Author | Lightnews

Reposted by Shelley

CreakyJoints® @creakyjoints.bsky.social · 12d

GCA is a rare autoimmune disease that causes inflammation in the blood vessels — often leading to headaches, scalp tenderness, jaw pain when chewing, and in some cases, vision loss.

Awareness saves sight.

#GCAAwarenessDay #ChronicIllnessCommunity #InvisibleIllness #AutoimmuneWarrior #CreakyJoints

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Shelley @shelley55.bsky.social · 23d

I’m doing a trial of YouTube TV and there is Moments of Zen channel. ☮️✌️😌

Shelley @shelley55.bsky.social · Sep 28

If you have psoriatic arthritis, please complete this survey from @creakyjoints.bsky.social #psa #psoriaticarthritis

CreakyJoints® @creakyjoints.bsky.social · Sep 26

Living with PsA? Your voice matters.
Take our 15–20 min survey & help improve care for others like you.
Enter a raffle to win 1 of 5 $300 e-gift cards.
Click here for more info:
www.research.net/r/TNYM279
#PsA #PsoriaticArthritis #PatientVoices #CreakyJoints #AutoimmuneLife

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Shelley @shelley55.bsky.social · Sep 4

When I talk with my doctor, I relate my pain level to what I could or could not do during the week. Just saying it was a 6 and now it’s a 4 is not enough information sometimes to make a decision about next steps.

Shelley @shelley55.bsky.social · Sep 4

If it’s leg pain, I go for a walk outside. If it’s hand or back pain from RA, I grab my heating pad and a good distraction like a movie.

Shelley @shelley55.bsky.social · Aug 9

I sat down to read for a moment. Now I have an oversized lapdog and my cat negotiating territory. #Caturday

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Shelley @shelley55.bsky.social · Jul 21

POV: Your dogs swore they were gardening, but came back lookin’ like they just did the Hot Cheeto Challenge.

#dogsofbluesky

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Reposted by Shelley

CreakyJoints® @creakyjoints.bsky.social · Jul 10

Today is Chronic Disease Day — a reminder that 1 in 3 adults worldwide lives with a chronic illness.
For many, these conditions are invisible, lifelong, and misunderstood.
They deserve care that listens, systems that work, and a world that doesn’t ask them to prove their pain.

We see you.

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Shelley @shelley55.bsky.social · Jul 13

Such a pleasure to talk with Dr. Ted Mikuls about the Rheumatoid Factor (RF) test

CreakyJoints® @creakyjoints.bsky.social · Jul 11

Let’s Get Personal is back!
Ep 1: Dr. Ted Mikuls & Shelley Fritz break down the Rheumatoid Factor test in RA — what it means for diagnosis and disease severity, and how patients can feel more empowered.

Listen: creakyjoints.org/lets-get-per...
#RheumatoidArthritis #RA #LetsGetPersonal

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Shelley @shelley55.bsky.social · Jul 2

Let the new neighbors know who’s in charge. Meow
#catsofbluesky

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Shelley @shelley55.bsky.social · Jun 14

Happy 2nd birthday to Miss Elaine Benes! #catsofbluesky #cats

Cat face through hole in a cat tree with party hat above.

Cat-sized pink crown party hat with a number two on it in gold and cat head poking through hole in a cat house.

Gray and white cat with bandana on that says birthday girl.

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Reposted by Shelley

CreakyJoints® @creakyjoints.bsky.social · Jun 10

LGBTQ+ patients living with chronic illness deserve to see themselves represented—in advocacy, in media, and in medicine.
🌈 Read this powerful reflection on identity, health, and why representation matters:
🔗 ghlf.org/chronic-illn...
#PrideMonth #LGBTQHealth #ChronicIllness

Why LGBTQ+ Representation Matters to Me: Celebrating Diversity and Inclusion in Health Care

In honor of LGBTQ+ Pride Month, members of our chronic illness community share why representation of the LGBTQ+ community is crucial for achieving health equity.

ghlf.org

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Shelley @shelley55.bsky.social · May 17

