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Upcoming Events for the Bleeding Disorders Community | NBDF

Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 2d

Who Is Left Out of Bleeding Disorders Care?
In this week's NBDF @htrstoday.bsky.social Research Journal Club medical, health access, and lived experience experts discuss health equity.
Bring your questions to advance this important conversation
Nov 5, 2PM ET
Pre-register (free): bleeding.org/events

Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.

Upcoming Events for the Bleeding Disorders Community | NBDF

Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 7d

Access to care too often depends on who you are or where you live
Wed Nov 5 2PM ET
The NBDF @htrstoday.bsky.social Research Journal Club will discuss these challenges in bleeding disorders care with health access, clinical care, and lived experience experts.
Pre-register (free): bleeding.org/events

Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.

Discover a Treatment Option from HEMA Biologics for the Hemophilia Community | NBDF

Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 21d

TODAY! 2PM ET
In this week's NBDF Wednesday Webinar we will
Discover a Treatment Option from HEMA Biologics for the Hemophilia Community with Dr Guy Young.
www.bleeding.org/events/disco...

Speakers: Guy Young, MDDescription: Join Dr. Young, speaking on behalf of HEMA Biologics, for an informative conversation about a treatment option for hemophilia A or B with inhibitors. This session w...

The Odyssey of FX: Voices, Symptoms, and the Evolution of Care | NBDF

Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 28d

TODAY 2PM ET
Don't miss this rare opportunity to learn about an ultra-rare bleeding disorder from lived experience and medical experts!

Fiona Robinson, PhD @fionarobinsonphd.bsky.social · Oct 3

Next week's NBDF Wednesday Webinar offers a unique opportunity to learn about The Odyssey of FX: Voices, Symptoms, and the Evolution of Care from medical and lived experience experts.
Wed, Oct 8
2PM ET
Pre-register (free): www.bleeding.org/events/the-o...
#FactorX
#Ultrarare
#BleedingDisorder
#LEE

Speakers: Brian Branchford, MD; Ariel Loraine

The Odyssey of FX: Voices, Symptoms, and the Evolution of Care | NBDF

Fiona Robinson, PhD @fionarobinsonphd.bsky.social · Oct 3

Next week's NBDF Wednesday Webinar offers a unique opportunity to learn about The Odyssey of FX: Voices, Symptoms, and the Evolution of Care from medical and lived experience experts.
Wed, Oct 8
2PM ET
Pre-register (free): www.bleeding.org/events/the-o...
#FactorX
#Ultrarare
#BleedingDisorder
#LEE

Speakers: Brian Branchford, MD; Ariel Loraine

Upcoming Events for the Bleeding Disorders Community | NBDF

Fiona Robinson, PhD @fionarobinsonphd.bsky.social · Oct 1

TODAY!
2PM ET
It's not too late to pre-register (free) at the link below!

Fiona Robinson, PhD @fionarobinsonphd.bsky.social · Sep 26

Big changes are coming to insurance plans. In next week's NBDF Wednesday Webinar a whole team of experts will walk you through what's on the horizon for Marketplace and employer-sponsored plans, so you're ready for Open Enrollment.
2PM ET, Oct 1
Don't miss the live Q&A
Register: bleeding.org/events

Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.

Upcoming Events for the Bleeding Disorders Community | NBDF

Reposted by Fiona Robinson, PhD

Fiona Robinson, PhD @fionarobinsonphd.bsky.social · Sep 26

Big changes are coming to insurance plans. In next week's NBDF Wednesday Webinar a whole team of experts will walk you through what's on the horizon for Marketplace and employer-sponsored plans, so you're ready for Open Enrollment.
2PM ET, Oct 1
Don't miss the live Q&A
Register: bleeding.org/events

Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.

Upcoming Events for the Bleeding Disorders Community | NBDF

Fiona Robinson, PhD @fionarobinsonphd.bsky.social · Sep 26

Big changes are coming to insurance plans. In next week's NBDF Wednesday Webinar a whole team of experts will walk you through what's on the horizon for Marketplace and employer-sponsored plans, so you're ready for Open Enrollment.
2PM ET, Oct 1
Don't miss the live Q&A
Register: bleeding.org/events

Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.

Discover a Treatment Option from HEMA Biologics for the Hemophilia Community | NBDF

Fiona Robinson, PhD @fionarobinsonphd.bsky.social · Sep 10

TODAY!
2PM ET
It's not too late to pre-register (free) at the link below.

Fiona Robinson, PhD @fionarobinsonphd.bsky.social · Sep 8

NBDF Wednesday Webinars are back!
Join me Sept 10, 2PM ET
as Dr Guy Young provides helpful insights to better understand the HEMA Biologics treatment option for hemophilia A or B with inhibitors.
www.bleeding.org/events/disco...

Learn about a treatment option for hemophilia A or B with inhibitors in this insightful talk with Dr. Young.

