Oneirine
@oneirine.bsky.social
Music on TikTok at https://www.tiktok.com/@oneirine
Currently dealing with long covid
Currently dealing with long covid
The mental picture I have is one of ejecting from a bicycle. You make the best decisions you can, mostly on instinct. Anything but freeze! Avoid a collision. Avoid curbs. Remember to pull your arms in. Point your bike at a big open space. And then let go.
November 25, 2025 at 8:33 PM
The mental picture I have is one of ejecting from a bicycle. You make the best decisions you can, mostly on instinct. Anything but freeze! Avoid a collision. Avoid curbs. Remember to pull your arms in. Point your bike at a big open space. And then let go.
Stuff is in storage, it could be there for years if it had to / everything that can expire has been tossed. The dirtiest items - an old vacuum for example - had to go too. But I couldn’t sell things like I’d wanted to / downsize strategically.
November 25, 2025 at 8:27 PM
Stuff is in storage, it could be there for years if it had to / everything that can expire has been tossed. The dirtiest items - an old vacuum for example - had to go too. But I couldn’t sell things like I’d wanted to / downsize strategically.
Old me might’ve made a spreadsheet and tried to model it out or something. But there was so much brain fog, especially in the apartment. Friends would come and try to help with the move but the insane requirements and considerations made the move so deeply abnormal
November 25, 2025 at 8:26 PM
Old me might’ve made a spreadsheet and tried to model it out or something. But there was so much brain fog, especially in the apartment. Friends would come and try to help with the move but the insane requirements and considerations made the move so deeply abnormal
Just like, using extremely scarce energy try to prevent this from being the most expensive thing that’s ever happened to me. Crossing fingers that my stuff won’t be toxic to me in two months, acknowledging it might be in storage for years. Trying to game out the cost of replacement vs storage
November 25, 2025 at 8:25 PM
Just like, using extremely scarce energy try to prevent this from being the most expensive thing that’s ever happened to me. Crossing fingers that my stuff won’t be toxic to me in two months, acknowledging it might be in storage for years. Trying to game out the cost of replacement vs storage
Oh, it's just a call center scam. That's all the US economy is now. Call center scams. Rerouting, delays, dropping your call. Everyone at Comcast should be fucking ashamed.
November 25, 2025 at 6:57 PM
Oh, it's just a call center scam. That's all the US economy is now. Call center scams. Rerouting, delays, dropping your call. Everyone at Comcast should be fucking ashamed.
I absolutely was less severe in symptoms making these decisions / actions around a temporary move btw. Maybe 1k-3k steps a day. All this stuff messed with my pacing.
November 23, 2025 at 9:08 PM
I absolutely was less severe in symptoms making these decisions / actions around a temporary move btw. Maybe 1k-3k steps a day. All this stuff messed with my pacing.
Depending on budget, I think this is way easier to reason about what’s worth doing with whatever quantitative data too. Urine mycotoxin + air spore test + EMRI/HERTSMI-2 + garmin stuff (overnight HRV, seeing the POTS realtime). If the benefits aren’t there absolutely risky for an ME/CFS patient
November 23, 2025 at 9:04 PM
Depending on budget, I think this is way easier to reason about what’s worth doing with whatever quantitative data too. Urine mycotoxin + air spore test + EMRI/HERTSMI-2 + garmin stuff (overnight HRV, seeing the POTS realtime). If the benefits aren’t there absolutely risky for an ME/CFS patient
Yeah I feel it. It’s so damn bright outside! I crashed after a couple patio visits. Initially tried to mitigate indoors too. HEPA filters, getting rid of carpets, dust pillow protectors (I’m allergic), realizing I hadn’t been maintaining my (cotton) futon and setting it aside.
November 23, 2025 at 9:01 PM
Yeah I feel it. It’s so damn bright outside! I crashed after a couple patio visits. Initially tried to mitigate indoors too. HEPA filters, getting rid of carpets, dust pillow protectors (I’m allergic), realizing I hadn’t been maintaining my (cotton) futon and setting it aside.
There’s some kind of certification program for hypoallergenic hotel rooms. Only super $$$ hotel rooms have them in the city I’m in (and I wasn’t able to confirm with the hotels). But maybe also a recently renovated hotel? Would be a good lead.
November 23, 2025 at 8:56 PM
There’s some kind of certification program for hypoallergenic hotel rooms. Only super $$$ hotel rooms have them in the city I’m in (and I wasn’t able to confirm with the hotels). But maybe also a recently renovated hotel? Would be a good lead.
Which like… cognitive dysfunction from a being in an environment with whatever mycotoxins?
November 23, 2025 at 8:52 PM
Which like… cognitive dysfunction from a being in an environment with whatever mycotoxins?
I was really struggling with indecision / uncertainty and spinning out into over analysis in the apartment, then in fresh air it was easier to think straight. I felt burned by thinking outside the medical box before (HBOT, red light therapy), so spending money scared me.
November 23, 2025 at 8:47 PM
I was really struggling with indecision / uncertainty and spinning out into over analysis in the apartment, then in fresh air it was easier to think straight. I felt burned by thinking outside the medical box before (HBOT, red light therapy), so spending money scared me.
