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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 23h

On the 13th October we hosted a #kidneycancer patient day in Sheffield with the Uro-Oncology team at Weston Park Hospital.
Thank you to the patients and speakers who joined us on the day, their contribution ensured the day was excellent.
Find out more
actionkidneycancer.org/.../patient-...

ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 1d

We would like to say a massive thank you to Joanna and Mikaela who completed on the 12th October the Bournemouth Supernova 5K run to raise funds for us.
We would also like to thank everyone who contributed to their fund raising.

#kidneycancer #bypatientsforpatients #StrongerTogether

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 7d

Earlier this week we hosted a #kidneycancer patient day in Truro with the help and support of the staff from Royal Cornwall Trust.
We had speakers on a range of related topics and patients shared their experience of living with kidney cancer.
Read more:
actionkidneycancer.org/.../patient-...

ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 17d

#Stoptober, started today. People across the country are taking steps to stop smoking.
Stopping isn't easy - but there is free NHS support, advice and tools that can make your journey easier.
To find out more and get support:
nhs.uk/better-healt...
#Stoptober

ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 18d

As members of the Coalition for Reducing Bureaucracy in Clinical Trials, we have been working hard to reduce bureaucracy in clinical trials, both for clinical researchers & patients, focussing on: informed consent, safety reporting & regulatory guidelines.
actionkidneycancer.org/coalition-fo...

Coalition for Reducing Bureaucracy in Clinical Trials 2025 Recommendations - Action Kidney Cancer

The safety of a medicine and how well it works are tested in clinical trials. Due to legal requirements, clinical trials have become more and more complex and expensive, with lots of paperwork and ine...

actionkidneycancer.org

ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 23d

We've been working hard with the National Institute for Health and Care Excellence, to create guide lines which aim to reduce variation in treatment between hospitals and prevent unnecessary surgery for the removal of kidney tumours.
About the guideline:
actionkidneycancer.org/first-nice-g...

First NICE guideline on kidney cancer - Action Kidney Cancer

A new draft guideline, issued by the National Institute for Health and Care Excellence (NICE), aims to reduce variation in treatment between hospitals and prevent unnecessary surgery for the removal o...

actionkidneycancer.org

ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 23d

Stoptober starts in one weeks time, to get the support you need to quit for good.
Find out more:
nhs.uk/better-healt...

ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · Sep 11

The 2025 NKCA reveals that only 1% of kidney cancer patients in England joined clinical trials from 2020 to 2022. We are raising awareness to help more #kidneycancer patients access innovative treatments through trial participation.
Read more here:
actionkidneycancer.org/audit-of-nhs...

Audit of NHS shows only 1% of kidney cancer patients are enrolled in clinical trials - Action Kidney Cancer

We are pleased to announce the publication of the second National Kidney Cancer Audit (NKCA) State of the Nation Patient and Public Report 2025 from the Royal College of Surgeons of England.

actionkidneycancer.org

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · Sep 10

I is for.....

In our own words, in this series of videos, kidney cancer patients and carers talk frankly about their experiences, emotions and how to live well with a diagnosis of #kidneycancer

Watch the videos:

actionkidneycancer.org/help.../in-o...

#bypatientsforpatients #StrongerTogether

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · Sep 9

A recent study compares real world data on the outcomes of advanced #kidneycancer patients treated with an immunotherapy combination as a first-line treatment followed by a second-line TKI.
To read more:
actionkidneycancer.org/impact-of-fi...

Impact of first-line combination treatment on outcomes of second-line TKI in advanced kidney cancer - Action Kidney Cancer

There is limited information on the outcomes of patients who are treated with an immunotherapy combination as a first-line treatment followed by a tyrosine kinase inhibitor (TKI) as a second-line trea...

actionkidneycancer.org

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · Sep 9

Benmelstobart a new immunotherapy, which blocks the action of the immunosuppressant, PD-L1, in combination with a TKI called anlotinib was compared with sunitinib as first-line treatment for advanced #kidneycancer
Read More:
actionkidneycancer.org/first-line-b...

First-line benmelstobart plus anlotinib versus sunitinib in advanced kidney cancer - Action Kidney Cancer

A new immunotherapy called benmelstobart, which blocks the action of the immunosuppressant, PD-L1, in combination with a tyrosine kinase inhibitor (TKI) called anlotinib was compared with sunitinib as...

actionkidneycancer.org

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · Sep 4

We are delighted that our trustee Samra Turajlic is New Director of the Cancer Research UK Manchester Institute.

#kidneycancer

oncodaily.com/career/samra...

