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National Brain Tumor Society

@braintumor.org

91 followers 98 following 280 posts

National Brain Tumor Society (NBTS) unrelentingly invests in, mobilizes, and unites the brain tumor community to discover a cure, deliver effective treatments, and advocate for patients and caregivers.

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National Brain Tumor Society @braintumor.org · 8d

For the Peterson family, biomarker testing gave them clarity — what was first thought to be a low-grade glioma turned out to be grade 4 glioblastoma.

#MyTumorID

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National Brain Tumor Society @braintumor.org · 5h

Please join us in welcoming the Glioblastoma Research Organization (GBMRO) as the newest member of the #MyTumorID Affiliate Program.

Together, we are boosting awareness about the importance of biomarker testing and clinical trials for patients with #braintumors

National Brain Tumor Society @braintumor.org · 1d

We are so inspired by the strides our community and sponsors has made through this weekend’s Race For Hope Greater Philadelphia.

More than 3,000 members of the #braintumorcommunity — across 194 teams — joined our event at Cooper River Park and raised over $669,000!

#R4HPHL #RaceForHopePHL

National Brain Tumor Society @braintumor.org · 2d

Clinical trial eligibility often depends on factors like #braintumor type, overall health, and results from biomarker testing.

Join our #MyTumorID webinar on Oct. 24 to learn more about how clinical trials work: braintumor.org/brain-tumors...

National Brain Tumor Society @braintumor.org · 3d

Returning to work after a #braintumor diagnosis can feel overwhelming.

In recognition of National Disability Employment Awareness Month, our latest blog gathers firsthand experiences and tips from the brain tumor community to help you ease back to work: braintumor.org/news/11-tips...

National Brain Tumor Society @braintumor.org · 3d

Join us on Sunday, October 19th, at 7 p.m. ET for our monthly Brain Tumor Support Conversation.

Anyone who has been affected by a brain tumor is encouraged to speak in this welcoming space.

To register, please visit: braintumor.org/support-services/support-groups/brain-tumor-support-conversations

National Brain Tumor Society @braintumor.org · 4d

Join #GrayNationEndurance at the 2026 Walt Disney World Marathon Weekend presented by State Farm & turn every mile into impact 🏰👟💪

Half-marathon & full-marathon spots are still available!

Apply now: braintumor.org/events/gray-nation-endurance/2026-walt-disney-world-marathon-application

#runDisney

National Brain Tumor Society @braintumor.org · 5d

🙏 Warm thanks to our top sponsors: Chimerix / Jazz Pharmaceuticals, Focus Partners Wealth, Imvax, IQVIA Biotech, and ShopRites of Zallie Family Markets, for all you do to make this event impactful.

National Brain Tumor Society @braintumor.org · 5d

Today, we’re thrilled to be at Cooper River Park for the Race for Hope Greater Philadelphia, where over 2,600 participants & 193 teams are uniting to remember loved ones, honor survivors, mark milestones & raise funds & awareness for the brain tumor community.

#R4HPHL #RaceforHopePHL

National Brain Tumor Society @braintumor.org · 5d

In honor of World Hospice and Palliative Care Day, we’re spotlighting these essential services and the compassionate professionals who provide them.

Learn how #palliativecare can enhance quality of life: https://braintumor.org/news/how-palliative-care-can-support-the-brain-tumor-community/

National Brain Tumor Society @braintumor.org · 5d

Today, on World Mental Health Day, we share words of #affirmation– because a #braintumor can take a toll on your #mentalhealth.

NBTS offers programs that provide support and help address the emotional impact that comes along with a diagnosis: braintumor.org/support-services/

#WorldMentalHealthDay

National Brain Tumor Society @braintumor.org · 6d

It’s not too late to register!

Join us for a morning of hope, awareness, and community: braintumor.org/event/race-f...

