mori (goal: $348.15/$1,000)
kookysnell.bsky.social
mori (goal: $348.15/$1,000)
@kookysnell.bsky.social
25, they/them - hEDS, very severe ME/CFS, MCAS, POTS, all manner of brain things.

send me cats and birds. not in the same box, though.

I practice COVID-safe values.

if you don't believe in mutual aid, don't follow me.

https://linktr.ee/moriende
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November 29, 2025 at 3:35 AM
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November 29, 2025 at 12:14 AM
Reposted by mori (goal: $348.15/$1,000)
Mori lives with severe ME/CFS and has no financial support.
They're way behind on their goal - please help them catch up.
They need money for meds, suitable food and other health needs.
Anything helps!
bsky.app/profile/kook...
#mutualaid #helpsky #💕💸
my UN-SERIES zine texts on life with very severe ME/CFS are live. I'm bedridden & didn't meet my Oct goal. now need Nov's $500 for basics. if my writing resonates, please help.

read: moriende.com/category/the-un-series/

support: ko-fi.com/moriende

paypal: paypal.me/belzomalsh

CA/ven: kookysnell
November 28, 2025 at 12:00 PM
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November 29, 2025 at 12:14 AM
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November 28, 2025 at 10:56 PM
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November 28, 2025 at 10:51 PM
that's really the extent of what I wanted to say.

it's been a while since I've done one of these extended threads where I lay out all my thoughts as I'm processing them.
November 28, 2025 at 10:49 PM
what it comes down to for me is that it's a medical decision an individual should be able to make for themselves with informed consent.

the rhetoric you use when talking about it, however, is important.
November 28, 2025 at 10:44 PM
I am, of course, all about bodily autonomy, but disabled people are constant witnesses to conversations happening in public about how lives like theirs are a mistake.

I understand why they would be drawn in by people who they think would protect them.
November 28, 2025 at 10:39 PM
that's why it really clicked with me when Crutches & Spice was talking about how a lot of disabled people end up falling in with the pro-life crowd because they see the way that many liberals/leftists talk about them.
November 28, 2025 at 10:35 PM
they find this to be very uncomfortable. they "wouldn't want to live" if they were me. how could anyone, after all?

but that's the canyon between their understanding and mine: I have been through those feelings. I am in this situation whether I like it or not. I'm still a human being.
November 28, 2025 at 10:30 PM
but they're viewing it through the lens of their own life experience. they're living a life that is so different from mine, and they can't even conceive of what it took to get here.

they just see my daily reality and think of how horrible it would be to be me.
November 28, 2025 at 10:27 PM
even when it comes to more sympathetic parties... people who don't outright say those in my position don't deserve to live... they tend to be confused when they know even surface-level details of my life and then see that, even in the depth of my suffering, I still want to live.
November 28, 2025 at 10:22 PM
and it primarily comes back to these two things:

1. how they conceptualize value.

2. what they believe is a life "worth" living.
November 28, 2025 at 10:19 PM
it still feels like I'm not meant to be here sometimes, but that is more a reflection of the external messaging I get from the world on a systemic and cultural level than my own beliefs.

most people don't treat my life like it has *any* value.
November 28, 2025 at 10:15 PM
if you'd asked me maybe even half a year ago, when I was still in the midst of confronting the totality and finality of my old life's destruction, then I might've felt differently.

I've definitely had times where I felt my life was worthless.

there was so much change so quickly.
November 28, 2025 at 10:11 PM
instead, I sent them pictures of the daily supplies I use, birds I used to see, my cat Daphne, the lamp by my bedside, the Boosts I drink every day...

these were things that felt more representative of the person who is actually living today.
November 28, 2025 at 10:05 PM