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valebodi.bsky.social
@valebodi.bsky.social
Surviving MyalgicE, AAG & CVID to tell the story, patient & advocate w/ a JD. Into MEdical, Social & Climate Justice & Arts. Human neutrino/ PwME = MEdical apolide/ Gnarled pacer. MEssLand Worldwide https://www.tandfonline.com/doi/pdf/10.2217/fmb-2022-0031
Reposted
The big picture on the undermining of the most successful vaccine in history is even worse.

bsky.app/profile/neil...
November 28, 2025 at 5:05 PM
affected.
This is also the reason why we deal with this topic.
Prof. Robert Roßbruch, DGHS
(German Association for Medical Assistance in Dying)
#ME/CFS #LongCOVID #MAID
November 28, 2025 at 5:54 PM
Those affected, who submitted the application to us, were not mentally ill, nor have a psychiatric diagnosis. This must be stated very clearly: #ME/CFS is a somatic disease that affects and causes severe physical suffering.
Our position is against the
psychologization and stigmatization of those
November 28, 2025 at 5:54 PM
barrier functions.

By altering the composition of microbiota.

By potentiating noninfectious drivers of PASC through immune activation and systemic inflammation.
November 27, 2025 at 6:24 PM
perturbed immune responses during acute or early convalescent COVID-19.

By triggering autoreactive adaptive immune responses via molecular mimicry or by reducing regulatory immune functions.

By inducing immunosuppressive mechanisms (e.g. measles virus).

By reducing mucosal (e.g. lung and/or gut)
November 27, 2025 at 6:24 PM
Reposted
As well as some appalling ones from the UK ME Services stock take by the ME Local Network showing that 4 years after the updated NICE guidelines, 70% of UK Adult Services are still not compliant (No surprise though given most are bacme run!)
November 27, 2025 at 6:03 PM
Not that I know of. In any case I may suggest this fun read: en.wikipedia.org/wiki/The_Gos...

PS Also I’d like to suggest the best short pasta format in the world, imo: www.shop4pasta.com/short-pasta/...
The Gospel of the Flying Spaghetti Monster - Wikipedia
en.wikipedia.org
November 27, 2025 at 5:52 PM
Reposted
Scientist @hanspeterarp.bsky.social warns, "It’s accumulating in our tap water, the food we’re eating, plants, trees, the sea, + all in the past few decades”. David Behringer adds, “If you’re drinking water, you’re drinking a lot of TFA, wherever you are in the world"

share.google/SZMY7DfaVk9U...
Rapidly rising levels of TFA ‘forever chemical’ alarm experts
Trifluoroacetic acid found in drinking water and rain is thought to damage fertility and child development
share.google
November 27, 2025 at 11:47 AM
Here’s Claire Wade’s MEpedia entry me-pedia.org/wiki/Claire_...
She also published a novel which was awarded a prize in the UK. She’s not bedbound anymore, but remains ill and disabled by ME.
Claire Wade
me-pedia.org
November 26, 2025 at 4:07 PM
YAW (you are welcome) 💙💙💙🫂💙💙💙
November 26, 2025 at 3:36 PM
FYI Here’s Caire Wade’s website www.clairewade.com/mecfs.html
ME/CFS
My experience of living with ME/CFS for over twenty yeas
www.clairewade.com
November 26, 2025 at 3:35 PM
Do we know how is Claire is doing these days or if she’s still with us?
November 26, 2025 at 3:27 PM