Sammie McFarland
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sammiemc.bsky.social
Sammie McFarland
@sammiemc.bsky.social
Long Covid Kids Founder & CEO
Hoping to be on the right side of history.
♿️#LongCovid ✳️#CleanAir 🙋🏻‍♀️Campaigner
🧠🧡🫀#LongCovidKids
🌊#ColdWater 🧜🏻‍♀️#Swimming
🧘🏻#Pilates coach - #Pacing since 2020 🦠 😷
🫅🏼#CoronationChampion 💥#Volunteer
Pinned
For the longest time my daughter couldn’t get out of bed, let alone outside.
She was isolated for most of her teens. From 12pm
@longcovidkids.bsky.social has a @biggive.bsky.social #ChristmasChallenge to raise funds to bring hope & improve experiences for children suffering.

🙏 consider supporting
Reposted by Sammie McFarland
🌟WOW
🙏 so much for all the kindness, encouragement, and generosity you’ve shown during our @biggive.bsky.social #ChristmasChallenge so far.

Thanks to supporters like you, we’ve already reached 60% of our target, an incredible milestone for our small charity

donate.biggive.org/campaign/a05...
December 6, 2025 at 9:30 AM
Reposted by Sammie McFarland
🧵Lilo the #cat might look peaceful… but her stillness tells a story.
Many children with Long Covid spend their days just like this ,watching life from the sofa, too exhausted to join in. LCK continues to advocate for better health and education support, but children need help today.
#CatsOfTwitter
December 5, 2025 at 10:45 AM
Reposted by Sammie McFarland
"We hope this growing recognition will translate into meaningful support, not just for the families already affected, but for those who may need help in the months or years ahead"
@sammiemc.bsky.social Founder & CEO, #LongCovidKids

www.dorsetecho.co.uk/news/2567209...

#Dorset #Christmas
Appeal launched to support children suffering with Long Covid
A DORSET-based charity supporting children suffering with Long Covid has launched a Christmas appeal.
www.dorsetecho.co.uk
December 5, 2025 at 12:30 PM
Reposted by Sammie McFarland
For the longest time my daughter couldn’t get out of bed, let alone outside.
She was isolated for most of her teens. From 12pm
@longcovidkids.bsky.social has a @biggive.bsky.social #ChristmasChallenge to raise funds to bring hope & improve experiences for children suffering.

🙏 consider supporting
December 2, 2025 at 9:47 AM
For the longest time my daughter couldn’t get out of bed, let alone outside.
She was isolated for most of her teens. From 12pm
@longcovidkids.bsky.social has a @biggive.bsky.social #ChristmasChallenge to raise funds to bring hope & improve experiences for children suffering.

🙏 consider supporting
December 2, 2025 at 9:47 AM
Reposted by Sammie McFarland
Thanks to Sophia, for sending in this handsome festive fox for our #Christmas Challenge campaign.

With your help we will be able to help more children like Sophia, isolated by illness.

Please consider sharing our campaign page with your network.
donate.biggive.org/campaign/a05...

#Fox #BigGive
December 1, 2025 at 7:18 PM
Reposted by Sammie McFarland
🎁Just 3 days to go until the start of our @biggive.bsky.social #ChristmasChallenge!

From 2 – 9 December, you can make one donation and have TWICE the impact via our campaign page.

Learn more: www.longcovidkids.org/christmas-ch...

#Christmas #BlackFriday
BIG GIVE CHRISTMAS CHALLENGE | Long Covid Kids
From 2–9 December 2025, every donation made to our campaign through BigGive.org will be matched £1 for £1 thanks to our Big Give champion The Reed Foundation. #ChristmasChallenge
www.longcovidkids.org
November 29, 2025 at 11:55 AM
This is the future IMHO.
Collaboration for the benefit of patients - dream team!
Such a positive experience, so nice to meet everyone in person - looking forward to seeing how the alliance grows and the changes we can achieve together!
#OverlappingIllness #OIA #StrongerTogether #LongCovidKids
📢 #OverlappingIllness Alliance parliamentary drop-in update

Over 50 MPs, Peers, and their colleagues attended the Overlapping Illness Alliance's drop-in event in Parliament yesterday!

The event raised much need awareness and understanding of the impact of
November 27, 2025 at 2:15 PM
Reposted by Sammie McFarland
2. The CLoCK study was designed prior to the development of the consensus core outcomes which did not select the #ChalderFatigueScale as the recommended outcome measure for assessing fatigue in paediatric Long Covid.
Table 3
pmc.ncbi.nlm.nih.gov/articles/PMC...
November 23, 2025 at 11:14 AM
Reposted by Sammie McFarland
"Hi my name is Marcie, I am nearly 12 years old, I was diagnosed with Long Covid last year but I have been having symptoms since 2021"

www.youtube.com/watch?v=9817...

