivors representing meningioma and Grade IV astroblastoma—true inspiration every step of the way.
Our team proudly includes 2 survivors representing meningioma and Grade IV astroblastoma—true inspiration every step of the way.
January 10, 2026 at 3:31 AM
Today we’re celebrating 27 amazing #GNE runners taking on the 2026 Walt Disney World® 10K, sponsored by State Farm with heart, strength, and purpose.
Our team proudly includes 2 survivors representing meningioma and Grade IV astroblastoma—true inspiration every step of the way.
Our team proudly includes 2 survivors representing meningioma and Grade IV astroblastoma—true inspiration every step of the way.
🎉 Together, WE DID IT!
Thanks to the generosity of supporters like you, we met all our matches, unlocked our board’s year-end gift, & raised nearly $15 million in 2025.
These additional funds will power urgently needed research, progress, and support for the brain tumor community
Thanks to the generosity of supporters like you, we met all our matches, unlocked our board’s year-end gift, & raised nearly $15 million in 2025.
These additional funds will power urgently needed research, progress, and support for the brain tumor community
January 9, 2026 at 5:25 PM
🎉 Together, WE DID IT!
Thanks to the generosity of supporters like you, we met all our matches, unlocked our board’s year-end gift, & raised nearly $15 million in 2025.
These additional funds will power urgently needed research, progress, and support for the brain tumor community
Thanks to the generosity of supporters like you, we met all our matches, unlocked our board’s year-end gift, & raised nearly $15 million in 2025.
These additional funds will power urgently needed research, progress, and support for the brain tumor community
Our 27 amazing #GrayNationEndurance team members are hitting the course today for the 2026 Walt Disney World® 5K, sponsored by State Farm!
This amazing team includes 5 inspiring survivors, 4 mother-daughter duos, 2 husband-wife duos & 4 friends running in honor of their friend.
This amazing team includes 5 inspiring survivors, 4 mother-daughter duos, 2 husband-wife duos & 4 friends running in honor of their friend.
January 8, 2026 at 9:10 PM
Our 27 amazing #GrayNationEndurance team members are hitting the course today for the 2026 Walt Disney World® 5K, sponsored by State Farm!
This amazing team includes 5 inspiring survivors, 4 mother-daughter duos, 2 husband-wife duos & 4 friends running in honor of their friend.
This amazing team includes 5 inspiring survivors, 4 mother-daughter duos, 2 husband-wife duos & 4 friends running in honor of their friend.
Have you undergone #laserinterstitialthermaltherapy (#LITT) for either seizure management or #braintumor care?
Share your experience — from making the decision to move forward with the procedure through recovery — with us today: https://bit.ly/4q4VfFi
Share your experience — from making the decision to move forward with the procedure through recovery — with us today: https://bit.ly/4q4VfFi
January 7, 2026 at 4:55 PM
Have you undergone #laserinterstitialthermaltherapy (#LITT) for either seizure management or #braintumor care?
Share your experience — from making the decision to move forward with the procedure through recovery — with us today: https://bit.ly/4q4VfFi
Share your experience — from making the decision to move forward with the procedure through recovery — with us today: https://bit.ly/4q4VfFi
On May 2, 2020, a quiet night at home changed everything.
A sudden seizure led to Anthony’s brain tumor diagnosis, right in the middle of the COVID-19 pandemic.
When his tumor recurred, Anthony & his wife, Alexandra, explored all of his treatment options & eventually enrolled in a clinical trial.
A sudden seizure led to Anthony’s brain tumor diagnosis, right in the middle of the COVID-19 pandemic.
When his tumor recurred, Anthony & his wife, Alexandra, explored all of his treatment options & eventually enrolled in a clinical trial.
January 6, 2026 at 9:16 PM
On May 2, 2020, a quiet night at home changed everything.
A sudden seizure led to Anthony’s brain tumor diagnosis, right in the middle of the COVID-19 pandemic.
When his tumor recurred, Anthony & his wife, Alexandra, explored all of his treatment options & eventually enrolled in a clinical trial.
A sudden seizure led to Anthony’s brain tumor diagnosis, right in the middle of the COVID-19 pandemic.
When his tumor recurred, Anthony & his wife, Alexandra, explored all of his treatment options & eventually enrolled in a clinical trial.
Reposted by National Brain Tumor Society
This one hurts deeply. Adam Hayden helped shape how I show up for this community. His wisdom, clarity of thought and advocacy style made so many of us braver voices, better listeners, and fearless advocates. The #btsm community will miss him terribly. 🩶
It is with a heavy heart that we share news of the passing of philosopher, writer, patient advocate, and NBTS board member Adam Hayden. Read about Adam’s life, legacy, and enduring impact on the brain tumor community: https://braintumor.org/news/remembering-adam-hayden/
December 23, 2025 at 3:47 AM
This one hurts deeply. Adam Hayden helped shape how I show up for this community. His wisdom, clarity of thought and advocacy style made so many of us braver voices, better listeners, and fearless advocates. The #btsm community will miss him terribly. 🩶
💙 Parenting through a brain tumor diagnosis is full of unique challenges.
Our blog dives into the real struggles parents face and offers practical tips to support your children, validate their feelings, and protect your family’s emotional well-being.
Read more: https://bit.ly/4qEGXeu
Our blog dives into the real struggles parents face and offers practical tips to support your children, validate their feelings, and protect your family’s emotional well-being.
Read more: https://bit.ly/4qEGXeu
January 5, 2026 at 5:54 PM
💙 Parenting through a brain tumor diagnosis is full of unique challenges.
Our blog dives into the real struggles parents face and offers practical tips to support your children, validate their feelings, and protect your family’s emotional well-being.
Read more: https://bit.ly/4qEGXeu
Our blog dives into the real struggles parents face and offers practical tips to support your children, validate their feelings, and protect your family’s emotional well-being.
Read more: https://bit.ly/4qEGXeu