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Reposted by @JohnVsJonVsME

María Richardson @diatoma.bsky.social · 26d

Gracias again for this important essay @lauralew105.bsky.social ❤️
Have you written about the history of IACC, specifically ME? (@georgemonbiot.bsky.social calls it #GreatestMEdicalScandal of 21st century).
At @johnvsjonvsme.bsky.social we're trying to get more media to cover it-
www.johnvsjon.com

JohnVsJonVsME

The race to see who will cover "the greatest medical scandal of the 21st century" -George Monbiot Check out our latest op-ed in The Sick Times about how & why we started #JohnVsJonVsME People with Mya...

www.johnvsjon.com

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María Richardson @diatoma.bsky.social · 26d

Gracias for your voice & clarity, querido @georgemonbiot.bsky.social. Any thoughts on why it’s so hard to get more people to care about #GreatestMEdicalScandal? At @johnvsjonvsme.bsky.social we’ve been trying to get @weeklyshowpodcast.bsky.social @lastweektonight.com to cover it.
www.johnvsjon.com

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María Richardson @diatoma.bsky.social · 26d

Still dreaming of #GreatestMEdicalScandal & Wessely malfeasance coverage
#JohnVsJonVsME @johnvsjonvsme.bsky.social
I’ve kept deteriorating through this pandemic & am doing less advocacy work, but please see
www.johnvsjon.com
@ryankenacts.bsky.social @lastweektonight.com @markruffalo.bsky.social

George Monbiot @georgemonbiot.bsky.social · 27d

Just as we are beginning to understand the biochemical basis of this horrendous condition, the government appoints the man perhaps most responsible for the mischaracterisation of ME/CFS – Simon Wesseley - to its *overdiagnosis* commission. www.benefitsandwork.co.uk/news/controv...

Controversial professor to investigate overdiagnosis of mental health and neurodivergence for Labour

Get the benefits you're entitled to: help with personal independence payment (PIP), universal credit (UC), employment and support allowance (ESA),disability living allowance (DLA). Claims, assessments...

www.benefitsandwork.co.uk

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María Richardson @diatoma.bsky.social · 26d

Still dreaming Jon Stewart will look into Wessely’s malfeasance @weeklyshowpodcast.bsky.social. The @georgemonbiot.bsky.social thread on #GreatestMEdicalScandal this is responding to is excellent. #JohnVsJonVsME @johnvsjonvsme.bsky.social
www.johnvsjon.com

Emma Doty @emmadoty.bsky.social · 26d

www.spiked-online.com/2002/05/23/w...
Obviously aged like milk now that first responders have been dying for the last 24 years

World Trade Centre syndrome

We are healthier than ever - but fear is making us ill.

www.spiked-online.com

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@JohnVsJonVsME @johnvsjonvsme.bsky.social · Aug 13

Name them in the comments below and tag them and their institutions if they’re on this site! Also like & second proposals you agree with below :). And repost this invitation for reach, please!

We'll be reaching out to @weeklyshowpodcast.bsky.social to share this post and top guest proposals.

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@JohnVsJonVsME @johnvsjonvsme.bsky.social · Aug 13

In honor of the big week we’ve had in #ME / #LongCOVID world— @decodemestudy.bsky.social results last week; #KeystoneSymposia on #LongCOVID this week—who would you like to see Jon Stewart interview on @weeklyshowpodcast.bsky.social to highlight these historic events?

Light blue image with a screenshot of Jon Stewart on The Weekly Show Pod listening attentively. At the top the title 'Guest Proposals for Jon Stewart and Weekly Show Pod on #GreatestMEdicalScandal, M.E., Long Covid. " Where the two guests would go in the show, there's a sillhouette with a question mark and the indication "Tag or name specialists you propose in the comments."

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María Richardson @diatoma.bsky.social · Aug 14

I also propose @ahandvanish.bsky.social and other members of @patientled.bsky.social to discuss #LongCovid and #ME research with Jon Stewart on @weeklyshowpodcast.bsky.social

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María Richardson @diatoma.bsky.social · Aug 14

Other specialists proposed as guests by #pwME #pwLC on IG (which I second!): Gez Medinger, @binitakane.bsky.social @decodemestudy.bsky.social @longcovidkids.bsky.social @rthm.bsky.social

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María Richardson @diatoma.bsky.social · Aug 14

Other journalists I recommend are @thesicktimes.org founders
@betsyladyzhets.bsky.social @mileswgriffis.bsky.social
❤️

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María Richardson @diatoma.bsky.social · Aug 14

. @openmedf.bsky.social & its centers around the world are leaders in #ME and #LongCovid research & global collaboration. @janetdafoe.bsky.social can speak both about the research & #SevereME caretaking experience (and how many folks around the world have zero support from their healthcare systems).

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María Richardson @diatoma.bsky.social · Aug 14

I also second and strongly encourage inviting David Tuller and @georgemonbiot.bsky.social to discuss #GreatestMEdicalScandal

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María Richardson @diatoma.bsky.social · Aug 14

Seconding also that @meactnet.bsky.social
and their Scientific & Medical Outreach director
@exceedhergrasp1.bsky.social would be great guests to discuss #LongCovid #ME #GreatestMEdicalScandal (including what the current political situation in the U.S. has meant for IACI advocacy and progress)

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María Richardson @diatoma.bsky.social · Aug 13

Seconding all of these proposals enthusiastically! #GreatestMEdicalScandal

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Melissa Mazur @phillyphile215.bsky.social · Aug 13

#pwME #pwLC #NEISVoid tell us what you think 👇

@JohnVsJonVsME @johnvsjonvsme.bsky.social · Aug 13

In honor of the big week we’ve had in #ME / #LongCOVID world— @decodemestudy.bsky.social results last week; #KeystoneSymposia on #LongCOVID this week—who would you like to see Jon Stewart interview on @weeklyshowpodcast.bsky.social to highlight these historic events?

