Nina Hatfield
@ninahatfield.bsky.social
she/her, Writer, Learner, Mythologist, chronically ill with #MECFS
I host community peer groups www.co-resting.org
#PWME #Mythology #MyalgicEncephalomyelitis #ChronicFatigue #CFS #Resting #CoResting #Pacing #PEM #MCAS #NEISvoid
I host community peer groups www.co-resting.org
#PWME #Mythology #MyalgicEncephalomyelitis #ChronicFatigue #CFS #Resting #CoResting #Pacing #PEM #MCAS #NEISvoid
I'm so tired of buckling up. I'm ready for shutting-it-down era.
November 29, 2025 at 3:02 AM
I'm so tired of buckling up. I'm ready for shutting-it-down era.
derekmonster.com is my husband's art shop of original drawings and printed notecards of his drawings
DerekMonster
Original drawings by DerekMonster (Derek Thompson); shop selling monster art of original creature designs and kaiju studies
derekmonster.com
November 27, 2025 at 8:03 AM
derekmonster.com is my husband's art shop of original drawings and printed notecards of his drawings
There seems to be a full commitment to might over right by those who think they're going to get away with it.
November 26, 2025 at 2:48 AM
There seems to be a full commitment to might over right by those who think they're going to get away with it.
As a fully grown adult who has been disabled by chronic illness, I was just lamenting last week that I wish I could hand my mother something to read that could reduce her ableist thinking. It's intrusive and insidious.
November 24, 2025 at 10:42 PM
As a fully grown adult who has been disabled by chronic illness, I was just lamenting last week that I wish I could hand my mother something to read that could reduce her ableist thinking. It's intrusive and insidious.
Reposted by Nina Hatfield
Economists define “good” VERY differently from the rest of life on earth
November 23, 2025 at 6:41 PM
Economists define “good” VERY differently from the rest of life on earth
Excellent. End it.
November 23, 2025 at 7:47 PM
Excellent. End it.
Same. I've just started but am now motivated to really tackle it.
November 22, 2025 at 3:38 AM
Same. I've just started but am now motivated to really tackle it.
Reposted by Nina Hatfield
People with #MECFS, and many with #LongCOVID experience post-exertional malaise: a flare of symptoms after activity. The response is disproportionate to the activity and can lead to permanent drops in functional capacity.
www.mayoclinicproceedings.org/article/s0025-6196(23)00402-0/fulltext
www.mayoclinicproceedings.org/article/s0025-6196(23)00402-0/fulltext
Diagnosis and Management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a chronic neurologic
disease often preceded by infection. There has been increased interest in ME/CFS recently
because of its significant...
www.mayoclinicproceedings.org
November 21, 2025 at 3:56 PM
People with #MECFS, and many with #LongCOVID experience post-exertional malaise: a flare of symptoms after activity. The response is disproportionate to the activity and can lead to permanent drops in functional capacity.
www.mayoclinicproceedings.org/article/s0025-6196(23)00402-0/fulltext
www.mayoclinicproceedings.org/article/s0025-6196(23)00402-0/fulltext
Reposted by Nina Hatfield
PEM is not a single symptom; it's a pathological state in which response to exertion is shock-like: drops in BP, drops in oxygenation, drops in HR, drops in temp, transient drops in cognitive ability.
And doing exercise more, or harder, or more often does not alter the nature of the response.
And doing exercise more, or harder, or more often does not alter the nature of the response.
November 21, 2025 at 3:56 PM
PEM is not a single symptom; it's a pathological state in which response to exertion is shock-like: drops in BP, drops in oxygenation, drops in HR, drops in temp, transient drops in cognitive ability.
And doing exercise more, or harder, or more often does not alter the nature of the response.
And doing exercise more, or harder, or more often does not alter the nature of the response.
This just gave me a very cozy flashback to circa 1992 flannel-lined chinos from J. Crew.
November 21, 2025 at 6:32 PM
This just gave me a very cozy flashback to circa 1992 flannel-lined chinos from J. Crew.
I can get my lower jaw forward a little, add a bottom lip maneuver and... maybe?
November 20, 2025 at 5:46 AM
I can get my lower jaw forward a little, add a bottom lip maneuver and... maybe?