Happy Caturday
Elaine’s favorite toy
#Caturday #Catsofbluesky

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Reposted by Shelley

CreakyJoints® @creakyjoints.bsky.social · Apr 24

🧑‍⚕️ We're recruiting patients for a paid advisory board!
Do you still experience gout flares? Your voice can help improve care for others.
Apply here 👉 www.research.net/r/GOUTADVISOR
#PatientVoice #Gout #ChronicIllness #GoutAwareness

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Reposted by Shelley

CreakyJoints® @creakyjoints.bsky.social · Apr 23

Clinical trials could offer new hope for lupus patients — but we know they can feel overwhelming.
That’s why we created the Lupus Help Center — your go-to resource for learning about clinical studies, hearing real patient stories, and finding support.
Explore more: www.lupushelpcenter.org

Lupus Help Center

Ready to explore clinical trials, ask questions, or hear patient stories? The Lupus Help Center has the support and info you need.

www.lupushelpcenter.org

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Reposted by Shelley

CreakyJoints® @creakyjoints.bsky.social · Apr 4

Today is IgG4-Related Disease Awareness Day 🧬
This rare autoimmune condition can affect multiple organs & is often misdiagnosed as IBS, cancer, pancreatitis & more.
Diagnosis is often delayed. Awareness can change that. 💙
#IgG4RD #RareDisease #CreakyJoints #GHLF

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Reposted by Shelley

CreakyJoints® @creakyjoints.bsky.social · Mar 23

No one should feel alone in their health journey, and every patient deserves care that is both effective and affirming.
Michael’s journey with PsO and PsA as an LGBTQ+ person here:
creakyjoints.org/psoriasis/li...
#lgbtqhealth

Living with Psoriasis and Psoriatic Arthritis as an LGBTQ+ Person: Michael’s Story

The Right Doctor Can Make All the Difference in Your Psoriasis and PsA Journey

creakyjoints.org

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Reposted by Shelley

Shelley @shelley55.bsky.social · Feb 13

T.G.I.S. Thank God it’s Severance day #Severance

a man in a white turtleneck with a lanyard around his neck is dancing

ALT: a man in a white turtleneck with a lanyard around his neck is dancing

media.tenor.com

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Shelley @shelley55.bsky.social · Mar 18

I hope Elaine is making me cookies.

Gray and white cat standing up with her left paw reaching toward the oven handle.

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Reposted by Shelley

CreakyJoints® @creakyjoints.bsky.social · Mar 5

Busting #PsoriaticArthritis and #Psoriasis Myths with Jody Quinn and our host @shelley55.bsky.social
Whether you're living with PsA or supporting someone who is, this episode offers valuable insights to help you navigate the condition with confidence.
Tune in now: creakyjoints.org/psoriatic-ar...

The Psoriatic Arthritis Club

Through personal chats with psoriatic arthritis experts and PsA patients, the Psoriatic Arthritis Club podcast explores the ups & downs of navigating PsA.

creakyjoints.org

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Shelley @shelley55.bsky.social · Feb 22

It’s here— #Caturday

Reposted by Shelley

Dutchy Patrick @dutchiepatrick.bsky.social · Feb 19

They're not ashamed, they also stole money from a children's cancer charity.

They are barbarians, downright evil barbarians....

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Reposted by Shelley

Peter Morley ♿️ @petermorley.bsky.social · Feb 12

Thank goodness for the American Medical Association. Here is their YouTube page. Please share far and wide. Right now bird flu is spreading throughout our country and most people have no clue. Please stay updated and bookmark this page for your health and well-being.

www.youtube.com/@americanmed...

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Shelley @shelley55.bsky.social · Feb 13

T.G.I.S. Thank God it’s Severance day #Severance

a man in a white turtleneck with a lanyard around his neck is dancing

ALT: a man in a white turtleneck with a lanyard around his neck is dancing

media.tenor.com

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Shelley @shelley55.bsky.social · Feb 11

Enbrel, Humira, Actemra, Orencia, Xeljanz, Rituxan, Inflectra (biosimilar for Remicade), and now I’m on Tuxima—biosimilar for Rituximab.

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