Jenelle Dorner
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jenelledorner.bsky.social
Jenelle Dorner
@jenelledorner.bsky.social
46 followers 66 following 17 posts
Health Coach, Patient Advocate, and Science Writer. Living with Joy, Passion & Confidence! I am a voice for those living with chronic health conditions. Advocating for mitochondrial disease, hEDS, gastroparesis, dystonia, dysautonomia and more.
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physiciandemocracy.medsky.social
Physicians for a Healthy Democracy @physiciandemocracy.medsky.social · 11d
Before they paved paradise and put up a parking lot.
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indivisible.org
Indivisible ❌👑 @indivisible.org · 17d
This is what democracy looks like. #NoKings
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victinibcn.bsky.social
Luca Migo ❌👑 @victinibcn.bsky.social · 17d
Philadelphia Pennsylvania: #NoKings is a huge success! Let’s go!
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cajunblue.bsky.social
CajunBlue 🇺🇸 🇺🇦 @cajunblue.bsky.social · 17d
🚨What’s up Washington D.C.?!? Message clear: No Kings. 1/2
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victinibcn.bsky.social
Luca Migo ❌👑 @victinibcn.bsky.social · 17d
Chicago Illinois: #NoKings. You guys never stop to amaze me! Never stop you are wonderful!
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marcelias.bsky.social
Marc Elias @marcelias.bsky.social · Jan 25
The most common question I receive is how everyday citizens can help in the fight for democracy. My advice, take the first step, start with something small and see what works for you. Here are ten things all of us can do. www.democracydocket.com/opinion/10-t...
Ten Things We Can All Do to Protect Democracy
From Marc | The most common question I receive is how everyday citizens can help in the fight for democracy.
www.democracydocket.com
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jenelledorner.bsky.social
Jenelle Dorner @jenelledorner.bsky.social · 23d
Something to celebrate! 🎉 First approved drug for mitochondrial disease could pave way for more treatments. buff.ly/f6qmmWP
buff.ly
jenelledorner.bsky.social
Jenelle Dorner @jenelledorner.bsky.social · 23d
Fear only has the power we give it. Hope works the same way. -Bob Goff
Cursive text reads “Fear only has the power we give it. Hope works the same way. -Bob Goff” It is written on a watercolor rainbow pattern background.
Reposted by Jenelle Dorner
notablyuncool.bsky.social
Hannah Who @notablyuncool.bsky.social · Jun 2
Pride is in full bloom.
Pride flag made up of flowers, from the Toronto Botanical Garden website.
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septimusbrown.com
Septimus Brown @septimusbrown.com · Jun 2
Happy pride month ❤️🏳️‍⚧️🏳️‍🌈
A sign in the background says New Hope church, God says homosexuality is in. In the foreground there are two men smiling holding the letter s that they've taken from the sign
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Reposted by Jenelle Dorner
ndrnadvocates.bsky.social
National Disability Rights Network @ndrnadvocates.bsky.social · May 19
Think Medicaid is just for doctor visits? Think again.

- The wheelchair that helps someone get to work
- The personal aide that allows someone to live within their own home
- The therapy that helps a child speak their first words

Tell Congress NO CUTS today: ow.ly/rMYr50VV2v9
A collage of four black-and-white photos showing people with disabilities and their supports in everyday settings. Top left: An older adult using a cane receives support from a caregiver. Top right: A young woman smiles and uses sign language. Bottom left: A therapist and child build a block tower together. Bottom right: A man in a wheelchair uses a tablet while talking with a coworker in a warehouse.
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jenelledorner.bsky.social
Jenelle Dorner @jenelledorner.bsky.social · May 15
Reposted by Jenelle Dorner
npr.org
NPR @npr.org · Apr 29
Speaking to NPR in his first media interview since his detention, lawful permanent U.S. resident Mohsen Mahdawi finds peace in meditation and hopes "America will fulfill its promise."
Detained on verge of U.S. citizenship, Mohsen Mahdawi speaks from Vermont prison
Speaking to NPR in his first media interview since his detention, lawful permanent U.S. resident Mohsen Mahdawi finds peace in meditation and hopes "America will fulfill its promise."
www.npr.org
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sagan.bsky.social
Saganism @sagan.bsky.social · Apr 28
We are the cosmos made conscious and life is the means by which the universe understands itself.