Discover a Treatment Option from HEMA Biologics for the Hemophilia Community | NBDF

Fiona Robinson, PhD @fionarobinsonphd.bsky.social · Sep 8

NBDF Wednesday Webinars are back!
Join me Sept 10, 2PM ET
as Dr Guy Young provides helpful insights to better understand the HEMA Biologics treatment option for hemophilia A or B with inhibitors.
www.bleeding.org/events/disco...

Learn about a treatment option for hemophilia A or B with inhibitors in this insightful talk with Dr. Young.

Upcoming Events for the Bleeding Disorders Community | NBDF

Fiona Robinson, PhD @fionarobinsonphd.bsky.social · Aug 13

TODAY 2PM ET!
In the NBDF Wednesday Webinar we learn from medical research and lived experience experts about research into why some people with severe hemophilia A develop inhibitors, and others do not.
Bring your questions for the live Q&A!
Pre-register (free): bleeding.org/events

Fiona Robinson, PhD @fionarobinsonphd.bsky.social · Aug 6

Why do some people with severe hemophilia A develop inhibitors and not others? In the next National Bleeding Disorders Foundation Wednesday Webinar lived experience and medical experts explain research into this question and the My Life, Our Future genetic database
Aug 13 2PM
bleeding.org/Events

Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.

Bleeding.org

Fiona Robinson, PhD @fionarobinsonphd.bsky.social · Jul 30

TODAY 2PM ET!
Don't miss this chance to learn from Dr Tammuella Chrisentery-Singleton, about @HEMABiologics #treatment option for #hemophilia A and B with #inhibitors in the NBDF Wednesday Webinar.
Bring your questions for the live Q&A!
Pre-register (free): bleeding.org/events

Upcoming Events for the Bleeding Disorders Community | NBDF

Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.

Welcome! You are invited to join a webinar series: NBDF Wednesday Webinars 2025. After registering, you will receive a confirmation email about joining the webinar.

Fiona Robinson, PhD @fionarobinsonphd.bsky.social · Jul 24

Do you know all the available #hemophilia #treatment products?
In next week's NBDF Wednesday Webinar we will hear all about HEMA Biologics' treatment option for the hemophilia community from one of the very best medical educators: Dr Tami Chrisentery-Singleton!
Pre-register (free): bit.ly/4mSA5cr

Welcome to the National Bleeding Disorders Foundation Wednesday Webinars: a series of free weekly educational 1-hr webinars (40 min live presentation, followed by 20 min moderated Q&A) that aims to bring knowledge about the latest in research, breakthrough developments, and more to the inheritable bleeding and blood disorders community. The audience consists of healthcare professionals and lived experience experts (patients, families, caregivers) from around the world. Topics range from research into new therapies and diagnostics, to lived experiences of people with bleeding and blood disorders, and the latest advocacy and community organization news. Webinars are held on Wednesdays at 2PM ET. Your registration gives you access to all webinars in the series.

bit.ly

Fiona Robinson, PhD @fionarobinsonphd.bsky.social · Jul 22

For decades living with #hemophilia meant IV infusions for many people, but now some treatments are given by subcutaneous injection.
In tomorrow's NBDF Wednesday Webinar Dr Akshat Jain will tell us all about one of these!
July 23
2PM ET
Pre-register (free): www.bleeding.org/events/a-new...

A New Rebalancing Therapy Delivered by Subcutaneous Injection for Hemophilia A and B | NBDF

This presentation will cover the benefits and safety of this new treatment, as well as how to get started and what life could look like with this product.

Research in Children and Adolescents with Inherited Bleeding Disorders | NBDF

Fiona Robinson, PhD @fionarobinsonphd.bsky.social · Jul 16

TODAY!!
2PM ET

Fiona Robinson, PhD @fionarobinsonphd.bsky.social · Jul 14

Can #BleedingDisorders #research benefit #children? What kind of research is being done? Are there special considerations for research with #youth?
Join me this Wednesday and ask medical and lived experience experts your questions about bleeding disorders research in children and adolescents!

Fiona Robinson, PhD @fionarobinsonphd.bsky.social · Jul 9

July 16 2PM ET
In the 2nd @htrstoday.bsky.social NBDF Research Journal Club we will learn about research in children and adolescents with bleeding disorders from medical and lived experience experts.
Bring your questions for the live Q&A
Pre-register (free):
www.bleeding.org/events/resea...

Fiona Robinson, PhD @fionarobinsonphd.bsky.social · Jul 14

Can #BleedingDisorders #research benefit #children? What kind of research is being done? Are there special considerations for research with #youth?
Join me this Wednesday and ask medical and lived experience experts your questions about bleeding disorders research in children and adolescents!