#ChildHealth #LongCovidKids #LongCovid
Marcie's Story | Long Covid & Me | Understanding Long Covid In Children And Young People
YouTube video by Long Covid Kids
www.youtube.com
November 23, 2025 at 8:39 PM
Reposted by Sammie McFarland
🔸NEW #CLoCK paper
📍https://bit.ly/47W7tJI
Improving co-production would support the analysis to better consider broader challenges for children & young people with #LongCovid.
#PEM #PESE #PENE
Coproducing research with enough patients, with relevant lived experience is vital in study.
November 23, 2025 at 11:14 AM
Fab Rehabilitation Science Research Network for COVID. fireside chat w @sunsopeningband.bsky.social on PEM /PESE = Post Exertional Neuroimmune Exhaustion.
Excellent input on research planning from @nikki-s.bsky.social & @sabrinapoirier.bsky.social in the research breakout room!
#patientinvolvement
November 21, 2025 at 6:25 PM
Reposted by Sammie McFarland
“TOO LITTLE, TOO LATE”, VALIDATION FOR PEOPLE WITH LONG COVID
The Covid-19 Inquiry has found that the UK Government should have acknowledged Long Covid and made the risks clear to the public. It has found that by Oct 2020 the UK Government knew #LongCovid was a significant health and policy issue.
November 20, 2025 at 10:37 PM
If you haven't yet seen Baroness Hallett’s statement, here is the link:

www.youtube.com/watch?v=a6xY...
Modules 2, 2A, 2B, 2C Report - Statement from the Chair, The Rt Hon the Baroness Hallett DBE
YouTube video by UK Covid-19 Inquiry
www.youtube.com
November 21, 2025 at 1:11 PM
Reposted by Sammie McFarland
Quotes from;
@sammiemc.bsky.social Founder & CEO
@kirstyes.bsky.social OT & Health Lead
@profmarkfaghy.bsky.social Trustee, Long Covid Researcher
on behalf of #LongCovidKids
November 20, 2025 at 10:57 PM
I can't express the feeling of seeing it in black & white today- #LongCovid got the validation we all deserve in the Mod 2 report.
By sharing our lived experience we assured this recognition - expertly guided by our dedicated legal team led by Jane Ryan @bhattmurphy.bsky.social

My statement
November 20, 2025 at 10:47 PM
Thanks to @aldiukstores.bsky.social for a pre festive #GlutenFree #Christmas snacking experience. A rare treat.
Soooo good. 😋

#snacks #popcorn #cinnamonbun
November 15, 2025 at 4:07 PM
Reposted by Sammie McFarland
🎁 We hope to raise £17,500 in just 1 wk.
These vital funds will support our “Voices, Support & Hope for Children with Long Covid” project.
Find out more, inc how to get involved -sign up to our newsletter - using the link in the footer of our website.
www.longcovidkids.org
#LongCovidKids #Christmas
November 15, 2025 at 10:18 AM
Reposted by Sammie McFarland
our work with young people living with Long Covid and overlapping illnesses - like Eden.

Want to have your LCK donations doubled this #Christmas? ⭐
2 - 9 December, you can make double the difference with one donation. Save the date now!

#YouthAdvisoryBoard #YouthPanel #LongCovid #Charity #Donate
November 14, 2025 at 10:23 AM
Reposted by Sammie McFarland
21 year old Eden Bryrne
shared her lived experience with IDEA-FAST

Eden is a valued member of our Youth Advisory Panel and assists with communications, she says:

I’m “glad to be able to share my story as part of my work on the IDEA FAST advisory board ! I discuss how living with long covid and
November 14, 2025 at 10:23 AM
Families need clear #PublicHealth information on risk of hospitalisation AND post infectious diseases.

I urge @rcpch.bsky.social to collaborate with @longcovidkids.bsky.social on similar fact sheets for COVID / #LongCovid.

#Flu #Facts #Childhealth

www.rcpch.ac.uk/resources/fl...

#LongCovidKids
Every #winter, thousands of children need hospital care because of the #flu. #Paediatricians play a vital role to increase uptake of the flu vaccine to protect children from this virus, and to reduce winter strains on the NHS.

#RCPCH factsheet
www.rcpch.ac.uk/resources/fl...
November 12, 2025 at 11:33 AM
'By comparing blood, immune-cell profiles, and gene activity in people with and without long COVID, researchers uncovered biological differences that map onto those harsher, longer lasting symptoms.'

www.earth.com/news/why-lon...
#WomensHealth #LongCovid
November 12, 2025 at 8:18 AM
It hurts every cell in my body that parents weren’t warned about infection risk in the early pandemic.
I welcome this information from the RCPCH but it needs to be louder and everywhere. Hopefully it will flood media outlets this week.
#Parenting #Information #Flu #Chidren #PostViralIllness
Even previously healthy children can become seriously ill with flu, the Royal College of #Paediatrics and Child Health (RCPCH) said.
A troublesome mutant strain of the flu is believed to be behind a concerning early spike in flu cases, which experts say may be more severe than usual.
This is because
November 12, 2025 at 7:45 AM
“Like many of us, she recovered from this bout of illness and wasn’t overly concerned when she experienced the illness for the second time a few months later.” @independent.ie

Thank you for your advocacy Lydia.

#LongCovid #Ireland

m.independent.ie/life/health-...
November 11, 2025 at 7:32 AM