- Prof. Brian Cox
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Reposted by Jenelle Dorner
ehlersdanlos.bsky.social
The Ehlers-Danlos Society @ehlersdanlos.bsky.social · Mar 20
Learn more about symptoms, diagnosis, and management of #HypermobilitySpectrumDisorder ( #HSD) in this video with Dr. Clair Francomano. youtu.be/93u8edKfbMQ?...
Signs You May Have HSD (Hypermobility Spectrum Disorder) | Symptoms, Diagnosis & Management
YouTube video by Doctor Clair
youtu.be
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Reposted by Jenelle Dorner
sedsconnective.org
SEDSConnective @sedsconnective.org · Apr 2
It’s Autism acceptance & as the foremost charity with Patron @bendybrain.bsky.social & Chair @jgjanegreenmbe.bsky.social we’re proud to share our pioneering advocacy. Watch the @ehlersdanlos.bsky.social GLC keynote closing conference here: www.youtube.com/watch?v=McKt...
#AutismAcceptance #Autistic
2023 Connecting The Dots between Autism, ADHD, Dyspraxia and EDS and HSD - Jane Gre...
YouTube video by The Ehlers-Danlos Society
www.youtube.com
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Reposted by Jenelle Dorner
jamellebouie.net
jamelle @jamellebouie.net · Apr 22
they want you sick and preferably dead www.reuters.com/business/hea...
US FDA suspends milk quality tests amid workforce cuts
The Food and Drug Administration is suspending a quality control program for testing of fluid milk and other dairy products due to reduced capacity in its food safety and nutrition division, according to an internal email seen by Reuters.
www.reuters.com
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npr.org
NPR @npr.org · Apr 21
Workers who track data on car crashes, drownings, traumatic brain injury, falls in the elderly, and other perils lost their jobs. Advocates worry life-saving work will stop.
With CDC injury prevention team gutted, 'we will not know what is killing us'
Workers who track data on car crashes, drownings, traumatic brain injury, falls in the elderly, and other perils lost their jobs. Advocates worry life-saving work will stop.
www.npr.org
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in-otter-news.bsky.social
In Otter News @in-otter-news.bsky.social · Apr 22
Hammock hugs are the best hugs.
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heniek-htw.bsky.social
htw @heniek-htw.bsky.social · Jan 24
Understanding #mitochondrial dysfunction in #Huntington's disease may guide potential treatment strategies. Targeting this dysfunction may help to slow disease progression and enhance the quality of life for individuals affected by Huntington's disease.
www.sciencedirect.com/science/arti...
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thesicktimes.org
The Sick Times @thesicktimes.org · Mar 6
😷 Here’s what’s happening this week in #LongCOVID research: bit.ly/4btSNl3

💌 Sign up for our newsletter and get updates delivered directly to your inbox every week! thesicktimes.org/newsletter/
Children with Long COVID have lung abnormalities, according to new research in Radiology. The small, prospective study included 54 participants, 27 with Long COVID and 27 matched controls. Researchers assessed them with an advanced MRI technique that measures both ventilation (flow of air into the lungs) and perfusion (blood flow). Children with Long COVID had worse ventilation and perfusion, and these readings were correlated with worse symptoms. A new review in Biomolecules highlighted the overlap of immune dysfunction and metabolic dysfunction in myalgic encephalomyelitis (ME). “Mitochondrial dysfunction is a critical factor in the pathophysiology of ME/CFS,” the authors wrote, explaining that this dysfunction can cause a variety of problems in people with ME including fatigue and exercise intolerance. They wrote: “The further exploration of…immune–metabolic disruptions could unveil novel insights into ME/CFS pathophysiology, offering potential biomarkers for diagnosis and targets for therapeutic intervention.” Another Long COVID clinical trial testing the drug Amantadine is currently recruiting. Amantadine is used to treat symptoms of Parkinson’s disease — researchers think it could help cognitive function in Long COVID. A second, separate trial, is still recruiting in Columbus, Ohio. The new single-blinded trial will enroll 30 participants in Dallas, Texas. Contact: brittany.wright@utsouthwestern.edu.
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cvasilescu.bsky.social
Catalina Vasilescu, PhD @cvasilescu.bsky.social · Mar 7
Mitochondrial complex I deficiency stratifies idiopathic Parkinson’s disease | Nature Communications

1) CI deficient subtype - 1/4 of cases present widespread neuronal CI deficiency with non-tremor dominant motor phenotypes. And 👇
www.nature.com/articles/s41...
Mitochondrial complex I deficiency stratifies idiopathic Parkinson’s disease - Nature Communications
Idiopathic Parkinson’s disease can be stratified according to the severity of neuronal respiratory complex I deficiency. The emerging disease subtypes show distinct molecular and clinical profiles.
www.nature.com
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nbcnews.com
NBC News @nbcnews.com · Mar 10
The prince had PolG disease, a genetic mitochondrial disorder that prevents the body's cells from producing adequate energy.
Prince Frederik of Luxembourg dies at 22 from rare mitochondrial disease
The prince had PolG disease, a genetic mitochondrial disorder that prevents the body's cells from producing adequate energy.
nbcnews.to
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