Fiona Robinson, PhD @fionarobinsonphd.bsky.social · Jul 9

July 16 2PM ET
In the 2nd @htrstoday.bsky.social NBDF Research Journal Club we will learn about research in children and adolescents with bleeding disorders from medical and lived experience experts.
Bring your questions for the live Q&A
Pre-register (free):
www.bleeding.org/events/resea...

This session explores the latest advances and challenges in research focused on children and adolescents with inherited bleeding disorders, such as hemophilia, von Willebrand disease, and other rare c...

Research in Children and Adolescents with Inherited Bleeding Disorders | NBDF

Fiona Robinson, PhD @fionarobinsonphd.bsky.social · Jul 9

July 16 2PM ET
In the 2nd @htrstoday.bsky.social NBDF Research Journal Club we will learn about research in children and adolescents with bleeding disorders from medical and lived experience experts.
Bring your questions for the live Q&A
Pre-register (free):
www.bleeding.org/events/resea...

This session explores the latest advances and challenges in research focused on children and adolescents with inherited bleeding disorders, such as hemophilia, von Willebrand disease, and other rare c...

Upcoming Events for the Bleeding Disorders Community | NBDF

Fiona Robinson, PhD @fionarobinsonphd.bsky.social · Jun 4

TODAY! 2PM ET
In the National Bleeding Disorders Foundation Wednesday Webinar,
hear from medical and lived experience experts about people with VWD reshaping research and care.
Pre-register (free): bleeding.org/events

#VWD
#LivedExperienceExpertt
#ClinicalTrial
#PatientCentered
#Outcomes

Fiona Robinson, PhD @fionarobinsonphd.bsky.social · May 28

What if people with #VWD had a say in the outcomes #ClinicalTrials measure? Could they agree on outcomes to recommend?
In the June 4 NBDF Wednesday Webinar Mark Skinner, Elizabeth Clearfield, Baiba M. Ziemele, and Dr @james-paula.bsky.social explain how coreVWD did exactly this!
bleeding.org/events

Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.

A New Era in Menstrual Care: The Revolutionary Science of Wearable Neurostimulation | NBDF

Fiona Robinson, PhD @fionarobinsonphd.bsky.social · May 28

TODAY!! 2PM ET

Wearable neurostimulation to treat heavy menstrual bleeding and cramps - for real? Come find out!

Fiona Robinson, PhD @fionarobinsonphd.bsky.social · May 22

In the next National Bleeding Disorders Foundation Wednesday Webinar Dr Navid Khodaparast and Amy Gaston will tell us about a new wearable neurostimulation to address heavy menstrual bleeding and painful periods
May 28 2PM ET
Pre-register (free):
www.bleeding.org/events/a-new...
@ohmbody.bsky.social

Learn more about the clinical trial work and exciting results that demonstrate the potential of wearable neurostimulation to address heavy menstrual bleeding and painful periods. Be among the first to...

A New Era in Menstrual Care: The Revolutionary Science of Wearable Neurostimulation | NBDF

Reposted by Fiona Robinson, PhD

Fiona Robinson, PhD @fionarobinsonphd.bsky.social · May 22

In the next National Bleeding Disorders Foundation Wednesday Webinar Dr Navid Khodaparast and Amy Gaston will tell us about a new wearable neurostimulation to address heavy menstrual bleeding and painful periods
May 28 2PM ET
Pre-register (free):
www.bleeding.org/events/a-new...
@ohmbody.bsky.social

Learn more about the clinical trial work and exciting results that demonstrate the potential of wearable neurostimulation to address heavy menstrual bleeding and painful periods. Be among the first to...

A New Era in Menstrual Care: The Revolutionary Science of Wearable Neurostimulation | NBDF

Fiona Robinson, PhD @fionarobinsonphd.bsky.social · May 22

In the next National Bleeding Disorders Foundation Wednesday Webinar Dr Navid Khodaparast and Amy Gaston will tell us about a new wearable neurostimulation to address heavy menstrual bleeding and painful periods
May 28 2PM ET
Pre-register (free):
www.bleeding.org/events/a-new...
@ohmbody.bsky.social

Learn more about the clinical trial work and exciting results that demonstrate the potential of wearable neurostimulation to address heavy menstrual bleeding and painful periods. Be among the first to...

Understanding HYMPAVZI™ (marstacimab-hncq) | NBDF

Fiona Robinson, PhD @fionarobinsonphd.bsky.social · May 21

TODAY!
2PM ET

Fiona Robinson, PhD @fionarobinsonphd.bsky.social · May 20

In tomorrow's National Bleeding Disorders Foundation Wednesday Webinar Bradley Schoenfeld from Pfizer will tell us all about recently approved marstacimab in the management of hemophilia.
Bring your questions for the live Q&A!
May 21, 2PM ET
Pre-register for free:
www.bleeding.org/events/under...

If you would like to learn more about HYMPAVI (marstacimab-hncq), Pfizer’s new therapy for the treatment of hemophilia, this webinar will give you further insights. This webinar will cover some high-l...