Community video for Severe ME awareness day, please share and tag politicians and public figures who need to see this!

All participants IG handles tagged at the end 💙💙

#SevereME #SevereMEAwarenessDay #MECFS #MillionsMissing #UnitedForME

A few days ago we heard the UK’s government delivery plan for ME will contain NO additional funding. How will this make a meaningful difference to #pwME?

So @wesstreeting.bsky.social and @ashleydaltonmp.bsky.social , please listen our lived experiences, and #FundThePlan

@thereforme.bsky.social

A few photos from our @rspb.bsky.social Big Garden Birdwatch yesterday. Before I had severe ME I was an avid environmentalist and nature enthusiast. The prior 2 years I’ve been too sick to look out of the window, or sit up, or look through binoculars, or open the curtain. So this was a joy

I was able to spend an hour or so with my 2 year old nephew yesterday for the first time in over a year (due to a combo of me being too sick, him have Covid last time and them living the other side of the UK).

It was so sweet and magical. He’d been told all about Auntie Fran and Uncle Dan so