Paula
@paula890590.bsky.social
@encephalitisint & @ocdaction supporter/advocate
epil volunteer.
an OCD
Advocate
Advocate
OCDAdvocate &
I support
@encephalitisint.bsk..
epil volunteer.
an OCD
Advocate
Advocate
OCDAdvocate &
I support
@encephalitisint.bsk..
Reposted by Paula
A gift to AES during #epilepsyawareness month helps to fuel discovery, advance care, and inspire hope for people with epilepsy and their families. Donate today to fund critical #epilepsyresearch: aesnet.org/give/give #epilepsy #neurology
Make a Gift
Your gift helps us expand the epilepsy knowledge base and provide grants/fellowships that attract scientists and clinicians to the epilepsy field.
aesnet.org
November 24, 2025 at 10:01 AM
A gift to AES during #epilepsyawareness month helps to fuel discovery, advance care, and inspire hope for people with epilepsy and their families. Donate today to fund critical #epilepsyresearch: aesnet.org/give/give #epilepsy #neurology
Reposted by Paula
Just 1 week until Giving Tuesday! 💜 From hospital stays to rehabilitation, every milestone — like placing the star on the Christmas tree — is made possible through guidance, care, and generosity. Your support on 2nd December can help families thrive. 💛
🌐 Donate now: buff.ly/lQVC7Gz
🌐 Donate now: buff.ly/lQVC7Gz
November 25, 2025 at 3:02 PM
Just 1 week until Giving Tuesday! 💜 From hospital stays to rehabilitation, every milestone — like placing the star on the Christmas tree — is made possible through guidance, care, and generosity. Your support on 2nd December can help families thrive. 💛
🌐 Donate now: buff.ly/lQVC7Gz
🌐 Donate now: buff.ly/lQVC7Gz
Reposted by Paula
We recently funded 'Mpox: What’s Your Story' which brings together @lstmnews.bsky.social, @wowfest.bsky.social, @sahirhouse.bsky.social & @lpoolcouncil.bsky.social Public Health to use community storytelling to raise Mpox awareness & tackle stigma: www.thepandemicinstitute.org/news/creativ...
November 21, 2025 at 12:00 PM
We recently funded 'Mpox: What’s Your Story' which brings together @lstmnews.bsky.social, @wowfest.bsky.social, @sahirhouse.bsky.social & @lpoolcouncil.bsky.social Public Health to use community storytelling to raise Mpox awareness & tackle stigma: www.thepandemicinstitute.org/news/creativ...
Reposted by Paula
Every child’s journey with acquired brain injury is different; some may face challenges with memory, learning, or behaviour, while others might experience physical or emotional changes.
Together, we can navigate this journey, one step at a time. Because every child deserves the chance to thrive.
Together, we can navigate this journey, one step at a time. Because every child deserves the chance to thrive.
November 21, 2025 at 1:02 PM
Every child’s journey with acquired brain injury is different; some may face challenges with memory, learning, or behaviour, while others might experience physical or emotional changes.
Together, we can navigate this journey, one step at a time. Because every child deserves the chance to thrive.
Together, we can navigate this journey, one step at a time. Because every child deserves the chance to thrive.
Reposted by Paula
Research built the NHS and without protected time, proper pathways, and real accountability, we risk dismantling the very engine that drives better care.
www.linkedin.com/pulse/why-re...
#NHS #AOMRC #ClinicalResearch #HealthResearch
www.linkedin.com/pulse/why-re...
#NHS #AOMRC #ClinicalResearch #HealthResearch
Why research must stay at the heart of the NHS
When I was a medical student in Mozambique studying hypoglycaemia in children with malaria, I saw how every sample and observation could make a difference. That experience set me on a path investigati...
www.linkedin.com
November 21, 2025 at 3:56 PM
Research built the NHS and without protected time, proper pathways, and real accountability, we risk dismantling the very engine that drives better care.
www.linkedin.com/pulse/why-re...