Samra Turajlić Was Named New Director of the CRUK Manchester Institute - OncoDaily

Samra Turajlić Was Named New Director of the CRUK Manchester Institute / cancer, Cancer Research UK, OncoDaily, Oncology, Samra Turajlic

oncodaily.com

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · Sep 1

Researchers from the University of California in Los Angeles have developed a new kind of immunotherapy that uses specially engineered immune cells that attack #kidneycancer tumours without the need to customise treatment for each individual patient.

To read:
actionkidneycancer.org/new-immunoth...

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · Aug 29

Julia one of our team was delighted to meet and thank three generations of the the Pointon family, Dave, Steve and special helper Ernie, along with Clive Read & Jonnie Briggs from Crewe soul club and venue manager Phil Taylor who made the event a resounding success and raised a fantastic £2056.

ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · Aug 28

T is for ...
Treatment, we have a section on our website where you will find information about available #kidneycancer treatments.
The section includes surgical options, medicines, clinical trials and much more.
actionkidneycancer.org/.../kidney-c...

#StrongerTogether #bypatientsforpatients

ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · Aug 28

We are supporting the One Cancer Voice NHS Cancer Plan campaign which was presented in parliament.
#OneCancerVoice #kidneycancer #StrongerTogether

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · Aug 20

C is for..
Clinical trials, if you would like to find out more about #kidneycancer trials, see where they are being held in the UK and read real patients experiences of being on one, we have a section on our website that provides this information.
actionkidneycancer.org/res.../about...

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · Aug 20

Fumarate hydratase-deficient rcc is a rare and aggressive type of #kidneycancer Because of this treatment is not clear. This phase two study shows treatment with a combination of immunotherapy and tyrosine kinase inhibitor, showed promise in patients.
actionkidneycancer.org/combination-...

Combination treatment shows benefits in rare, aggressive kidney cancer - Action Kidney Cancer

Fumarate hydratase (FH)-deficient renal cell carcinoma (RCC) is a rare and aggressive type of kidney cancer. Because of how rare this cancer is, treatment is not clear. In this phase 2 study, treatmen...

actionkidneycancer.org

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · Aug 13

In this series of 21 short videos, experts in the treatment and care of #kidneycancer patients answer your questions

Why not grab a cuppa, watch a video and have some of your questions answered.

To watch the videos:
actionkidneycancer.org/help-support...
#StrongerTogether

ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · Aug 12

A massive THANK YOU to the Pointon Family, the DJ's and all the volunteers who supported the 6th Northern Soul and Motown Charity Event in Crew on the 10th August. They raised a fantastic £2,056.04 for us an everyone enjoyed a fantastic day of music and dance.

#kidneycancer

ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · Jul 31

A massive THANK YOU to Michelle & her sister Donna who recently completed a skydive in memory of their beloved sister Sarah to raise funds for us. Thanks to their friends and family who helped them raise an amazing £1895.
Read more: kcsn.enthuse.com/pf/michelle-...
#kidneycancer #StrongerTogether

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · Jul 29

There are still some tickets for this years 5th Anniversary Northern Soul Charity Event
We are delighted that the Pointon family have organised another fabulous event, the sixth, to raise funds for us.
Please buy your tickets:
actionkidneycancer.org/.../norther-...
#kidneycancer #StrongerTogether

Reposted by ACTION KIDNEY CANCER

John McGrane @jmcgrane.bsky.social · Jul 17

@simplyoncology.bsky.social
Back 🗣️#renalcancer SABR with
@harshanigreen.bsky.social
from
@royalmarsden.org

We discuss the FASTRACK II trial and the work of
Prof Shankar Siva

We discuss this & more 💡(+Mike produces a Magic Lamp)
@actionkidneycancer.bsky.social

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · Jul 23

A phase 2 clinical trial has shown that radiotherapy directed at metastases resulted in promising survival rates and low side effects for patients with metastatic clear cell #kidneycancer who had up to 5 metastases without the need for anti-cancer medication.

actionkidneycancer.org/metastasis-d...

Metastasis-Directed Radiotherapy Shows Improved Kidney Cancer Outcomes - Action Kidney Cancer

A recent phase 2 clinical trial presented at the 2025 Kidney Cancer Research Summit in Boston, USA, found that radiotherapy directed at metastases resulted in promising survival rates and low side eff...

actionkidneycancer.org

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · Jul 14

We are thinking of and thanking Donna and Michelle, today they are doing a skydive to raise funds for us.
They are doing the skydive to honour their sisters Sarah’s memory on what would have been her 46th birthday.
Please read about Sarah:
actionkidneycancer.org/.../a-skydiv...

#kidneycancer

A Skydive in Memory of Sarah July 2025 - Action Kidney Cancer

On December 27th, 2024, Michelle and Donna lost their beautiful sister, Sarah, to kidney cancer. Sarah was a devoted mother who truly loved life. In Sarah’s honour, Michelle and Donna are doing a skyd...

actionkidneycancer.org

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