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@JohnVsJonVsME @johnvsjonvsme.bsky.social · Aug 13

Name them in the comments below and tag them and their institutions if they’re on this site! Also like & second proposals you agree with below :). And repost this invitation for reach, please!

We'll be reaching out to @weeklyshowpodcast.bsky.social to share this post and top guest proposals.

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@JohnVsJonVsME @johnvsjonvsme.bsky.social · Aug 13

In honor of the big week we’ve had in #ME / #LongCOVID world— @decodemestudy.bsky.social results last week; #KeystoneSymposia on #LongCOVID this week—who would you like to see Jon Stewart interview on @weeklyshowpodcast.bsky.social to highlight these historic events?

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Reposted by @JohnVsJonVsME

Katie Klocksin, by the wayside @katieklocksin.bsky.social · Jul 22

Alt text for first tweet: screen shot of Bridget O’Shea’s last tweet, from handle @Bridget_OShea, at 8:29 a.m. on 7/13/25, the day before she died:

I called my mom. I told her I'm afraid I'm going to die. Her response? She hung up. 😫#MECFS

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Katie Klocksin, by the wayside @katieklocksin.bsky.social · Jul 22

… “Indeed, no one should have the responsibility to know so intimately this daily, hourly, physical torture. The weight of it all is too much to bear.”

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Katie Klocksin, by the wayside @katieklocksin.bsky.social · Jul 22

From the link above, “the very idea that the NIH, NHS, and numerous health agencies worldwide have largely succeeded in burying such a longstanding humanitarian and societal catastrophe is something I don’t think I’ll ever comprehend….”

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Katie Klocksin, by the wayside @katieklocksin.bsky.social · Jul 21

Here’s Bridget in her own words on the #GreatestMEdicalScandal. How many more kind and brilliant souls do we have to lose before this gets the compassion, help, NEWS COVERAGE, and treatment patients deserve?
#JohnVsJonVsME
2/

bridgetoshea.com/blog/buried-...

Buried Alive by Government “Experts” — Bridget O'Shea

At first, I’d been on a plane, in a window seat, grounded and waiting to deboard. I thought this for a long time. Now, though, the scene takes me to the backseat of a car – my parent’s car – on the hi...

bridgetoshea.com

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Katie Klocksin, by the wayside @katieklocksin.bsky.social · Jul 21

The #GreatestMEdicalScandal has taken another person who should have been in the prime of their brilliant life. She spent so much of her last years howling for better understanding & treatment of this neglected disease. 1/
#JohnVsJonVsME

www.dignitymemorial.com/obituaries/c...

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@JohnVsJonVsME @johnvsjonvsme.bsky.social · May 27

We’re sending out a #DisabilitySOS to @naomiaklein.bsky.social! Will you help us raise awareness about #GreatestMEdicalScandal & bring #MillionsMissing back to safety (and life)? 🙏🛟 Learn more at johnvsjon.com #JohnVsJonVsME #MyalgicEncephalomyelitis #MEAwarenessMonth

Alt. Text: A lifeguard safety MEme. At the top, “We need a whole team of lifeguards to sound the alarm” in black text. Below the top, “#GreatestMEdicalScandal #MillionsMissing #DisabilitySOS” in red text. On right side, “I nominate Naomi Klein for this” in red text. On left side, an image of Naomi Klein as a lifeguard holding a red and white safety floatation ring. The background is a photograph of an enormous ocean wave crashing near the shoreline. At the bottom, “#JohnVsJonVsME” in black text.

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Melissa Mazur @phillyphile215.bsky.social · May 28

@ghostpanther.bsky.social #GreatestMEdicalScandal is right up your alley—coverups by the powers that be, preventing effective treatments/cures, and even a villainous knight! @emilyesfraser.bsky.social does a fantastic job of highlighting some of its worst parts! Please help us fight this stigma! 🙏

@JohnVsJonVsME @johnvsjonvsme.bsky.social · May 27

We’re sending out a #DisabilitySOS to @ghostpanther.bsky.social! Will you help us raise awareness about #GreatestMEdicalScandal & bring #MillionsMissing back to safety (and life)? 🙏🛟 Learn more at johnvsjon.com #JohnVsJonVsME #MyalgicEncephalomyelitis #MEAwarenessMonth

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María Richardson @diatoma.bsky.social · May 28

I’d love for @vidyakrishnan.bsky.social to look into #GreatestMEdicalScandal bc she’s an amazing health journalist & bc there’s especially limited support for #pwME in South Asia, perhaps Asia in general. @nlizaki.bsky.social can attest to the lack of care in Pakistan 💔.
www.johnvsjon.com

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Melissa Mazur @phillyphile215.bsky.social · May 29

Join our fight @jennyhagel.bsky.social! 🙏

@JohnVsJonVsME @johnvsjonvsme.bsky.social · May 28

We’re sending out a #DisabilitySOS to @jennyhagel.bsky.social! Will you help us raise awareness about #GreatestMEdicalScandal & bring #MillionsMissing back to safety (and life)? 🙏🛟 Learn more at johnvsjon.com #JohnVsJonVsME #MyalgicEncephalomyelitis #MEAwarenessMonth

A Lifeguard safety MEme. At the top, “We need a whole team of lifeguards to sound the alarm” in black text. Below the top, “#GreatestMEdicalScandal #MillionsMissing #DisabilitySOS” in red text. On right side, “I nominate Jenny Hagel for this” in red text. On left side, an image of Jenny Hagel as a lifeguard holding a red and white safety floatation ring. The background is a photograph of an enormous ocean wave crashing near the shoreline. At the bottom, “#JohnVsJonVsME” in black text.

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