DETERMIND Research Study
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determindstudy.bsky.social
DETERMIND Research Study
@determindstudy.bsky.social
34 followers 110 following 28 posts
DETERMIND is an ambitious research project funded by the NIHR Three Schools’ Dementia Research Programme that aims to find out how we can make dementia care and outcomes in the UK more equal. https://determind.org.uk/about-determind/
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determindstudy.bsky.social
#UKDisabilityHistoryMonth #UKDHM
A written piece about UK Disability History Month. It reads: UK Disability History Month is a chance to reflect on the theme, "Disability, Life and Death". Over the last year, there have been growing, concerning conversations on the value of disabled lives in policy, laws and society. When speaking to people living with dementia and those who support them, it is clear they are experiencing the knock-on effects of policy. Changes to PIP eligibility, NHS privatisation and funding for local community groups all have significant impacts on wellbeing. Managing one’s own health with a lack of support is a common experience, but one that nobody should have to go through. So, we would like to take the opportunity this month to celebrate the immense resilience from this community, both past and present. Reflection is only impactful if it reaches beyond this month and into practice. Within research, those with disabilities should be prioritised in designing projects and never face challenges to being part of them. Only then can we capture the most relevant concerns and use these to influence policy and change.
November 25, 2025 at 2:34 PM
determindstudy.bsky.social
What do our participants think of DETERMIND? At our recent conference, we gathered feedback and generated new ideas for future involvement! #dementiaresearch
A group of six large sheets of paper with feedback from study participants. At the base of each sheet are illustrations of pathways across the study sites, including London, Brighton Beach and rural fields. A researcher presenting in front of a bright green slide titled 'Discussion time'. She is asking for feedback from study participants and looking out towards the crowd.
November 13, 2025 at 8:41 AM
determindstudy.bsky.social
Did you know that people living with dementia are more likely to report inadequate support from care services if:

Their carer is younger, they have more functional limitations, live in a rural area or have mixed dementia compared to Alzheimer’s disease?

More info from our conference coming soon!
A screen at a conference displaying a table titled 'costs of health and social care services (per year). There are two people looking at it in the foreground of the photo. A group of people sat at chairs in staggered seating listening to a talk at a conference. They are facing side-on to the camera.
October 28, 2025 at 9:23 AM
determindstudy.bsky.social
The DETERMIND participant conference took place last week in London! It was great to bring together study participants, staff and analysts to share findings and plans for future. Topics discussed included self-funding of care, service use inequalities, decision making and diagnosis timing.
#research
A group photo taken at the DETERMIND participant conference. There are thirty people in a lecture theatre with carpeted floors, green walls and light wooden desks. The front two rows are sitting and the back row standing. They are all smiling and laughing, looking at the camera.
October 27, 2025 at 12:43 PM
determindstudy.bsky.social
Our London research team travel each week to interview people living with dementia and their supporters across local boroughs. If we're a bit early, we take a break to wander around the area and take some photos. We hope you can take a little break today too and enjoy these sights as much as we did!
Croydon's skyline on a bright and clear summer's day. The sky is a bright blue and sits above a green park with trees around the edge. There is a modern tall building on the skyline. Anerley's green man sign, showing a man with green facial features and skin made of oak leaves. A Dulwich woodland clearing in the early morning light. There is a tree stump in the clearing, surrounded by hundreds of green leaves in bushes below and trees above. A tram on its way to Wimbledon, pulling into the tram stop. The tram is mostly bright green, with a stripe of blue at its base.
October 14, 2025 at 7:48 AM
determindstudy.bsky.social
Ben Hicks presented findings from the DETERMIND study at @alzheimereurope.bsky.social conference in Bologna. This work looked at whether an early diagnosis of dementia is better for quality of life in people living with dementia and their carers after one year post diagnosis.