#R4HPHL #RaceforHopePHL

National Brain Tumor Society @braintumor.org · 6d

We are thankful to Darlene and her family for their willingness to share their experience with us and the brain tumor community! 💙

National Brain Tumor Society @braintumor.org · 6d

Tomorrow, Sat., Oct. 11, we’re gathering in for the Race for Hope Greater Philadelphia & we couldn’t do it without our amazing sponsors, volunteers, and participants!

National Brain Tumor Society @braintumor.org · 7d

Today, on DAF Day, your donor-advised fund gift will be MATCHED, up to $20,000, thanks to the Gordon Family Charitable Trust DAF grant, to advance #braintumor research, advocate for change & support patients & their loved ones.

Learn more at BrainTumor.org/DAF

#DAFforNBTS #DAFDay

National Brain Tumor Society @braintumor.org · 8d

Discover why identifying your brain tumor at the molecular level matters at mytumorid.org

#MyTumorID

National Brain Tumor Society @braintumor.org · 8d

Accurately identifying Darlene’s brain tumor changed everything.

Instead of a “watch and wait” approach, her care team started treatment immediately, giving Darlene and the Peterson family more time together.

#MyTumorID

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National Brain Tumor Society @braintumor.org · 8d

For the Peterson family, biomarker testing gave them clarity — what was first thought to be a low-grade glioma turned out to be grade 4 glioblastoma.

#MyTumorID

2 1 1

National Brain Tumor Society @braintumor.org · 9d

🏌️‍♂ The 3rd annual McGuiness Memorial Golf Tournament is back in Rehoboth Beach!

Honoring Nicholas McGuiness, this event has raised $214K+ for brain tumor research. 🙏 Huge thanks to Chris E. & Brain Cancer Answer!

Start your own #FundraiseYourWay event: braintumor.org/FYW

National Brain Tumor Society @braintumor.org · 9d

The holiday season can amplify the physical and emotional challenges that people living with #braintumors and their care partners already face.

Share your story and tips with us to inform –– and possibly be featured in –– future NBTS content: https://braintumor.org/brain-tumors/stories/holiday-tips

National Brain Tumor Society @braintumor.org · 10d

Turning resistance into vulnerability: NBTS-funded science is now in a clinical trial for glioblastoma.

More: https://braintumor.org/news/turning-resistance-into-vulnerability-nbts-funded-discovery-drives-new-glioblastoma-clinical-trial

National Brain Tumor Society @braintumor.org · 10d

The Gray Nation Endurance team is out on the course today for the Medtronic Twin Cities Marathon, Half Marathon, & 10-Mile, putting meaning behind their miles.

Together, they've raised over $35,000 and counting!

Learn more about GNE at BrainTumor.org/GNE

#GrayNationEndurance

National Brain Tumor Society @braintumor.org · 11d

When you recommend a grant to NBTS from your donor-advised (DAF) fund between now and #DAFDay on Oct. 9, your #DAF gift will be MATCHED, up to $20,000, thanks to the Gordon Family Charitable Trust DAF grant, to drive real change.

Learn more at BrainTumor.org/DAF

#DAFforNBTS

National Brain Tumor Society @braintumor.org · 12d

Amber was training for a 5K in July 2024 when a sudden migraine led to a life-changing diagnosis: #PituitaryMacroadenoma

After treatment, she crossed the finish line at the #DFWBrainTumorWalkRace wearing a “survivor” shirt: braintumor.org/news/sharing-my-prolactinoma-story-so-others-dont-feel-alone

National Brain Tumor Society @braintumor.org · 12d

Myth: #Braintumor clinical trials are too expensive.

Fact: Patients don’t pay to participate. Sponsors often cover trial costs, while routine care is billed to insurance, with patients responsible for co-pays or deductibles.

Learn more at our webinar: braintumor.org/brain-tumors...

National Brain Tumor Society @braintumor.org · 14d

Want to support #braintumor research in a smart, impactful way?

A donor-advised fund (DAF) is one of the most effective tools for charitable giving, and it can be a game-changer in the fight against #braintumors.

Learn more at BrainTumor.org/DAF

#DAFDay #DAFforNBTS