Lightnews — Scholar-powered news

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Halloweean Miles Schlong @tedcruznipples.com · 7h

It’s so funny that for the past week republicans have all been like “the only people out there are gonna be Hamas.” Everyone in this crowd is signed up for Kohl’s rewards points.

Steven Beschloss @stevenbeschloss.bsky.social · 8h

“This is what democracy looks like.”
“This is what America looks like.”
NYC

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STAT @statnews.com · 7h

Kyle Muldoon thought he might never get to watch an Eagles game with his son KJ, who was born with a rare and fatal liver disease that was treated with an individual CRISPR therapy.
#STATSummit

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Alondra Nelson @alondra.bsky.social · 2d

Resigning from the National Science Board was a difficult but necessary decision for me.

I spoke at the #STATsummit about this crisis of scientific integrity, the Trump administration's hyper-regulation of AI (yes, you read that right), an ELSI for AI and my Steph Curry theory of tech innovation.

STAT @statnews.com · 2d

Alondra Nelson Former Director White House Office of Science and Technology Policy, talked about how her military family and background always instilled the duty to serve — no matter the political party. Then she explained why she ultimately ended up having to leave.
#STATSummit

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ALS Advocacy @alsadvocacy.bsky.social · 16h

Congratulations on a well-deserved honor!

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L Brielmaier @lynnbr2.bsky.social · 1d

Me on the big screen in Boston, getting an award at the ALS TDI Summit this afternoon.
From my friend and attendee Jenny Gore Dwyer

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ALS Advocacy @alsadvocacy.bsky.social · 17h

And here she is ;-)

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ALS Advocacy @alsadvocacy.bsky.social · 1d

www.fda.gov/industry/fda...

CDER and CBER Net Hiring Data (FY 2023-2027)

Center for Drug Evaluation and Research & Center for Biologics Evaluation and Research Net Hiring Data (FY 2023-2027)

www.fda.gov

ALS Advocacy @alsadvocacy.bsky.social · 1d

ALS Advocacy @alsadvocacy.bsky.social · 2d

You were right!

ALS Advocacy @alsadvocacy.bsky.social · 2d

Nada for ALS

Sarah Karlin-Smith @sarahkarlin-smith.bsky.social · 2d

Here's the list --

www.fda.gov/news-events/...

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STAT @statnews.com · 2d

Modifying Medicaid systems for a new task like implementing Medicaid work requirements is difficult.

“To call our IT systems dinosaurs would be charitable,” said Mike Levine, undersecretary at Massachusetts’ Medicaid organization MassHealth.
#STATSummit

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ALS Advocacy @alsadvocacy.bsky.social · 2d

😕

STAT @statnews.com · 2d

#STATSummit

"We’re excited about the administration's interest in things that burn the heck out of me, like prior authorization. When we see the alignment, like Dr. Oz trying to help people pick a Medicare Advantage plan, if any. These are amazing things to see that are in total alignment. To be critical of that is foolish."

ALS Advocacy @alsadvocacy.bsky.social · 2d

#dingdingding #statsummit

STAT @statnews.com · 2d

Capricor CEO Linda Marbán talks with Adam Feuerstein about Peter Marks and the new FDA.

“The fact, Adam, that you even just had to allude to pissing somebody off in order to potentially impact the approval of your drug is a little scary, right? It should be based on the data.”
#STATSummit

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Dr. Danny Sands @drdannysands.bsky.social · 2d

Heartbreaking panel at #STATSummit about what has happening and *is still* happening to @NIH, formerly the envy of the world, as brilliant scientists and critical programs and grants are being terminated. I am sad and angry. #cruelty #arewegreatyet

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STAT @statnews.com · 2d

#STATSummit

There's nothing to say that when the government opens back up, there won't be more damage. — Eric Green

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STAT @statnews.com · 2d

#STATSummit

It's been like living in a washing machine, it's been constant chaos. And there is no reason to think this is going to change in terms of the constant chaos being imposed.

