Helen
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helenld.bsky.social
Helen
@helenld.bsky.social
350 followers 570 following 180 posts
Jeweller 💍 Scientific Illustrator 👩🏼‍🎨 Graphic Designer 👩‍💻 I ♥️ dogs🐕 rats🐀 nature🍃 bugs🐞 skulls💀 water💦 flowers🌸 music🎶
first wave #LongCovid 🌊
Team member @longcovidsos 🛟
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helenld.bsky.social
Helen @helenld.bsky.social · Jan 25
#LongCovid
A black and white image of a blurry London Underground tube train speeding through a station Text reads “JANUARY 25TH 2020 WAS 5 YEARS AGO TODAY. On January 25th 2020 on the tube, someone wearing a mask under their chin coughed on me. January 25th 2020 was 60 months ago January 25th 2020 was 261 weeks ago January 25th 2020 was 1827 days ago January 25th 2020 was 43,834 hours ago January 25th 2020 was 2,630,048 mins ago January 25th 2020 was 157,802,902 secs ago January 25th 2020 was a lifetime ago”
Reposted by Helen
rfh1955.bsky.social
"The ICB told councillors that "most patients" recover within four to nine months. But a recent review in The Lancet, external said 71% of people with the condition had symptoms for more than a year."

Well the ICB is lying then.
longcovidsos.bsky.social Long Covid SOS @longcovidsos.bsky.social · 3d
Dr Lucy Moore, chairperson of the Long Covid SOS charity, said: "If the motivation behind the closure is an ideology that long Covid is a thing of the past or over in months, it sets a concerning precedent.

#LongCovid #Charity #BBC

www.bbc.co.uk/news/article...
Closure of Mid Essex long Covid service criticised by charities
A charity says the condition is
www.bbc.co.uk
December 4, 2025 at 8:22 PM
Reposted by Helen
longcovidsos.bsky.social
If you can help us please consider donating to our fundraiser and if not, please share widely. Everything helps ♥️
Thank you

localgiving.org/fundraising/...
Long Covid SOS Campaigns Manager | Localgiving
localgiving.org
December 4, 2025 at 8:18 PM
Reposted by Helen
longcovidsos.bsky.social
Dr Lucy Moore, chairperson of the Long Covid SOS charity, said: "If the motivation behind the closure is an ideology that long Covid is a thing of the past or over in months, it sets a concerning precedent.

#LongCovid #Charity #BBC

www.bbc.co.uk/news/article...
Closure of Mid Essex long Covid service criticised by charities
A charity says the condition is
www.bbc.co.uk
December 4, 2025 at 8:18 PM
Reposted by Helen
longcovidsos.bsky.social
Thousands of us are still fighting debilitating symptoms that have changed our lives forever.

Our volunteers at Long Covid SOS were forced to become campaigners while living with life-changing illness, just to get #LongCovid recognised

Can you help us today? Donate:
localgiving.org/fundraising/...
Long Covid SOS Campaigns Manager | Localgiving
localgiving.org
December 2, 2025 at 7:45 PM
Reposted by Helen
longcovidsos.bsky.social
"We can no longer do this alone. The crisis is hiding in plain sight and we need help to act." - Dr. Lucy Moore, Chair of Long Covid SOS

We need urgent support to continue the fight for research, better treatments & recognition for people with #LongCovid

tinyurl.com/DonateLCSOS
A teal graphic with white text that reads: “Living with Long Covid forced us to raise our voices to be heard. With your support, we can continue campaigning for the recognition and the rights that people with Long Covid deserve.” Behind the text is a faint circular Long Covid SOS lifering logo in red and green. The Long Covid SOS logo appears at the bottom with the tagline “campaigning for us all.”
December 2, 2025 at 7:45 PM
Reposted by Helen
longcovidsos.bsky.social
GIVING TUESDAY 🤝
We’re asking the #LongCovid community to share & repost our donation link & help us reach a wider audience. (Or donate!)

Your support helps us:
✨ Raise awareness
✨ Advocate for better care
✨ Give people living with Long Covid a voice

