Author | Lightnews

Angioedema News @angioedemanews.bsky.social · 11m

Your mental health matters: https://bit.ly/4jEt387

Self-care, mindfulness, support groups, and therapy can all help you cope 💙

#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews

Angioedema News @angioedemanews.bsky.social · 12m

Rest days are essential to recharge. Describe your ideal day off. #RareDisease

Angioedema News @angioedemanews.bsky.social · 1h

Hear from advocates shaping the future of rare disease support and awareness: https://bit.ly/4qmUlo8

Rare disease advocates are building a movement. Hear from passionate voices shaping a better future for all of us. #RareDisease

Voices for change in a village of rare disease advocates, part 1

Columnist Hollie Amadio, in a new series devoted to voices for change, interviews Sheena Standingbear about her call to advocacy.

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Angioedema News @angioedemanews.bsky.social · 4h

#HAE #HereditaryAngioedema #ChronicIllness #Spoonie #HaeCommunity #InvisibleIllness #RareDisease #Advocacy #BioNews #AngioedemaNews

Angioedema News @angioedemanews.bsky.social · 4h

When HAE flares strike and life gets overwhelming, it’s not always the big gestures, but small acts of kindness that mean the most—like a dinner delivery, a coffee chat, or just knowing a friend is willing to listen.

For all those standing by our side: your support matters more than you know.

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Angioedema News @angioedemanews.bsky.social · 4h

Read more about how friends can really help you keep it together: https://bit.ly/3X0l38s

Sometimes the hardest question to answer as a caregiver is, “What do you need?”

Infographic titled "What to look for in a friend when you have HAE" with key points: celebrate good days, understanding, helpful, innovative, care about wellbeing. By AngioedemaNews.com

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Angioedema News @angioedemanews.bsky.social · 16h

You are more than your illness: you are a warrior full of hope. 🛡 #ChronicIllness

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Angioedema News @angioedemanews.bsky.social · 19h

Connect with support: https://bit.ly/4nfP1Bx

#HAE #SupportGroups #Community #AngioedemaNews #Bionews

Angioedema News @angioedemanews.bsky.social · 1d

Discover on-demand options for managing swelling attacks: https://bit.ly/4mCCnvR

#Angioedema #HAE #RareDisease #TreatmentOptions #HealthCare #AngioedemaNews #Bionews

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Angioedema News @angioedemanews.bsky.social · 1d

Your fight is a beacon: keep shining bright. 🔥 #DisabilityAwareness

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Angioedema News @angioedemanews.bsky.social · 1d

Get expert advice for safe travel with hereditary angioedema: https://bit.ly/43wcdD3

Traveling with HAE means planning ahead. Get expert tips for safe and stress-free trips that keep you in control. #HAE

Travel plans for an HAE conference include caution

Columnist Natalie Sirota knows she has to be cautious in her travel plans before heading to the US Hereditary Angioedema Association summit.

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Angioedema News @angioedemanews.bsky.social · 1d

Life with HAE isn’t just about managing visible swelling, but also handling hidden symptoms like abdominal pain, nausea, and emotional ups and downs.

Every flare feels like a battle, but finding support and understanding helps us keep going.

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Angioedema News @angioedemanews.bsky.social · 1d

Read More: https://bit.ly/4oi7xZw

Living with HAE means dealing with unpredictable swelling—hands, feet, face, stomach, even the throat—bringing pain, fatigue, and anxiety.

Infographic on hereditary angioedema: Left column lists HAE attack triggers like allergens, hormones, stress. Middle suggests avoidance strategies like a healthy diet, vaccinations. Right column highlights prevention methods such as medications, symptom tracking. By AngioedemaNews.com

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Angioedema News @angioedemanews.bsky.social · 1d

Leave a 🍿 in the comments if your joints pop more than popcorn—and less tasty. #ChronicIllnessWarrior

Angioedema News @angioedemanews.bsky.social · 1d

Boost gut health: https://bit.ly/4n6C1hd

#HAE #GutHealth #Wellbeing #AngioedemaNews #Bionews

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Angioedema News @angioedemanews.bsky.social · 2d

Learn how to recognize and manage caregiver burnout—read more here: https://bit.ly/4dO76SU

#Angioedema #CaregiverSupport #AngioedemaNews #Bionews

Angioedema News @angioedemanews.bsky.social · 2d

You are more powerful than any diagnosis or limitation. 🚀 #InvisibleIllness

Angioedema News @angioedemanews.bsky.social · 2d

Explore practical nutrition tips to support your health and wellbeing: https://bit.ly/43tpX1m

Small changes in what you eat can make a big difference. Explore ways to nourish your body and live better with HAE. #Nutrition

Adjusting eating habits to live better with HAE, other diagnoses

Columnist Natalie Sirota took on the challenge of changing her eating habits in response to her hereditary angioedema, among other diagnoses.

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Angioedema News @angioedemanews.bsky.social · 2d

Hold onto hope tightly: it can be a powerful anchor. ⚓️ #Spoonie

Angioedema News @angioedemanews.bsky.social · 2d

Discover how to navigate intimacy and angioedema: https://bit.ly/43DYuLc

Your condition doesn’t define your worth—take charge of your sexual and emotional well-being, one step at a time.

#Angioedema #SexualHealth #ChronicIllness #PatientSupport #RareDisease #AngioedemaNews #Bionews

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Angioedema News @angioedemanews.bsky.social · 3d

Take a moment today to recognize your progress: https://bit.ly/4kUuC33

It’s easy to get caught up in “what ifs” about the future, but don’t forget to celebrate how far you’ve come.

#Angioedema #HAE #ChronicIllness #CaregiverLife #ProgressNotPerfection #RareDisease #AngioedemaNews #Bionews

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Angioedema News @angioedemanews.bsky.social · 3d

Leave a 🎢 in the comments if having a flare-up feels like a rollercoaster no one asked to ride. #RareDisease

Angioedema News @angioedemanews.bsky.social · 3d

Read one advocate’s inspiring journey from diagnosis to empowerment: https://bit.ly/47np4Jb

From diagnosis to advocacy — one inspiring story shows how HAE can spark a life of purpose and empowerment. #Diagnosis

An advocate is born: My hereditary angioedema diagnosis story

In her columns debut, Hollie Amadio shares her hereditary angioedema diagnosis story, which was marked by misdiagnoses, surgeries, and pain.

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Angioedema News @angioedemanews.bsky.social · 3d

Motivation can fluctuate—what helps you keep going when times get hard? #ChronicIllness

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