#NHS #AOMRC #ClinicalResearch #HealthResearch
www.linkedin.com/pulse/why-re...
#NHS #AOMRC #ClinicalResearch #HealthResearch
Reposted by Paula
Fascinating start to the day at #CCM2025 Tackling challenging topics in #BrainInjurySupport @abisolutions.bsky.social
#ABI #CaseManagement
#ABI #CaseManagement
November 20, 2025 at 10:17 AM
Fascinating start to the day at #CCM2025 Tackling challenging topics in #BrainInjurySupport @abisolutions.bsky.social
#ABI #CaseManagement
#ABI #CaseManagement
Reposted by Paula
Speaking of avoidance, I've been struggling a lot lately with just not wanting to be around people. I'm in danger of turning into a misanthrope. This is a long-standing tendency, exacerbated greatly by OCD. Does anyone else find OCD dims your desire to be around people?
#OCDTalkHour
#OCDTalkHour
November 19, 2025 at 7:09 PM
Speaking of avoidance, I've been struggling a lot lately with just not wanting to be around people. I'm in danger of turning into a misanthrope. This is a long-standing tendency, exacerbated greatly by OCD. Does anyone else find OCD dims your desire to be around people?
#OCDTalkHour
#OCDTalkHour
Reposted by Paula
Besides familiarity with OCD, what other traits to look for in a therapist? Also has anyone ever done existential therapy? Apparently, it's about finding meaning in life, and it sounds interesting. So far, the only therapist I've seen offering it doesn't take my insurance 😠 #OCDTalkHour
November 19, 2025 at 7:52 PM
Besides familiarity with OCD, what other traits to look for in a therapist? Also has anyone ever done existential therapy? Apparently, it's about finding meaning in life, and it sounds interesting. So far, the only therapist I've seen offering it doesn't take my insurance 😠 #OCDTalkHour
Reposted by Paula
“But we don’t have any children with a brain injury in our school…” 📚
The truth is, you might. Even if you can’t see it.
Our dedicated ABI coordinators help schools recognise and support these hidden needs. And together, we can make sure no child is left behind. 🙏
Learn more at buff.ly/9XQEPaL
The truth is, you might. Even if you can’t see it.
Our dedicated ABI coordinators help schools recognise and support these hidden needs. And together, we can make sure no child is left behind. 🙏
Learn more at buff.ly/9XQEPaL
November 15, 2025 at 4:01 PM
“But we don’t have any children with a brain injury in our school…” 📚
The truth is, you might. Even if you can’t see it.
Our dedicated ABI coordinators help schools recognise and support these hidden needs. And together, we can make sure no child is left behind. 🙏
Learn more at buff.ly/9XQEPaL
The truth is, you might. Even if you can’t see it.
Our dedicated ABI coordinators help schools recognise and support these hidden needs. And together, we can make sure no child is left behind. 🙏
Learn more at buff.ly/9XQEPaL
Reposted by Paula
I think it’d be helpful for more leftists to know about moral OCD because I suspect that the things that make us leftists lend themselves to both a greater incidence of moral OCD, greater severity, and less ability to know you have it even from the same baseline of self awareness
November 11, 2025 at 11:19 AM
I think it’d be helpful for more leftists to know about moral OCD because I suspect that the things that make us leftists lend themselves to both a greater incidence of moral OCD, greater severity, and less ability to know you have it even from the same baseline of self awareness
Reposted by Paula
While diagnosis of #epilepsy is common in children, it is NOT just a childhood disease. It can affect anyone of any age. #EpilepsyAwareness
October 9, 2025 at 1:40 PM
While diagnosis of #epilepsy is common in children, it is NOT just a childhood disease. It can affect anyone of any age. #EpilepsyAwareness
Reposted by Paula
We often see comments on dashcam videos blaming the crash on a seizure, but the percentage of accidents caused by #epilepsy is dwarfed by drunk, distracted, or drowsy driving. Unfair assumptions fuel stigma and distract from the real biggest threats on the road. #EpilepsyAwareness
