PURA Foundation Australia
@purafoundation.bsky.social
www.purafoundation.au
We are a non-profit charitable organisation that assists in advancement of research and treatments for PURA syndrome. We support for families of, and individuals with, PURA syndrome in Australia and NZ.
We are a non-profit charitable organisation that assists in advancement of research and treatments for PURA syndrome. We support for families of, and individuals with, PURA syndrome in Australia and NZ.
Hi 👋🏻 thanks for connecting. Have reached out to our research team…. Will be in contact. 💜
September 29, 2025 at 10:36 AM
Hi 👋🏻 thanks for connecting. Have reached out to our research team…. Will be in contact. 💜
Congratulations Elena 👏🏻💜
December 14, 2024 at 7:22 PM
Congratulations Elena 👏🏻💜
Thank you 💜👏🏻
December 9, 2024 at 9:03 PM
Thank you 💜👏🏻
Can you add us to this please?
December 9, 2024 at 8:02 PM
Can you add us to this please?