Ellie
@madknittrsteaparty.bsky.social
Love crafts, history, stories, natural world & spending time with husband, children, family & friends. When M.E /CFS & POTS doesn't stop me - which is most of the time right now. Usually found in a dressing gown. Devon, UK ♿🌿🏳️🌈🏳️⚧️🇺🇦
Pinned
Ellie
@madknittrsteaparty.bsky.social
· Jul 23
To my followers- I am sorry I can't donate to Gaza accounts at this time. I am disabled, unable to work, & spend much of my life in bed.
Please continue to follow me.
To UK government- we're watching a genocide in real time & you do nothing. This is unbearable. I'm ashamed of my government.
Please continue to follow me.
To UK government- we're watching a genocide in real time & you do nothing. This is unbearable. I'm ashamed of my government.
Reposted by Ellie
The Conductor. 😀
Puffin on Skomer Island this summer. 😍🐦
#birds 🪶
My 2026 Birds calendars make fantastic Christmas presents for the nature lovers in your life. 😀🎁🐦
You can buy them here;
www.carlbovis.com/2026-birds-c...
Puffin on Skomer Island this summer. 😍🐦
#birds 🪶
My 2026 Birds calendars make fantastic Christmas presents for the nature lovers in your life. 😀🎁🐦
You can buy them here;
www.carlbovis.com/2026-birds-c...
December 8, 2025 at 3:55 PM
The Conductor. 😀
Puffin on Skomer Island this summer. 😍🐦
#birds 🪶
My 2026 Birds calendars make fantastic Christmas presents for the nature lovers in your life. 😀🎁🐦
You can buy them here;
www.carlbovis.com/2026-birds-c...
Puffin on Skomer Island this summer. 😍🐦
#birds 🪶
My 2026 Birds calendars make fantastic Christmas presents for the nature lovers in your life. 😀🎁🐦
You can buy them here;
www.carlbovis.com/2026-birds-c...
Reposted by Ellie
Photo from a while ago: south west China
I wish I'd invited her to practice her spoken English with me. I would have welcomed a few phrases in return.
#Photography
I wish I'd invited her to practice her spoken English with me. I would have welcomed a few phrases in return.
#Photography
December 8, 2025 at 12:08 PM
Photo from a while ago: south west China
I wish I'd invited her to practice her spoken English with me. I would have welcomed a few phrases in return.
#Photography
I wish I'd invited her to practice her spoken English with me. I would have welcomed a few phrases in return.
#Photography
Reposted by Ellie
Spread the inspiration around this Christmas with multiple copies of this book on your shopping list! If you’ve yet to peak inside the pages, be sure to ask Santa for a copy for yourself!
#chronicillness #chronicpain #mecfs #ME/CFS #invisibleillness #CraftSky #art 💙📚 🧶 🎨 ✍🏻 🪡 🎵 🎅🏻 🎁
#chronicillness #chronicpain #mecfs #ME/CFS #invisibleillness #CraftSky #art 💙📚 🧶 🎨 ✍🏻 🪡 🎵 🎅🏻 🎁
December 8, 2025 at 12:22 PM
Spread the inspiration around this Christmas with multiple copies of this book on your shopping list! If you’ve yet to peak inside the pages, be sure to ask Santa for a copy for yourself!
#chronicillness #chronicpain #mecfs #ME/CFS #invisibleillness #CraftSky #art 💙📚 🧶 🎨 ✍🏻 🪡 🎵 🎅🏻 🎁
#chronicillness #chronicpain #mecfs #ME/CFS #invisibleillness #CraftSky #art 💙📚 🧶 🎨 ✍🏻 🪡 🎵 🎅🏻 🎁
Reposted by Ellie
⏰ 24 hours left! Together, you’ve helped raise over £135,000 to improve the lives of people with ME and accelerate vital research.
Although our match funds have now run out, every single donation still counts.
✨ Donate here: bit.ly/2025-big-give
Thank you so much 🧡
Although our match funds have now run out, every single donation still counts.
✨ Donate here: bit.ly/2025-big-give
Thank you so much 🧡
December 8, 2025 at 11:50 AM
⏰ 24 hours left! Together, you’ve helped raise over £135,000 to improve the lives of people with ME and accelerate vital research.
Although our match funds have now run out, every single donation still counts.
✨ Donate here: bit.ly/2025-big-give
Thank you so much 🧡
Although our match funds have now run out, every single donation still counts.