localgiving.org/fundraising/...
Image announcing ‘December 2nd is Giving Tuesday’ with green and orange text on a textured paper background. Below, the Long Covid SOS logo is displayed, with the organisation’s initials forming the word ‘SOS’ around the Giving Tuesday heart symbol. Faint white Long Covid SOS lifering motifs appear in the background.
December 2, 2025 at 8:58 AM
Reposted by Helen
longcovidsos.bsky.social
We stand in solidarity with our Dutch friends at today’s PAIS protest in Den Haag. We ask our friends in the Dutch #LongCovid and #mecfs communities to support this powerful call for recognition and action
November 30, 2025 at 10:27 AM
Reposted by Helen
laylamoran.bsky.social
My thoughts are first and foremost with those who lost loved ones or live with life-limiting conditions like Long Covid. The Inquiry’s finding that an earlier lockdown could have saved 23,000 lives is devastating. We must learn lessons: act early, protect lives & jobs, and ensure Govt is prepared.
November 20, 2025 at 4:20 PM
Reposted by Helen
trishgreenhalgh.bsky.social
TOO LITTLE, TOO LATE. For shame, Mr Johnson and the team you pretended to lead. Preventable deaths on your hands. They will not return to us. You live on, rich and vainglorious.
www.theguardian.com/uk-news/2025...
‘Too little, too late’: damning report condemns UK’s Covid response
Report on handling of pandemic contains stinging criticism of ‘toxic and chaotic’ culture inside Boris Johnson’s No 10
www.theguardian.com
November 20, 2025 at 4:22 PM
Reposted by Helen
longcovidsos.bsky.social
The Module 2 report and recommendations can be read here:

covid19.public-inquiry.uk/reports/
Inquiry Module Reports - UK Covid-19 Inquiry
The independent public inquiry to examine the Covid-19 pandemic in the UK
covid19.public-inquiry.uk
November 20, 2025 at 5:37 PM
Reposted by Helen
longcovidsos.bsky.social
The Government knew the long-term risks posed by viral infections yet failing to inform the public or collect new data undermined &invalidated those with Long Covid, created stigma and delayed access to the right care.

Joint press release from the LC Groups:

www.longcovidsos.org/post/covid-i...
“TOO LITTLE, TOO LATE”, Inquiry exposes government failures behind the Long Covid crisis
Press Release: Inquiry exposes government failures behind the Long Covid crisis. Long Covid Groups welcome the Inquiry’s recognition of millions still suffering, and call for urgent national action. ...
www.longcovidsos.org
November 20, 2025 at 5:37 PM
Reposted by Helen
longcovidsos.bsky.social
UK Covid-19 Inquiry Module 2 Report: #LongCovid wasn’t just a medical issue, it was a governance failure. Millions were left without recognition or support.

@longcovidphysio.bsky.social @longcovidsupport.bsky.social @longcovidkids.bsky.social
Dark green background with a white speech bubble with the words in green “ Our stories do not end with this Inquiry and should be a wake-up call for what needs to change now as those with Long Covid still have more questions than answers.” Underneath in white “Dr Lucy Moore, Chair of Long Covid SOS”logo with an orange lifering
November 20, 2025 at 5:37 PM
Reposted by Helen
longcovidsos.bsky.social
www.longcovidsos.org/post/covid-i...
“TOO LITTLE, TOO LATE”, Inquiry exposes government failures behind the Long Covid crisis
Press Release: Inquiry exposes government failures behind the Long Covid crisis. Long Covid Groups welcome the Inquiry’s recognition of millions still suffering, and call for urgent national action. ...
www.longcovidsos.org
November 20, 2025 at 9:09 PM
Reposted by Helen
longcovidsos.bsky.social
The Inquiry report states that by October 2020 the government was sufficiently well aware of the scale and severity of #LongCovid and should have incorporated the risk of LC into decision making, as well as communicated the risk of long term sequelae to the public.

They failed us.
November 20, 2025 at 9:09 PM
Reposted by Helen
longcovidsos.bsky.social
Our Chair Dr Lucy Moore quoted in the BBC News Live blog on the Covid-19 Inquiry Module 2 Report:

“…those with Long Covid still have more questions than answers.”

#LongCovid
A screen capture from BBc News Live feed time stamped 19:41 Ministers 'slow to acknowledge seriousness of long Covid' Image showing a sign saying “NEED TO REST, FORCED TO PROTEST #RESEARCHLONGCOVID” Photo attributed to GETTY IMAGES Text reads: Today's report also addresses long Covid, and whether the government offered sufficient warning of the risks of the condition. Even once it became clear there were risks, there were "no public health campaigns" focused on this area, the report says. This meant people were "unable to make their own, fully informed decisions about the levels of risk they were prepared to tolerate". Screen capture from BBc News live blog, text reads: "The UK government - in particular Mr Johnson - remained slow to acknowledge the seriousness and prevalence of the condition, " the report adds. It concludes that long-term conditions must be built into any strategy for future pandemics. Long Covid groups have welcomed the inquiry's recognition of those still suffering, but some see it as just the first step. "Our stories do not end with this inquiry and should be a wake-up call for what needs to change now as those with long Covid still have more questions than answers," says Lucy Moore, chair of the charity long Covid SOS.
November 20, 2025 at 9:09 PM
Reposted by Helen
bma.org.uk
23,000 deaths in England could have been prevented in the first wave of Covid if lockdown had started a week earlier, a new report by the Covid Inquiry has found.

