Julia MV
@julialmv.bsky.social
Long COVID patient-researcher
@ Scripps Research & Patient-Led Research Collaborative
@ Scripps Research & Patient-Led Research Collaborative
We're working through the responses - the team should reply today.
November 25, 2025 at 3:28 PM
We're working through the responses - the team should reply today.
Me too. My goal is to expand there next if the intervention is successful in this cohort.
November 24, 2025 at 4:10 PM
Me too. My goal is to expand there next if the intervention is successful in this cohort.
We're still open to enrollment as of today!
November 24, 2025 at 4:09 PM
We're still open to enrollment as of today!
The team is reviewing information as soon as they can after submission. If it's been more than a one business day, please email the study team at: longcovid-t at scripps dot edu
November 21, 2025 at 9:25 PM
The team is reviewing information as soon as they can after submission. If it's been more than a one business day, please email the study team at: longcovid-t at scripps dot edu
Reposted by Julia MV
A few charts we created for this analysis.
November 21, 2025 at 2:33 PM
A few charts we created for this analysis.
Reposted by Julia MV
Not knowing about PEM is proof positive you don't know IACCs.
Even if you're not studying #MECFS, omitting the possibility of PEM in a trial for #LongCOVID (where many meet criteria for #MECFS) or for common comorbidities, like fibro, hypermobility disorders like #EDS, or #POTS is in error.
Even if you're not studying #MECFS, omitting the possibility of PEM in a trial for #LongCOVID (where many meet criteria for #MECFS) or for common comorbidities, like fibro, hypermobility disorders like #EDS, or #POTS is in error.
November 21, 2025 at 3:56 PM
Not knowing about PEM is proof positive you don't know IACCs.
Even if you're not studying #MECFS, omitting the possibility of PEM in a trial for #LongCOVID (where many meet criteria for #MECFS) or for common comorbidities, like fibro, hypermobility disorders like #EDS, or #POTS is in error.
Even if you're not studying #MECFS, omitting the possibility of PEM in a trial for #LongCOVID (where many meet criteria for #MECFS) or for common comorbidities, like fibro, hypermobility disorders like #EDS, or #POTS is in error.
Reposted by Julia MV
We are witnessing a poisonous effort to destroy what the vast majority of Americans know is a key pillar of public health.
Vaccines are responsible for 40% of the reduction in child mortality achieved in the last half century.
Vaccines are responsible for 40% of the reduction in child mortality achieved in the last half century.
November 20, 2025 at 6:23 PM
We are witnessing a poisonous effort to destroy what the vast majority of Americans know is a key pillar of public health.
Vaccines are responsible for 40% of the reduction in child mortality achieved in the last half century.
Vaccines are responsible for 40% of the reduction in child mortality achieved in the last half century.
"...but modest absolute deviations occur that may lead to different conclusions.
Beyond direct benefits to participants, decentralisation opens new avenues for randomised trials, including the facilitation of larger trials."
www.bmj.com/content/391/...
2/2
Beyond direct benefits to participants, decentralisation opens new avenues for randomised trials, including the facilitation of larger trials."
www.bmj.com/content/391/...
2/2
Agreement of treatment effects in decentralised trials versus traditional trials: meta-epidemiological study
Objective To compare treatment effects from trials designed as decentralised trials or as traditional non-decentralised trials.
Design Meta-epidemiological study.
Data source PubMed database.
Eligi...
www.bmj.com
November 18, 2025 at 6:48 PM
"...but modest absolute deviations occur that may lead to different conclusions.
Beyond direct benefits to participants, decentralisation opens new avenues for randomised trials, including the facilitation of larger trials."
www.bmj.com/content/391/...
2/2
Beyond direct benefits to participants, decentralisation opens new avenues for randomised trials, including the facilitation of larger trials."
www.bmj.com/content/391/...
2/2
Yes - love that we as a community are showing (in addition to telling) the power of patient-led research ❤️
November 17, 2025 at 8:39 PM
Yes - love that we as a community are showing (in addition to telling) the power of patient-led research ❤️
Reposted by Julia MV
The new approach is essentially to stick your head in the sand and go to the gym as a model for pandemic preparedness.
Suffice to say, such a model will not work, but I don't want to belabor the point - I have made it many times already. E.g., here:
bsky.app/profile/kgan...
Suffice to say, such a model will not work, but I don't want to belabor the point - I have made it many times already. E.g., here:
bsky.app/profile/kgan...
I recently gave a talk at Cornell and sat down with Dr. Leifer for her "Immune" podcast. I really enjoyed our wide-ranging conversation, from how I got started in science, how immunity shapes evolution, pandemic risk, and, the current state of US science.
🎧👇
podcasts.apple.com/us/podcast/v...
🎧👇
podcasts.apple.com/us/podcast/v...
Virus-immune Tug-of-war with Kristian Andersen
Podcast Episode · Immune · 11/11/2025 · 1h
podcasts.apple.com
November 14, 2025 at 5:58 PM
The new approach is essentially to stick your head in the sand and go to the gym as a model for pandemic preparedness.
Suffice to say, such a model will not work, but I don't want to belabor the point - I have made it many times already. E.g., here:
bsky.app/profile/kgan...
Suffice to say, such a model will not work, but I don't want to belabor the point - I have made it many times already. E.g., here:
bsky.app/profile/kgan...