October 17, 2025 at 1:46 PM
We often see comments on dashcam videos blaming the crash on a seizure, but the percentage of accidents caused by #epilepsy is dwarfed by drunk, distracted, or drowsy driving. Unfair assumptions fuel stigma and distract from the real biggest threats on the road. #EpilepsyAwareness
Reposted by Paula
If you're sick stay home. As we head deeper into flu season, it's important for people to know that the common flu (and its affects like lack of sleep) can be a seizure-trigger in some people with #Epilepsy. -- Do you have more seizures when you're sick? #EpilepsyAwareness
October 28, 2025 at 1:35 PM
If you're sick stay home. As we head deeper into flu season, it's important for people to know that the common flu (and its affects like lack of sleep) can be a seizure-trigger in some people with #Epilepsy. -- Do you have more seizures when you're sick? #EpilepsyAwareness
Reposted by Paula
Our them for #3 of #NationalEpilepsyAwarenessMonth is "How does Epilepsy affect families?" -- Do you have a story about how your family was affected when a member was diagnosed with #Epilepsy? #NEAM
November 3, 2025 at 3:17 PM
Our them for #3 of #NationalEpilepsyAwarenessMonth is "How does Epilepsy affect families?" -- Do you have a story about how your family was affected when a member was diagnosed with #Epilepsy? #NEAM
Reposted by Paula
Our theme for day 4 of #NationalEpilepsyAwarenessMonth (or #NEAM) is "What type(s) of seizures do you have?" -- There are multiple types of seizures and some people with #epilepsy might experience more than one type. #EpilepsyAwareness
November 4, 2025 at 2:36 PM
Our theme for day 4 of #NationalEpilepsyAwarenessMonth (or #NEAM) is "What type(s) of seizures do you have?" -- There are multiple types of seizures and some people with #epilepsy might experience more than one type. #EpilepsyAwareness
Reposted by Paula
#OCDTalkHour one of the talks at the conference was "why treatment doesn’t always hit the spot first time" and I wondered if people had any experience of maybe struggling with therapy and then trying again (different therapist, different palce in life, different therapy etc.) and it going better?
November 12, 2025 at 7:14 PM
#OCDTalkHour one of the talks at the conference was "why treatment doesn’t always hit the spot first time" and I wondered if people had any experience of maybe struggling with therapy and then trying again (different therapist, different palce in life, different therapy etc.) and it going better?
Reposted by Paula
I am doing way too many of my usual rituals/"harm mitigations" especially in the kitchen, but it's still better than avoidance (home cooking is better for many reasons). Also, I'm trying to stop the obsessive cleaning a couple steps sooner than before. This is aided by lack of energy.
#OCDTalkHour
#OCDTalkHour
November 12, 2025 at 7:08 PM
I am doing way too many of my usual rituals/"harm mitigations" especially in the kitchen, but it's still better than avoidance (home cooking is better for many reasons). Also, I'm trying to stop the obsessive cleaning a couple steps sooner than before. This is aided by lack of energy.
#OCDTalkHour
#OCDTalkHour
Reposted by Paula
Welcome to #OCDTalkHour! This is a weekly chat about OCD. Use the hashtag #OCDTalkHour for new threads/topics (which you can start!) or reply to existing threads.
This is the hi-how-are-you thread. Hi! How are you?
Remember this is a public forum, so only share what you're comfortable with.
This is the hi-how-are-you thread. Hi! How are you?
Remember this is a public forum, so only share what you're comfortable with.
November 12, 2025 at 6:58 PM
Welcome to #OCDTalkHour! This is a weekly chat about OCD. Use the hashtag #OCDTalkHour for new threads/topics (which you can start!) or reply to existing threads.
This is the hi-how-are-you thread. Hi! How are you?
Remember this is a public forum, so only share what you're comfortable with.
This is the hi-how-are-you thread. Hi! How are you?
Remember this is a public forum, so only share what you're comfortable with.
