Amazing day at @swog.org being a panelist on the TAKE ACTION SYMPOSIUM focused on engaging AYAs in Clinical Research. In my role as the AYA research advocate, along with Lauren Fryzel, the AYA community advocate we wanted to ensure the patient perspective was represented! #ayacsm
Left @theaacr.bsky.social with a full ❤️ It was a honor to have been a mentor for the Scientist-> Survivor program! I love helping to guide new advocates & empower them to collaborate with researchers with the same goal: to show the world how cancer research saves lives! #AACR25 #AACRSSP
Kicking off the 2025 @theaacr.bsky.social Scientist->Survivor program with our fearless leader Dr. Anna Barker . The theme of this years meeting is “Building Bridges for Progress Against Cancer” and we cannot accomplish that w/out scientists & patient advocates working together! #AACR25 #AACRSSP
Early morning flight to @theaacr.bsky.social to be a mentor for the Scientists—>Survivor program. My goal is to share the research with you all in a digesttable way! Research and innovation leads the way to better prevention, treatment and understanding of cancer! #AACR25 #AACRSSP #cancer
Excited so share my perspectives throughout @theaacr.bsky.social annual meeting as a patient advocate. Research is even more important than it has ever been so I look forward to amplifying the latest and greatest in cancer research! #AACR25 #cancer #CancerResearch
Reposted by Allison B. Rosen, Mikala Egeblad
Meet our #AACR25 Social Media Ambassadors! Follow along for real-time insights, unique takes, and highlights from the AACR Annual Meeting.
Reposted by Allison B. Rosen
Behind every smile is a story of strength. 💙
Allison Rosen’s journey as a CRC survivor & proud ostomate shows resilience in action.
If you see her rocking her signature boots, say hello!
#CRCequity #ScreeningSavesLives
Allison Rosen’s journey as a CRC survivor & proud ostomate shows resilience in action.
If you see her rocking her signature boots, say hello!
#CRCequity #ScreeningSavesLives
Join me as I moderate a colorectal cancer panel that brings together gastroenterology, oncology, surgery & cancer prevention experts to discuss the latest advancements in early detection, treatment options & risk reduction strategies.
✅Register: bit.ly/4bhLz3C
✅Register: bit.ly/4bhLz3C
My yearly post with the Texas state proclamation declaring MARCH colorectal cancer awareness month! Next step turn my city BLUE! 🫶💙🫶
#BlueforCRC #cancer #colorectalcancer
@fightcrc.bsky.social
#BlueforCRC #cancer #colorectalcancer
@fightcrc.bsky.social
Reposted by Allison B. Rosen
Reminder we are hosting a Town Hall today for @advocatecollab.bsky.social members at 10amPT / 1pmET to discuss impacts of the new administration on our advocacy. What we know, what we still need to find out, and how best to move forward. #CanSky #OncSky #PatientAdvocacy #CancerResearch
This picture with my brother and his family was taken 5 months before I was diagnosed with colorectal cancer. I had no idea my life was about to change! Crazy I think I had a 13 cm tumor growing inside me!
#Cansky #Oncosky #CancerBS #Ayacsm
#Cansky #Oncosky #CancerBS #Ayacsm
Thank you Dr. Milena Gould-Suarez for inviting me to tell my colorectal #cancer story to the Baylor College of Medicine Gastroenterology fellows! I am an open book about my journey, which includes both the good times but also the challenges! When we work together everyone wins! #crcsm #ayacsm
Reposted by Allison B. Rosen
In @jmirpub.bsky.social!
Insights From Diverse Perspectives on Social Media Messages to Inform Young Adults w Cancer About #ClinicalTrials: Focus Group Study.
Coauthors incl our advocates @arosen380.bsky.social & Desiree Walker. Funding: @supportingswog.bsky.social
formative.jmir.org/2025/1/e64265
Insights From Diverse Perspectives on Social Media Messages to Inform Young Adults w Cancer About #ClinicalTrials: Focus Group Study.