Read more in The Doctor Magazine👇
thedoctor.bma.org.uk/articles/hea...
Government response to Covid was ‘too little too late’, inquiry finds
Report says 23,000 deaths could have been avoided with earlier lockdown
thedoctor.bma.org.uk
November 20, 2025 at 8:32 PM
Reposted by Helen
broadwaybabyto.bsky.social
We never had to capitulate to Covid.

If we had taken collective steps to protect one another, we would have been able to drastically reduce transmission.

I will never understand why so many people were willing to subject themselves to repeat infections when there was (and is) another path
stairway-to-kevin.bsky.social Kevin Ball @stairway-to-kevin.bsky.social · 24d
“we’re all gonna get it” is every bit as defeatist and doomerist as “we can’t do anything about climate change”. why do so many who are so fervent about protecting the environment refuse to acknowledge this? is our collective health not equally important?
gayfabfourfan.bsky.social #9 Dream @gayfabfourfan.bsky.social · 25d
“Well everyone else was doing it too” is never a worthy excuse. Just because practically no one masks or keeps up with the alarming science on COVID doesn’t exempt everyone from responsibility.

#MaskUp and protect yourself and others. In the future, you’ll be glad you did.
November 12, 2025 at 11:05 PM
Reposted by Helen
longcovidsos.bsky.social
Thanks to our amazing volunteer @helenld.bsky.social for speaking up about just how awful #LongCovid *still* is for so many of us.
November 13, 2025 at 2:53 PM
helenld.bsky.social
#LongCovid #Charity #Volunteers #Fundraising
@longcovidsos.bsky.social
www.bbc.co.uk/news/article...
Gloucestershire woman says long Covid has 'ruined' her life
Helen Lunt Davies said she had struggled with heart palpitations, migraines and fatigue.
www.bbc.co.uk
November 13, 2025 at 2:50 PM
Reposted by Helen
bhanlon15.bsky.social
KPBS News: 'Obesity drug seen as effective for long COVID, gets clinical trial'

“The Scripps trial is unique because it’s the first long COVID clinical trial that enables patients to participate remotely,” said John Redd, CEO of SILC

www.kpbs.org/news/science...
Obesity drug seen as effective for long COVID, gets clinical trial
COVID-19 symptoms that don’t go away affect hundreds of millions worldwide. Scripps Research is recruiting people with long COVID to test a weight-loss medication that shows promise in treating the il...
www.kpbs.org
November 8, 2025 at 3:42 PM
Reposted by Helen
profstevegriffin.bsky.social
I've never really understood the logic of "targeted vaccination".

Of course, money is a huge issue and we seek to get the most out of every £ spent.

Of course COVID and flu waves would be far worse without it.

But, what doesn't sit well for me is the following...
November 6, 2025 at 12:46 PM
Reposted by Helen
longcovidsos.bsky.social
We are proud to share a deeply meaningful publication: the final paper co-authored by our late co-founder, Ondine Sherwood.

The paper identifies the nine top priorities for Long Covid research. This work honours her legacy and the power of patient-led science. 🧵
ALT text for cover image: An image that says 'frontiers ORIGINAL RESEARCH article Front. Public Health, 06 November 2025 Sec. Public Health Education and Promotion Volume 13 2025 https:/.b/./g/0 Co-creating a social science research agenda for Long Covid. Oonagh Cousins, Maaret Jokela-Pansini, Ella Barnard, Jo Dainow, Nisreen Alwan, Mark A Faghy, Caroline Dalton, Eileen Gilmour, Gail Davies, Ondine Sherwood, lan Patel, Lotus Westerhof, Beth Greenhough. There is a Long Covid SOS logo at the bottom of the image.
November 6, 2025 at 1:01 PM
Reposted by Helen
longcovidsos.bsky.social
As clinics close and treatment is getting harder to find, help us to support the thousands living with the condition. Don’t let them be left behind.

Share this post or support us today 

🔗 tinyurl.com/535u79va
Long Covid SOS Campaigns Manager | Localgiving
tinyurl.com
October 30, 2025 at 5:51 PM
Reposted by Helen
longcovidsos.bsky.social
Long Covid SOS is shining a light on what #LongCovid really means. So many people still don’t understand, they know the term but not the reality of the relapses and the daily battles.
October 30, 2025 at 5:51 PM
Reposted by Helen
longcovidsos.bsky.social
Recently we asked our #community to share their experiences of living with #LongCovid. What they told us was powerful, urgent and impossible to ignore.
October 30, 2025 at 5:51 PM