But I’m so sympathetic to the challenges of the logistics. Packing, meds, whatever for an overnight sets you out in energy negative for whatever positive impact of being outside. And it’s hard to tell if hotel rooms are even clean (I went by the cleanliness score initially).
November 23, 2025 at 8:33 PM
But I’m so sympathetic to the challenges of the logistics. Packing, meds, whatever for an overnight sets you out in energy negative for whatever positive impact of being outside. And it’s hard to tell if hotel rooms are even clean (I went by the cleanliness score initially).
I started just by trying to sit in the park or on my friends’ patio (I don’t have an outdoor space) for blocks of time, in as deep a recline as whatever chair would allow me (for POTS, there’s a good REI camp chair, the cloud dreamer, that has a headrest)
November 23, 2025 at 8:31 PM
I started just by trying to sit in the park or on my friends’ patio (I don’t have an outdoor space) for blocks of time, in as deep a recline as whatever chair would allow me (for POTS, there’s a good REI camp chair, the cloud dreamer, that has a headrest)
“Check out this cool project! One more thing is left to do but it’s been sitting on that desk for about a year.”
November 23, 2025 at 8:24 AM
“Check out this cool project! One more thing is left to do but it’s been sitting on that desk for about a year.”
Felt similar walking some friends through my apartment before this move I’m doing. Things are kind of stopped in time circa December 2023 ish (it was a gradual and progressive decline to bedbound and a gradual but halted move back to moderate)
November 23, 2025 at 8:23 AM
Felt similar walking some friends through my apartment before this move I’m doing. Things are kind of stopped in time circa December 2023 ish (it was a gradual and progressive decline to bedbound and a gradual but halted move back to moderate)
Oh and I’m taking camping stuff that’s been thoroughly washed, a set of clothes than have been washed in a laundromat with borax, and the big, important musical instrument.
November 23, 2025 at 3:23 AM
Oh and I’m taking camping stuff that’s been thoroughly washed, a set of clothes than have been washed in a laundromat with borax, and the big, important musical instrument.
Oh! And I’m doing the EMRI/HERTSMI-2, results due back soon. If those scores are heinous I’ll lean towards nuking the objects. If not, maybe towards more rapidly integrating them into a new apartment
November 23, 2025 at 3:19 AM
Oh! And I’m doing the EMRI/HERTSMI-2, results due back soon. If those scores are heinous I’ll lean towards nuking the objects. If not, maybe towards more rapidly integrating them into a new apartment
Only one object I owned ever seemed mildewy or moldy (bed) - I suspect the toxic molds are in the floor / downstairs units’ ceiling
November 23, 2025 at 3:17 AM
Only one object I owned ever seemed mildewy or moldy (bed) - I suspect the toxic molds are in the floor / downstairs units’ ceiling
Temperature controlled storage for electronics and music instruments and books. Normal storage for other things. (Is the current plan in face of all the constraints). Downsize anyway. Gonna make a subjective call on the other side of the two months - seem to be wide range of experiences
November 23, 2025 at 3:16 AM
Temperature controlled storage for electronics and music instruments and books. Normal storage for other things. (Is the current plan in face of all the constraints). Downsize anyway. Gonna make a subjective call on the other side of the two months - seem to be wide range of experiences
Even managing the cats was hard, they’re still in the old apartment. I stayed in a motel nearby initially and even that was an improvement. The previously impossible (enough energy for a move) became possible - I could think more clearly in fresh air, I was having cognitive dysfunction in the apt
November 23, 2025 at 3:15 AM
Even managing the cats was hard, they’re still in the old apartment. I stayed in a motel nearby initially and even that was an improvement. The previously impossible (enough energy for a move) became possible - I could think more clearly in fresh air, I was having cognitive dysfunction in the apt
The year long contract + uncertainty around whether existing stuff should come didn’t help
November 22, 2025 at 11:28 PM
The year long contract + uncertainty around whether existing stuff should come didn’t help
Thanks!! I did a couple weeks in Black Rock Desert first (kind of overlanding) and it was wild. Going to Joshua Tree ish for a couple months to build on that in a dry climate. Perfect world I would’ve moved inside my existing city but I simply couldn’t pull it together health + energy wise
November 22, 2025 at 11:22 PM
Thanks!! I did a couple weeks in Black Rock Desert first (kind of overlanding) and it was wild. Going to Joshua Tree ish for a couple months to build on that in a dry climate. Perfect world I would’ve moved inside my existing city but I simply couldn’t pull it together health + energy wise
I think it’s some share of my long covid covid symptoms, even the week I’ve spent away + wearing a respirator when I do visit the old apartment yield really positive changes. >10k steps for days in a row, happening naturally and without the kind of aggravation of POTS symptoms I might’ve had before
November 22, 2025 at 11:17 PM
I think it’s some share of my long covid covid symptoms, even the week I’ve spent away + wearing a respirator when I do visit the old apartment yield really positive changes. >10k steps for days in a row, happening naturally and without the kind of aggravation of POTS symptoms I might’ve had before