#35AEC
A man in a shirt is standing at a podium talking into a microphone to an audience who appear to be listening intently. A PowerPoint slide on a projector screen is party visible. There is an illustration of a sand timer and a brain and the text reads 'Temporal: Time between noticing symptoms and diagnosis (early diagnosis <2 years). Cognitive severity: CDR<1, sMMSE≥ 20)'. A man in a shirt is standing at a podium in a lecture theatre talking to an audience. They have a slide on a projector screen with the heading '....Emergence of 'Timely' discourse'. Underneath the heading there are three bullet points reading 'Lack of evidence has led to the emergence of the 'timely' discourse.', 'Timely is a more person-centred, subjective approach to diagnosis. Diagnosis delivered when best for the person and family. If diagnosis unwanted then no diagnosis is considered 'timely'.', 'Emerging but weak evidence (Woods et al 2018) suggests this may be beneficial for both person with dementia and carer. Carers report 3-4 years post-diagnosis.'
October 9, 2025 at 4:10 PM
determindstudy.bsky.social
A great day at the Nottingham Centre for Dementia Showcase which focused on ‘Rethinking dementia: collaboration, co-design and change’. A great mix of presenters and an interesting table discussion! Alice presented work from her PhD on ‘addressing dementia diagnosis inequalities’.
A photo taken from the perspective of someone attending a conference. There is a laptop set up in front of the camera, with the title slide 'Addressing dementia diagnosis inequalities' on its screen. It sits on a glossy wooden table, which also has a booklet for the conference sitting next to the laptop. In the background is a large presentation screen with a slide suggesting questions for a roundtable discussion.
October 7, 2025 at 10:58 AM
determindstudy.bsky.social
Happy #InternationalDayOfOlderPersons! It is rare that the time and efforts that older people put towards caring for others are truly appreciated. So, from our DETERMIND team, we'd like to send a huge thank you and encourage others to join in with the celebrations :)
A graphic showing the white DETERMIND study logo. The logo is a drawing of a wooden signpost pointing in two directions with flowers underneath it. On the arrow signs there are drawings symbolising care and money. The logo is on a green background with white text curved around it saying 'The DETERMIND Study celebrates International Day of Older Persons'
October 1, 2025 at 1:38 PM
determindstudy.bsky.social
The Gateshead research team recently visited participants in a beautiful town in the North Pennines. Winding roads led the team on a rural research adventure, where they were warmly welcomed by the local community.

#DementiaResearch #RuralDementia
A winding countryside road through vast, open and hilly countryside. There are old wall ruins on the right of the road and green trees and heath on the left. There are several sheep dotted throughout the landscape A sheep is standing in the heath looking at the camera and is surrounded by hilly countryside. A winding road is visible in the background. The clouds in the sky are grey and dramatic. A road runs alongside hilly purple and green heathland. The landscape is dotted with jagged rock, small trees and bracken.
September 23, 2025 at 2:19 PM
determindstudy.bsky.social
What did you do after the bank holiday? We reunited our team to spend the day planning an application at the @empowerdementianet.bsky.social Sandpit Event. It was a real joy to meet others passionate about making a difference to the lives of those living with dementia and those who support them :)
A group of six happy team members, dressed semi-casually, in front of a projector screen. They all work on the DETERMIND dementia study together and are stood posing for the photo. On the screen is the title of the event 'Empower Dementia Network + Sandpit Event'. It is surrounded by illustrations of some trees and two characters holding flowers with a butterfly flying between them.
August 28, 2025 at 3:20 PM
determindstudy.bsky.social
PhD student @isaac-dc.bsky.social had a great time in Toronto at their first @alzassociation.bsky.social‬ international conference. They enjoyed learning about new community-based interventions and co-designed respite programs, as well as presenting their own research and lots of poutine! #AAIC25
A researcher is standing next to their research poster at a scientific conference, they are smiling and holding a coffee. The title of the poster is Predicting Delayed Diagnosis in Dementia: The Impact of Coping Style.
August 21, 2025 at 10:07 AM
determindstudy.bsky.social
Welcome to the DETERMIND research project! We are an ambitious team aiming to find out how we can make dementia care and outcomes in the UK more equal. Keep an eye out for updates on the exciting next stage of the project, new findings, publications, and opportunities to get involved.
A cartoon drawing of a wooden sign post with two arms pointing in different directions. One arm of the sign post has a symbol of a hand holding a heart on it, representing care, the other arm of the sign post a pound sign symbol on it. At the base of the sign post is a tuft of grass and two flowers. The word DETERMIND features next to the cartoon in bold capital letters. Underneath this are the words finding a fairer path to dementia care. The cartoon and the text are in the colour green.
August 18, 2025 at 1:23 PM