✨ Donate here: bit.ly/2025-big-give
Thank you so much 🧡
Reposted by Ellie
Welcome to Britain’s new benefits lie: disabled people are driving BMWs and Mercedes on the taxpayer’s dime.
My column on Motability and the truth behind the headlines and social media myths. www.theguardian.com/commentisfre...
My column on Motability and the truth behind the headlines and social media myths. www.theguardian.com/commentisfre...
Disabled people driving luxury cars on your dime? Just the latest rightwing lie peddled by Labour | Frances Ryan
Starmer’s ailing government is happy to pursue ideas like cutting Motability, but all ministers will do is damage lives and themselves, says Guardian columnist Frances Ryan
www.theguardian.com
December 8, 2025 at 3:39 PM
Welcome to Britain’s new benefits lie: disabled people are driving BMWs and Mercedes on the taxpayer’s dime.
My column on Motability and the truth behind the headlines and social media myths. www.theguardian.com/commentisfre...
My column on Motability and the truth behind the headlines and social media myths. www.theguardian.com/commentisfre...
Reposted by Ellie
This isn't a drama. It's a warning.
The new BBC drama, Prisoner 951, tells the story of Richard and Nazanin’s fight for justice.
Nazanin Zaghari-Ratcliffe and Anoosheh Ashoori were unjustly imprisoned in Iran, and Amnesty UK campaigned for their release.
The new BBC drama, Prisoner 951, tells the story of Richard and Nazanin’s fight for justice.
Nazanin Zaghari-Ratcliffe and Anoosheh Ashoori were unjustly imprisoned in Iran, and Amnesty UK campaigned for their release.
December 3, 2025 at 8:32 PM
This isn't a drama. It's a warning.
The new BBC drama, Prisoner 951, tells the story of Richard and Nazanin’s fight for justice.
Nazanin Zaghari-Ratcliffe and Anoosheh Ashoori were unjustly imprisoned in Iran, and Amnesty UK campaigned for their release.
The new BBC drama, Prisoner 951, tells the story of Richard and Nazanin’s fight for justice.
Nazanin Zaghari-Ratcliffe and Anoosheh Ashoori were unjustly imprisoned in Iran, and Amnesty UK campaigned for their release.
Reposted by Ellie
December 8th. Thank you for being #ThereForME, @sarahgibsonmp.bsky.social!
Sarah is the LibDem MP for Chippenham and was nominated by her constituent, Tess. ✨
Sarah is the LibDem MP for Chippenham and was nominated by her constituent, Tess. ✨
December 8, 2025 at 9:00 AM
December 8th. Thank you for being #ThereForME, @sarahgibsonmp.bsky.social!
Sarah is the LibDem MP for Chippenham and was nominated by her constituent, Tess. ✨
Sarah is the LibDem MP for Chippenham and was nominated by her constituent, Tess. ✨
Reposted by Ellie
Great to see this nomination from a constituent!
Thanks for being #ThereForME, @sarahgibsonmp.bsky.social 💫
Thanks for being #ThereForME, @sarahgibsonmp.bsky.social 💫
December 8th. Thank you for being #ThereForME, @sarahgibsonmp.bsky.social!
Sarah is the LibDem MP for Chippenham and was nominated by her constituent, Tess. ✨
Sarah is the LibDem MP for Chippenham and was nominated by her constituent, Tess. ✨
December 8, 2025 at 9:22 AM
Great to see this nomination from a constituent!
Thanks for being #ThereForME, @sarahgibsonmp.bsky.social 💫
Thanks for being #ThereForME, @sarahgibsonmp.bsky.social 💫
Reposted by Ellie
Private water has failed this country.
So I’m co-hosting a briefing in Parliament for MPs to make sure they know the truth about why public ownership is the solution.
We’ve got just 24 hours to get my colleagues there.
Can you help? actionnetwork.org/letters/ask-...
So I’m co-hosting a briefing in Parliament for MPs to make sure they know the truth about why public ownership is the solution.
We’ve got just 24 hours to get my colleagues there.
Can you help? actionnetwork.org/letters/ask-...
December 8, 2025 at 10:11 AM
Private water has failed this country.
So I’m co-hosting a briefing in Parliament for MPs to make sure they know the truth about why public ownership is the solution.
We’ve got just 24 hours to get my colleagues there.
