Fran H
@franhaddock.bsky.social
Severe ME | Activism from bed | Small joys
She/her
She/her
Will a day come when my friends aren’t so unbearably, unimaginably sick?
January 28, 2025 at 4:55 PM
Will a day come when my friends aren’t so unbearably, unimaginably sick?
My friends, they are so strong. Not in the way you see on TV. In the way it takes to survive every day with severe ME. With grit, resilience, humour, hope, acceptance, despair. Why should we have to be strong like this. Is each other all we have? Or are there others who can share the weight?
January 28, 2025 at 4:55 PM
My friends, they are so strong. Not in the way you see on TV. In the way it takes to survive every day with severe ME. With grit, resilience, humour, hope, acceptance, despair. Why should we have to be strong like this. Is each other all we have? Or are there others who can share the weight?
I wish we could meet for cake, watch a film under the covers or dance under the trees. Instead we exchange messages of advice and support, or rambling rants, sometimes memories or photos, sometimes gifts carefully chosen with sacrificed energy, sometimes just a word.
January 28, 2025 at 4:54 PM
I wish we could meet for cake, watch a film under the covers or dance under the trees. Instead we exchange messages of advice and support, or rambling rants, sometimes memories or photos, sometimes gifts carefully chosen with sacrificed energy, sometimes just a word.
Promised things will get better but the reality is often so different. Those who do get better often want nothing to do with those still in the darkest depths, too traumatised by the memories or poisoned by ableist narratives.
January 28, 2025 at 4:53 PM
Promised things will get better but the reality is often so different. Those who do get better often want nothing to do with those still in the darkest depths, too traumatised by the memories or poisoned by ableist narratives.
You never get used to it. Maybe it gets normalised to some extent because we’ve all been living like this for a good while now.
Alone and together. Missing and forgotten.
Alone and together. Missing and forgotten.
January 28, 2025 at 4:53 PM
You never get used to it. Maybe it gets normalised to some extent because we’ve all been living like this for a good while now.
Alone and together. Missing and forgotten.
Alone and together. Missing and forgotten.
They live inside my phone. But they are real, scattered around the word in their own homes, living in bed just like me.
Some don’t have the care they need to get through the day. Some of them are actively harmed rather than ‘just’ neglected.
Some of them aren’t sure how they can continue.
Some don’t have the care they need to get through the day. Some of them are actively harmed rather than ‘just’ neglected.
Some of them aren’t sure how they can continue.
January 28, 2025 at 4:52 PM
They live inside my phone. But they are real, scattered around the word in their own homes, living in bed just like me.
Some don’t have the care they need to get through the day. Some of them are actively harmed rather than ‘just’ neglected.
Some of them aren’t sure how they can continue.
Some don’t have the care they need to get through the day. Some of them are actively harmed rather than ‘just’ neglected.
Some of them aren’t sure how they can continue.
Every day I wake up, unrested and heavy, and open up my messages.
My friends, they are so sick.
They’re crashing, in pain, some of them can’t eat, some of them can’t see their phone, can’t stand, can’t think. So much suffering. Day after day after day.
My friends, they are so sick.
They’re crashing, in pain, some of them can’t eat, some of them can’t see their phone, can’t stand, can’t think. So much suffering. Day after day after day.
January 28, 2025 at 4:51 PM
Every day I wake up, unrested and heavy, and open up my messages.
My friends, they are so sick.
They’re crashing, in pain, some of them can’t eat, some of them can’t see their phone, can’t stand, can’t think. So much suffering. Day after day after day.
My friends, they are so sick.
They’re crashing, in pain, some of them can’t eat, some of them can’t see their phone, can’t stand, can’t think. So much suffering. Day after day after day.
Covid precaution wise- the visitors (my mum, sister and nephew) did a pooled pluslife test for covid, & had no symptoms of anything, we had 2 air filters & windows open & all wore FFP3 auras except Lachlan. Everyone hand san’d with hypochlorous acid, and I kept my mask on a while after they’d left
January 19, 2025 at 10:23 AM
Covid precaution wise- the visitors (my mum, sister and nephew) did a pooled pluslife test for covid, & had no symptoms of anything, we had 2 air filters & windows open & all wore FFP3 auras except Lachlan. Everyone hand san’d with hypochlorous acid, and I kept my mask on a while after they’d left
I was so worried because I’m really not used to kids and obviously my body doesn’t let me be very loud or enthusiastic. But he didn’t mind. He also didn’t mind the masks at all. Gives me hope that was can build a good relationship despite my health and covid boundaries and him living so far away
January 19, 2025 at 10:21 AM
I was so worried because I’m really not used to kids and obviously my body doesn’t let me be very loud or enthusiastic. But he didn’t mind. He also didn’t mind the masks at all. Gives me hope that was can build a good relationship despite my health and covid boundaries and him living so far away
knew who we were (from FaceTime too), he was obsessed with Salem (the cat). And let me pick him up (which my arms also somehow let me do!!?) and look after him a little tiny bit. We managed to find loads of things he was interested in just in my bedroom (helped by my large collection of plushies 😆)
January 19, 2025 at 10:19 AM
knew who we were (from FaceTime too), he was obsessed with Salem (the cat). And let me pick him up (which my arms also somehow let me do!!?) and look after him a little tiny bit. We managed to find loads of things he was interested in just in my bedroom (helped by my large collection of plushies 😆)