Coauthors incl our advocates @arosen380.bsky.social & Desiree Walker. Funding: @supportingswog.bsky.social
formative.jmir.org/2025/1/e64265
Insights From Diverse Perspectives on Social Media Messages to Inform Young Adults With Cancer About Clinical Trials: Focus Group Study
Background: Low rates of adolescent and young adult (AYA) clinical trial enrollment (CTE), particularly among underserved groups, have resulted in a lack of standardized cancer treatments and follow-u...
formative.jmir.org
Can you believe there’s over 80 years of patient advocacy in this photo! We are passionate, we are determined, we are relentless! @ascocancer.bsky.social @ascopost.bsky.social
#cancer #GI25 #crcsm #ayacsm
#cancer #GI25 #crcsm #ayacsm
Leaving the snow behind and coming for ya @ascocancer.bsky.social GI! Looking forward to learning, connecting & leaving with great tools to educate my #colorectalcancer & #AYACSM community! With new screening, treatment & surveillance tests on the horizon the future is bright! #GI25 #cancer
Did it really snow in Houston??? Yes, and I have a snowball to prove it!
#snow #Houston #WinterStorm
#snow #Houston #WinterStorm
Please do not tell me one more time that colorectal cancer is not happening at an alarming rate in younger people. In the past month I lost all these of these people to this disease. We need to do more!! #cancer #crcsm #ayacsm
HOT OFF THE PRESS: The American Cancer Society findings from Cancer Statistics 2025 & its companion, Cancer Facts & Figures 2025. Full report below but it includes some eyes opening facts that we much address!
Link to some great resources here: www.cancer.org/research/can...
#cancer #ayacsm
Link to some great resources here: www.cancer.org/research/can...
#cancer #ayacsm
Reposted by Allison B. Rosen
REMINDER: ACE Meeting on cancer vaccines today 1pmPT / 4pmET. Join us to hear from advocate & ACE member Judy Fitzgerald as she shares her experience as an advocate on current vaccine trials. As always presentation will be short so bulk of the time can be spent on Q&A / discussion #OncoSky #Advocacy
A fews weeks ago I had that opportunity to share my WHY and someone from The Good Listening Project turned it into a beautiful poem! I hope you are as moved as I was when I read it. I have never seen my WHY captured so beautifully! #cancer #cancersurvivor #advocate #publichealth
by Fumiko Chino — Reposted by Allison B. Rosen
🍎Houston friends! It's the season of giving & @HoustonFoodBank has x3️⃣ match right now!
1️⃣Support your local community
2️⃣Participate in #HCWvsHunger
3️⃣Log your donation for our onc team #DiagnoseAndTreats!
We have lots of hungry people right here in TX. Let's help fix that.
1️⃣Support your local community
2️⃣Participate in #HCWvsHunger
3️⃣Log your donation for our onc team #DiagnoseAndTreats!
We have lots of hungry people right here in TX. Let's help fix that.
Happy Thanksgiving from my family to yours! Sadly my Mom is sick in bed but she got to enjoy dinner in bed. I’m grateful for dance parties, neighborhood walks, & family cooking sessions & all the amazing people in my life!
#happythanksgivng #thanksgiving #family #grateful
#happythanksgivng #thanksgiving #family #grateful
News from HEDIS about a new measure for follow-up colonoscopy after a ➕ non-colonoscopy test. So many patients have that initial stool based test & it is ➕ but they never get that follow-up colonoscopy! Excited for this new measure! #NCCRT2024 #80inEveryCommunity #oncosky #oncsky
The amazing Emily Bell kicking off the American Cancer Society National Colorectal Cancer Roundtable annual meeting! So excited to be here surrounded by likeminded people dedicated to the field of colorectal cancer! Let the learning begin! #crcsm #ayacsm #cancer
Anytime I can get together with @coffeemommy.bsky.social is a treat! We met b/c of @advocatecollab.bsky.social and I’m so grateful for our friendship! One thing about cancer that surprised me was the instant friendships! We all just get each other & provide unwavering support when needed! 🫶
Was an amazing surprise when my oncologist Dr. Wolff from @mdanderson.bsky.social showed up to support Get Your Rear in Gear Houston, an event I serve as the race director! With the Colon Cancer Coalition! He is not only a life saver but an amazing human! #crcsm #ayacsm #cancer
On June 7th, I heard the words no one ever wants to hear “ You have cancer” . In that moment my life flashed before my eyes. I had no idea what life had in store for me. I am proud to say I am still here 12 years later & celebrate this milestone every year. #crcsm #ayacsm