Can you help? actionnetwork.org/letters/ask-...
So I’m co-hosting a briefing in Parliament for MPs to make sure they know the truth about why public ownership is the solution.
We’ve got just 24 hours to get my colleagues there.
Can you help? actionnetwork.org/letters/ask-...
Reposted by Ellie
When you have a better day, and you're scared to do anything with the energy/clarity because you know how fast you can lose it and it just feels so good to *feel* more alive, you're happy just thinking and feeling. You truly know how sacred life is, and how relentless ME/CFS is.
#MECFS
#MECFS
December 7, 2025 at 10:19 PM
When you have a better day, and you're scared to do anything with the energy/clarity because you know how fast you can lose it and it just feels so good to *feel* more alive, you're happy just thinking and feeling. You truly know how sacred life is, and how relentless ME/CFS is.
#MECFS
#MECFS
Reposted by Ellie
It’s hard to see promising results like this struggle to get funding. Although I’m glad to see the study has started.
Norwegian ME patients has made a English petition to get enough attention for the Norwegian ME/CFS study. Please share so this get traction!!
So far Norwegian ME patients has been crowdfunding. This petition is to get the attention of the Norwegian government to fund the study.
🚨 SHARE PLEASE 🚨
So far Norwegian ME patients has been crowdfunding. This petition is to get the attention of the Norwegian government to fund the study.
🚨 SHARE PLEASE 🚨
This campaign needs you now
Call for Funding a New Clinical Study on Daratumumab for ME/CFS
c.org
December 8, 2025 at 3:42 AM
It’s hard to see promising results like this struggle to get funding. Although I’m glad to see the study has started.
Reposted by Ellie
Norwegian ME patients has made a English petition to get enough attention for the Norwegian ME/CFS study. Please share so this get traction!!
So far Norwegian ME patients has been crowdfunding. This petition is to get the attention of the Norwegian government to fund the study.
🚨 SHARE PLEASE 🚨
So far Norwegian ME patients has been crowdfunding. This petition is to get the attention of the Norwegian government to fund the study.
🚨 SHARE PLEASE 🚨
This campaign needs you now
Call for Funding a New Clinical Study on Daratumumab for ME/CFS
c.org
December 6, 2025 at 10:12 PM
Norwegian ME patients has made a English petition to get enough attention for the Norwegian ME/CFS study. Please share so this get traction!!
So far Norwegian ME patients has been crowdfunding. This petition is to get the attention of the Norwegian government to fund the study.
🚨 SHARE PLEASE 🚨
So far Norwegian ME patients has been crowdfunding. This petition is to get the attention of the Norwegian government to fund the study.
🚨 SHARE PLEASE 🚨
Reposted by Ellie
We’ll continue the fight, as always. Happy Independence Day, especially to those who fight for our rights ✊🏻 10/10
December 6, 2025 at 12:21 PM
We’ll continue the fight, as always. Happy Independence Day, especially to those who fight for our rights ✊🏻 10/10
Reposted by Ellie
I’d love to contribute to our society, and I did until my body broke down, a sacrifice not worth it. I’d like to just celebrate this day, at least by reminiscing about everything good, but I just can’t do it. Something deep down has been shattered and it can’t be fixed anymore. 9/10
December 6, 2025 at 12:21 PM
I’d love to contribute to our society, and I did until my body broke down, a sacrifice not worth it. I’d like to just celebrate this day, at least by reminiscing about everything good, but I just can’t do it. Something deep down has been shattered and it can’t be fixed anymore. 9/10
Reposted by Ellie
This matter makes me incredibly sad on a day like this. I have always loved this country. I can’t even go outside anymore to see the beauty of our nature, to swim in one of the thousand lakes or to experience the four different seasons. 8/10
December 6, 2025 at 12:21 PM
This matter makes me incredibly sad on a day like this. I have always loved this country. I can’t even go outside anymore to see the beauty of our nature, to swim in one of the thousand lakes or to experience the four different seasons. 8/10
Reposted by Ellie
And it’s not about what you contributed, as our rights are written in the law, and belong to everyone. Forget the law too, it’s the morally right thing to do to take care of the disabled and ill. What are we if we don’t take care of the most vulnerable? 7/10
December 6, 2025 at 12:21 PM
And it’s not about what you contributed, as our rights are written in the law, and belong to everyone. Forget the law too, it’s the morally right thing to do to take care of the disabled and ill. What are we if we don’t take care of the most vulnerable? 7/10
Reposted by Ellie