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STAT @statnews.com · 2d

At the #STATSummit, former NIH National Human Genome Research Institute director Eric Green talks to STAT’s @aniloza.bsky.social about the cuts at the NIH.

“There’s no reason to think we’ve bottomed out,” he said. “We can’t rebuild until we know what we even have left.”

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STAT @statnews.com · 2d

Read more about Green’s ouster from the NIH earlier this year: www.statnews.com/2025/06/26/n...

#STATSummit

Eric Green was the first institute director forced out of NIH. He still hasn’t been told why

Eric Green said the process leading to his ouster as a NIH institute director by the Trump administration remains "shrouded in mystery"

www.statnews.com

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STAT @statnews.com · 2d

A #STATSummit attendee asks: Are there risks to the AMA not being more vocal?

AMA president Bobby Mukkamala says the org can be more vocal with patients, but it doesn't want to be critical. AMA is excited about the administration's efforts to help doctors, he says:

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Susannah Fox @susannahrfox.bsky.social · 4d

There's precedent for patients demanding - and winning - access to a drug that saved them in a clinical trial: Gleevec. I hope patients win here, too.

The Sick Times @thesicktimes.org · 8d

A group of 53 people with #LongCOVID joined a clinical trial for Vyvgart. For many of them, the treatment changed everything.

Then, without warning, Argenx canceled the trial.

Most of them have now relapsed.

They're calling on the NIH and HHS to study the drug: bit.ly/48l1Qp5

A photo Nicole Barrick, a woman in a pink KN95 mask, receives an infusion of Vyvgart. The text reads, "The Sick Times. Vyvgart brought us back to life, but the Long COVID trial was canceled. We are calling on the NIH and HHS to study the drug. By Clare Banaszewski, Nicole Barrick, Mike Bilik, Addie Davis, Mia Delli Gatti, Ellie Hayes, Roman White."

"For those living with Long COVID, every ounce of hope is hard-won. This isn’t just about physical symptoms. It’s about the emotional toll of being given hope — and then having it taken away." - Vyvgart clinical trial participants
Clare Banaszewski, Nicole Barrick, Mike Bilik, Addie Davis, Mia Delli Gatti, Ellie Hayes, Roman White

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ALS Advocacy @alsadvocacy.bsky.social · 2d

Such insights from @alondra.bsky.social on this moment in AI and healthcare… I could listen to this and think all day. #statsummit

Alondra Nelson (@alondra.bsky.social)

This profile requires authentication to view.

alondra.bsky.social

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ALS Advocacy @alsadvocacy.bsky.social · 2d

standupforscience.net
Just got a pretty solid testimonial as a productive org for fixing NIH chaos by some victims of NIH chaos #statsummit

STAND UP FOR SCIENCE

standupforscience.net

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STAT @statnews.com · 3d

#Breaking: Medicare payments to doctors paused as government shutdown drags on www.statnews.com/2025/10/15/c...

Medicare payments to doctors paused as government shutdown drags on

The Centers for Medicare and Medicaid Services is pausing Medicare payments to doctors, as negotiations tied to the government shutdown drag on.

www.statnews.com

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Liz Szabo @lizszabo.bsky.social · 3d

Former acting CDC director on public health changes: ‘absolutely heartbreaking’ www.statnews.com/2025/10/15/r... via @statnews.com

Former acting CDC director on public health changes: ‘absolutely heartbreaking’

“I used to think that I couldn’t be surprised,” says RWJF’s Richard Besser. But this HHS constantly alarms him.

www.statnews.com

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ALS Advocacy @alsadvocacy.bsky.social · 3d

I got to read this carefully over the weekend. Regardless of where you are politically, there is a treasure trove of history in this.

Holly Fernandez Lynch @hollylynchez.bsky.social · 10d

New from @pzettler.bsky.social @reshmagar.bsky.social + me in @jhppl.bsky.social.
We describe themes driving historic FDA reforms, explain how what's happening under Trump2 is different + call for principles to guide FDA reform and activity across administrations.
read.dukeupress.edu/jhppl/articl...

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