Reposted by Paula
If you ever witness a convulsive seizure DO NOT put something in the person's mouth. It's physically impossible to swallow our tongue and we need that airway open. -- What's another myth about seizure first aid you've heard? #EpilepsyAwareness
More on first aid:
brainablaze.com/the-brain-ab...
More on first aid:
brainablaze.com/the-brain-ab...
April 13, 2025 at 2:37 PM
If you ever witness a convulsive seizure DO NOT put something in the person's mouth. It's physically impossible to swallow our tongue and we need that airway open. -- What's another myth about seizure first aid you've heard? #EpilepsyAwareness
More on first aid:
brainablaze.com/the-brain-ab...
More on first aid:
brainablaze.com/the-brain-ab...
Reposted by Paula
Memory challenges are a common experience for many living with #epilepsy. If you struggle with your memory, how does that struggle usually manifest? Word finding? Brain Fog? #EpilepsyAwareness
More on memory and epilepsy:
brainablaze.com/the-brain-ab...
More on memory and epilepsy:
brainablaze.com/the-brain-ab...
brainablaze.com
April 25, 2025 at 1:14 PM
Memory challenges are a common experience for many living with #epilepsy. If you struggle with your memory, how does that struggle usually manifest? Word finding? Brain Fog? #EpilepsyAwareness
More on memory and epilepsy:
brainablaze.com/the-brain-ab...
More on memory and epilepsy:
brainablaze.com/the-brain-ab...
Reposted by Paula
Nurses are often ignored, but today we celebrate their unwavering commitment to our health and well-being! -- How has a nurse helped your adaptation to #epilepsy? #NationalNursesDay #EpilepsyAwareness
May 6, 2025 at 1:07 PM
Nurses are often ignored, but today we celebrate their unwavering commitment to our health and well-being! -- How has a nurse helped your adaptation to #epilepsy? #NationalNursesDay #EpilepsyAwareness
Reposted by Paula
To Take or Not to Take Antiseizure Medications: Patient-Centered Decision-Making About Discontinuation After Seizure Freedom @amepilepsysoc.bsky.social #epilepsy
www.neurology.org/doi/abs/10.1...
www.neurology.org/doi/abs/10.1...
To Take or Not to Take Antiseizure Medications | Neurology Clinical Practice
www.neurology.org
May 6, 2025 at 2:28 PM
To Take or Not to Take Antiseizure Medications: Patient-Centered Decision-Making About Discontinuation After Seizure Freedom @amepilepsysoc.bsky.social #epilepsy
www.neurology.org/doi/abs/10.1...
www.neurology.org/doi/abs/10.1...
Reposted by Paula
Ian Curtis, the lead singer for Joy Division, took his own life today in 1980 after struggling with #epilepsy and #depression. Joy Division / New Order have been nominated to the Rock and Roll Hall of Fame in 2025. -- If you're struggling, please reach out. #EpilepsyAwareness #SuicidePrevention
May 18, 2025 at 2:03 PM
Ian Curtis, the lead singer for Joy Division, took his own life today in 1980 after struggling with #epilepsy and #depression. Joy Division / New Order have been nominated to the Rock and Roll Hall of Fame in 2025. -- If you're struggling, please reach out. #EpilepsyAwareness #SuicidePrevention
Reposted by Paula
Similarly to how we teach the Heimlich maneuver, do you believe seizure first aid should be taught in schools? #EpilepsyAwareness
brainablaze.com/the-brain-ab...
brainablaze.com/the-brain-ab...
038: Seizure First Aid - The Brain Ablaze Epilepsy Podcast
We talk about all things Seizure First Aid using descriptions and data from the Center for Disease Control and Prevention (CDC).
brainablaze.com
May 23, 2025 at 1:18 PM
Similarly to how we teach the Heimlich maneuver, do you believe seizure first aid should be taught in schools? #EpilepsyAwareness
brainablaze.com/the-brain-ab...
brainablaze.com/the-brain-ab...