No one says “ok, we need to change this. We need to do better”. No and no. These people not only deny it, but they also actively speak against us, even blame us, the most vulnerable, in the media. That’s disgusting and hurtful. 5/10
December 6, 2025 at 12:21 PM
No one says “ok, we need to change this. We need to do better”. No and no. These people not only deny it, but they also actively speak against us, even blame us, the most vulnerable, in the media. That’s disgusting and hurtful. 5/10
Reposted by Ellie
There is one thing that makes me especially devastated; the fact that the state or any other representative of those who discriminate against us never acknowledges that there is a problem. 4/10
December 6, 2025 at 12:21 PM
There is one thing that makes me especially devastated; the fact that the state or any other representative of those who discriminate against us never acknowledges that there is a problem. 4/10
Reposted by Ellie
Today is Finland’s Independence Day. I usually post my photograph of our flag, but this time I want to talk about something else. Some of you know that I’ve participated in a class-action complaint against the state of Finland. 1/10
#MECFS #pwME #Photography #Finland
#MECFS #pwME #Photography #Finland
December 6, 2025 at 12:21 PM
Today is Finland’s Independence Day. I usually post my photograph of our flag, but this time I want to talk about something else. Some of you know that I’ve participated in a class-action complaint against the state of Finland. 1/10
#MECFS #pwME #Photography #Finland
#MECFS #pwME #Photography #Finland
Reposted by Ellie
Reposted by Ellie
December 7, 2025 at 10:32 PM
Reposted by Ellie
TIL about a memorial ceremony in Iceland in 2019 to mark the end of a glacier, changing the place name from Okjökull to Ok (jökull = glacier). Uncompromising wording on the bronze plaque:
"This is to acknowledge that we know what is happening and what needs to be done. Only you know if we did it".
"This is to acknowledge that we know what is happening and what needs to be done. Only you know if we did it".
December 7, 2025 at 5:17 PM
TIL about a memorial ceremony in Iceland in 2019 to mark the end of a glacier, changing the place name from Okjökull to Ok (jökull = glacier). Uncompromising wording on the bronze plaque:
"This is to acknowledge that we know what is happening and what needs to be done. Only you know if we did it".
"This is to acknowledge that we know what is happening and what needs to be done. Only you know if we did it".
Reposted by Ellie
They are coming for ND folks.
They are coming for chronically ill folks, especially #pwME and #pwLC.
Refusing to believe others about their own human experience doesn’t stop and end with gender.
Stand with trans people, always! It’s right for its own sake and it’s right tactically too.
They are coming for chronically ill folks, especially #pwME and #pwLC.
Refusing to believe others about their own human experience doesn’t stop and end with gender.
Stand with trans people, always! It’s right for its own sake and it’s right tactically too.
then, the transphobes , feeling victorious at how many people they have made unhappy and despairing in the previous week, move on to anything else that has a spectrum and the possibility of more colours than they can conceive - such hateful people - they cannot understand anything that is not THEM
December 7, 2025 at 7:46 PM
Reposted by Ellie
then, the transphobes , feeling victorious at how many people they have made unhappy and despairing in the previous week, move on to anything else that has a spectrum and the possibility of more colours than they can conceive - such hateful people - they cannot understand anything that is not THEM
December 7, 2025 at 7:07 PM
then, the transphobes , feeling victorious at how many people they have made unhappy and despairing in the previous week, move on to anything else that has a spectrum and the possibility of more colours than they can conceive - such hateful people - they cannot understand anything that is not THEM
Reposted by Ellie
From the day I had to stop working, it took nine months before I knew whether I’d be able to financially survive or not.
And out of work disability benefits don’t even cover my mortgage, never mind anything else.
So stop acting like it’s an easy “choice” to make…
And out of work disability benefits don’t even cover my mortgage, never mind anything else.
So stop acting like it’s an easy “choice” to make…
December 7, 2025 at 2:58 PM
From the day I had to stop working, it took nine months before I knew whether I’d be able to financially survive or not.
And out of work disability benefits don’t even cover my mortgage, never mind anything else.
So stop acting like it’s an easy “choice” to make…
And out of work disability benefits don’t even cover my mortgage, never mind anything else.
So stop acting like it’s an easy “choice” to make…